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X-WR-CALNAME:Virginia Bleeding Disorders Foundation
X-ORIGINAL-URL:https://vahemophilia.org
X-WR-CALDESC:Events for Virginia Bleeding Disorders Foundation
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DTSTART;TZID=America/New_York:20260501T170000
DTEND;TZID=America/New_York:20260501T170000
DTSTAMP:20260408T004719
CREATED:20251212T013719Z
LAST-MODIFIED:20260228T193523Z
UID:7201-1777654800-1777654800@vahemophilia.org
SUMMARY:APPLICATION DUE: Camp Youngblood at Camp Holiday Trails
DESCRIPTION:Application Closes Friday\, May 1\, 2026 at 5:00 pm \n🏕️ Camp Youngblood 2026\nDates: Sunday\, July 12 – Friday\, July 17\, 2026 \nLocation: Camp Holiday Trails 400 Holiday Trails Ln\, Charlottesville\, VA 22903 \n👉 Start the Pre-Screen Application › Go Here! \nAbout Camp Youngblood – Camp Youngblood is a week-long overnight summer camp\, funded by Virginia Bleeding Disorders Foundation (VABDF) formerly Virginia Hemophilia Foundation (VHF)and the  Hemophilia Association of the Capital Area (HACA)\, that provides children and teens from the inherited bleeding disorders community with a traditional camp experience in a safe\, supportive environment. Campers enjoy a variety of activities while forming lasting friendships with peers who share similar life experiences. \nHosted at Camp Holiday Trails (CHT)\, a year-round camp for children with medical needs and their siblings\, campers must be socially\, emotionally\, behaviorally and developmentally able to participate in group activities. With 24/7 on-site medical care\, CHT ensures each camper’s individual needs are met. \nEligibility \nCYB is open to campers ages 7–17 who: \n\nHave an *inherited bleeding disorder\nAre siblings of someone with an inherited bleeding disorder\nAre children of members of the inherited bleeding disorder community\nLive within the VHF or HACA coverage area\n\nCost – $50 non-refundable application fee (per camper). This fee is charged after your application is reviewed and enrollment is confirmed by CHT via an enrollment email sent from CHT’s Director of Programs\, Caitlin Carroll. If the application fee is a barrier to attendance\, please contact Heather Conner: info@vahemophilia.org or Brenda Bordelon: director@hacacares.org \nApplication Process \n\nFamilies complete the pre-screen form.\nEligible families receive the CHT application link.\nEnrollment is confirmed once all materials are complete.\n\nDeadlines \n\nRegistration closes: May 1\, 2026\nAll forms due: June 5\, 2026\nConfirmation emails sent by: June 12\, 2026\n\nCancellation – We understand that emergencies and illnesses can happen and that late cancellations may be unavoidable. If you know that your child will not be able to attend after applying\, we ask that you cancel by Sunday\, June 21 so that VABDF/VHF and HACA are not responsible for covering the cost of campers who are not in attendance. Please note that the $50 registration fee is non-refundable. \nContact for cancellations or questions: Caitlin Carroll\, MSW\, Director of Programs\ncaitlin@campholidaytrails.org | 434-977-3781 (office) | 434-282-7213 (cell) \nCHT Immunization Policy – All standard childhood immunizations are required (per the American Academy of Pediatrics). Given the population at CHT and for the safety of all Campers\, only medical exemptions will be considered. ALL medical exemptions require physician (MD/NP/PA) documentation and approval from CHT’s Medial Director. \nThank you to our current sponsors: Takeda and VCU-HTC
URL:https://vahemophilia.org/event-program/application-due-camp-youngblood-at-camp-holiday-trails-2/
LOCATION:VA
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260604T183000
DTEND;TZID=America/New_York:20260604T200000
DTSTAMP:20260408T004719
CREATED:20260116T053833Z
LAST-MODIFIED:20260116T053833Z
UID:7213-1780597800-1780603200@vahemophilia.org
SUMMARY:VIRGINIA BEACH - Educational Dinner “Shared Decision Making”
DESCRIPTION:RSVP HERE  \nJoin us for an evening of education\, connection\, and support! This educational dinner program is for constituents (and their immediate family and/or household members.) Dinner will be provided and there is no fee to attend. \nLocation: Cooper’s Hawk Winery & Restaurant 733 Lynnhaven Mall Loop\, Virginia Beach\, VA 23452 \nProgram Topic: Shared Decision Making \nShared decision making is a partnership between people with hemophilia and their care teams that may help them better manage their condition. This interactive session covers how to take an active role as part of your treatment team\, discuss therapy considerations\, and find quality sources of information. \nSpeaker: Linda L. Pollhammer\, Patient Affairs Liaison\, Pfizer Rare Disease \nPlease note: Space may be limited\, if this event fills up priority will be given to individuals and families living in the Virginia Beach area. \nThank you to our sponsor\, Pfizer\, for supporting this program.
