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DTSTART;TZID=America/New_York:20200722T190000
DTEND;TZID=America/New_York:20200722T200000
DTSTAMP:20260405T233130
CREATED:20200616T194315Z
LAST-MODIFIED:20200721T183837Z
UID:4281-1595444400-1595448000@vahemophilia.org
SUMMARY:Virtual Education Session "Balancing Emotional Well-Being"
DESCRIPTION:Topic: Balancing Emotional Well-Being \nSpeaker: Annie Sukhnandan | Patient Affairs Liaison Pfizer \nAn overview of how mental health disorders impact the hemophilia community\, what signs/symptoms to look for\, and how to encourage dialogue with caregivers and health care providers. \nThis session is free and open to VHF constituents\, any constituent under the age of 12 will need adult supervision to participate. \nAs we gather virtually to discuss\, share and learn\, we ask that all VHF virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement. \nSponsored by Pfizer \n\n» Go Here to RSVP
URL:https://vahemophilia.org/event-program/virtual-education-session-balancing-emotional-well-being/
LOCATION:Online
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200724T120000
DTEND;TZID=America/New_York:20200727T120000
DTSTAMP:20260405T233130
CREATED:20200626T164940Z
LAST-MODIFIED:20200626T164940Z
UID:4357-1595592000-1595851200@vahemophilia.org
SUMMARY:Red Tie Online Auction
DESCRIPTION:Join us for an incredible online auction Friday\, July 24th at 12:00 pm through Monday\, July 27th at 12:00 pm!  \nBid on awesome travel\, food\, entertainment and more from the comfort of your own home. All proceeds will benefit VHF and our mission of serving and supporting the needs of those impacted by a bleeding disorder through education\, advocacy and community. \nOur spring fundraiser\, The Red Tie Soiree\, was cancelled due to COVID-19\, but we have many wonderful auction items that are available for you now! \n» Go Here to Register to Bid and to see the Auction Catalog
URL:https://vahemophilia.org/event-program/red-tie-online-auction/
LOCATION:online
ATTACH;FMTTYPE=image/png:https://vahemophilia.org/wp-content/uploads/2018/12/Red-Tie-2018-Logo-01.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200903T190000
DTEND;TZID=America/New_York:20200903T200000
DTSTAMP:20260405T233130
CREATED:20200727T185048Z
LAST-MODIFIED:20200825T152908Z
UID:4397-1599159600-1599163200@vahemophilia.org
SUMMARY:June for Joint Health Webinar
DESCRIPTION:Topic: June for Joint Health \nPresenter: Angela Forsyth\, PT\, DPT\, Director of the REBUILD Physical Therapy Program with Diplomat/ Optum Specialty Infusion \nJoin us for an active and educational June for Joint Health webinar. Learn how you can start to form healthy habits by incorporating  joint-focused stretches into your daily routine. As always\, talk to your healthcare team before starting any physical activity. \n\n» RSVP Here
URL:https://vahemophilia.org/event-program/june-for-joint-health-webinar/
LOCATION:Online
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200915T190000
DTEND;TZID=America/New_York:20200915T200000
DTSTAMP:20260405T233130
CREATED:20200626T163721Z
LAST-MODIFIED:20200626T174514Z
UID:4353-1600196400-1600200000@vahemophilia.org
SUMMARY:HACA/VHF Advocacy Committee Virtual Chat
DESCRIPTION:Join the HACA/VHF advocacy committee for our virtual chat series. These chats focus on advocacy topics relevant to the bleeding disorders community! \nDuring our chat we will learn more about the Board of Pharmacy and how their work can significantly impact the bleeding disorders community. \nFor September’s chat we will be joined by Cynthia L. W. Warriner\, BS\, RPh\, CDE\, who served on the Virginia Board of Pharmacy as Chairman\, she had been an active member of the board since she was first appointed in 2012. In recent years\, Warriner has led regional initiatives to decrease the rate of adverse drug events (ADEs) in Virginia and Maryland\, as well as finding innovative ways to improve the patient experience and engage pharmacists in community-based care transitions initiatives. \nWhen you register you will receive instructions on how to join in\, either by video conference or by phone call. Please join us! \n\n» RSVP Here
URL:https://vahemophilia.org/event-program/haca-vhf-advocacy-committee-virtual-chat-3/
LOCATION:online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200917T190000
DTEND;TZID=America/New_York:20200917T200000
DTSTAMP:20260405T233130
CREATED:20200807T155313Z
LAST-MODIFIED:20200910T151952Z
UID:4442-1600369200-1600372800@vahemophilia.org
SUMMARY:Friendly Feud - Virtual Community Game Night
DESCRIPTION:Join VHF for a highly interactive and engaging game of Friendly Feud! An educational take on everyone’s favorite Family Feud using bleeding disorder trivia! This virtual game night will give you a chance to experience community connection from the comfort of your home. Great for individuals and families and designed for all ages to enjoy.  » RSVP HERE \nHosted by: Shelby Smoak\, Ph.D. Advocate & Education Specialist\, BioMatrix \nThis session is free and open to VHF constituents\, any constituent under the age of 12 will need adult supervision to participate. \nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF)virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement. \nSponsored by BioMatrix \n\n» Go Here to RSVP
URL:https://vahemophilia.org/event-program/friendly-feud/
LOCATION:Online
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200927T140000
DTEND;TZID=America/New_York:20200927T160000
DTSTAMP:20260405T233130
CREATED:20200807T162514Z
LAST-MODIFIED:20200921T184636Z
UID:4444-1601215200-1601222400@vahemophilia.org
SUMMARY:Virtual Community Retreat
