BEGIN:VCALENDAR VERSION:2.0 PRODID:-//Virginia Bleeding Disorders Foundation - ECPv6.15.20//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-ORIGINAL-URL:https://vahemophilia.org X-WR-CALDESC:Events for Virginia Bleeding Disorders Foundation REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:America/New_York BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20210314T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20211107T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20220313T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20221106T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20230312T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20231105T060000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;VALUE=DATE:20220125 DTEND;VALUE=DATE:20220309 DTSTAMP:20260428T085804 CREATED:20211116T185334Z LAST-MODIFIED:20220315T154510Z UID:5856-1643068800-1646783999@vahemophilia.org SUMMARY:HACA/VHF General Assembly Weekly Check-In DESCRIPTION:» REGISTER HERE\n\nJoin HACA and VHF for a quick weekly General Assembly check-in. We will gather to get an overview of the past week’s events in the Virginia General Assembly and get insight from our advocacy consultant\, Becky Bowers-Lanier\, on what to look for\, trends and any actions that will need to be taken about proposed legislation of interest to the bleeding disorders community. \nWhen you register you will receive an email with a re-occurring zoom link that you can use for all of the weekly check-ins on Tuesdays at 4:30 pm (EST). \nJan 25\, 2022 4:30 PM\nFeb 1\, 2022 4:30 PM\nFeb 8\, 2022 4:30 PM\nFeb 15\, 2022 4:30 PM\nFeb 22\, 2022 4:30 PM\nMar 1\, 2022 4:30 PM\nMar 8\, 2022 4:30 PM \nThis session is free and open to VHF constituents\, any constituent under the age of 12 will need adult supervision to participate. \nThank you to our advocacy sponsor Takeda. \n\nAs we gather virtually to discuss\, share and learn\, we ask that all VHF virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement. URL:https://vahemophilia.org/event-program/haca-vhf-general-assembly-weekly-check-in/ LOCATION:Zoom END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20220301 DTEND;VALUE=DATE:20220303 DTSTAMP:20260428T085804 CREATED:20211213T204229Z LAST-MODIFIED:20211213T211518Z UID:5885-1646092800-1646265599@vahemophilia.org SUMMARY:National Hemophilia Foundation (NHF) Washington Days DESCRIPTION:RSVP HERE\nNHF’s Washington Days is an opportunity for people affected by inherited blood disorders to advocate for issues that are important to them. In 2021\, Washington Days had more than 400 volunteer advocates from 44 states that met with legislators and staff to discuss federal funding for bleeding disorder programs and support policies that increase affordability of coverage and access to care. \nWashington Days 2022 will be an entirely virtual experience. NHF is closely monitoring various legislative and policy opportunities as they prepare for their event in March. The issues and priorities for Washington Days 2022 will be announced at the start of the new year. » Go here to learn more URL:https://vahemophilia.org/event-program/national-hemophilia-foundation-nhf-washington-days/ LOCATION:Virtual END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20220301T235900 DTEND;TZID=America/New_York:20220301T235900 DTSTAMP:20260428T085804 CREATED:20220221T165534Z LAST-MODIFIED:20220221T165534Z UID:5945-1646179140-1646179140@vahemophilia.org SUMMARY:HFA Symposium Travel Grant - Application Due Date DESCRIPTION:VHF is pleased to offer travel grants to attend national meetings. National meetings enable our community to come together and exchange information on a wide variety of topics\, from the basics of diagnosis to the most relevant developments in treatment and technology. If applying for travel assistance for a national meeting typical award amounts depend on the availability of travel scholarships offered by the national organization. See below to learn more and contact VHF at 804-740-8643 or info@vahemophilia.org if you have any questions.  \nMeeting: Hemophilia Federation of America (HFA) Symposium\nThis beloved family event has become known as a national “family reunion” for the bleeding disorders community\, allowing community members\, their families and caregivers to come together for camaraderie and education. HFA is excited to host their first in-person Symposium since 2019. They know everyone is not comfortable traveling just yet so some sessions\, such as the keynote presentations\, will have an online component. » Go here to learn more \nWhen: April 20-23\, 2022 \nWhere: San Antonio\, TX (with virtual options) \n» RSVP HERE \n\nHFA Symposium Scholarship: VHF Terry Lamb Enrichment Scholarship awards can be used to cover travel costs for the HFA Symposium. Typical award amounts are in the range of $250 – $500 per person (not to exceed $1\,000 per family). Application Deadline: 11:59 pm (EST)\, Tuesday\, March 1\, 2022 \nHFA offers a scholarship that will cover the cost of your hotel room stay (one (1) hotel room for up to four (4) nights). To apply\, you must first register for the HFA Symposium and then a link to the scholarship information will be found in your confirmation email. Scholarships are based on financial need and first-time attendees of Symposium will be given priority. Previous attendees of Symposium will be considered dependent upon space and availability. The HFA scholarship is on a first come\, first-serve basis so apply soon. For more information about the HFA Symposium scholarship go here. URL:https://vahemophilia.org/event-program/hfa-symposium-travel-grant-application-due-date/ LOCATION:VA CATEGORIES:education END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20220313T160000 DTEND;TZID=America/New_York:20220313T170000 DTSTAMP:20260428T085804 CREATED:20220119T200206Z LAST-MODIFIED:20220310T152627Z UID:5907-1647187200-1647190800@vahemophilia.org SUMMARY:Ages and Stages: Early Childhood DESCRIPTION:RSVP HERE\n \nJoin VHF\, HTC staff and mentor families for a virtual program for new families! This program is designed to support families of infants and young children with hemophilia and other inherited bleeding disorders ages 0-10 with community connection and education. This program is free and open to VHF constituents. \nTopic: Ages and Stages: Early Childhood (Ages 0-10) \nThis virtual session will help parents better understand what they can expect behaviorally and emotionally throughout the early years of childhood. Child development\, temperament\, common mood and behavior problems and parenting strategies will be discussed. The session will include some bleeding disorder specific information\, for example\, when a child can start to self-infuse from a behavioral standpoint not a medical standpoint\, how (hemophilia) treatments progress with age\, and the prevalence of anxiety and other behavioral challenges among children with bleeding disorders.  \nPresenter: Juliana S. Bloom\, Ph.D.\, Pediatric Neuropsychologist at The Levin Center \n \n \n \n \n \n \n \n Juliana S. Bloom\, Ph.D. is a licensed psychologist and pediatric neuropsychologist based in Orlando\, Florida. Dr. Bloom currently provides assessment\, therapy\, and consultation services. Dr. Bloom received her B.A. summa cum laude from Emory University and her Masters of Education and doctoral degrees from the University of Georgia. While at UGA\, she conducted clinical research on the neurobiological basis of dyslexia and ADHD. Dr. Bloom completed her internship and postdoctoral fellowship at the Children’s Hospital of Philadelphia\, where she worked with children and adolescents with complex medical and neurological illnesses\, including stroke\, epilepsy\, brain tumors\, cancer\, and traumatic brain injury\, among others. Dr. Bloom’s areas of clinical interest include dyslexia\, ADHD\, neuropsychological outcome and school re-entry following acquired brain injury and medical illness\, medical traumatic stress in patients and families\, and pediatric stroke. She is the author of seven peer reviewed journal articles\, five invited book chapters\, and more than 40 conference presentations. She is a member of the American Psychological Association and the International Neuropsychological Society. She loves spending her free time with her husband and two children.\n \n \n \nThis education program is presented in partnership with Hemophilia Federation of America (HFA). \nThank you to our New Family Education and Support Sponsors Genentech and Takeda. \n\nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement. URL:https://vahemophilia.org/event-program/new-family-education-and-support-ages-and-stages-early-childhood/ LOCATION:Zoom CATEGORIES:community,education,New Families,virtual ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20220321T235900 DTEND;TZID=America/New_York:20220321T235900 DTSTAMP:20260428T085804 CREATED:20220221T170343Z LAST-MODIFIED:20220315T171338Z UID:5950-1647907140-1647907140@vahemophilia.org SUMMARY:NHF Bleeding Disorders Conference Travel Grant - Application Due Date DESCRIPTION:VHF is pleased to offer travel grants to attend national meetings. National meetings enable our community to come together and exchange information on a wide variety of topics\, from the basics of diagnosis to the most relevant developments in treatment and technology. If applying for travel assistance for a national meeting typical award amounts depend on the availability of travel scholarships offered by the national organization. See below to learn more and contact VHF at 804-740-8643 or info@vahemophilia.org if you have any questions.  \nNHF Bleeding Disorders Conference Scholarship: VHF Terry Lamb Enrichment Scholarship awards can be used to cover travel costs (airfare/mileage/train or bus ticket)\, hotel accommodations\, and meeting registration fees for the NHF Bleeding Disorders Conference. Not to exceed a total of $2\,000 per family. You will be responsible for all meals and other incidentals. Application Deadline Extended: 11:59 pm (EST)\, Monday\, March 21\, 2022 \n» APPLY HERE \n\nNHF’s BDC features educational sessions\, poster abstract presentations\, industry symposia\, networking and social events\, and exhibits. A lineup of dynamic speakers who provide essential information and insights on the evolving landscape in this exciting new era of treatment for hemophilia\, von Willebrand disease\, and rare bleeding disorders. To end the conference\, the NHF Awards Ceremony recognizes outstanding leaders of the bleeding disorders community whose achievements and contributions have helped transform treatment and care. » Go here to learn more \nWhen: August 25-27\, 2022 \nWhere: Houston\, TX (For those that cannot join NHF in Houston\, they will also be offering a virtual component.) \n» RSVP HERE URL:https://vahemophilia.org/event-program/nhf-bleeding-disorders-conference-travel-grant-application-due-date/ LOCATION:VA CATEGORIES:education END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20220327T103000 DTEND;TZID=America/New_York:20220327T130000 DTSTAMP:20260428T085804 CREATED:20220204T195836Z LAST-MODIFIED:20220323T161623Z UID:5921-1648377000-1648386000@vahemophilia.org SUMMARY:Community Event and Bleeding Disorders Awareness Month Celebration at Topgolf DESCRIPTION:RSVP HERE BY MARCH 11TH\n  \nGet active with your bleeding disorders community and celebrate Bleeding Disorders Awareness Month! Join VHF on Sunday\, March 27th for education\, celebration\, community building and opportunities to enhance health and fitness at Topgolf. We look forward to exploring how you can take charge of your bleeding disorder and life\, while having fun learning about the game of golf. \nEvent is free – lunch and two hours of golf will be provided. Participation is limited to those with an inherited bleeding disorder and their immediate family and/or household members who live within VHF territory. Gas cards will be available on the day of the event if needed. Don’t let the rising gas prices keep you away! \nWith special guest Perry Parker! \n \n \n \n \n \n \n \n Since as far back as he can remember\, Perry has known two things: he has hemophilia\, and he would be a pro golfer. Perry’s parents always encouraged him to pursue his interests. For Perry\, this led to a professional golf career\, including more than 30 professional tournament wins\, playing numerous international tours\, and founding and continued involvement with the CSL Behring Gettin’ in the Game℠ Junior National Championship. Perry wants others to know that bleeding disorders do not have to be a game changer\, and he has lots of tips to share on how to make dreams come true.\n \n \n \n\nVHF asks that all in-person event attendees be fully vaccinated against COVID-19 in the effort to help stop the spread of COVID-19. Please consider that many of our members face unique health challenges. VHF will not require that any attendees submit proof of vaccination but will rely on the honor system. VHF will continue to follow federal\, state\, and local health official guidance for all in-person event safety guidelines. As changes to these guidelines are possible\, please contact VHF at 804-740-8643 or info@vahemophilia.org if you have questions or concerns or to confirm event details. \n» Go here to read full VHF COVID-19 Safety Guidelines for In-Person Events \n\nThank you to our generous sponsors: Bayer\, BioMatrix\, CSL Behring\, Genentech\, Medexus\, Novo Nordisk\, Octapharma\, Optum\, Pfizer\, Spark Therapeutics\, SuperBiologics\, and Takeda URL:https://vahemophilia.org/event-program/community-event-and-bleeding-disorders-awareness-month-celebration-at-topgolf/ LOCATION:Topgolf Richmond\, 2308 Westwood Ave\, Richmond\, Virginia\, 23230 ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org END:VEVENT END:VCALENDAR