Virginia Bleeding Disorders Foundation

APPLICATION DUE: Camp Youngblood at Camp Holiday Trails
2026-05-08 17:00 (America/New_York) | VA
Application Deadline Extended to Friday, May 8, 2026 at 5:00 pm
🏕️ Camp Youngblood 2026
Dates: Sunday, July 12 – Friday, July 17, 2026
Location: Camp Holiday Trails 400 Holiday Trails Ln, Charlottesville, VA 22903
👉 Start the Pre-Screen Application › Go Here!
About Camp Youngblood – Camp Youngblood is a week-long overnight summer camp, funded by Virginia Bleeding Disorders Foundation (VABDF) formerly Virginia Hemophilia Foundation (VHF)and the Hemophilia Association of the Capital Area (HACA), that provides children and teens from the inherited bleeding disorders community with a traditional camp experience in a safe, supportive environment. Campers enjoy a variety of activities while forming lasting friendships with peers who share similar life experiences.
Hosted at Camp Holiday Trails (CHT), a year-round camp for children with medical needs and their siblings, campers must be socially, emotionally, behaviorally and developmentally able to participate in group activities. With 24/7 on-site medical care, CHT ensures each camper’s individual needs are met.
Eligibility
CYB is open to campers ages 7–17 who:

Have an *inherited bleeding disorder
Are siblings of someone with an inherited bleeding disorder
Are children of members of the inherited bleeding disorder community
Live within the VHF or HACA coverage area

Cost – $50 non-refundable application fee (per camper). This fee is charged after your application is reviewed and enrollment is confirmed by CHT via an enrollment email sent from CHT’s Director of Programs, Caitlin Carroll. If the application fee is a barrier to attendance, please contact Heather Conner: info@vahemophilia.org or Brenda Bordelon: director@hacacares.org
Application Process

Families complete the pre-screen form.
Eligible families receive the CHT application link.
Enrollment is confirmed once all materials are complete.

Deadlines

Registration closes: May 8, 2026
All forms due: June 5, 2026
Confirmation emails sent by: June 12, 2026

Cancellation – We understand that emergencies and illnesses can happen and that late cancellations may be unavoidable. If you know that your child will not be able to attend after applying, we ask that you cancel by Sunday, June 21 so that VABDF/VHF and HACA are not responsible for covering the cost of campers who are not in attendance. Please note that the $50 registration fee is non-refundable.
Contact for cancellations or questions: Caitlin Carroll, MSW, Director of Programs
caitlin@campholidaytrails.org | 434-977-3781 (office) | 434-282-7213 (cell)
CHT Immunization Policy – All standard childhood immunizations are required (per the American Academy of Pediatrics). Given the population at CHT and for the safety of all Campers, only medical exemptions will be considered. ALL medical exemptions require physician (MD/NP/PA) documentation and approval from CHT’s Medical Director.
Thank you to our current sponsors: Bayer, CVS, Genentech, Takeda, UVA-HTC, and VCU-HTC

VIRGINIA BEACH - Educational Dinner “Shared Decision Making”
2026-06-04 18:30 - 20:00 | Cooper’s Hawk Winery & Restaurant, 733 Lynnhaven Mall Loop, Virginia Beach, VA, 23452, United States
RSVP HERE
Join us for an evening of education, connection, and support! This educational dinner program is for constituents (and their immediate family and/or household members.) Dinner will be provided and there is no fee to attend.
Location: Cooper’s Hawk Winery & Restaurant 733 Lynnhaven Mall Loop, Virginia Beach, VA 23452
Program Topic: Shared Decision Making
Shared decision making is a partnership between people with hemophilia and their care teams that may help them better manage their condition. This interactive session covers how to take an active role as part of your treatment team, discuss therapy considerations, and find quality sources of information.
Speaker: Linda L. Pollhammer, Patient Affairs Liaison, Pfizer Rare Disease
Please note: Space may be limited, if this event fills up priority will be given to individuals and families living in the Virginia Beach area.
Thank you to our sponsor, Pfizer, for supporting this program.

