Virginia Bleeding Disorders Foundation

ROSELAND - Fall Community Event at Blue Ridge Mountain Maze
2025-10-18 12:00 - 14:00 (America/New_York) | Blue Ridge Mountain Maze, 462 Winery Lane, Roseland, Virginia, 22967
THIS EVENT IS NOW FULL.
🍂 Fall Community Event at the Blue Ridge Mountain Maze
Saturday, October 18, 2025 | 12:00 – 2:00 pm
Blue Ridge Mountain Maze in Roseland is conveniently located 40 minutes from Charlottesville at Blue Toad Hard Cider, in the Heart of the Blue Ridge Mountains and located at the base of the entrance to Wintergreen Mountain Resort.
Join VHF for an A-Maze-ing Day of Fall Fun!
Celebrate the season with fresh air, community connection, and plenty of outdoor adventure at the Blue Ridge Mountain Maze. This family-friendly all ages event has something for everyone — from toddlers to teens to adults — and is the perfect way to enjoy autumn in the mountains.
🍁 What to Expect
Corn Maze & Pumpkin Patch: Get lost in the 5-acre maze, pick your perfect pumpkin, and snap the ultimate fall photos.
Farmy Fun Zone: Giant slides, mini mazes, farm obstacle course, roll tubes, farm animals, pony rides and more.
Special VHF Gathering Area: Relax, recharge, and connect with others in a private area just for our group — located in the heart of the action.
Food & Treats: Lunch from a local food truck is provided by VHF. Plus you will have time to explore on your own and enjoy cider donuts, homemade ice cream, kettle corn, and other fall favorites from the country store.
Education & Community: Learn, share, and build connections with others in the bleeding disorders community.
Whether you’re navigating the corn maze, launching apples, or simply soaking up the mountain views, this event is the perfect opportunity to unwind and celebrate fall — together.
This event is free to attend and open to individuals diagnosed with an inherited bleeding disorder and their immediate family or household members who reside within the VHF coverage area.
VHF community events are held throughout the year to provide social and educational experiences for individuals and families. These gatherings are an excellent way to increase knowledge, find support, and enjoy time together. We can’t wait to see you there!
Thank you to our current sponsor(s): CSL Behring, Sanofi, and UVA-HTC

VIRTUAL – VHF/HACA Advocacy Stakeholder and Education Meeting
2025-11-06 16:00 - 18:00 | Zoom
RSVP HERE
Thursday, November 6, 2025 | Time 4:00 – 6:00 pm | Held via Zoom
Join fellow Virginians and community stakeholders from across the bleeding disorders community for an engaging virtual education session focused on advocacy. Stay informed with the latest state and federal advocacy news, connect with community members, and collaborate on improving the lives of those affected by bleeding disorders. Share experiences, gain knowledge, and build a stronger community.
Agenda highlights will include what to expect in the 2026 Virginia General Assembly and updates on federal policy and legislation.
You will receive the Zoom link in a separate email from heather@vahemophilia.org.
Let’s come together to learn, connect, and make a difference.
Thank you to our current sponsors: Genentech, National Bleeding Disorders Foundation NBDF, Pfizer, Takeda, UVA-HTC, and VCU-HTC
As we gather virtually to discuss, share and learn, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe, productive, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.

VIRGINIA BEACH-Adult Retreat Weekend
2025-11-07 - 2025-11-09 | Hyatt Place Virginia Beach / Oceanfront, 3601 Atlantic Ave, Virginia Beach, VA, 23451
THIS EVENT IS NOW FULL. Please email info@vahemophilia.org if you woudl like to be added to the waitlist.
🌊 Virginia Beach Adult Retreat Weekend
November 7–9, 2025 | Hyatt Place Virginia Beach / Oceanfront 3601 Atlantic Ave, Virginia Beach, VA 23451
Relax. Learn. Connect.
Take time for yourself this fall at the VHF Adult Retreat Weekend — a rejuvenating oceanfront getaway designed for education and meaningful connection. Whether you live with a bleeding disorder or support someone who does, this retreat offers space to rest, learn, and grow — all while connecting with people who truly understand your journey.
Weekend Highlights
Friday Evening – Kick off the weekend with a casual welcome and optional social hour. It’s the perfect chance to ease into the retreat, meet new people, and reconnect with old friends.
Saturday – Our Main Day Together (go here to view the meeting agenda)
*Morning: Shared breakfast followed by engaging educational sessions.
*Sessions & Speakers: Joint and bone health with Chris Guelcher, RN-BC, MS, PPCNP-BC, Building resilience in the face of challenges and Caring for caregivers with Kate Nammacher, MPH, and Your Voice Matters: How You Can Shape the Future of Bleeding Disorders Research with VHF community member Paxton Mills
*Wellness Activity: Light Refreshments & Group Wellness Activity: Chair Massages. Enjoy time relaxing, sharing reflections, and connecting with peers. Light refreshments will be available, along with chair massages provided by The Well Virginia Beach.
*Enjoy your evening exploring the Virginia Beach boardwalk and local dining options. A great chance to relax after a long day, connect with friends, or simply take in the ocean views!