URL:https://vahemophilia.org/event-program/virginia-beach-educational-dinner-shared-decision-making/
LOCATION:Cooper’s Hawk Winery & Restaurant\, 733 Lynnhaven Mall Loop\, Virginia Beach\, VA\, 23452\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260627
DTEND;VALUE=DATE:20260629
DTSTAMP:20260408T004719
CREATED:20260408T033034Z
LAST-MODIFIED:20260408T034638Z
UID:7251-1782518400-1782691199@vahemophilia.org
SUMMARY:RICHMOND - HACA & VABDF Advocacy Education Summit
DESCRIPTION:RSVP HERE!\nHACA & VABDF Advocacy Education Summit: An educational weekend for the whole family! Are you ready to make an impact? Join HACA and VABDF for a weekend of advocacy training in Richmond. Learn to use your voice to impact legislation that affects the lives of people living with bleeding disorders. \nGO BEHIND THE SCENES\nSaturday | 11:00 AM: To kick off the weekend join us for an optional lunch and guided tour of the historic Virginia State Capitol. \nGET EMPOWERED\nSaturday | 1:30 PM: We’ll move over to the Hilton Richmond Downtown to join advocates from across Virginia. We have some great local and national speakers lined up to share tips on effective advocacy. We’ll cover things like:Telling your story: Practical tips and practice sessions to help you feel confident\, Navigating hurdles: What to do when you’re facing insurance denials or formulary changes\, and Advocacy at home: We’ll show you how to find your legislators’ contact info and how to set up meetings in your own town – no need to drive to Richmond to make a difference! Saturday night\, we’ll host an educational dinner\, and hotel rooms are available for HACA/VABDF members. \nSOMETHING FOR ALL AGES\nWe really want this to be a family event. We’ve set up specific tracks for adults\, teens\, and kids\, plus childcare for the little ones. We’re also mixing in some fun to keep the energy up (the kids will love the on-site game truck!). \nRegistration Fee: There is a $25 registration fee per household and payment instructions will be sent via email after registration closes on May 28. This event includes educational programs\, scheduled meals\, community activities\, and overnight accommodations for constituents living within the VHF coverage area. \nThank you to our current advocacy sponsors and supporters: CSL Behring\, EveryLife Foundation\, Genentech\, Hemophilia Alliance\, National Bleeding Disorders Foundation\, Novo Nordisk\, PhRMA and Takeda. \nOptional: Sunday\, June 28 Community Event at TopGolf Richmond\nAfter a busy Saturday\, we’ll head over to Top Golf Richmond on Sunday. It’s a great chance to get active with your family and enjoy some friendly competition. While we’re there\, you can visit with our sponsors to hear about the latest treatments and therapies. Golf is a safe\, healthy activity for our community\, and we’d love to end the weekend outside and moving with all of you.
URL:https://vahemophilia.org/event-program/richmond-advocacy-education-summit-an-educational-weekend-for-the-whole-family/
LOCATION:Hilton Richmond Downtown\, 501 East Broad Street\, Richmond\, VA\, 23219\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260712
DTEND;VALUE=DATE:20260718
DTSTAMP:20260408T004719
CREATED:20251007T040359Z
LAST-MODIFIED:20260331T052603Z
UID:7152-1783814400-1784332799@vahemophilia.org
SUMMARY:CHARLOTTESVILLE – Camp Youngblood at Camp Holiday Trails
DESCRIPTION:PRE-SCREEN APPLICATION\n🏕️ Camp Youngblood 2026\nDates: Sunday\, July 12 – Friday\, July 17\, 2026 \nLocation: Camp Holiday Trails 400 Holiday Trails Ln\, Charlottesville\, VA 22903 \n👉 Start the Pre-Screen Application › Go Here! \nAbout Camp Youngblood – Camp Youngblood is a week-long overnight summer camp\, funded by Virginia Bleeding Disorders Foundation (VABDF) formerly Virginia Hemophilia Foundation (VHF) and the Hemophilia Association of the Capital Area (HACA)\, that provides children and teens from the inherited bleeding disorders community with a traditional camp experience in a safe\, supportive environment. Campers enjoy a variety of activities while forming lasting friendships with peers who share similar life experiences. \nHosted at Camp Holiday Trails (CHT)\, a year-round camp for children with medical needs and their siblings\, campers must be socially\, emotionally\, behaviorally and developmentally able to participate in group activities. With 24/7 on-site medical care\, CHT ensures each camper’s individual needs are met. \nEligibility \nCYB