DESCRIPTION:Join VHF and your bleeding disorders community for a program designed for increasing knowledge and connection! Sunday\, September 27th from 2:00 to 4:00 pm » RSVP HERE \nWe could not provide these important events without the help of our generous sponsors – please go here to view our Virtual Community Retreat Program. This program is one way our generous sponsors can virtually connect with the community by providing links to their electronic resources\, brochures\, websites\, social media sites and more! We would also like to thank our speaker sponsor Hemophilia Federation of America. \nIndustry Symposium \nAt the start of this session you will hear from our industry sponsors who will provide a brief overview of their company\, products\, and/or available services for you to learn more about how they are supporting and serving the inherited bleeding disorders community. \nEducation Presentation: New and Upcoming Bleeding Disorder Treatments with Steven W. Pipe\, MD \nDr. Pipe will present about the new and upcoming treatments within the bleeding disorders space. Topics of discussion span multiple bleeding disorders\, and touch on various novel\, and some not-so-novel treatments. \n\n					Bio: Steven Pipe\, MD\n					Dr Steven Pipe is a Professor and the Laurence A. Boxer Research Professor of Pediatrics and Communicable Diseases\, as well as Professor of Pathology at the University of Michigan\, Ann Arbor\, Michigan\, USA. He is the medical director of the Pediatric Hemophilia and Coagulation Disorders Program and medical director of the Special Coagulation Laboratory at the University of Michigan. His clinical interests include bleeding and thrombotic disorders and congenital vascular anomalies. Dr Pipe also directs a basic research lab investigating coagulation factor VIII and the molecular mechanisms of hemophilia A.Dr Pipe completed his undergraduate medical training at the University of Toronto\, Ontario\, Canada\, and his pediatric training at McMaster University in Hamilton\, Ontario. His pediatric hematology and oncology training was completed at the University of Michigan. He was a fellow of the Pediatric Scientist Development Program Dr Pipe is certified by the American Board of Pediatrics in pediatric hematology/oncology. He was awarded a Young Investigator Award from both the American Society of Pediatric Hematology and Oncology and the International Society on Thrombosis and Haemostasis\, and a Faculty Scholar Award from the American Society of Hematology. He was the 2015 recipient of the Leadership in Research Award from the National Hemophilia Foundation. He has served on the Board of Directors for the Hemostasis and Thrombosis Research Society\, as Chair of the Board of Directors for the American Thrombosis and Hemostasis Network and currently the Chair of the Medical and Scientific Advisory Committee to the National Hemophilia Foundation.\n				\n\n» GO HERE TO RSVP \n\n					This session is free and open to VHF constituents\, any constituent under the age of 12 will need adult supervision to participate. As we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF)virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read virtual meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/virtual-community-retreat/
LOCATION:Online
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201010T110000
DTEND;TZID=America/New_York:20201010T140000
DTSTAMP:20260405T233130
CREATED:20200814T180401Z
LAST-MODIFIED:20200930T154003Z
UID:4547-1602327600-1602338400@vahemophilia.org
SUMMARY:Virtual Unite Walk For Bleeding Disorders
DESCRIPTION:What’s a virtual walk? A virtual walk means you can join VHF on Zoom at 11:00 am on October 10th to enjoy a fun\, pre-walk program and to say “hi” to other participants – and then we hope you will gather safely for a park or a neighborhood walk that day to celebrate your fundraising accomplishments and in solidarity with our inherited bleeding disorders community from all over Virginia! However you choose to walk\, you are an important part of VHF and our mission. \nDate: Saturday\, October 10\, 2020 \nTime: 11:00 am \nLocation: Virtual! Register for the walk and you will receive the zoom link to join us for a fun\, family friendly virtual walk program! \nRegistration: www.uniteforbleedingdisorders.org/event/rva \nCost: There is no cost to participate but fundraising is highly encouraged! \n» Go here to see our generous 2020 sponsors \nFor more information contact Megan Schowengerdt at 804-740-8643 or megan@vahemophilia.org.
URL:https://vahemophilia.org/event-program/virtual-unite-walk-for-bleeding-disorders/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201015T190000
DTEND;TZID=America/New_York:20201015T200000
DTSTAMP:20260405T233130
CREATED:20200721T183705Z
LAST-MODIFIED:20201015T155743Z
UID:4381-1602788400-1602792000@vahemophilia.org
SUMMARY:Understanding Gene Therapy Research and Its Potential Application to Hemophilia
DESCRIPTION:Understanding Gene Therapy Research and Its Potential Application to Hemophilia\nA Program sponsored by Spark Therapeutics \nPresented by: Laureen Temple\, Sr Patient Education Liaison \nThis presentation is intended to walk you through the journey that started over 50 years ago with the beginnings of gene therapy research. We will walk through the basics of genetics and how that plays a role in hemophilia. With that knowledge\, we will look at how gene therapy is meant to work and discuss both the potential for and the challenges of investigational gene therapy research in hemophilia today. \n\n» Go Here to RSVP
URL:https://vahemophilia.org/event-program/understanding-gene-therapy-research-and-its-potential-application-to-hemophilia/
LOCATION:Online
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201020T190000
DTEND;TZID=America/New_York:20201020T200000
DTSTAMP:20260405T233130
CREATED:20200921T164552Z
LAST-MODIFIED:20200921T165545Z
UID:4629-1603220400-1603224000@vahemophilia.org
SUMMARY:HACA/VHF Advocacy Committee Virtual Chat
DESCRIPTION:Join the HACA/VHF advocacy committee for our virtual chat series. These chats focus on advocacy topics relevant to the bleeding disorders community! \nCome join us to meet elected local and state representatives\, Vaughn Ripley\, Brunswick\, Maryland City Council Member and State Representative Randi Clites (D-Ravenna)\, Ohio House District 75\, who are from our own bleeding disorders community. Learn more about how they got involved and what they are doing to make a difference. \nWhen you register you will receive instructions on how to join in\, either by video conference or by phone call. Please join us! \n\n» RSVP HERE
URL:https://vahemophilia.org/event-program/haca-vhf-advocacy-committee-virtual-chat-4/
LOCATION:online
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201029T190000
DTEND;TZID=America/New_York:20201029T200000
DTSTAMP:20260405T233130
CREATED:20200930T185917Z
LAST-MODIFIED:20201001T142302Z
UID:4636-1603998000-1604001600@vahemophilia.org
SUMMARY:Virtual Community Event - Happy Haunts Cookie Decorating Class