📝 Important Details
The VHF Adult Retreat is designed for VHF constituents age 21 and up with inherited bleeding disorders and/or to adults whose lives are impacted by an inherited bleeding disorder (i.e. caregivers, spouses, carriers, immediate family members – some restrictions do apply) and is not open to individuals employed or compensated by Industry.
Educational program, scheduled meals, and Friday and Saturday night overnight accommodations are provided at no cost for constituents that live in the VHF coverage area. There is a $50 registration fee to attend (a link to pay will be sent out after registration closes on October 16th.)
Thank you to our current sponsors: Genentech, NBDF, Takeda, and UVA-HTC

RICHMOND - Winter Community Event at Lewis Ginter GardenFest of Lights
2025-12-09 18:00 - 20:00 | Lewis Ginter Botanical Garden, 1800 Lakeside Ave., Richmond, Virginia, 23228
THIS EVENT IS NOW FULL. Email heather@vahemophilia.org to be placed on the waiting list.
Celebrate the season with your bleeding disorders community at VHF’s Annual Winter Gathering — a fun education event for all ages!
We’ll kick off the evening with an educational dinner in a private room at the Lewis Ginter Botanical Garden, then head out together to explore the GardenFest of Lights — a cherished holiday tradition featuring millions of sparkling lights, beautiful botanical displays, model trains, warming fires, hot chocolate, s’mores, and more!
Come enjoy a cozy evening of learning, laughter, and light with family and friends.
✨ Special Note: If you haven’t yet had the chance to see the VHF Sitting Wall, now is the perfect opportunity. Overlooking the gardens and water, this peaceful space features an engraved memorial plaque dedicated to the bleeding disorders community in honor of VHF’s 50th anniversary. It serves as a tribute to those we have lost, a celebration of the contributions of so many, and a lasting symbol of our community’s strength and unity.
This event is limited to constituents that live within the VHF coverage area and their immediate family and/or household members. There is no fee to attend and space is limited.
Please note that this will be the only Winter Gathering of the season.
Thank you to our sponsors: CSL Behring, Sanofi, and UVA-HTC

VIRTUAL – 2026 Advocacy Education Training
2026-01-20 19:00 - 20:00 | VA
RSVP HERE
Join VHF and the Hemophilia Association of the Capital Area (HACA) for a virtual advocacy education training focused on the 2026 Virginia General Assembly.
Learn about proposed legislation and state policy issues that impact access to quality healthcare, and discover how you can make your voice heard on behalf of the Virginia inherited bleeding disorders community.
This training is designed to help prepare participants for Richmond Days, but you do not need to be registered for Richmond Days to join.
Who Can Attend: This session is free and open to all community members and anyone interested in learning more about advocacy and state-level healthcare policy is encouraged to participate.
Thank you to our current advocacy sponsors and supporters: CSL Behring, EveryLife Foundation, Hemophilia Alliance, National Bleeding Disorders Foundation (NBDF), Novo Nordisk, PhRMA, and Takeda
As we gather virtually to discuss, share and learn, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe, productive, and welcoming environment for all meeting participants and staff. » Go here to read video meeting etiquette and rules of engagement.

Richmond Days
2026-01-25 - 2026-01-26 | General Assembly Building, 201 North 9th St., Richmond, 23219, United States
Please note that the in-person Richmond Days events have been canceled due to weather; we’ll be sharing more advocacy opportunities later this year.
Monday, January 26, 2026: Join VHF and the Hemophilia Association of the Capital Area (HACA) for an opportunity to advocate for policies that improve access to care, support, and resources for those living with bleeding disorders. Your voice can directly impact legislation that affects the lives of individuals with bleeding disorders by meeting with your state legislators. Open to all community members.
What to Expect: We will reserve space in the General Assembly building from 9:00 am to 10:30 am and aim to schedule two in-person legislative visits for each participant—one with your State Senate office and one with your State Delegate office. You may be joined by other advocates during these meetings and have opportunities to participate in additional legislative visits.
Sunday, January 25, 2026: There will be an optional education dinner and hotel rooms available for VHF/HACA community members at Hilton Richmond Downtown
We hope you’ll join us on Tuesday, January 20, 2026, at 7:00 pm for our Virtual Advocacy Education Training where we’ll cover tips for your visits and share our 2026 legislative priorities, RSVP here.
Thank you to our current advocacy sponsors and supporters: CSL Behring, EveryLife Foundation, Hemophilia Alliance, National Bleeding Disorders Foundation (NBDF), Novo Nordisk, PhRMA, and Takeda

VIRTUAL BRANDED EDUCATION - Learn About HYMPAVZI™ (marstacimab-hncq)
2026-02-10 18:30 - 19:30 | Zoom
RSVP HERE
We’re transitioning to our new name, Virginia Bleeding Disorders Foundation (VABDF), so you may see both names for a while—thank you for your patience!
Join us for a virtual educational session presented by Pfizer to learn more about Hympavzi a rebalancing treatment option for hemophilia. This session is intended for people living with hemophilia, parents, partners, and caregivers, and anyone interested in learning more about treatment options and shared decision-making with a health care provider. Registered participants that attend the program are eligible to receive a gift card, one per household.
You’ll hear:
• The science behind rebalancing therapy
• Clinical trial data
• Safety information
• Information on administration
• Shared decision-making tips for patients and caregivers
Speaker: Linda L. Pollhammer, Patient Affairs Liaison, Pfizer Rare Disease

Important notes
This is a branded educational program presented in partnership with Pfizer. The information shared is for educational purposes and is not medical advice. Always talk with your hemophilia treatment center (HTC) or health care provider about what’s right for you.
Thank you to our sponsor, Pfizer, for supporting this program.

