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X-WR-CALDESC:Events for Virginia Bleeding Disorders Foundation
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DTSTART;VALUE=DATE:20240116
DTEND;VALUE=DATE:20240306
DTSTAMP:20260407T054245
CREATED:20231208T173939Z
LAST-MODIFIED:20231219T210932Z
UID:6545-1705363200-1709683199@vahemophilia.org
SUMMARY:VIRTUAL – Virginia General Assembly Weekly Check In
DESCRIPTION:RSVP HERE\n  \nJoin VHF & the Hemophilia Association of the Capital Area (HACA) for an informal\, virtual General Assembly check-in. We will gather to get an overview of the past week’s events in the Virginia General Assembly and get insight from our advocacy consultant\, Becky Bowers-Lanier\, on what to look for\, trends and any actions that will need to be taken about proposed legislation of interest to the bleeding disorders community. These check-ins are open to all community members. \nPlease note that these are informal weekly check-ins and if you register you are not required to attend all dates listed – feel free to join us for one session or for all! \nWEEKLY CHECK IN DATES: \nTues.\, Jan 16\, 2024  4:30 PM\nTues.\, Feb 6\, 2024   4:30 PM\nTues.\, Feb 13\, 2024  4:30 PM\nTues.\, Feb 20\, 2024  4:30 PM\nTues.\, Feb 27\, 2024  4:30 PM\nTues.\, March 5\, 2024  4:30 PM \n» RSVP HERE Once you RSVP you will receive a zoom link separately via email from heather@vahemophilia.org – you will use the same link each week. \n» Go here to download the 2024 VHF Advocacy Calendar \n\nAs we gather virtually to discuss\, share and learn\, we ask that all VHF virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/virtual-virginia-general-assembly-weekly-check-in-2/
LOCATION:Zoom
ORGANIZER;CN="Kelly Waters%2C VHF Executive Director":MAILTO:info@vahemophilia.org
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DTSTART;TZID=America/New_York:20240118T190000
DTEND;TZID=America/New_York:20240118T200000
DTSTAMP:20260407T054245
CREATED:20231024T154132Z
LAST-MODIFIED:20231024T154709Z
UID:6500-1705604400-1705608000@vahemophilia.org
SUMMARY:VIRTUAL - VHF/HACA Camp Youngblood Information Session
DESCRIPTION:REGISTER HERE\n  \nAre you thinking about sending your child to Camp Youngblood at Camp Holiday Trails (CHT) for the first time in 2024\, have questions\, or would you just like a refresher on the camp experience? Join the Hemophilia Association of the Capital Area (HACA)\, CHT\, and VHF for a virtual information session via Zoom on Thursday\, January 18\, at 7 pm to learn more about Camp Youngblood – even if you aren’t quite ready to send your kids this year. \nWhat to expect: Staff from CHT will talk more about camp activities and facilities; longtime Camp Youngblood parents will share their experiences with sending their kids to camp\, and staff from VHF and HACA will be available to answer any additional questions. This virtual session will be a great opportunity to learn more and get all your questions answered in real time! \nCamp Youngblood is a week-long overnight camp at Camp Holiday Trails (CHT) for children ages 7-17 with inherited bleeding disorders\, their siblings\, and children of members of the inherited bleeding disorder community that reside within the VHF or HACA coverage area. \n» Go here to learn more about the Camp Youngblood registration process \n» REGISTER HERE Once you RSVP you will receive the zoom link separately via email from heather@vahemophilia.org. \n\nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/virtual-vhf-haca-camp-youngblood-information-session/
LOCATION:Zoom
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DTSTART;TZID=America/New_York:20240123T190000
DTEND;TZID=America/New_York:20240123T200000
DTSTAMP:20260407T054245
CREATED:20231208T183424Z
LAST-MODIFIED:20231219T215355Z
UID:6546-1706036400-1706040000@vahemophilia.org
SUMMARY:VIRTUAL - 2024 Advocacy Education Training
DESCRIPTION:RSVP HERE\n  \nJoin VHF\, the Hemophilia Association of the Capital Area (HACA)\, and the Healthcare for All Virginians (HAV) Coalition for a virtual advocacy education training program that will focus on the 2024 Virginia General Assembly. Join in and hear details about proposed legislation and state policy issues that focus on access to quality healthcare.This training will be in preparation for Richmond Days but you do not have to be registered for Richmond Days to participate. Open to all community members. \nThis session is free and open to anyone interested in learning more about advocacy and how it relates to the Virginia inherited bleeding disorders community. \n» RSVP HERE once you RSVP you will receive the zoom link separately via email from heather@vahemophilia.org.  \n» Go here to download the 2024 VHF Advocacy Calendar \n\nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. »Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/virtual-2024-advocacy-education-training/
LOCATION:Zoom
ORGANIZER;CN="Kelly Waters%2C VHF Executive Director":MAILTO:info@vahemophilia.org
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DTSTART;TZID=America/New_York:20240129T090000
DTEND;TZID=America/New_York:20240129T103000
DTSTAMP:20260407T054245
CREATED:20231208T192943Z
LAST-MODIFIED:20240119T163009Z
UID:6547-1706518800-1706524200@vahemophilia.org
SUMMARY:Richmond Days
DESCRIPTION:RSVP HERE\n  \nRichmond Days is back! Join VHF\, the Hemophilia Association of the Capital Area (HACA)\, and Healthcare for All Virginians (HAV) Coalition for an opportunity for those interested in access to quality healthcare to meet with their state legislators to advocate for issues that are important to our community.Open to all community members. \nWhat to Expect: We have reserved the 7th Floor House South Meeting Room in the General Assembly building for breakfast from 9:00 am – 10:30 am. During that time frame we will try to schedule two in-person legislative visits for you – one with your State Senate office and one with your State Delegate office. There will be other advocates there that may attend the meeting with you and there may opportunities to join other scheduled legislative visits as well. For more details on how to prepare for your visits and on our 2024 legislative priorities\, plan to attend the VIRTUAL Advocacy Education Training on Tuesday\, January 23rd at 7:00 pm (go here to register.) Limited hotel rooms are available for VHF/HACA community members on the night of Sunday\, January 28\, 2024. \n» Go here to download the 2024 VHF Advocacy Calendar \nThank you to our sponsors: CSL Behring\, Pfizer\, and Takeda \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/richmond-days/
LOCATION:General Assembly Building\, 201 North 9th St.\, Richmond\, 23219\, United States
ORGANIZER;CN="Kelly Waters%2C VHF Executive Director":MAILTO:info@vahemophilia.org
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