DESCRIPTION:» RSVP Here \n\nFall is here and that means that it’s time for some family-friendly Halloween fun! Put on your Halloween costume and join us for a cookie decorating experience as Hemo mom and cookie decorating extraordinaire\, Destinee Diprima\, leads us through some simple decorating tips and “tricks” this Halloween season with a live virtual class “Happy Haunts Virtual Cookie Decorating Class”! \nThis class is perfect for all skill levels and a list of tools and ingredients will be sent out beforehand. Financial support is available to those that need help purchasing ingredients or supplies. \nThis spooktacular event will include fun door prizes for best costume\, most creative cookie and more! \nThank you to our community event sponsors Diplomat/Optum\, Hoos at Home\, Novo Nordisk and Takeda \n\nThis session is free and open to VHF constituents\, any constituent under the age of 12 will need adult supervision to participate. \nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/community-event-happy-haunts-virtual-cookie-decorating-class/
LOCATION:Zoom
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201106T120000
DTEND;TZID=America/New_York:20201106T130000
DTSTAMP:20260405T233130
CREATED:20201015T171555Z
LAST-MODIFIED:20201106T184257Z
UID:4712-1604664000-1604667600@vahemophilia.org
SUMMARY:Virtual Education Session: 10 Tips for Supporting Your Child’s Academic Success During COVID-19
DESCRIPTION:» RSVP HERE \n\nTopic: 10 Tips for Supporting Your Child’s Academic Success During COVID-19 \nThis presentation discusses the timeline between the statewide closure of all public schools in March to present day instructional schedules. The main purpose is to provide parents with a variety of strategies to support virtual learning at home. \nSpeaker: Robyn Evans\, Educational Consultant\, M.Ed.\nHospital Education Program\, University of Virginia Children’s Hospital\n \nThank you to our sponsors Bayer\, Genentech\, Hemophilia Federation of America (HFA)\, Novo Nordisk and Takeda \nWe could not provide these important events without the help of our generous sponsors – please go here to view our Virtual Sponsor Program. This program is one way our generous sponsors can virtually connect with the community by providing links to their electronic resources\, brochures\, websites\, social media sites and more! \n\nRESOURCES FOR PARENTS: \nIf you missed this program you can watch the recording here. \nhttps://www.doe.virginia.gov/support/health_medical/office/reopen-status.shtml \nhttps://www.cdc.gov/coronavirus/2019-ncov/community/schools-childcare/parent-checklist.html \nhttps://www.doe.virginia.gov/instruction/virtual_learning/support-virtual-learning/index.shtml \nhttps://www.childrenandscreens.com/media/press-releases/covid-19-and-at-home-learning/ \nhttps://www.healthychildren.org/English/health-issues/conditions/COVID-19/Pages/Working-and-Learning-from-Home-COVID-19.aspx \nhttps://www.edutopia.org/ \nhttps://pbskids.org/grownups/ \nhttps://www.understood.org/ \nhttps://www.commonsense.org/ \nhttps://www.commonsensemedia.org/
URL:https://vahemophilia.org/event-program/virtual-education-session-10-tips-for-supporting-your-childs-academic-success-during-covid-19/
LOCATION:Zoom
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201108T140000
DTEND;TZID=America/New_York:20201108T160000
DTSTAMP:20260405T233130
CREATED:20200930T192717Z
LAST-MODIFIED:20201117T170145Z
UID:4657-1604844000-1604851200@vahemophilia.org
SUMMARY:VHF/HACA Virtual Men's Retreat
DESCRIPTION:» RSVP HERE \n\nIn partnership with the Hemophilia Association of the Capital Area (HACA)\, we are offering a virtual Men’s Retreat! Participants will enjoy education and time to gather and share with other people who encounter similar challenges. This retreat is free and open to men age 21 and up with inherited bleeding disorders and/or to men whose lives are impacted by a bleeding disorder (i.e. caregivers\, spouses\, immediate family members). \nSunday\, November 8th  \n2:00 pm – HFA Rap Session and Virtual Beer Tasting Class \n3:00 pm – Singing to Heal \nJoin Shelby Smoak\, Ph.D.\, Advocate & Education Specialist\, Biomatrix\, for an interactive discussion of music\, the brain\, and healing. This program empowers participants to tap into the healing power of music and into sharing the emotional experience with others. Finish off with a fun-filled music trivia game! This version of music trivia will contain a special 1980s round. This event promises to be a song-filled experience. \n\nThank you to our generous sponsors: Accredo\, Biomatrix\, CSL Behring\, Genentech\, Hemophilia Federation of America (HFA)\, Colburn-Keenan Foundation\, Inc.\, Novo Nordisk\, Pfizer and Takeda \nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/virtual-mens-retreat/
LOCATION:Zoom
ATTACH;FMTTYPE=image/jpeg:https://vahemophilia.org/wp-content/uploads/2020/09/49071881157_a9be747366_o.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201114T160000
DTEND;TZID=America/New_York:20201114T180000
DTSTAMP:20260405T233130
CREATED:20200930T195502Z
LAST-MODIFIED:20201111T180321Z
UID:4661-1605369600-1605376800@vahemophilia.org
SUMMARY:VHF/HACA Virtual Advocacy Stakeholder and Education Meeting
DESCRIPTION:» RSVP HERE \n\nJoin HACA/VHF constituents\, advocacy committee members\, and community stakeholders from throughout Virginia for an education meeting that will cover a wide range of advocacy topics relevant to the bleeding disorders community! \nSaturday\, November 14\, 2020 | 4 PM to 6 PM \nAgenda – \n\nWelcome/Introductions\nHealth Policy in the Intersection of Policy and Politics – Del. Dawn Adams (D\, 68th)\nVirginia Bleeding Disorder Program (VBDP) Update – Jan Kuhn RN\, MPH\, Coordinator of VBDP\nState Update AND What Can We Expect in 2021 General Assembly – Becky Bowers-Lanier\, VHF/HACA Advocacy Consultant\nFederal Update – Miriam Goldstein\, J.D\, Director of Policy at Hemophilia Federation of America (HFA)/Nathan Schaefer\, Vice President of Public Policy at National Hemophilia Foundation (NHF)\nWrap-Up\n\nThank you to our advocacy sponsors: Bayer\, CSL Behring\, CVS Caremark\, Genentech\, National Hemophilia Foundation (NHF)\, PhRMA\, Pfizer\, Sanofi Genzyme\, and Takeda \nWe could not provide these important events without the help of our generous sponsors – please go here to view our Virtual Sponsor Program. This program is one way our generous sponsors can virtually connect with the community by providing links to their electronic resources\, brochures\, websites\, social media sites and more!