CHESAPEAKE - Educational Dinner "Understanding Your Health Insurance Options"
2026-02-19 18:30 - 20:00 | Black Pelican Seafood Company Greenbrier, 1625 Ring Rd , VA, Chesapeake, VA, 23320, United States
RSVP HERE
We’re transitioning to our new name, Virginia Bleeding Disorders Foundation (VABDF), so you may see both names for a while—thank you for your patience!
Join us for an evening of education, connection, and support! This educational dinner program is for VABDF/VHF constituents (and their immediate family and/or household members.) Dinner will be provided and there is no fee to attend.
Location: Black Pelican Seafood Company Greenbrier | Chesapeake, VA
Program Topic: Understanding Your Health Insurance Options, designed for patients, caregivers, and families who want to feel more confident navigating health insurance decisions.
We understand health insurance can be confusing. We are here to help you understand your insurance options so you can identify the best plan for you.
Join us for an informative session to learn about health insurance options and how health insurance changes may affect your coverage and treatment costs.
Speaker: Wendy GlennRN, BSN, Rare Disease Hybrid Account Manager, Genentech
Please note: Space may be limited, if this event fills up priority will be given to individuals and families living in the Chesapeake area.
Thank you to our sponsor, Genentech, for supporting this program.

VIRTUAL – Camp Youngblood Information Session
2026-02-23 19:00 - 20:00 | Zoom
REGISTER HERE!
We’re transitioning to our new name, Virginia Bleeding Disorders Foundation (VABDF), so you may see both names for a while—thank you for your patience!
Are you thinking about sending your child to Camp Youngblood at Camp Holiday Trails (CHT) for the first time in 2025, have questions, or would you just like a refresher on the camp experience? Join the Hemophilia Association of the Capital Area (HACA), CHT, and VABDF for a virtual information session via Zoom on Monday, February 23, at 7:00 pm to learn more about Camp Youngblood – even if you aren’t quite ready to send your kids this year.
What to expect: Staff from CHT will talk more about camp activities and facilities; longtime Camp Youngblood parents will share their experiences with sending their kids to camp, and staff from VABDF and HACA will be available to answer any additional questions. This virtual session will be a great opportunity to learn more and get all your questions answered in real time!
Camp Youngblood is a week-long overnight camp at Camp Holiday Trails (CHT) for children ages 7-17 with inherited bleeding disorders, their siblings, and children of members of the inherited bleeding disorder community that reside within the VHF or HACA coverage area.
» Go here to learn more about the Camp Youngblood registration process
» REGISTER HERE One week out from the event you will receive the zoom link separately via email from heather@vahemophilia.org.

As we gather virtually to discuss, share and learn, we ask that all virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping us ensure a safe, productive, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.

VIRTUAL - Education Session "Discover a New Investigational Approach to VWD Treatment"
2026-03-03 19:00 - 20:15 | Zoom
RSVP HERE!
Join Us for a Virtual Education Session during VWD Awareness Week
March is Bleeding Disorders Awareness Month, and in recognition of Von Willebrand Disease (VWD) Awareness Week (March 1–7), we are pleased to host the virtual educational session “Discover a New Investigational Approach to VWD Treatment” featuring Star Therapeutics.
Star Therapeutics is currently investigating VGA039, a potential once-monthly subcutaneous prophylactic treatment for VWD.
If you or someone in your family has any type of VWD or you are curious about new therapies in the bleeding disorders community, we invite you to join us for this informative and engaging session. Dr. Laura Guido, Head of Medical Affairs at Star Therapeutics, will discuss:

How VGA039 works
The clinical development pathway for this investigational therapy
Early clinical trial results
Information about the VIVID Clinical Trials, including how to explore eligibility and participation

Featured Speaker
Laura Guido, PharmD, MBA, BCPSExecutive Director, Medical Affairs, Star Therapeutics
Dr. Guido is a clinical pharmacist who leads Medical Affairs for VGA039 at Star Therapeutics. Prior to joining Star, she supported clinical development for hemophilia A gene therapy trials at BioMarin and spent several years working in anticoagulation at Boehringer Ingelheim. Before transitioning to industry, Dr. Guido practiced as a clinical pharmacist.

STAUNTON - Annual Education Meeting
2026-03-13 - 2026-03-15 | Hotel 24 South, 24 S Market St, Staunton, Virginia, 24401
REGISTRATION IS NOW CLOSED. If you would like to be added to the waitlist email Heather at info@vahemophilia.org.
We’re transitioning to our new name, Virginia Bleeding Disorders Foundation (VABDF), so you may see both names for a while—thank you for your patience!
✨ Annual Education Meeting: Celebrating Community and Connection
Friday, March 13 to Sunday, March 15, 2026
Hotel 24 South, 24 S Market St., Staunton, Virginia
VABDF’s Annual Meeting brings together individuals and families affected by inherited bleeding disorders for a weekend of education, support, and connection. This special event offers opportunities to learn about the latest in treatment and care, share experiences, and strengthen our community through networking and collaboration.
As we gather, we’ll also celebrate March as Bleeding Disorders Awareness Month — a time to raise awareness, promote education, and honor the dedication and achievements of our incredible bleeding disorders community. Together, we’ll learn, connect, and create lasting memories!
What to Expect *Please Note That These Plans May Change*: The event kicks off Friday evening at 7:00 pm with an education session on “Caregiver Burnout”, dinner, and time to catch up with friends and family. Saturday begins with breakfast and an opportunity to explore exhibits hosted by our generous industry sponsors, showcasing the latest treatments and therapies. The day continues with engaging educational sessions, updates from VABDF, and on-site childcare and programs for ages 0-17.
Overnight Accommodations: We are pleased to offer overnight accommodations at the Hotel 24 South for Friday, March 13, and Saturday, March 14.
Registration Fee: There is a $25 registration fee per household and payment instructions will be sent via email after registration closes. This event includes educational programs, scheduled meals, community activities, and overnight accommodations for constituents living within the VHF coverage area.
Tentative Schedule:
Friday, March 13
7:00 PM: Educational Dinner “Caregiver Burnout”
Saturday, March 14
8:30 AM – 9:30 AM: Breakfast and Exhibit Visits
9:30 AM – 4:00 PM: Educational Presentations, Exhibit Visits, Lunch, Snack Breaks, and More
4:00 PM: Meeting Wrap-Up
Sunday, March 15
8:00 AM – 9:30 AM: Education Breakfast
10:30 AM Community Event at the Frontier Culture Museum * This community event is optional and is not a part of the annual meeting.
Thank you to our current Annual Meeting sponsors: Accredo by EVERNORTH, Bayer, BioMatrix, CSL Behring, Genentech, Hemabiologics, Hemophilia Alliance, InfuCare Rx, Novo Nordisk, Pfizer, Sanofi, Soleo Health, Superior Biologics, Takeda, UVA-HTC, and VCU-HTC