is open to campers ages 7–17 who: \n\nHave an *inherited bleeding disorder\nAre siblings of someone with an inherited bleeding disorder\nAre children of members of the inherited bleeding disorder community\nLive within the VABDF/VHF or HACA coverage area\n\nCost – $50 non-refundable application fee (per camper). This fee is charged after your application is reviewed and enrollment is confirmed by CHT via an enrollment email sent from CHT’s Director of Programs\, Caitlin Carroll. If the application fee is a barrier to attendance\, please contact Heather Conner: info@vahemophilia.org or Brenda Bordelon: director@hacacares.org \nApplication Process \n\nFamilies complete the pre-screen form.\nEligible families receive the CHT application link.\nEnrollment is confirmed once all materials are complete.\n\nDeadlines \n\nRegistration closes: May 1\, 2026\nAll forms due: June 5\, 2026\nConfirmation emails sent by: June 12\, 2026\n\nCancellation – We understand that emergencies and illnesses can happen and that late cancellations may be unavoidable. If you know that your child will not be able to attend after applying\, we ask that you cancel by Sunday\, June 21 so that VABDF/VHF and HACA are not responsible for covering the cost of campers who are not in attendance. Please note that the $50 registration fee is non-refundable. \nContact for cancellations or questions: Caitlin Carroll\, MSW\, Director of Programs\ncaitlin@campholidaytrails.org | 434-977-3781 (office) | 434-282-7213 (cell) \nCHT Immunization Policy – All standard childhood immunizations are required (per the American Academy of Pediatrics). Given the population at CHT and for the safety of all Campers\, only medical exemptions will be considered. ALL medical exemptions require physician (MD/NP/PA) documentation and approval from CHT’s Medial Director. \nThank you to our current sponsors: Genentech\, Takeda\, and VCU-HTC
URL:https://vahemophilia.org/event-program/charlottesville-camp-youngblood-at-camp-holiday-trails/
LOCATION:Camp Holiday Trails\, 400 Holiday Trails Lane\, Charlottesville\, VA\, 22903
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260911
DTEND;VALUE=DATE:20260914
DTSTAMP:20260408T004719
CREATED:20260116T054720Z
LAST-MODIFIED:20260116T054947Z
UID:7215-1789084800-1789343999@vahemophilia.org
SUMMARY:SAVE THE DATE: Fall Community Education Weekend at Great Wolf Lodge
DESCRIPTION:📅 September 11–13\, 2026📍 Great Wolf Lodge Conference Center | Williamsburg\, VA \nThis community education weekend is designed to educate and connect members of the bleeding disorders community. \nThis event includes educational sessions\, on-site childcare\, waterpark access\, meals\, and overnight accommodations. \n➡️ Please note: Access to overnight accommodations and the water park is only available to those who attend the Saturday education meeting. \n\nWeekend Schedule & Highlights\nFriday\, September 11 Water park access begins when it opens Friday for those staying overnight. Hotel check-in begins at 4:00 PM. \nSaturday\, September 12 – Education Meeting (Begins at 8:00 AM) \n\nEnjoy breakfast and visit exhibits.\nAttend our keynote session: TBD\nTake part in breakout sessions: TBD\nOn-site childcare and youth/teen programming will be provided by Camp Holiday Trails and A Helping Hand.\nEnjoy optional overnight accommodations and more waterpark fun Saturday evening.\n\nSunday\, September 13 No scheduled activities or meals. A relaxing departure day. \n\nℹ️ Important Details\n\nOpen to all ages – not limited to families with children.\nTo reserve a room\, at least one person in your group must be age 21+.\nRegistration fee per household: TBD\nSpace is limited and determined by our Program Registration Guidelines.\n\n\n✅ Eligibility Requirements\nTo be eligible\, you must meet all of the following: \n\nHave an inherited bleeding disorder\, or be the spouse/partner/parent/caregiver of someone who does\nLive in the VABDF/VHF coverage area or receive care for your bleeding disorder within it. Click here to see if you meet the eligibility requirements.\n\n\nWe’re so excited to welcome you for a weekend of learning\, connection\, and community fun! \nThank You to Our Current Sponsor(s): 
URL:https://vahemophilia.org/event-program/save-the-date-fall-community-education-weekend-at-great-wolf-lodge/
LOCATION:Great Wolf Lodge\, 549 E Rochambeau Dr.\, Williamsburg\, VA\, 23188
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