URL:https://vahemophilia.org/event-program/vhf-haca-virtual-advocacy-stakeholder-and-education-meeting/
LOCATION:Zoom
CATEGORIES:advocacy,education
ATTACH;FMTTYPE=image/jpeg:https://vahemophilia.org/wp-content/uploads/2020/09/49070330053_1e501533f5_o.jpg
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201119T190000
DTEND;TZID=America/New_York:20201119T200000
DTSTAMP:20260405T233130
CREATED:20200930T210243Z
LAST-MODIFIED:20201001T185639Z
UID:4667-1605812400-1605816000@vahemophilia.org
SUMMARY:Virtual Education Session - Balancing Emotional Well-Being featuring Bullying
DESCRIPTION:» RSVP HERE \n\nTopic: Balancing Emotional Well-Being featuring Bullying \nAn overview of how mental health disorders impact the hemophilia community with a focus on cyber\, social and physical bullying. Also\, how caregivers can help their kids/teenagers with bullies as well as talking about the 504 plan for school. \nSpeaker: Annie Sukhnandan | Patient Affairs Liaison Pfizer \nThank you to our sponsor Pfizer \n\nThis session is free and open to VHF constituents\, any constituent under the age of 12 will need adult supervision to participate. \nAs we gather virtually to discuss\, share and learn\, we ask that all VHF virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement. \n 
URL:https://vahemophilia.org/event-program/balancing-emotional-well-being-featuring-bullying/
LOCATION:Zoom
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201205T140000
DTEND;TZID=America/New_York:20201205T150000
DTSTAMP:20260405T233130
CREATED:20201001T134848Z
LAST-MODIFIED:20201125T172917Z
UID:4669-1607176800-1607180400@vahemophilia.org
SUMMARY:Virtual Winter Gathering
DESCRIPTION:» RSVP HERE \n\nJoin VHF and your bleeding disorders community for some virtual holiday cheer! \nThere will be ginger bread house decorating led by Michelle Stielper\, Regional Care Coordinator – Biomatrix\, (gingerbread house kits will be shipped directly to attendees) and you will not want to miss everyone’s favorite game show host\, Shelby Smoak\, Ph.D.\, Advocate & Education Specialist – BioMatrix\, in a holiday themed trivia game that includes rounds of “Name that Holiday Song.” Test your holiday knowledge in this spirited\, interactive event. There will be education\, door prizes\, banter\, jests\, and endless fun. Laughs are a must! Please join and share in the holiday spirit. \nThis virtual event will give you a chance to experience community connection from the comfort of your home. Great for individuals and families and designed for all ages to enjoy. » RSVP HERE \n\nThis session is free and open to VHF constituents\, any constituent under the age of 12 will need adult supervision to participate. \nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF)virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement. \nThank you to our generous sponsors Bayer\, BioMatrix\, CSL Behring\, Genentech\, Hoos at Home\, Colburn-Keenan Foundation\, Inc.\, Pfizer and Takeda. \nWe could not provide these important events without the help of our generous sponsors – please go here to view our Virtual Sponsor Program. This program is one way our generous sponsors can virtually connect with the community by providing links to their electronic resources\, brochures\, websites\, social media sites and more!
URL:https://vahemophilia.org/event-program/virtual-winter-gathering/
LOCATION:Zoom
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201215T190000
DTEND;TZID=America/New_York:20201215T200000
DTSTAMP:20260405T233130
CREATED:20201001T141346Z
LAST-MODIFIED:20201001T141951Z
UID:4674-1608058800-1608062400@vahemophilia.org
SUMMARY:Virtual Education Session - Mindfulness as a Path to Resilience
DESCRIPTION:» RSVP HERE \nJoin us for a virtual education session for individuals with an inherited bleeding disorder. \nThe topic will be: Mindfulness as a Path to Resilience \nWhat is mindfulness and what are its benefits? How are stress and resilience related\, and why is resilience important? This presentation will offer patients a set of skills that they may use at home\, on their own. \nSpeaker: Jan Martin\, Nurse Educator\, Takeda \nThank you to our sponsor Takeda \n\nThis session is free and open to VHF constituents\, any constituent under the age of 12 will need adult supervision to participate. \nAs we gather virtually to discuss\, share and learn\, we ask that all VHF virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement. \n 
URL:https://vahemophilia.org/event-program/4674/
LOCATION:Zoom
CATEGORIES:education
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210118T183000
DTEND;TZID=America/New_York:20210118T193000
DTSTAMP:20260405T233130
CREATED:20201215T201152Z
LAST-MODIFIED:20210120T184054Z
UID:4797-1610994600-1610998200@vahemophilia.org
SUMMARY:HACA/VHF Advocacy Education Program
DESCRIPTION:» RSVP Here \nSince we cannot gather in person\, join HACA and VHF for a virtual advocacy education program on Martin Luther King Jr. Day\, our traditional date for our annual advocacy day. This program will focus on the 2021 General Assembly. Join in and hear details from advocacy consultant\, Becky Bowers-Lanier\, about proposed legislation of interest to the bleeding disorders community\, its partners and other stakeholders. You will also learn more about the HACA/VHF legislative updates that will occur weekly via zoom during the 2021 General Assembly session and how you might be able to get more involved. 2021 General Assembly Session Dates: January 13th – February 11th – 2021 \nThank you to our sponsors Pfizer\, Sanofi Genzyme\, and Takeda \n\nThis session is free and open to VHF constituents\, any constituent under the age of 12 will need adult supervision to participate. \nAs we gather virtually to discuss\, share and learn\, we ask that all VHF virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement. \n» RSVP Here
URL:https://vahemophilia.org/event-program/haca-vhf-advocacy-committee-virtual-chat-5/
LOCATION:Zoom
ATTACH;FMTTYPE=image/jpeg:https://vahemophilia.org/wp-content/uploads/2020/12/39868032653_f1f16facc7_o.jpg
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210128T190000
DTEND;TZID=America/New_York:20210128T200000
DTSTAMP:20260405T233130
CREATED:20201216T190432Z
LAST-MODIFIED:20210120T182108Z
UID:4804-1611860400-1611864000@vahemophilia.org
SUMMARY:Virtual Education Session - What to do in a Hemophilia Emergency
DESCRIPTION:» RSVP HERE \n\nAll registrants that attend will be entered into a drawing to win one of our numerous gift cards. We plan on having several winners (one per household)! \nTopic: What to do in a Hemophilia Emergency \nAn interactive presentation which outlines preparation for an emergency as well as how to advocate for you or your loved one with Hemophilia. \nSpeaker: Linda Peacock\, RN\,BSN\,MBA | Bayer Healthcare Pharmaceuticals\, Hematology Nurse Educator-East \nThank you to our sponsor Bayer \n\nThis session is free and open to VHF constituents\, any constituent under the age of 12 will need adult supervision to participate. \nAs we gather virtually to discuss\, share and learn\, we ask that all VHF virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/virtual-education-session-what-to-do-in-a-hemophilia-emergency/
LOCATION:Zoom
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210131T160000
DTEND;TZID=America/New_York:20210131T170000
DTSTAMP:20260405T233130
CREATED:20210108T142413Z
LAST-MODIFIED:20210127T224954Z
UID:4887-1612108800-1612112400@vahemophilia.org
SUMMARY:HACA/VHF Teen Task Force Advocacy Program