ROANOKE - Educational Dinner "A Focus on Mental Well-being"
2026-03-25 18:00 - 19:30 | Billy’s, 102 Market St SE, Roanoke, 24011, United States
RSVP HERE
We’re transitioning to our new name, Virginia Bleeding Disorders Foundation (VABDF), so you may see both names for a while—thank you for your patience!
Join us for an evening of education, connection, and support! This educational dinner program is for VABDF/VHF constituents (and their immediate family and/or household members.) Dinner will be provided and there is no fee to attend.
Location: Billy’s Roanoke
Program Topic: A Focus on Mental Well-being

Mental health is a state of well-being and is an important topic to talk about for everyone, including those living with a bleeding disorder. That’s why we’ve partnered with an expert to discuss ways to navigate mental health, as it includes our emotional, psychological, and social well-being.
Speaker: Kendra Wrisley, Rare Blood Community Liaison, Mid-Atlantic Territory, Novo Nordisk
Please note: Space may be limited, if this event fills up priority will be given to individuals and families living in the South West Virginia area.
Thank you to our sponsor, Novo Nordisk, for supporting this program.

RICHMOND - Educational Dinner "World Hemophilia Day: One Family Program"
2026-04-16 18:00 - 19:30 | Red Salt Chophouse & Sushi, 12221 W Broad St., Henrico, VA, 23233, United States
RSVP HERE!
We’re transitioning to our new name, Virginia Bleeding Disorders Foundation (VABDF), so you may see both names for a while—thank you for your patience!
Join us for an evening of education, connection, and support! This educational dinner program is for VABDF/VHF constituents (and their immediate family and/or household members.) Dinner will be provided and there is no fee to attend.
Location: Red Salt Chophouse & Sushi
Program Topic: World Hemophilia Day: One Family Program

Each year, One Family brings the bleeding disorders community together to celebrate World Hemophilia Day. This year’s program is a powerful call to action, igniting the community to redefine what’s possible in life with hemophilia. This year we’re inspiring each person to rethink their own perceived limits and explore a future of more possibilities. This year, participants will celebrate individual empowerment, challenge norms, and inspire the community. Participants will be able to take part in both group and individual activities that empower, educate, and inspire, leaving attendees motivated by the support of this diverse community.
Speaker: Nick Cady, Sr. CoRe Manager, Sanofi

Please note: Space may be limited, if this event fills up priority will be given to individuals and families living in the Central Virginia area.
Thank you to our sponsor, Sanofi, for supporting this program.

NORFOLK-New Family Support & Education Program
2026-04-18 12:30 - 15:00 | Virginia Zoo, 3500 Granby St, Norfolk, VA, 23504
THIS EVENT IS NOW FULL – EMAIL info@vahemophilia.org to be placed on the waitlist.
We’re transitioning to our new name, Virginia Bleeding Disorders Foundation (VABDF), so you may see both names for a while—thank you for your patience!
Join VABDF and CHKD for a special program designed to support families of infants and young children (age 6 and under) diagnosed with inherited bleeding disorders. This event offers an opportunity to connect with the bleeding disorders community and gain valuable education and resources.
What to Expect:

Informal education with CHKD-HTC staff with time for Q&A
Meet staff and members of the Virginia Bleeding Disorders Foundation to learn more about the organization
A private meeting space for our group
Refreshments provided for all attendees
A meet and greet with an Animal Ambassador
Networking opportunities with other parents and families
Time to enjoy the Virginia Zoo

Who Can Attend: This program is tailored for families affected by inherited bleeding disorders with children ages 6 and under who reside in the VABDF coverage area and is not open to individuals employed or compensated by Industry.
Please note: Space may be limited, if this event fills up priority will be given to individuals and families that attend CHKD-HTC and/or live in the Tidewater area.
We look forward to providing you with a supportive and welcoming environment to learn, share, and connect!
Thank you to our current sponsors: Takeda, UVA-HTC, and VCU-HTC