RICHMOND - HACA & VABDF Advocacy Education Summit
2026-06-27 - 2026-06-28 | Hilton Richmond Downtown, 501 East Broad Street, Richmond, VA, 23219, United States
RSVP HERE BY MAY 28!
HACA & VABDF Advocacy Education Summit: An educational weekend for all ages! Are you ready to make an impact? Join HACA and VABDF for a weekend of advocacy training in Richmond. Learn to use your voice to impact legislation that affects the lives of people living with bleeding disorders.
GO BEHIND THE SCENES
Saturday | 11:00 AM: To kick off the weekend join us for an optional lunch and guided tour of the historic Virginia State Capitol.
GET EMPOWERED
Saturday | 1:30 PM: We’ll move over to the Hilton Richmond Downtown to join advocates from across Virginia. We have some great local and national speakers lined up to share tips on effective advocacy. We’ll cover things like:Telling your story: Practical tips and practice sessions to help you feel confident, Navigating hurdles: What to do when you’re facing insurance denials or formulary changes, and Advocacy at home: We’ll show you how to find your legislators’ contact info and how to set up meetings in your own town – no need to drive to Richmond to make a difference! Saturday night, we’ll host an educational dinner, and hotel rooms are available for HACA/VABDF members.
SOMETHING FOR ALL AGES
We really want this to be an event with something for all ages so we’ve set up specific tracks for adults, teens, and kids, plus childcare for the little ones. We’re also mixing in some fun to keep the energy up (the kids will love the on-site video game truck!).
This event includes educational programs, scheduled meals, community activities, and overnight accommodations for constituents living within the HACA & VABDF coverage area.
Thank you to our current advocacy sponsors and supporters: CSL Behring, EveryLife Foundation, Genentech, Hemophilia Alliance, National Bleeding Disorders Foundation, Novo Nordisk, PhRMA and Takeda.
Optional: Sunday, June 28 Community Event at TopGolf Richmond
After a busy Saturday, we’ll head over to Top Golf Richmond on Sunday. It’s a great chance to get active with your family and enjoy some friendly competition. While we’re there, you can visit with our sponsors to hear about the latest treatments and therapies. Golf is a safe, healthy activity for our community, and we’d love to end the weekend outside and moving with all of you.

RICHMOND – Community Event at TopGolf
2026-06-28 11:00 - 14:00 | Topgolf Richmond, 2308 Westwood Ave, Richmond, Virginia, 23230
RSVP Here!
Get Active with YOUR Bleeding Disorders Community at Topgolf Richmond!
Join the Virginia Bleeding Disorders Foundation (VABDF) on Sunday, June 28 for a fun and educational community event focused on health, fitness, and connection. This unique outing offers opportunities to learn more about managing your bleeding disorder, build relationships within the community, and enjoy the game of golf—no experience required!
Priority will be given to attendees of the HACA & VABDF Advocacy Education Summit on June 27th.
🎯 What to Expect:

A supportive and engaging environment
Community building and family fun
Lunch and two hours of golf, provided at no cost

Educational Topic: TBD
This event is free to attend and open to individuals diagnosed with an inherited bleeding disorder and their immediate family or household members who reside within the VABDF coverage area.
VABDF community events are held throughout the year to provide social and educational experiences for individuals and families. These gatherings are an excellent way to increase knowledge, find support, and enjoy time together.
We can’t wait to see you there!
Thank you to our current sponsor(s): CSL Behring, CVS Specialty Pharmacy, InfuCareRx, Medexus, Novo Nordisk, and Pfizer
Thank you to our Family Fun Connections Sponsor: Colburn-Keenan Foundation

CHARLOTTESVILLE – Camp Youngblood at Camp Holiday Trails
2026-07-12 - 2026-07-17 | Camp Holiday Trails, 400 Holiday Trails Lane, Charlottesville, VA, 22903
PRE-SCREEN APPLICATION
🏕️ Camp Youngblood 2026
Dates: Sunday, July 12 – Friday, July 17, 2026
Location: Camp Holiday Trails 400 Holiday Trails Ln, Charlottesville, VA 22903
👉 Start the Pre-Screen Application › Go Here!
About Camp Youngblood – Camp Youngblood is a week-long overnight summer camp, funded by Virginia Bleeding Disorders Foundation (VABDF) formerly Virginia Hemophilia Foundation (VHF) and the Hemophilia Association of the Capital Area (HACA), that provides children and teens from the inherited bleeding disorders community with a traditional camp experience in a safe, supportive environment. Campers enjoy a variety of activities while forming lasting friendships with peers who share similar life experiences.
Hosted at Camp Holiday Trails (CHT), a year-round camp for children with medical needs and their siblings, campers must be socially, emotionally, behaviorally and developmentally able to participate in group activities. With 24/7 on-site medical care, CHT ensures each camper’s individual needs are met.
Eligibility
CYB is open to campers ages 7–17 who:

Have an *inherited bleeding disorder
Are siblings of someone with an inherited bleeding disorder
Are children of members of the inherited bleeding disorder community
Live within the VABDF/VHF or HACA coverage area

Cost – $50 non-refundable application fee (per camper). This fee is charged after your application is reviewed and enrollment is confirmed by CHT via an enrollment email sent from CHT’s Director of Programs, Caitlin Carroll. If the application fee is a barrier to attendance, please contact Heather Conner: info@vahemophilia.org or Brenda Bordelon: director@hacacares.org
Application Process

Families complete the pre-screen form.
Eligible families receive the CHT application link.
Enrollment is confirmed once all materials are complete.