DESCRIPTION:» Go here to RSVP \nJoin HACA and VHF on Sunday\, January 31\, at 4 pm for an interactive Teen Task Force advocacy program. Shelby Smoak of Biomatrix will lead the session as we discuss various scenarios often encountered by teens and how advocacy can be used in each situation. There will also be an exciting game of trivia to try out your new advocacy skills and knowledge. \nThis program is for teens age 13–17 who live within HACA/VHF territory and meet one of the following criteria: Have a bleeding disorder\, are the sibling of someone with a bleeding disorder and/or have a parent/caregiver with a bleeding disorder. Each session must be signed up for individually\, you do not have to sign up for all in order to participate. \nAll minor participants must be registered for the event by a parent. Both the parent and the minor must agree to the statements on the registration page of Constant Contact. A parent must be nearby during the duration of the session. There are two steps to register for the event: through Constant Contact\, and then through Zoom. Once you register in Constant Contact\, you will receive an email with instructions and a link to register through Zoom. \nThank you to our sponsors Genentech\, Pfizer\, and Takeda \nFor questions contact:  \nPatti Williford\nHemophilia Association of the Capital Area (HACA)\n703-352-7641\nadmin@hacacares.org \n 
URL:https://vahemophilia.org/event-program/haca-vhf-teen-advocacy-program/
LOCATION:Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210218T190000
DTEND;TZID=America/New_York:20210218T200000
DTSTAMP:20260405T233130
CREATED:20210202T195713Z
LAST-MODIFIED:20210203T185929Z
UID:4920-1613674800-1613678400@vahemophilia.org
SUMMARY:VHF/HACA Virtual Men's Rap Session - Winter 2021
DESCRIPTION:» RSVP Here \nIn partnership with the Hemophilia Association of the Capital Area (HACA)\, we are offering a virtual Men’s Rap Session on a quarterly basis! \nParticipants will enjoy time to gather and share with other men who encounter similar challenges. These rap sessions are free and open to men who are constituents of  VHF/HACA\, age 21 and up\, and are diagnosed with an inherited bleeding disorder. \nThank you to our sponsor Hemophilia Federation of America (HFA). \n\nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/vhf-haca-virtual-mens-rap-session-winter-2021/
LOCATION:Zoom
ATTACH;FMTTYPE=image/jpeg:https://vahemophilia.org/wp-content/uploads/2020/09/49071881157_a9be747366_o.jpg
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210223T163000
DTEND;TZID=America/New_York:20210223T170000
DTSTAMP:20260405T233130
CREATED:20210113T171612Z
LAST-MODIFIED:20210217T012902Z
UID:4901-1614097800-1614099600@vahemophilia.org
SUMMARY:HACA/VHF General Assembly Weekly Check-In
DESCRIPTION:» Go here to register \nJoin HACA and VHF for a quick weekly General Assembly check-in. We will gather on Zoom to get an overview of the past weeks events in the Virginia General Assembly and get insight from our advocacy consultant\, Becky Bowers-Lanier\, on what to look for\, trends and any actions that will need to be taken about proposed legislation of interest to the bleeding disorders community. \n2021 General Assembly Session Dates: January 13th – February 11th – 2021 \nWhen you register you will receive an email with a re-occurring zoom link that you can use for all of the weekly check-ins. \nTuesdays at 4:30 pm (EST): \n\nJanuary 26\nFebruary 2\nFebruary 9\nFebruary 16\nFebruary 23\n\n\nThis session is free and open to VHF constituents\, any constituent under the age of 12 will need adult supervision to participate. \nAs we gather virtually to discuss\, share and learn\, we ask that all VHF virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/vhf-haca-advocacy-committee-general-assembly-weekly-check-in/
LOCATION:Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210225T190000
DTEND;TZID=America/New_York:20210225T200000
DTSTAMP:20260405T233130
CREATED:20210111T170904Z
LAST-MODIFIED:20210204T163626Z
UID:4890-1614279600-1614283200@vahemophilia.org
SUMMARY:Virtual Community Connection - Board and Brush Activity
DESCRIPTION:RSVP IS CLOSED – THIS EVENT IS NOW FULL \nJoin VHF for a highly interactive and engaging evening of education\, community connection\, and a family-friendly craft activity. Crafting is a great way to help pass the time and cope with stress so bring your creativity and a willingness to learn and you will build a wooden décor piece you’ll be proud to display in your home! \nBroad & Brush Craft Activity: If you are unfamiliar with Board & Brush craft activities go here to learn more. We will be doing a modified version and everything you need will be supplied and mailed to your home (supplies will come from 3rd party vendor East/West). To give you more of an idea of the activity – here’s is a video created by Jessica Graham\, CSL Behring Community Support Liaison\, who will be leading us through the craft. \n\n3 participants max per household and each participant will need to be registered by February 11th\nThis session is free and open to VHF constituents ages 10 and up\, any constituent under the age of 12 will need adult supervision to participate.\n\nTurning Stumbling Blocks Into Stepping Stones Education Presentation: We are also thrilled to have\, Perry Parker\, CSL Behring Gettin’ in the Game Athlete\, join us to present Turning Stumbling Blocks Into Stepping Stones. Growing up with hemophilia A\, Perry was told many times by his doctors and nurses that he couldn’t do certain things\, particularly when it came to sports. With his parents’ support and encouragement\, Perry pushed himself to explore what he could do\, which led to a lifelong love of golf. Perry’s brother also has hemophilia\, and their parents wanted them both to be free to make their own choices. \nSince as far back as he can remember\, Perry has known two things: he has hemophilia\, and he would be a pro golfer. Perry’s parents always encouraged him to pursue his interests. For Perry\, this led to a professional golf career\, including more than 30 professional tournament wins\, playing numerous international tours\, and founding and continued involvement with the CSL Behring Gettin’ in the Game℠ Junior National Championship. Perry wants others to know that bleeding disorders do not have to be a game changer\, and he has lots of tips to share on how to make dreams come true. \nThank you to our community connection sponsor CSL Behring! \n\nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/virtual-community-connection-board-and-brush-activity/
LOCATION:Zoom
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210303T190000
DTEND;TZID=America/New_York:20210303T200000
DTSTAMP:20260405T233130
CREATED:20210203T180250Z
LAST-MODIFIED:20210308T164726Z
UID:4922-1614798000-1614801600@vahemophilia.org
SUMMARY:New Family Education and Support
DESCRIPTION:» RSVP Here \nJoin VHF\, HTC staff and mentor families for a virtual program for new families! This program is designed to support families of infants and young children with hemophilia and other inherited bleeding disorders with community connection and education. \nThis program is for families with children who have been diagnosed with an inherited bleeding disorder in the last 7 years. \nThank you to our program sponsors Accredo\, Genentech\, Hemophilia Federation of America\, and Takeda. \n\nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/first-step-virtual-program-for-new-families-2/
LOCATION:Zoom
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210314T160000
DTEND;TZID=America/New_York:20210314T173000
DTSTAMP:20260405T233130
CREATED:20210217T005638Z
LAST-MODIFIED:20210301T202244Z
UID:4998-1615737600-1615743000@vahemophilia.org
SUMMARY:Virtual Community Connection - All Out Break-Out Games!
