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X-ORIGINAL-URL:https://vahemophilia.org
X-WR-CALDESC:Events for Virginia Bleeding Disorders Foundation
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DTSTART;VALUE=DATE:20240116
DTEND;VALUE=DATE:20240306
DTSTAMP:20260427T222442
CREATED:20231208T173939Z
LAST-MODIFIED:20231219T210932Z
UID:6545-1705363200-1709683199@vahemophilia.org
SUMMARY:VIRTUAL – Virginia General Assembly Weekly Check In
DESCRIPTION:RSVP HERE\n  \nJoin VHF & the Hemophilia Association of the Capital Area (HACA) for an informal\, virtual General Assembly check-in. We will gather to get an overview of the past week’s events in the Virginia General Assembly and get insight from our advocacy consultant\, Becky Bowers-Lanier\, on what to look for\, trends and any actions that will need to be taken about proposed legislation of interest to the bleeding disorders community. These check-ins are open to all community members. \nPlease note that these are informal weekly check-ins and if you register you are not required to attend all dates listed – feel free to join us for one session or for all! \nWEEKLY CHECK IN DATES: \nTues.\, Jan 16\, 2024  4:30 PM\nTues.\, Feb 6\, 2024   4:30 PM\nTues.\, Feb 13\, 2024  4:30 PM\nTues.\, Feb 20\, 2024  4:30 PM\nTues.\, Feb 27\, 2024  4:30 PM\nTues.\, March 5\, 2024  4:30 PM \n» RSVP HERE Once you RSVP you will receive a zoom link separately via email from heather@vahemophilia.org – you will use the same link each week. \n» Go here to download the 2024 VHF Advocacy Calendar \n\nAs we gather virtually to discuss\, share and learn\, we ask that all VHF virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/virtual-virginia-general-assembly-weekly-check-in-2/
LOCATION:Zoom
ORGANIZER;CN="Kelly Waters%2C VHF Executive Director":MAILTO:info@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240302T110000
DTEND;TZID=America/New_York:20240302T140000
DTSTAMP:20260427T222442
CREATED:20240206T000304Z
LAST-MODIFIED:20240304T001720Z
UID:6590-1709377200-1709388000@vahemophilia.org
SUMMARY:VIRGINIA BEACH – Bleeding Disorders Awareness Month Community Event at Topgolf
DESCRIPTION:RSVP Here!\nGet active with your bleeding disorders community and help us to tee off Bleeding Disorders Awareness Month! Join VHF on Saturday\, March 2nd in VIRGINIA BEACH for education\, celebration\, community building and opportunities to enhance health and fitness at Virginia Beach Topgolf. We look forward to exploring how you can take charge of your bleeding disorder and life\, while having fun learning about the game of golf. \nEvent is free – lunch and two hours of golf will be provided. Participation is limited to those with an inherited bleeding disorder and their immediate family and/or household members who live within VHF territory. \nWith special guest Perry Parker! \nJoin Pro Golfer Perry Parker as he discusses finding your passion and working hard to meet your goals. Perry is a patient advocate for CSL Behring\, who has taken part in three U.S. Opens and won five times on the Canadian Tour in a more than 30 years as a professional golfer. Perry continues to be active on the Australian Legends Tour and European senior tours. He also hosts an annual clinic for kids taking part in CSL Behring’s Gettin’ in the Game℠ Junior National Championship\, a sports competition for kids and teens with bleeding disorders. Perry also will provide some golf tips at the driving range. \n\nThank you to our generous sponsors: BioMarin\, CSL Behring\, Sanofi\, Superior Biologics\, and Takeda \nThank you to our Top Golf 2 hour – unlimited gameplay sponsors Colburn-Keenan Foundation\, Inc. \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/virginia-beach-bleeding-disorders-awareness-month-celebration-at-topgolf-2/
LOCATION:Topgolf Virginia Beach\, 5444 Greenwich Road\, Virginia Beach\, VA\, 23462\, United States
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240303T110000
DTEND;TZID=America/New_York:20240303T140000
DTSTAMP:20260427T222442
CREATED:20240206T001409Z
LAST-MODIFIED:20240304T004745Z
UID:6591-1709463600-1709474400@vahemophilia.org
SUMMARY:RICHMOND – Bleeding Disorders Awareness Month Community Event at Topgolf
