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X-WR-CALDESC:Events for Virginia Bleeding Disorders Foundation
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DTSTART;VALUE=DATE:20240410
DTEND;VALUE=DATE:20240411
DTSTAMP:20260428T001543
CREATED:20231018T211442Z
LAST-MODIFIED:20240410T164545Z
UID:6493-1712707200-1712793599@vahemophilia.org
SUMMARY:2024 Camp Youngblood Application Due!
DESCRIPTION:Pre-Screening Link\n*Wednesday\, April 10\, 2024: Registration will close\, and no other applicants will be accepted. All parts of the online camp application must be complete.*\nThe Virginia Hemophilia Foundation (VHF)\, the Hemophilia Association of the Capital Area (HACA)\, and Camp Holiday Trails (CHT) are teaming up again for Camp Youngblood (CYB) in 2024! \nCamp Youngblood is a week-long overnight camp at CHT for children ages 7-17 with inherited bleeding disorders\, their siblings\, and children of members of the inherited bleeding disorder community that reside within the VHF or HACA coverage area. Kids enjoy a week of fun and learning with others that are faced with similar challenges and life experiences. Go here to learn more about the admission guidelines. \nDates: Sunday\, July 14 – Friday\, July 19\, 2024 \nNEW THIS YEAR: Friday\, July 19\, will be “CYB Family Friday.” Camper families are invited to join in on all the fun starting at 9 a.m. Lunch will be provided by CHT\, and everyone will depart at 2 p.m. During this time\, there will be a mini “family day camp” that will allow campers and their families a glimpse of Camp Magic together! VHF/HACA are looking into providing an overnight stay at a hotel close to CHT on that Thursday\, July 18; in the pre-screening survey\, please let us know if this would be of interest to you and we will be in touch with more details. \nLocation: Camp Holiday Trails\, 400 Holiday Trails Ln\, Charlottesville\, VA 22903 \nThank you to our Camp Youngblood sponsors: Bayer\, CSL Behring\, Genentech\, Grifols\, Novo Nordisk\, Takeda\, and VCU-HTC \nThank you to our Camp Youngblood Family Education sponsors: CSL Behring\, Genentech\, Novo Nordisk\, and Takeda \n\nAPPLICATION PROCESS\nOpen Enrollment Application: The Camp Youngblood application process is open enrollment and not first come first served. This will allow VHF\, HACA\, and CHT the chance to review applications and manage the roster according to the application/admission guidelines. *Must adhere to all application deadlines to be considered* Go here to learn more about the admission guidelines. \n1. Pre-screening – This is required for ALL applicants\, even returning campers. \nThe enrolling parent/guardian will fill out the short pre-screening survey to determine eligibility » Go here to fill out the pre-screening survey \nWithin one week of filling out the pre-screening survey you will receive an email from either VHF or HACA\, if you do not\, please email Heather at heather@vahemophilia.org or 804-740-8643. \nIf you are NOT eligible you will receive an email from either VHF or HACA letting you know the reason you do not meet the eligibility requirements and a link to the other summer camp offerings from CHT. \nIf you ARE eligible\, you will receive an email from either VHF or HACA with a link to the full CYB application and other important details. \n2. Registration – \nUse the link provided in the email response to your pre-screening survey and fill out the full CYB application form.\nThe form and the application process are managed by CHT\, if you have questions or concerns regarding this part of the process contact CHT directly at program@campholidaytrails.org or 434-977-3781. \nWednesday\, April 10\, 2024: Registration is closed\, and no other applicants will be accepted. All parts of the online camp application must be complete. \n3. Submit All Paperwork and Medical Forms – \nTuesday\, May 28\, 2024: All camp paperwork must be finalized and medical assessment due – firm deadline. \n4. Confirmation and Registration Fee – \nThursday\, May 30\, 2024: VHF & HACA will email their respective campers and request written confirmation via email response of attendance or camper(s) will be removed from roster. Before removing from roster\, every effort is made to contact families (text\, phone call\, individual follow up email). Registration fee link will be included in this email\, to be collected individually by VHF/HACA. Registration fee is $25 per camper. Registration Fee Deadline is Monday\, June 3\, 2024. \n5. Acceptance Email! \nFriday\, June 7\, 2024: CHT sends welcome email to all campers with confirmed spots. \n\nCHT COVID Vaccination Policy Update: CHT consulted with their Medical Director\, Dr. Ina Stephens and CHT’s Medical Advisory Committee (MAC)\, and they have decided to update their COVID protocols for Summer 2024. CHT will no longer require campers\, staff\, or volunteers to be vaccinated against COVID. They will continue to monitor COVID and community health issues within their region and the impact on medically complex children. They strongly recommend families to speak with their healthcare providers about vaccinating their child against COVID and any other recommended pediatric immunizations. \nPlease rest assured that they will continue to implement rigorous health and safety measures – including enhanced cleaning protocols\, monitoring symptomatic individuals\, and requiring all campers\, staff\, and volunteers to complete a rapid COVID test during check-in on the first day of CYB. The Med Team and year-round staff are well trained to monitor and respond to any potential health concerns and they will remain vigilant in their efforts to create a healthy and secure environment. \nWe understand that this update may raise questions\, and CHT encourages you to reach out to their Director of Programs\, Caitlin Carroll\, MSW at program@campholidaytrails.org.
