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PRODID:-//Virginia Bleeding Disorders Foundation - ECPv6.15.18//NONSGML v1.0//EN
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X-WR-CALNAME:Virginia Bleeding Disorders Foundation
X-ORIGINAL-URL:https://vahemophilia.org
X-WR-CALDESC:Events for Virginia Bleeding Disorders Foundation
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X-Robots-Tag:noindex
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BEGIN:VTIMEZONE
TZID:UTC
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TZOFFSETFROM:+0000
TZOFFSETTO:+0000
TZNAME:UTC
DTSTART:20210101T000000
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BEGIN:VEVENT
DTSTART;TZID=UTC:20221015T100000
DTEND;TZID=UTC:20221015T160000
DTSTAMP:20260407T054015
CREATED:20220623T205424Z
LAST-MODIFIED:20221004T160703Z
UID:6063-1665828000-1665849600@vahemophilia.org
SUMMARY:Medical Symposium at Great Wolf Lodge
DESCRIPTION:The VHF Medical Symposium will provide consumers with the opportunity to learn more about new and current treatment options\, access to care issues and other medical/health related topics. \nThis program will be held at Great Wolf Lodge (GWL) in Williamsburg – an indoor water park and resort designed to bring together the Virginia inherited bleeding disorders community for education\, networking\, and support. This weekend is open to individuals with an inherited bleeding disorder and their immediate family and/or household members. Overnight accommodations are available at Great Wolf Lodge and entrance to the water park is included in your stay. \nHighlights Include:\nMedical Symposium\, kids and teens program and lunch for all ages on Saturday (all registrants must attend the meeting for access to the water park and overnight accommodations.)\nAccess to GWL water park Saturday and Sunday.\n*OPTIONAL* Unite For Bleeding Disorders Breakfast & Celebration on Sunday at GWL – must register separately for this event » Go here to learn more \nImportant Information:\nRegistration for this event will close on August 15\, 2022.\nRegistrants place/number on the RSVP list will be determined by our Program Registration Guidelines.\nThis event is open to ALL AGES (not just for families with children under 18.)\nThere is a $25 registration fee to attend\, you will be asked to pay once you receive a spot at the event (this fee will be waived for those constituents that have registered and donated to Unite For Bleeding Disorders.) \nTo Be Eligible For a Spot You Must Meet ALL of the Following Eligibility Criteria:\nHave an inherited bleeding disorder\, have a spouse with an inherited bleeding disorder\, or be the parent/caregiver of a child with an inherited bleeding disorder.\nLive in the VHF coverage area (go here to learn more) and/or location of primary bleeding disorder treatment i.e. Hemophilia Treatment Center (HTC)\, hematologist\, etc. is in the VHF coverage area. \n\nThank you to our Program Sponsors –\nColburn-Keenan Foundation – Program Support\nHemophilia Federation of America (HFA) – Educational Programming\nNational Hemophilia Foundation (NHF) – Community Voices in Research \nThank you to our Medical Symposium Sponsors –\nStar Level: BioMarin\, CSL Behring\, Novo Nordisk\, Sanofi\, Spark Therapeutics and Takeda\nPremier Level: Hema Biologics and Hoos at Home\nCorporate Level: Bayer\, BioMatrix\, CSI Pharmacy\, CVS Specialty Pharmacy\, Drugco Health\, Genentech\, Medexus\, Octapharma\, Optum\, Paragon Healthcare\, Pfizer and SoleoHealth
URL:https://vahemophilia.org/event-program/vhf-medical-symposium-at-great-wolf-lodge/
LOCATION:Great Wolf Lodge\, 549 E Rochambeau Dr.\, Williamsburg\, VA\, 23188
CATEGORIES:community,education
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20221015T100000
DTEND;TZID=UTC:20221015T160000
DTSTAMP:20260407T054015
CREATED:20220624T003856Z
LAST-MODIFIED:20220707T181807Z
UID:6068-1665828000-1665849600@vahemophilia.org
SUMMARY:Medical Symposium - Sponsors and Speakers Registration