DESCRIPTION:» RSVP Here \nJoin VHF for a highly interactive and engaging afternoon playing games\, connecting with community\, and celebrating Bleeding Disorders Awareness Month! Participants will gather in a Zoom room for a fun introduction to the program\, and then we will divide into groups in breakout rooms to play a series of minute-to-win it style games and then will return to the main room to report achievements. Fun for all ages! \nAll registrants that attend will be entered into a drawing to win one of our numerous gift cards. We plan on having several winners (one per household)! \nThis session is free and open to VHF constituents\, any constituent under the age of 12 will need adult supervision to participate. \n\nThis program will be facilitated by Beyond Recreation who has built a solid reputation among the members of the national bleeding disorder community\, most notably in the areas of youth programming and summer camp. Anne Henningfeld and Michael Jay Garner of Beyond Recreation bring a distinctive list of credentials to the world of bleeding disorder programming. \nAnne is a Certified Therapeutic Recreation Specialist (CTRS)\, holding an MA in Recreation Therapy from the University of Toledo. As the co-founder of Beyond Recreation\, Anne has been developing custom programming for seven years. Prior to that\, Anne was the Education and Youth Programs Coordinator at the Hemophilia Foundation of Michigan. Anne has also been a presenter at the National Hemophilia Foundation Annual Meeting\, the Hemophilia Federation of America Symposium\, and is a two-time winner of the National Hemophilia Foundation’s Health Education Award of Distinction. \nMichael Jay Garner holds a BA in Psychology from Emory University\, where he also learned comedy\, improvisation and juggling. Michael has over 20 years’ experience in workshop facilitation and working with medically specialized children and young adults in both camp and hospital settings. His unique and engaging style of presentation enhances every program with a combination of entertainment and education. Michael is also an artist with Cirque du Soleil\, having spent the past four years touring the world with the big top show\, KOOZA. \nThank you to our community connection sponsors CSL Behring\, Genentech\, Hemophilia Federation of America\, Pfizer\, and Takeda \n\nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/all-out-break-out-games/
LOCATION:Zoom
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210325T190000
DTEND;TZID=America/New_York:20210325T203000
DTSTAMP:20260405T233130
CREATED:20210305T020853Z
LAST-MODIFIED:20210305T175729Z
UID:5021-1616698800-1616704200@vahemophilia.org
SUMMARY:CAMERA ON! Healing and the Art of Photography
DESCRIPTION:» RSVP HERE \nCAMERA ON! Healing and the Art of Photography \nIf you enjoy taking pictures\, this program is for you! Please join VHF and BioMatrix for this highly interactive photography program. In addition to engaging with recent research regarding the impact of art and photography on one’s health\, participants will apply their photo skills in several picture-taking activities\, guided by retired career photographer and member of the bleeding disorders’ community\, Rich Vogel. Lights\, Action\, Camera On! \nParticipants will need to bring something to take pictures with (a camera\, a phone with camera)\, and will need to have a portable object that means something to them: a book\, a figurine\, a great-grandfather’s pocket watch\, etc. \nThis session is free and open to VHF constituents ages 10 and up\, any constituent under the age of 12 will need adult supervision to participate. All registrants that attend will be entered into a drawing to win one of our numerous gift cards. We plan on having several winners (one per household)! \nThank you to our program sponsor BioMatrix. \n\n					As we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/camera-on-healing-and-the-art-of-photography/
LOCATION:Zoom
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210408T190000
DTEND;TZID=America/New_York:20210408T200000
DTSTAMP:20260405T233130
CREATED:20210317T161809Z
LAST-MODIFIED:20210317T162647Z
UID:5116-1617908400-1617912000@vahemophilia.org
SUMMARY:VHF/HACA Men's Rap Session
DESCRIPTION:» RSVP Here \nIn partnership with the Hemophilia Association of the Capital Area (HACA)\, we are offering a virtual Men’s Rap Session on a quarterly basis! We are offering these volunteer led sessions in the hopes that during these times of increased isolation we can help to create a network of men who educate and support each other which can lead to better health and stress management. \nThese rap sessions are free and open to men who are constituents of VHF/HACA\, age 21 and up\, and are diagnosed with an inherited bleeding disorder. \nThank you to our sponsor Hemophilia Federation of America (HFA). \nRead this article for more information on how to join a virtual meeting on the zoom platform using a desktop computer\, mobile device/tablet\, from a landline or a mobile phone. If you need assistance or have any barriers that are keeping you from participating in virtual programs please call 804-740-8643 or email info@vahemophilia.org.  \n\nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/vhf-haca-mens-rap-session/
LOCATION:Zoom
ATTACH;FMTTYPE=image/jpeg:https://vahemophilia.org/wp-content/uploads/2020/09/49071881157_a9be747366_o.jpg
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210417T150000
DTEND;TZID=America/New_York:20210417T173000
DTSTAMP:20260405T233130
CREATED:20210304T184352Z
LAST-MODIFIED:20210412T173259Z
UID:5010-1618671600-1618680600@vahemophilia.org
SUMMARY:Medical Symposium