URL:https://vahemophilia.org/event-program/2024-camp-youngblood-application-process-and-pre-screening-survey/
LOCATION:VA
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240419
DTEND;VALUE=DATE:20240422
DTSTAMP:20260428T001543
CREATED:20240206T021553Z
LAST-MODIFIED:20240402T033747Z
UID:6602-1713484800-1713743999@vahemophilia.org
SUMMARY:COMMUNITY MEMBER REGISTRATION – Annual Meeting in Natural Bridge
DESCRIPTION:RSVP Deadline: Monday\, March 18\, 2024\nVHF’s Annual Meeting brings together the inherited bleeding disorder community to share information on a wide variety of topics and it is a great opportunity for networking and support for individuals and families. \nAnnual Meeting – What To Expect: The event will kick off Friday night with an educational dinner and a family fun movie night. Then we will begin Saturday morning with breakfast and time to visit with our generous industry sponsors to learn about the latest treatments and therapies\, followed by education sessions on topics such as research and innovation\, benefits of Tai Chi and meditation\, Lyman Fisher Scholarship winners recognition\, VHF chapter updates\, and on-site childcare with A Helping Hand and children and teen programming with Camp Holiday Trails. Stay tuned for more information on the Bleeding Disorders Awareness Education Celebration that will take place on Sunday\, April 21st! \nOvernight accommodations at The Natural Bridge Hotel & Conference Center are available on the nights of Friday\, April 19th and Saturday\, April 20th. \nEducational programs\, scheduled meals\, community events\, and Friday & Saturday night overnight accommodations are provided for constituents that live in the VHF coverage area. There is a $25 registration fee per household » Go here to pay your registration fee \n*If you are a constituent that lives outside of the VHF coverage area and you are interested in registering for this meeting\, please email heather@vahemophilia.org for more information. \nFriday\, April 19th – Tentative Schedule (Agenda Coming Soon!): \n7:00 pm Educational Dinner \n8:00 pm Family Friendly Movie \n\nSaturday\, April 20th  \n8:30 am – 10:00 am Breakfast and visit exhibits \n10:00 am – 4:00 pm Education presentations\, visit exhibits\, lunch and snack breaks\, and more! \n4:00 pm Meeting wrap-up \n6:00 pm World Hemophilia Day – Community Event and Dinner \n\nSunday\, April 21st \n8:30 am to 9:30 am Bleeding Disorders Awareness Month Celebration Breakfast at The Natural Bridge Hotel \nTime and Location TBD – Bleeding Disorders Awareness Education Celebration *Community celebration event is optional and is not a part of the annual meeting. \n\nThank you to our current Annual Meeting sponsors – \nPREMIER SPONSORS \n\nCSL Behring\nPfizer\nSanofi\n\nPLATINUM SPONSORS \n\nAccredo\nBayer\nBiomarin\nGenentech\nNovo Nordisk\nTakeda\n\nCORPORATE SPONSORS \n\nBioMatrix\nChildren’s Hospital of The King’s Daughter’s (CHKD) and the University of Virginia’s (UVA) 340B Factor Program\nCottrill’s Pharmacy\nCVS\nDrugCo Health\nOctapharma\nOptum\nSuperior Biologics\nVCU-HTC\n\nFRIEND \n\nHemophilia Alliance\n\n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/community-member-registration-annual-education-meeting-in-natural-bridge/
LOCATION:Natural Bridge Historic Hotel\, 15 Appledore Ln\, Natural Bridge\, VA\, 24578\, United States
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240420T083000
DTEND;TZID=America/New_York:20240420T160000
DTSTAMP:20260428T001543
CREATED:20240206T224145Z
LAST-MODIFIED:20240206T225743Z
UID:6607-1713601800-1713628800@vahemophilia.org
SUMMARY:SPONSORS AND PRESENTERS REGISTRATION - Annual Meeting in Natural Bridge