DESCRIPTION:REGISTER HERE\n  \nWe appreciate your interest and support of our 2022 Medical Symposium at Great Wolf Lodge\, contact Kelly Waters at kelly@vahemophilia.org or 804-740-8643 for more information about sponsorship. \nCloser to the date of the event we will send a detailed email to all registered industry supporters and speakers. This email will include the agenda\, booth set up times\, what to bring\, how many people to expect\, etc. \nSaturday\, October 15th – Medical Symposium (Sample Agenda)\n10:00 am – 10:45 am Registration opens\, visit exhibits (light refreshments)\n10:00 am – 4:00 pm Kids & Teens Program\n10:45 am – 11:00 am Welcome\n11:00 am – 11:45 am Keynote: TBD\n11:45 am – 12:30 pm Lunch\n12:30 pm – 1:15 pm Break-out Session 1: TBD\n1:15 pm – 1:25 pm Break | Visit Exhibitors\n1:25 pm – 2:10 pm Break-out Session 2: TBD\n2:10 pm – 2:20 pm Break | Visit Exhibitors\n2:20 pm – 2:35 pm Roundtable Session\n2:35 pm – 2:50 pm Break | Visit Exhibits (light refreshments)\n2:50 pm – 3:35 pm Break-out Session 3: TBD\n3:35 pm – 3:45 pm Wrap-up \nOVERNIGHT ACCOMODATIONS: We will not make hotel reservations for speakers\, Industry Agents OR Industry Agents who are Consumers. However\, we do have a room block at Great Wolf Lodge where they have extended our group rate of $239.00 plus taxes and fees = $269.68 per night (Family Suite) and the Resort Fee of $39.99 per room has been WAIVED for this group. The hotel has shared with us that you may find a lower base rate online but that does not include the $39.99 daily resort fee that you would see upon check out. (Saturday night only rates are higher\, adding Friday lowers the rate) the rate they are providing is valid through September 24. \n» All Industry Agents – go here to see instructions on how to make your room reservation.\n  \n» Industry Agents who are Consumers and a VHF Constituent: If your family members plan to attend the meeting go here to register them. As a reminder we still ask that you register yourself as an industry representative and make your own hotel reservation.\n  \nVHF makes every effort to ensure that the members of the bleeding disorders community are always able to make a clear distinction between its own activities and those of Industry. Further\, it is essential that we create beneficial and pressure – free experiences for our community members\, and to protect participants in VHF events and programs. Accordingly\, VHF has developed a set of standards. Go here to read VHF’s Industry Standards. \nThank you for your continued support!
URL:https://vahemophilia.org/event-program/medical-symposium-sponsors-and-speakers-registration/
LOCATION:Great Wolf Lodge\, 549 E Rochambeau Dr.\, Williamsburg\, VA\, 23188
ORGANIZER;CN="Kelly Waters%2C VHF Executive Director":MAILTO:info@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20221016T080000
DTEND;TZID=UTC:20221016T103000
DTSTAMP:20260407T054015
CREATED:20220623T210633Z
LAST-MODIFIED:20221012T204603Z
UID:6065-1665907200-1665916200@vahemophilia.org
SUMMARY:Unite For Bleeding Disorders at Great Wolf Lodge
DESCRIPTION:JOIN YOUR VIRGINIA BLEEDING DISORDERS COMMUNITY AND UNITE FOR BLEEDING DISORDERS!\n \nREGISTER TODAY to help us raise $35\,000! Every dollar raised for Unite For Bleeding Disorders stays 100% local to VHF and goes toward supporting our many educational events\, advocacy efforts\, and community programs. \nNEW THIS YEAR – “Walk Your Way” After registering yourself and/or your team you can then decide when and where you want to walk! Choose your neighborhood\, favorite park\, the beach\, the options are endless! Send VHF photos of your walk and then\, plan to gather yourself and your friends and family to celebrate with us on Sunday\, October 16th at Great Wolf Lodge in Williamsburg\, VA – if you are unable to coordinate a walk for your team or join us for the celebration you can still register as a virtual walker and fundraise or donate! \nEvent Schedule: \n8:00 am – 9:00 am Registration\, Breakfast Buffet\, Entertainment & Activities\, Visit with Sponsors\n9:00 