DESCRIPTION:»RSVP HERE\nThe VHF Medical Symposium will provide consumers with the knowledge needed to discuss emerging and current treatment options and have conversations around access to care and insurance trends\, as well as recognize World Hemophilia Day. \n» Please go here to view our Virtual Medical Symposium Program. This program is one way our generous sponsors can virtually connect with the community by providing links to their electronic resources\, brochures\, websites\, social media sites and more! \nWhen you RSVP for this program you will receive one zoom link for all sessions\, you are welcome to join us for one or for all – see below for more details. \nVHF constituents will receive a gas and/or grocery gift card. Value will be connected to the number of sessions you attend with a maximum value of $50. If you are a constituent that lives outside of the VHF coverage area and you are interested in registering for this meeting\, please email heather@vahemophilia.org for more information. \nWe could not provide this important event without the help of our generous sponsors. \nPresenter Sponsors: Bayer\, BioMarin\, Genentech\, Sanofi Genzyme\, Spark Therapeutics\, and Takeda\nCorporate Sponsors: CSL Behring\, DrugCo Health\, Pfizer\, and Novo Nordisk \n\nMedical Symposium: Saturday\, April 17th from 3:00 – 5:30 pm\nTopic: Insurance Coverage: Opportunities Today and Challenges for Tomorrow\nPresenters: Kollet Koulianos\, MBA\, Senior Director Payer Relations at National Hemophilia Foundation and Miriam Goldstein\, Director of Policy at Hemophilia Federation of America \nHealth coverage is essential for people with bleeding disorders. This session will look at health insurance developments in the present and on the horizon. We will talk about the American Rescue Plan\, signed into law just last month\, which provides new opportunities for people to get health insurance\, upgrade coverage\, and/or lower their costs for coverage. We will hear an update on accumulator adjusters: how these strategies impact patients\, and what is next on the advocacy front. And we will look into the future\, forecasting how insurers are likely to respond to the advent of gene and novel therapies. \nTopic: World Hemophilia Day Spotlight\nPresenter: Roddy Doucet\, Philanthropy Manager\, Community Outreach at World Federation of Hemophilia \nTopic: Update on National Hemophilia Foundation’s (NHF’s) Plans and Future Directions for the Bleeding Disorders Community\nPresenter: Leonard Valentino\, MD\, President and Chief Executive Officer at NHF \nJoin VHF as we host a presentation by the CEO of the NHF\, Dr. Leonard Valentino. We are thrilled to have Dr. Valentino come to speak to our community to share his thoughts on NHF’s mission and vision\, how COVID will impact the bleeding disorders community in the future\, COVID vaccines\, VWD Guidelines and advocacy\, a NHF Bleeding Disorders Conference teaser and highlights of the national research blueprint. There will be time for questions and discussion – you will not want to miss this opportunity to engage with a national leader of the bleeding disorders community! \n\nPresenter Sponsors Education Sessions: April 15th – April 30th\nDate: Thursday\, April 15th at 7:00 pm\nSponsor: Genentech\nPresenters: Maya Bloomberg\, ARNP\, MSN University of Miami Hemophilia Treatment Center and Louis\, a HEMLIBRA Ambassador\nTopic: Give it a Shot: A Different Type of Hemophilia A Therapy\nDescription: Join us for an educational session on HEMLIBRA \nDate: Friday\, April 16th at Noon\nSponsor: Bayer\nPresenter: Maya Bloomberg\, ARNP\, MSN University of Miami Hemophilia Treatment Center\nTopic: Meet Jivi\nDescription: This Jivi Patient Program will review: What is Jivi? What is the safety and bleed protection information for Jivi? What additional resources can I expect from Bayer? \nDate: Thursday\, April 22nd at 7:00 pm\nSponsor: Takeda\nPresenter: Betsy Koval BSN RN\, Senior Clinical Specialist with Takeda\nTopic: VWiD\nDescription: Come experience a story from a real VONVENDI patient about their journey of being diagnosed and living with von Willebrand disease (VWD). Our goal is to continue to educate the VWD community with impactful\, relevant VWD programs. The VWiD program provides the opportunity for members to hear stories\, receive information\, and connect with other members of the community. \nDate: Friday\, April 23rd at Noon\nSponsor: Sanofi Genzyme\nPresenters: CoRe Manager\, Xaviette Pointer-Kincy and Physical Therapist\, Jeff Kallberg\nTopic: You Count On Your Joints More Than You Think\nDescription: You’re someone who uses their joints every day. Join us for an interactive educational experience to learn how you can count on ELOCTATE to protect you and your joints from bleeds. You’ll find out more about how we use our joints for everyday activities\, the latest data about ELOCTATE and how it works\, and how you can count on us for an array of support resources. \nDate: Thursday\, April 29th at 7:00 pm\nSponsor: BioMarin\nPresenter: Dr. Guy Young\, HTC Director\, Children’s Hospital Los Angeles\nTopic: Drug Discovery & Beyond\nDescription: How scientists and the FDA research and evaluate new treatment options for you. \nDate: Friday\, April 30th at Noon\nSponsor: Spark Therapeutics\nPresenter: Laureen Temple\, Patient Education Lead\, Spark Therapeutics\nTopic: Understanding Gene Therapy Research and Its Potential Application to Hemophilia\nDescription: This presentation is intended to walk you through the journey that started over 50 years ago with the beginnings of gene therapy research. We will walk through the basics of genetics and how that plays a role in hemophilia. With that knowledge\, we will look at how gene therapy is meant to work\, and discuss both the potential for and the challenges of investigational gene therapy research today. \n\n					This session is free and open to VHF constituents\, any constituent under the age of 12 will need adult supervision to participate. As we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF)virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read virtual meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/medical-symposium/
LOCATION:Zoom
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210516T160000
DTEND;TZID=America/New_York:20210516T173000
DTSTAMP:20260405T233130
CREATED:20210330T151758Z
LAST-MODIFIED:20210517T233106Z
UID:5153-1621180800-1621186200@vahemophilia.org
SUMMARY:Virtual Women's Retreat