WILLIAMSBURG - Lady Bugs Program National Conference for Women - In Partnership with CHES Foundation
2026-04-24 - 2026-04-26 | The Williamsburg Lodge, 310 South England Street, Williamsburg, VA, 23185, United States
Learn More and Register Here!
🐞 LadyBugs Program National Conference for Women 🐞
Registration: CURRENTLY OPEN!
Applications received after March 1, 2026 will be immediately waitlisted if registration is at capacity, go here to learn more and register.
We’re proud to partner with CHES Foundation to bring you the LadyBugs Program National Conference, a national event dedicated to empowering women and girls ages 16+ impacted by bleeding disorders.
This unique conference is designed for women who:

Are diagnosed with a clotting factor and/or platelet deficiency
Care for someone, or carry any other bleeding disorder
Identify with the SHEmophilia community

The goal is to provide education about medical developments, advocacy skill building, stress management techniques and more to encourage women to recognize that their health is equally important.
📅 April 24–26, 2026📍 Williamsburg Lodge Colonial Williamsburg, Virginia
📝 Registration is open!🔗 https://ches.education/ladybugs

Gettin’ in the Game Junior National Championship (JNC)
2026-05-01 - 2026-05-03 | VA
VHF (along with other chapters across the nation) have been given the opportunity to nominate up to two participants, girls and boys, each selected for either baseball, basketball, golf, or swimming. The 23rd Junior National Championship (JNC) is taking place in Henderson, NV from May 1 – 3, 2026.
VHF nominee application deadline is 5:00 pm EST, Friday, December 5, 2025.
Who is eligible: Children between 7–18 years of age with a bleeding disorder (nominees must be accompanied by a caregiver 25 years of age or older at the event. Due to state and federal laws, CSL is unable to permit healthcare professionals to attend.) As a reminder, prior experience or expertise in the chosen sport is not required to participate, just a positive attitude and a willingness to learn and take part! Also, special consideration will be given to first time attendees, but all children who have attended in the past are welcome to apply again!
Cost: Free. CSL Behring will sponsor two chapter nominees and one accompanying caregiver for each nominee to participate in the program. This sponsorship will include the coordination and cost of airfare, ground transportation in Henderson, Nevada, and hotel arrangements (attendees will be responsible for transportation to/from their hometown airport). This event is limited to the nominee and one caregiver only. CSL is unable to accommodate additional family members at any JNC related events.
Program Description: Developed by CSL Behring, the Gettin’ in the Game Junior National Championship (JNC) was the first and is currently the only national sports competition designed specifically for the bleeding disorders community. The JNC features accomplished Gettin’ in the Game Athletes who themselves have been diagnosed with a bleeding disorder. Go here to learn more.
During the JNC program nominees will have the opportunity to:

Choose from FOUR sports – baseball, basketball, golf, and swimming.
Learn about the importance of physical fitness in managing a bleeding disorder and receive instructions on proper techniques and good form.
Show off their abilities in a national competition with fellow nominees from around the country.
Connect and build relationships with fellow members of the bleeding disorders community.

VHF Nominee Application Process:

Fill out the brief application form here.
The child applying will need to answer one essay question and provide a heartfelt answer to the question “Why do you love the sport you chose and/or why would you like to attend the JNC?” (Length should be age appropriate and around 1-2 paragraphs.)
Essays must be original and written solely by the child applying (please, no parental help writing the essay!)
Submit the application and essay by the deadline, 5:00 pm EST, Friday, December 5, 2025.

For an idea of the program expectations go here to read the 2026 JNC nominee information packet.
If you have any questions please contact Heather at info@vahemophilia.org or 804-740-8643.

APPLICATION DUE: Lyman Fisher Scholarship
2026-05-01 17:00 | VA
Lyman Fisher Scholarship Application Procedure & Guidelines
APPLICATION PROCEDURE
Application Deadline: Friday, May 1, 2026, at 5:00 pm
Go here to apply via JotForm
Go here to download PDF version of application
Applications must be completed using our online application form or email the pdf version to info@vahemophilia.org.
All letters of recommendation are to be sent electronically to info@vahemophilia.org. Applications and/or supporting documents received after 5:00 PM on Thursday, May 1st will not be considered. It is up to the applicant to follow up and make sure these items are received by the deadline. Incomplete applications will not be considered.
Please read and follow the application and instructions very carefully to receive full consideration for a Lyman Fisher Scholarship. If you don’t know the answer, please type N/A. DO NOT leave any section blank.
Scholarship applicants will be notified of the committee’s findings by June 1st.
ELIGIBILITY
Individuals living with an inherited bleeding disorder, their sibling or their parents who live in the territorial jurisdiction of VHF, which includes the Commonwealth of Virginia, with the exception of the following: The cities of Alexandria, Fairfax, Falls Church, Herndon, Manassas, and Vienna and the counties of Arlington, Fairfax, Fauquier, Loudon, Prince William and Stafford.
SCHOLARSHIPS
In 2026, VABDF/VHF will offer over $10,000 in scholarships. The award amount will vary based on the number of applicants that are selected and the scholarship rubric that the VABDF/VHF scholarship committee uses to evaluate academic performance, participation in school, community, and VABDF/VHF activities, a personal essay detailing educational and future career goals, and recommendation letters. The scholarships may be used at any accredited college, university, or vocational/technical school in the United States and are to be applied toward a student’s educational expenses. VABDF/VHF is not obligated to award scholarships in a given year.
A student who receives an award one year may reapply in later years but winning a scholarship in one year does not necessarily mean that the student will win in a later year. Also, a student who applies in one year and does not receive an award is eligible to apply the following year for the scholarship.
Scholarship applicants must have participated in VABDF/VHF activities.
PAYMENT OF SCHOLARSHIP FUNDS
Scholarship payments are not distributed directly to an individual, but are made via scholarship checks, payable to the schools. VABDF/VHF staff will work with the award recipient(s) to process the scholarship funds.
RESPONSIBILITIES OF RECIPIENTS
Scholarship recipients must enroll as a college student in the fall of the year in which the scholarships are awarded and continue in school for the entire academic year without interruption, barring illness, emergency, or military service. If a scholarship recipient leaves school during the scholarship period, VABDF/VHF may ask for reimbursement of scholarship funds.
Scholarship recipients are responsible for making certain that their scholarship checks are delivered to their colleges. Recipients must provide VABDF/VHF with information on where to send the check, as well as other pertinent information such as student identification number.
The recipient is responsible for determining the impact of the scholarship or grant on their annual tax returns. For more information, talk to a tax return preparer or go here.
QUESTIONS
If you have questions about this scholarship (application process, whether the program and/or activity that you are requesting assistance with fits within the guidelines, how much funding is available, etc.) please reach out to Heather Conner at 804-740-8643 or info@vahemophilia.org.