DESCRIPTION:RSVP Here!\nGet active with your bleeding disorders community and help us to tee off Bleeding Disorders Awareness Month! Join VHF on Sunday\, March 3rd in RICHMOND for education\, celebration\, community building and opportunities to enhance health and fitness at Richmond Topgolf. We look forward to exploring how you can take charge of your bleeding disorder and life\, while having fun learning about the game of golf. \nEvent is free – lunch and two hours of golf will be provided. Participation is limited to those with an inherited bleeding disorder and their immediate family and/or household members who live within VHF territory. \nWith special guest Perry Parker! \nJoin Pro Golfer Perry Parker as he discusses finding your passion and working hard to meet your goals. Perry is a patient advocate for CSL Behring\, who has taken part in three U.S. Opens and won five times on the Canadian Tour in a more than 30 years as a professional golfer. Perry continues to be active on the Australian Legends Tour and European senior tours. He also hosts an annual clinic for kids taking part in CSL Behring’s Gettin’ in the Game℠ Junior National Championship\, a sports competition for kids and teens with bleeding disorders. Perry also will provide some golf tips at the driving range. \n\nThank you to our generous sponsors: BioMarin\, CSL Behring\, Genentech\, Novo Nordisk\, and Sanofi \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/richmond-bleeding-disorders-awareness-month-community-event-at-topgolf/
LOCATION:Topgolf Richmond\, 2308 Westwood Ave\, Richmond\, Virginia\, 23230
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240313T181500
DTEND;TZID=America/New_York:20240313T200000
DTSTAMP:20260427T222442
CREATED:20240206T003836Z
LAST-MODIFIED:20240206T011635Z
UID:6593-1710353700-1710360000@vahemophilia.org
SUMMARY:VIRGINIA BEACH - Bleeding Disorders Awareness Month Dinner with CHKD!
DESCRIPTION:RSVP Here!\nCome celebrate Bleeding Disorders Awareness Month with your VHF community and staff from CHKD-HTC. There will be food\, education\, community building and bowling – a great way for people with bleeding disorders and the whole family to have fun and get moving! \nThis event is for VHF constituents (and their immediate family and/or household members only.) Dinner\, arcade cards\, and bowling will be provided and there is no fee to attend. \n\nSpace is limited and priority will be given to those members that live in the Hampton Roads Region. \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/virginia-beach-bleeding-disorders-awareness-month-dinner-with-chkd/
LOCATION:Apex Entertainment Virginia Beach\, 4621 Columbus St #100\, Virginia Beach\, Virginia\, 23462
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240314T183000
DTEND;TZID=America/New_York:20240314T200000
DTSTAMP:20260427T222442
CREATED:20240206T010157Z
LAST-MODIFIED:20240226T192035Z
UID:6595-1710441000-1710446400@vahemophilia.org
SUMMARY:ROANOKE - Bleeding Disorders Awareness Month Educational Dinner
DESCRIPTION:RSVP Here!\nCome celebrate Bleeding Disorders Awareness Month with your VHF community. There will be food\, education\, and community building! Dinner will be provided and there is no fee to attend. This educational dinner for VHF constituents (and their immediate family and/or household members only.)  \nThe topic will be: Drug Discovery & Beyond: How Scientists and the FDA Research and Evaluate New Treatments for You \nLearn how new treatments are discovered and evaluated in this easy-to-understand presentation. \nSpeaker: Stephanie Torres\, Sr. Account Manager\, Mid-Atlantic\, Hemophilia Gene Therapy \n\nSpace is limited and priority will be given to those members that live in the South West Virginia Region. \nThank you to our sponsor BioMarin. \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/roanoke-bleeding-disorders-awareness-month-dinner/
LOCATION:Hotel Roanoke & Conference Center\, 110 Shenandoah Ave NW\, Roanoke\, VA\, 24016\, United States
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240316T120000
DTEND;TZID=America/New_York:20240316T133000
DTSTAMP:20260427T222442
CREATED:20240206T011153Z
LAST-MODIFIED:20240312T161111Z
UID:6596-1710590400-1710595800@vahemophilia.org
SUMMARY:RICHMOND – Bleeding Disorders Awareness Month Educational Lunch with VCU!