Deadlines

Registration closes: May 8, 2026
All forms due: June 5, 2026
Confirmation emails sent by: June 12, 2026

Cancellation – We understand that emergencies and illnesses can happen and that late cancellations may be unavoidable. If you know that your child will not be able to attend after applying, we ask that you cancel by Sunday, June 21 so that VABDF/VHF and HACA are not responsible for covering the cost of campers who are not in attendance. Please note that the $50 registration fee is non-refundable.
Contact for cancellations or questions: Caitlin Carroll, MSW, Director of Programs
caitlin@campholidaytrails.org | 434-977-3781 (office) | 434-282-7213 (cell)
CHT Immunization Policy – All standard childhood immunizations are required (per the American Academy of Pediatrics). Given the population at CHT and for the safety of all Campers, only medical exemptions will be considered. ALL medical exemptions require physician (MD/NP/PA) documentation and approval from CHT’s Medical Director.
Thank you to our current sponsors: Bayer, CVS, Genentech, Takeda, UVA-HTC, and VCU-HTC

Fall Community Education Weekend at Great Wolf Lodge
2026-09-11 - 2026-09-13 | Great Wolf Lodge, 549 E Rochambeau Dr., Williamsburg, VA, 23188
RSVP HERE BY JULY 31!
📅 September 11–13, 2026📍 Great Wolf Lodge Conference Center | Williamsburg, VA
This community education weekend is designed to educate and connect members of the bleeding disorders community.
This event includes educational sessions, on-site childcare, waterpark access, meals, and overnight accommodations.
➡️ Please note: Access to overnight accommodations and the water park is only available to those who attend the Saturday education meeting.

Weekend Schedule & Highlights
Friday, September 11 Water park access begins when it opens Friday for those staying overnight. Hotel check-in begins at 4:00 PM.
Saturday, September 12 – Education Meeting (Begins at 9:00 AM)

8:00 AM Enjoy breakfast and visit exhibits.
9:00 AM Attend our keynote session: TBD
10:00 AM to 4:00 PM Take part in breakout sessions and visit exhibits: TBD
On-site childcare and youth/teen programming will be provided by Camp Holiday Trails and A Helping Hand.
Enjoy optional overnight accommodations and more waterpark fun Saturday evening.

Sunday, September 13 No scheduled education but breakfast will be offered! A relaxing departure day and time to enjoy the waterpark with friends and family before heading home!

ℹ️ Important Details

Open to all ages – not limited to families with children.
To reserve a room, at least one person in your group must be age 21+.
The meeting registration fee is $50 per household. We do not want cost to prevent anyone from participating so if the registration fee presents a financial hardship, please let us know. Registration fees will be collected after registration closes on Friday, July 24th.
Space is limited and determined by our Program Registration Guidelines.

PLEASE READ: VABDF is pleased to provide complimentary hotel accommodations for Saturday night for all registered individuals/families attending this year’s event. A limited number of complimentary Friday-night hotel rooms are also available. Because the number of available rooms is limited, priority will be given to those attendees that are traveling more than 90 miles and for whom the cost of an additional hotel night would create a financial hardship. Those who wish to arrive on Friday but are not selected for a complimentary Friday-night room may reserve a room at our discounted group rate of $179 per night, plus applicable taxes and fees. Friday-night room requests will be reviewed after registration closes on Friday, July 24th,and you will be notified of your hotel status by Friday, August 7th. Thank you for your understanding and for helping us make this event accessible to as many people as possible!

✅ Eligibility Requirements
To be eligible, you must meet all of the following:

Have an inherited bleeding disorder, or be the spouse/partner/parent/caregiver of someone who does
Live in the VABDF/VHF coverage area or receive care for your bleeding disorder within it. Click here to see if you meet the eligibility requirements.

We’re so excited to welcome you for a weekend of learning, connection, and community fun!
Thank You to Our Current Sponsors!
Corporate: ASAP Pharmacy, Bayer, BioMatrix, CVS Specialty Pharmacy, Medexus, and Soleo Health
Premier: CSL Behring, Genentech, NovoNordisk, Pfizer, and Takeda