Scholarship Background
The Virginia Bleeding Disorders Foundation (VABDF) formerly Virginia Hemophilia Foundation (VHF) Lyman Fisher Scholarship was established to honor Dr. Lyman Fisher, a teacher, researcher, and clinician in hemostasis. For many years, he directed the adult hemophilia program for Virginia. He will be remembered for his steadfast commitment to his patients and students, his respect for those who served under him, his community service and his affection for his family.

CHARLOTTESVILLE - Branded Educational Dinner "ALTUVIIIO® Education Program"
2026-05-07 18:00 - 20:00 | Tavola Restaurant, 826 Hinton Ave, Charlottesville, VA, 22902, United States
RSVP HERE
We’re transitioning to our new name, Virginia Bleeding Disorders Foundation (VABDF), so you may see both names for a while—thank you for your patience!
Join us Thursday, May 7th at 6:00 pm for an engaging educational program that brings real-life experiences from the hemophilia A community to the forefront. In this interactive, case-based session, you’ll follow investigators as they work through a thought‑provoking question: can two individuals with very different hemophilia journeys achieve comparable outcomes using the same treatment?
Through guided discussion and an inside look at real patient case files, participants will gain valuable insights into today’s evolving treatment landscape, including ALTUVIIIO. You’ll also have opportunities to ask questions, exchange perspectives, and learn alongside others in a supportive, community-centered setting.
This educational dinner program is for VABDF/VHF constituents (and their immediate family and/or household members.) Dinner will be provided and there is no fee to attend.
Location: Tavola 826 Hinton Ave., Charlottesville, VA 22902
Speaker: Nick Cady, Sr. CoRe Manager, Sanofi
Thank you to our sponsor, Sanofi, for supporting this program.

APPLICATION DUE: Camp Youngblood at Camp Holiday Trails
2026-05-08 17:00 | VA
Application Deadline Extended to Friday, May 8, 2026 at 5:00 pm
🏕️ Camp Youngblood 2026
Dates: Sunday, July 12 – Friday, July 17, 2026
Location: Camp Holiday Trails 400 Holiday Trails Ln, Charlottesville, VA 22903
👉 Start the Pre-Screen Application › Go Here!
About Camp Youngblood – Camp Youngblood is a week-long overnight summer camp, funded by Virginia Bleeding Disorders Foundation (VABDF) formerly Virginia Hemophilia Foundation (VHF)and the Hemophilia Association of the Capital Area (HACA), that provides children and teens from the inherited bleeding disorders community with a traditional camp experience in a safe, supportive environment. Campers enjoy a variety of activities while forming lasting friendships with peers who share similar life experiences.
Hosted at Camp Holiday Trails (CHT), a year-round camp for children with medical needs and their siblings, campers must be socially, emotionally, behaviorally and developmentally able to participate in group activities. With 24/7 on-site medical care, CHT ensures each camper’s individual needs are met.
Eligibility
CYB is open to campers ages 7–17 who:

Have an *inherited bleeding disorder
Are siblings of someone with an inherited bleeding disorder
Are children of members of the inherited bleeding disorder community
Live within the VHF or HACA coverage area

Cost – $50 non-refundable application fee (per camper). This fee is charged after your application is reviewed and enrollment is confirmed by CHT via an enrollment email sent from CHT’s Director of Programs, Caitlin Carroll. If the application fee is a barrier to attendance, please contact Heather Conner: info@vahemophilia.org or Brenda Bordelon: director@hacacares.org
Application Process

Families complete the pre-screen form.
Eligible families receive the CHT application link.
Enrollment is confirmed once all materials are complete.

Deadlines

Registration closes: May 8, 2026
All forms due: June 5, 2026
Confirmation emails sent by: June 12, 2026

Cancellation – We understand that emergencies and illnesses can happen and that late cancellations may be unavoidable. If you know that your child will not be able to attend after applying, we ask that you cancel by Sunday, June 21 so that VABDF/VHF and HACA are not responsible for covering the cost of campers who are not in attendance. Please note that the $50 registration fee is non-refundable.
Contact for cancellations or questions: Caitlin Carroll, MSW, Director of Programs
caitlin@campholidaytrails.org | 434-977-3781 (office) | 434-282-7213 (cell)
CHT Immunization Policy – All standard childhood immunizations are required (per the American Academy of Pediatrics). Given the population at CHT and for the safety of all Campers, only medical exemptions will be considered. ALL medical exemptions require physician (MD/NP/PA) documentation and approval from CHT’s Medical Director.
Thank you to our current sponsors: Bayer, CVS, Genentech, Takeda, UVA-HTC, and VCU-HTC