DESCRIPTION:» RSVP HERE \nA rejuvenating afternoon retreat filled with educational programming\, crafts\, and community building. This retreat is open to women age 21 and up with an inherited bleeding disorder/carriers and/or to women whose lives are impacted by a bleeding disorder (i.e. caregivers\, spouses\, immediate family members). \nEducation Session: Janet Chupka BSN\, RN\, Research Director at the Hemophilia Federation of America (HFA) will open up our session with an update on the FIRST Project (patient-centered research geared specifically toward women within the bleeding disorder community) and related activities and other bleeding disorder/female focused initiatives/programs that might be of interest. \nCraft Project: Michelle Stielper with BioMatrix will lead a relaxing and easy DIY Beaded Suncatcher craft project! All supplies will be shipped directly to your home\, must RSVP by Monday\, May 3rd in order to be eligible to receive supplies. \nThank you to our retreat sponsors: BioMatrix\, CSL Behring\, Genentech\, and Takeda \n\nRead this article for more information on how to join a virtual meeting on the zoom platform using a desktop computer\, mobile device/tablet\, from a landline or a mobile phone. If you need assistance or have any barriers that are keeping you from participating in virtual programs please call 804-740-8643 or email info@vahemophilia.org.  \n\nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/virtual-womens-retreat/
LOCATION:Zoom
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210527T190000
DTEND;TZID=America/New_York:20210527T200000
DTSTAMP:20260405T233130
CREATED:20210420T164415Z
LAST-MODIFIED:20210519T192805Z
UID:5186-1622142000-1622145600@vahemophilia.org
SUMMARY:Advocacy Chat with Delegate Kathleen Murphy
DESCRIPTION:» RSVP HERE \nJoin us as we chat with Delegate Kathleen Murphy (34th District\, Virginia House of Delegates) to learn more about the passage of HB 1995 that created the Rare Disease Advisory Council and its proposed scope of work. Hear more about Del. Murphy’s interest and advocacy for creating the Council AND for her general impressions on the virtual nature of the General Assembly meetings. \nThank you to our advocacy chat sponsors National Hemophilia Foundation (NHF) and Takeda \nRead this article for more information on how to join a virtual meeting on the zoom platform using a desktop computer\, mobile device/tablet\, from a landline or a mobile phone. If you need assistance or have any barriers that are keeping you from participating in virtual programs please call 804-740-8643 or email info@vahemophilia.org.  \n  \n\n\nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/advocacy-chat-with-delegate-kathleen-murphy/
LOCATION:Zoom
CATEGORIES:advocacy,education,virtual chat
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210626T170000
DTEND;TZID=America/New_York:20210626T183000
DTSTAMP:20260405T233130
CREATED:20210512T154131Z
LAST-MODIFIED:20210709T144436Z
UID:5224-1624726800-1624732200@vahemophilia.org
SUMMARY:VHF Annual Meeting
DESCRIPTION:» RSVP HERE \nVHF’s Annual Meeting brings together the inherited bleeding disorder community to share information on a wide variety of topics. It is a great opportunity for education\, networking\, and support for individuals and families. The annual meeting will be held virtually on zoom and will have time for VHF chapter updates with a focus on the work of our board of directors and an exciting keynote presentation from Save One Life founder and board president Laurie Kelley and executive director Chris Bombardier. \n*VHF constituents that register and attend will receive dinner on us (details TBD)* This session is free and open to VHF constituents\, any constituent under the age of 12 will need adult supervision to participate. \n» Please go here to view our Virtual Annual Meeting Program This program is one way our generous sponsors can virtually connect with the community by providing links to their electronic resources\, brochures\, websites\, social media sites and more! \nWe could not provide this important event without the help of our generous sponsors.\nPremier Sponsors: Pfizer and Takeda\nPlatinum Sponsors: Accredo\, Bayer\, and Genentech\nCorporate Sponsors: BioMarin\, CSL Behring\, DrugCo\, HEMA Biologics\, Children’s Hospital of The King’s Daughter’s and the University of Virginia’s 340B Factor Program\, Novo Nordisk\, Octapharma\, Sanofi Genzyme\, and Superior Biologics \n\nKeynote Presentation: “The right time helping\, changes a life.” Helping People with Bleeding Disorders in Developing Countries \nDescription: Join Save One Life founder and board president Laurie Kelley and executive director Chris Bombardier for an interactive presentation that will offer a global perspective on the bleeding disorder community and the work of Save One Life. Learn the challenges that many face and how they overcome them with our help! \n\n		\n			\n				\n			\n			\n		 \n		\n			Laureen A. Kelley is president of LA Kelley Communications\, Inc. and is the author of ten books on bleeding disorders\, including Raising a Child With Hemophilia and Success as a Hemophilia Leader. Laurie was founder and publisher of the Parent Empowerment Newsletter (PEN) for 31 years\, and PEN’s Insurance Pulse for 11 years. She also founded Project SHARE\, a humanitarian program that donates millions of dollars’ worth of blood-clotting medicine annually to impoverished patients in developing countries. Laurie is founder and president of Save One Life\, a nonprofit child sponsorship agency for children with bleeding disorders in developing countries. She has an adult son with hemophilia.\n		\n			\n		\n\n		\n			\n				\n			\n			\n		 \n		\n			Chris Bombardier is executive director of Save One Life\, an international nonprofit that provides direct financial aid to patients with hemophilia in developing countries. Chris was a board member of Save One Life from 2012 to 2019. During that time\, Chris was actively involved on the program and scholarship committees. A mountaineer\, Chris became the first person with hemophilia to successfully climb the Seven Summits and dedicated his climbs to raising funds for Save One Life. He eventually raised over $100\,000 and helped 75 children receive sponsorships. Chris began his career as a professional research assistant with the University of Colorado Hemophilia and Thrombosis Center after graduating from Doane College with a bachelor’s degree in biology. He later worked with GutMonkey\, an experienced-based education company that works with people with chronic medical conditions. Through his travels around the world for the Seven Summits\, and his work with Save One Life\, Chris discovered his passion for global health work and returned to school. He recently earned his master’s in global health from Northwestern University in 2020.\n		\n			\n		\n\nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/vhf-annual-meeting/
LOCATION:Zoom
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
END:VCALENDAR