DESCRIPTION:REGISTER HERE\nWe appreciate your interest and support of our 2024 Annual Meeting\, contact Kelly Waters at kelly@vahemophilia.org or 804-740-8643 for more information about sponsorship. Closer to the date of the event we will send a detailed email to all registered industry supporters and presenters. This email will include the agenda\, booth set up times\, what to bring\, how many people to expect\, etc. \nOvernight accommodations at The Natural Bridge Hotel & Conference Center are available on the nights of Friday\, April 19th and Saturday\, April 20th. \n\nSaturday\, April 20th (Tentative Timeline) \n7:00 am – 8:00 am Exhibit set-up (for those that plan to arrive on Friday\, April 19th there will be time to set-up your exhibit that evening) \n8:30 am – 10:00 am Breakfast and visit exhibits \n10:00 am – 4:00 pm Education presentations\, visit exhibits\, lunch and snack breaks\, and more! \n4:00 pm Meeting wrap-up \n\nPLEASE NOTE: We will not make hotel reservations for speakers\, Industry Agents OR Industry Agents who are Consumers. However\, we do have a room block at The Natural Bridge Hotel & Conference Center and they will extend the group rate of $129. There is a limited number of these rooms and they will be first come first served. If you run into any issues\, please do not hesitate to reach out to heather@vahemophilia.org. \nHow to reserve your room (Room block will close Monday\, March 18th): \nTo reserve over the phone\, please call the hotel at 540-291-2121 and reference the following information: \n\nGroup Name: VHF 2024 Annual Education Meeting\nGroup Code:  041924VHF\nEvent Dates: April 19\, 2024 – April 21\, 2024\n\nTo book online\, please visit the following link: https://naturalbridgeva.com/natural-bridge-va-lodging/ \n\nFor Industry Agents who are Consumers and a VHF Constituent – How to register your family: If your family members plan to attend the meeting go here to register them. As a reminder we still ask that you register yourself as an industry representative and make your own hotel reservation. \nVHF makes every effort to ensure that the members of the bleeding disorders community are always able to make a clear distinction between its own activities and those of Industry. Further\, it is essential that we create beneficial and pressure – free experiences for our community members\, and to protect participants in VHF events and programs. Accordingly\, VHF has developed a set of standards. Go here to read VHF’s Industry Standards. \nThank you for your continued support!
URL:https://vahemophilia.org/event-program/sponsors-and-presenters-registration-annual-meeting-in-natural-bridge/
LOCATION:Natural Bridge Historic Hotel\, 15 Appledore Ln\, Natural Bridge\, VA\, 24578\, United States
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240421T083000
DTEND;TZID=America/New_York:20240421T113000
DTSTAMP:20260428T001543
CREATED:20240207T191254Z
LAST-MODIFIED:20240412T165922Z
UID:6613-1713688200-1713699000@vahemophilia.org
SUMMARY:NATURAL BRIDGE – Bleeding Disorders Awareness Education Celebration
DESCRIPTION:To RSVP email heather@vahemophilia.org \nThe VHF Bleeding Disorders Awareness Education Celebration is an exciting new event that was designed to raise awareness\, increase education\, honor the hard work and dedication in the bleeding disorders community\, and best of all CELEBRATE and enjoy time with friends and family in a unique setting! \nWhat to expect: Check back here soon for more details! \nParticipation is open to those with an inherited bleeding disorder and their immediate family and/or household members who live within VHF territory as well as VHF donors\, volunteers\, friends and extended family. \n\nThank you to our generous sponsors:  \nGOLD SPONSOR\nTakeda \nCORPORATE SPONSORS\nBioMarin\, CSL Behring\, DrugCo Health\, Octapharma\, and Sanofi \nFRIEND SPONSORS\nBioMatrix\, and Cottrill’s Pharmacy \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/natural-bridge-bleeding-disorders-awareness-education-celebration/
LOCATION:Natural Bridge Historic Hotel\, 15 Appledore Ln\, Natural Bridge\, VA\, 24578\, United States
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
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