DESCRIPTION:This event has been cancelled.\nCome celebrate Bleeding Disorders Awareness Month with your VHF community and staff from VCU-HTC. There will be food\, education\, and community building! This event is for VHF constituents (and their immediate family and/or household members only.) Lunch will be provided and there is no fee to attend. \nThe topic will be: Insurance Updates \nSpeaker: Lauren Dunn\, MSW\, Clinical Social Worker\, Central VA Center for Coagulation Disorders at VCU Health\, Virginia Bleeding Disorders Program (VBDP) Health Insurance Consultant \n\nSpace is limited and priority will be given to those members that live in the Central Virginia Region. \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/richmond-bleeding-disorders-awareness-month-educational-lunch-with-vcu/
LOCATION:VA
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240319T183000
DTEND;TZID=America/New_York:20240319T200000
DTSTAMP:20260427T222442
CREATED:20240206T012618Z
LAST-MODIFIED:20240214T163253Z
UID:6597-1710873000-1710878400@vahemophilia.org
SUMMARY:WINCHESTER – Bleeding Disorders Awareness Month Educational Dinner
DESCRIPTION:RSVP Here!\nCome celebrate Bleeding Disorders Awareness Month with your VHF community. There will be food\, education\, and community building! Dinner will be provided and there is no fee to attend. This event is for VHF constituents (and their immediate family and/or household members only.)  \nThe topic will be: Expect the Unexpected – Prepare for Anything \nEmergency room staff\, including physicians\, may have little experience in the management of patients with bleeding disorders because they are rare conditions. This presentation will help you avoid and prepare for a possible trip to the ER\, anytime\, anywhere—even when traveling or during a natural disaster. \nSpeaker: Morgan Cook\, Community Education Specialist\, Rare Disease – Hematology\, Takeda\n \n\nThank you to our sponsor Takeda. \nSpace is limited and priority will be given to those members that live in the Shenandoah Region. \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/winchester-bleeding-disorders-awareness-month-educational-dinner/
LOCATION:Village Square Restaurant\, 103 N Loudoun St\, Winchester\, Virginia\, 22601\, United States
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240329
DTEND;VALUE=DATE:20240330
DTSTAMP:20260427T222442
CREATED:20240206T013333Z
LAST-MODIFIED:20240206T013333Z
UID:6598-1711670400-1711756799@vahemophilia.org
SUMMARY:Lyman Fisher Scholarship Application Deadline
DESCRIPTION:APPLICATION PROCEDURE & DEADLINES\nApplication Deadline: 11:59 pm (EST)\, Friday\, March 29\, 2024\nHow to Apply: Applications can be completed using our online application form or you can download the paper application form and email the application to info@vahemophilia.org. \n» Go Here to fill out the application online \n» Go Here to download the paper application \nLetters of Recommendation: You will need at least two letters of recommendation from persons who are not family members. These are to be emailed separately to info@vahemophilia.org by the deadline. \n\nOne letter should be from an HTC provider\, nurse\, social worker\, or someone who knows you well from the bleeding disorders community.\nThe other letter could be from your scout leader\, minister\, teacher\, employer\, guidance counselor\, coach\, etc.\n\n  \nApplications and/or supporting documents received after the deadline will not be considered. \n\n\n\n\n\n\n\n\nELIGIBILITY & AWARD\nScholarship Eligibility: Individuals living with an inherited bleeding disorder\, their sibling or their parents who live in the territorial jurisdiction of VHF\, which includes the State of Virginia\, with the exception of the following: The cities of Alexandria\, Fairfax\, Falls Church\, Herndon\, Manassas\, and Vienna and the counties of Arlington\, Fairfax\, Fauquier\, Loudon\, Prince William and Stafford. \nScholarship applicants must have participated in VHF activities. \nScholarship Award: Scholarships are one-year awards in the amount of $2\,000 for a full academic year. While at least two scholarships are available each year\, VHF is not obligated to award scholarships in a given year. The scholarships may be used at any accredited nonprofit college\, university\, or vocational/technical school in the United States and are to be applied toward a student’s educational expenses. \nA student who receives an award one year may reapply in later years but winning a scholarship in one year does not necessarily mean that the student will win in a later year. Also\, a student who applies in one year and does not receive an award is eligible to apply the following year for the scholarship. \nPayment of Scholarship Funds: Scholarship payments are not distributed directly to an individual\, but are made via scholarship checks\, payable to the schools. VHF staff will work with the award recipient(s) to process the scholarship funds. \n\n\n\n\n\n\n\n\nRESPONSIBILITIES OF RECIPIENTS\nScholarship recipients must enroll as a college student in the fall of the year in which the scholarships are awarded and continue in school for the entire academic year without interruption\, barring illness\, emergency\, or military service. If a scholarship recipient leaves school during the scholarship period\, VHF may ask for reimbursement of scholarship funds. Scholarship recipients are responsible for making certain that their scholarship checks are delivered to their colleges. \n\n\n\n\n\n\n\n\nSCHOLARSHIP BACKGROUND\nThe Lyman Fisher Scholarship was established to honor Dr. Lyman Fisher\, a teacher\, researcher\, and clinician in hemostasis. For many years\, he directed the adult hemophilia program for Virginia. He will be remembered for his steadfast commitment to his patients and students\, his respect for those who served under him\, his community service and his affection for his family.
URL:https://vahemophilia.org/event-program/lyman-fisher-scholarship-application-deadline-2/
LOCATION:VA
ORGANIZER;CN="Kelly Waters%2C VHF Executive Director":MAILTO:info@vahemophilia.org
END:VEVENT
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