VIRGINIA BEACH - Educational Dinner “Shared Decision Making”
2026-06-04 18:30 - 20:00 | Cooper’s Hawk Winery & Restaurant, 733 Lynnhaven Mall Loop, Virginia Beach, VA, 23452, United States
RSVP HERE
Join us for an evening of education, connection, and support! This educational dinner program is for constituents (and their immediate family and/or household members.) Dinner will be provided and there is no fee to attend.
Location: Cooper’s Hawk Winery & Restaurant 733 Lynnhaven Mall Loop, Virginia Beach, VA 23452
Program Topic: Shared Decision Making
Shared decision making is a partnership between people with hemophilia and their care teams that may help them better manage their condition. This interactive session covers how to take an active role as part of your treatment team, discuss therapy considerations, and find quality sources of information.
Speaker: Linda L. Pollhammer, Patient Affairs Liaison, Pfizer Rare Disease
Please note: Space may be limited, if this event fills up priority will be given to individuals and families living in the Virginia Beach area.
Thank you to our sponsor, Pfizer, for supporting this program.

RICHMOND - HACA & VABDF Advocacy Education Summit
2026-06-27 - 2026-06-28 | Hilton Richmond Downtown, 501 East Broad Street, Richmond, VA, 23219, United States
RSVP HERE BY MAY 28!
HACA & VABDF Advocacy Education Summit: An educational weekend for all ages! Are you ready to make an impact? Join HACA and VABDF for a weekend of advocacy training in Richmond. Learn to use your voice to impact legislation that affects the lives of people living with bleeding disorders.
GO BEHIND THE SCENES
Saturday | 11:00 AM: To kick off the weekend join us for an optional lunch and guided tour of the historic Virginia State Capitol.
GET EMPOWERED
Saturday | 1:30 PM: We’ll move over to the Hilton Richmond Downtown to join advocates from across Virginia. We have some great local and national speakers lined up to share tips on effective advocacy. We’ll cover things like:Telling your story: Practical tips and practice sessions to help you feel confident, Navigating hurdles: What to do when you’re facing insurance denials or formulary changes, and Advocacy at home: We’ll show you how to find your legislators’ contact info and how to set up meetings in your own town – no need to drive to Richmond to make a difference! Saturday night, we’ll host an educational dinner, and hotel rooms are available for HACA/VABDF members.
SOMETHING FOR ALL AGES
We really want this to be an event with something for all ages so we’ve set up specific tracks for adults, teens, and kids, plus childcare for the little ones. We’re also mixing in some fun to keep the energy up (the kids will love the on-site video game truck!).
This event includes educational programs, scheduled meals, community activities, and overnight accommodations for constituents living within the HACA & VABDF coverage area.
Thank you to our current advocacy sponsors and supporters: CSL Behring, EveryLife Foundation, Genentech, Hemophilia Alliance, National Bleeding Disorders Foundation, Novo Nordisk, PhRMA and Takeda.
Optional: Sunday, June 28 Community Event at TopGolf Richmond
After a busy Saturday, we’ll head over to Top Golf Richmond on Sunday. It’s a great chance to get active with your family and enjoy some friendly competition. While we’re there, you can visit with our sponsors to hear about the latest treatments and therapies. Golf is a safe, healthy activity for our community, and we’d love to end the weekend outside and moving with all of you.

RICHMOND – Community Event at TopGolf
2026-06-28 11:00 - 14:00 | Topgolf Richmond, 2308 Westwood Ave, Richmond, Virginia, 23230
RSVP Here!
Get Active with YOUR Bleeding Disorders Community at Topgolf Richmond!
Join the Virginia Bleeding Disorders Foundation (VABDF) on Sunday, June 28 for a fun and educational community event focused on health, fitness, and connection. This unique outing offers opportunities to learn more about managing your bleeding disorder, build relationships within the community, and enjoy the game of golf—no experience required!
Priority will be given to attendees of the HACA & VABDF Advocacy Education Summit on June 27th.
🎯 What to Expect:

A supportive and engaging environment
Community building and family fun
Lunch and two hours of golf, provided at no cost

Educational Topic: TBD
This event is free to attend and open to individuals diagnosed with an inherited bleeding disorder and their immediate family or household members who reside within the VABDF coverage area.
VABDF community events are held throughout the year to provide social and educational experiences for individuals and families. These gatherings are an excellent way to increase knowledge, find support, and enjoy time together.
We can’t wait to see you there!
Thank you to our current sponsor(s): CSL Behring, CVS Specialty Pharmacy, InfuCareRx, Medexus, Novo Nordisk, and Pfizer
Thank you to our Family Fun Connections Sponsor: Colburn-Keenan Foundation

CHARLOTTESVILLE – Camp Youngblood at Camp Holiday Trails
2026-07-12 - 2026-07-17 | Camp Holiday Trails, 400 Holiday Trails Lane, Charlottesville, VA, 22903
PRE-SCREEN APPLICATION
🏕️ Camp Youngblood 2026
Dates: Sunday, July 12 – Friday, July 17, 2026
Location: Camp Holiday Trails 400 Holiday Trails Ln, Charlottesville, VA 22903
👉 Start the Pre-Screen Application › Go Here!
About Camp Youngblood – Camp Youngblood is a week-long overnight summer camp, funded by Virginia Bleeding Disorders Foundation (VABDF) formerly Virginia Hemophilia Foundation (VHF) and the Hemophilia Association of the Capital Area (HACA), that provides children and teens from the inherited bleeding disorders community with a traditional camp experience in a safe, supportive environment. Campers enjoy a variety of activities while forming lasting friendships with peers who share similar life experiences.
Hosted at Camp Holiday Trails (CHT), a year-round camp for children with medical needs and their siblings, campers must be socially, emotionally, behaviorally and developmentally able to participate in group activities. With 24/7 on-site medical care, CHT ensures each camper’s individual needs are met.
Eligibility
CYB is open to campers ages 7–17 who:

Have an *inherited bleeding disorder
Are siblings of someone with an inherited bleeding disorder
Are children of members of the inherited bleeding disorder community
Live within the VABDF/VHF or HACA coverage area

Cost – $50 non-refundable application fee (per camper). This fee is charged after your application is reviewed and enrollment is confirmed by CHT via an enrollment email sent from CHT’s Director of Programs, Caitlin Carroll. If the application fee is a barrier to attendance, please contact Heather Conner: info@vahemophilia.org or Brenda Bordelon: director@hacacares.org
Application Process

Families complete the pre-screen form.
Eligible families receive the CHT application link.
Enrollment is confirmed once all materials are complete.

Deadlines

Registration closes: May 8, 2026
All forms due: June 5, 2026
Confirmation emails sent by: June 12, 2026

Cancellation – We understand that emergencies and illnesses can happen and that late cancellations may be unavoidable. If you know that your child will not be able to attend after applying, we ask that you cancel by Sunday, June 21 so that VABDF/VHF and HACA are not responsible for covering the cost of campers who are not in attendance. Please note that the $50 registration fee is non-refundable.
Contact for cancellations or questions: Caitlin Carroll, MSW, Director of Programs
caitlin@campholidaytrails.org | 434-977-3781 (office) | 434-282-7213 (cell)
CHT Immunization Policy – All standard childhood immunizations are required (per the American Academy of Pediatrics). Given the population at CHT and for the safety of all Campers, only medical exemptions will be considered. ALL medical exemptions require physician (MD/NP/PA) documentation and approval from CHT’s Medical Director.
Thank you to our current sponsors: Bayer, CVS, Genentech, Takeda, UVA-HTC, and VCU-HTC

Fall Community Education Weekend at Great Wolf Lodge
2026-09-11 - 2026-09-13 | Great Wolf Lodge, 549 E Rochambeau Dr., Williamsburg, VA, 23188
REGISTRATION IS NOW CLOSED email info@vabdf.org to be placed on the waitlist.
📅 September 11–13, 2026📍 Great Wolf Lodge Conference Center | Williamsburg, VA
This community education weekend is designed to educate and connect members of the bleeding disorders community.
This event includes educational sessions, on-site childcare, waterpark access, meals, and overnight accommodations.
➡️ Please note: Access to overnight accommodations and the water park is only available to those who attend the Saturday education meeting.

Weekend Schedule & Highlights
Friday, September 11 Water park access begins when it opens Friday for those staying overnight. Hotel check-in begins at 4:00 PM.
Saturday, September 12 – Education Meeting (Begins at 9:00 AM)

8:00 AM Enjoy breakfast and visit exhibits.
9:00 AM Attend our keynote session: TBD
10:00 AM to 4:00 PM Take part in breakout sessions and visit exhibits: TBD
On-site childcare and youth/teen programming will be provided by Camp Holiday Trails and A Helping Hand.
Enjoy optional overnight accommodations and more waterpark fun Saturday evening.

Sunday, September 13 No scheduled education but breakfast will be offered! A relaxing departure day and time to enjoy the waterpark with friends and family before heading home!

ℹ️ Important Details

Open to all ages – not limited to families with children.
To reserve a room, at least one person in your group must be age 21+.
The meeting registration fee is $50 per household. We do not want cost to prevent anyone from participating so if the registration fee presents a financial hardship, please let us know. Registration fees will be collected after registration closes on Friday, July 24th.
Space is limited and determined by our Program Registration Guidelines.

PLEASE READ: VABDF is pleased to provide complimentary hotel accommodations for Saturday night for all registered individuals/families attending this year’s event. A limited number of complimentary Friday-night hotel rooms are also available. Because the number of available rooms is limited, priority will be given to those attendees that are traveling more than 90 miles and for whom the cost of an additional hotel night would create a financial hardship. Those who wish to arrive on Friday but are not selected for a complimentary Friday-night room may reserve a room at our discounted group rate of $179 per night, plus applicable taxes and fees. Friday-night room requests will be reviewed after registration closes on Friday, July 24th,and you will be notified of your hotel status by Friday, August 7th. Thank you for your understanding and for helping us make this event accessible to as many people as possible!

✅ Eligibility Requirements
To be eligible, you must meet all of the following:

Have an inherited bleeding disorder, or be the spouse/partner/parent/caregiver of someone who does
Live in the VABDF/VHF coverage area or receive care for your bleeding disorder within it. Click here to see if you meet the eligibility requirements.

We’re so excited to welcome you for a weekend of learning, connection, and community fun!
Thank You to Our Current Sponsors!
Corporate: ASAP Pharmacy, Bayer, CVS Specialty Pharmacy, Ethical Factor Rx, LUX Infusion, Medexus, and Soleo Health
Premier: CSL Behring, Genentech, NovoNordisk, Pfizer, Sanofi, Takeda, and UVA Inherited Bleeding Disorders Center