am – 10:00 am Entertainment & Activities\, Visit with Sponsors\n10:00 am – 10:30 am Unite Walk Program\, Pinwheel Ceremony\, and Prize Announcements \nRegistered individuals who make a $25 minimum donation will receive a 2022 Unite for Bleeding Disorders T-shirt AND be on the look-out for fundraising incentives and exciting prizes leading up to the walk! » Go here to register your team or donate to the walk! \nYOUR FUNDRAISING MAKES AN IMPACT – CONSIDER THESE AMOUNTS WHEN SETTING YOUR INDIVIDUAL OR TEAM FUNDRAISING GOALS \nWhen you register and fundraise for VHF you help us to educate\, advocate\, build community\, and empower those impacted by an inherited bleeding disorder so join us in helping make a real impact so that our community members can lead long\, productive\, and healthy lives. For more information contact Kelly Waters at 804-740-8643 or info@vahemophilia.org. \n$2\,000 funds a Lyman Fisher Scholarship\, allowing a student with a bleeding disorder or from a family impacted by a bleeding disorder to pursue higher education.\n$1\,000 supports a Travel Scholarship\, enabling a patient or family member to attend a national education and/or a federal advocacy meeting.\n$500 helps to send a child or teen to Camp Youngblood where they gain an increased sense of independence in managing their bleeding disorder.\n$250 provides a patient and/or their family emergency financial assistance.\n$100 supports a patient and/or their family’s attendance to VHF’s Annual Education Meeting and/or state Advocacy Training.\n$50 pays for a lifesaving Medic Alert Tag.\n$25 pays for direct patient support (in partnership with HTCs) by providing resources such as new family welcome kits and ensuring gas cards are available for transportation to medical appointments. \n» Go here to register your team or donate to the walk! \n\nThank you to our generous sponsors!\nLOCAL SPONSORS \nGold Level: CSL Behring\, Genentech and Octapharma \nSilver Level: BioMatrix and Medexus \nBronze Level: DrugCo Health \nNATIONAL SPONSORS \nPresenting Partners: Hemophilia Alliance and Takeda \nNational Community Partners: Biomarin and Sanofi \nNational Partners: Ascella Health\, Bayer\, and Hema Biologics \n\nCheck out some awesome photos from past VHF Unite Walks!\n  \n→ 2018\n→ 2019\n→ 2020\n→ 2021
URL:https://vahemophilia.org/event-program/unite-for-bleeding-disorders/
LOCATION:Great Wolf Lodge\, 549 E Rochambeau Dr.\, Williamsburg\, VA\, 23188
CATEGORIES:advocacy,community,education
ORGANIZER;CN="Kelly Waters%2C VHF Executive Director":MAILTO:info@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20221020T120000
DTEND;TZID=UTC:20221020T130000
DTSTAMP:20260407T054015
CREATED:20220901T150459Z
LAST-MODIFIED:20221013T180017Z
UID:6120-1666267200-1666270800@vahemophilia.org
SUMMARY:Virtual - Advocacy Education “Testifying and Serving on Boards and Commissions”
DESCRIPTION:RSVP HERE\nJoin constituents\, advocacy committee members\, and community stakeholders from throughout Virginia for a virtual advocacy education meeting that covers topics relevant to the bleeding disorders community! \nTopic –  \n“Testifying and Serving on Boards and Commissions” \nJoin us to learn about developing and providing testimony in legislative and regulatory meetings\, as well as applying and serving on local and state-based boards and commissions. \nSpeakers –  \nBrenda Bordelon\, Executive Director\, Hemophilia Association of the Capital Area (HACA) \nBecky Bowers-Lanier\, VHF/HACA Advocacy Consultant \n\n» RSVP HERE \nYou will receive the zoom link separately via email from heather@vahemophilia.org. \n\nThank you to our sponsors: National Hemophilia Foundation (NHF)\, PhRMA and Takeda
URL:https://vahemophilia.org/event-program/virtual-advocacy-education-testifying-and-serving-on-boards-and-commissions/
LOCATION:Zoom
CATEGORIES:advocacy,community,education,virtual
ORGANIZER;CN="Kelly Waters%2C VHF Executive Director":MAILTO:info@vahemophilia.org
END:VEVENT
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