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X-WR-CALDESC:Events for Virginia Bleeding Disorders Foundation
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DTSTART;VALUE=DATE:20250404
DTEND;VALUE=DATE:20250405
DTSTAMP:20260403T095252
CREATED:20241213T042625Z
LAST-MODIFIED:20250131T173946Z
UID:6891-1743724800-1743811199@vahemophilia.org
SUMMARY:APPLICATION DUE: VHF Travel Grant for NBDF Bleeding Disorders Conference
DESCRIPTION:VHF Travel Grants to National Meetings: The Virginia Hemophilia Foundation (VHF) is pleased to offer Travel Grants to attend national meetings as part of the Terry Lamb Enrichment Scholarship. National meetings enable our community to come together and exchange information on treatment and technology. Click here to learn more about the Terry Lamb Enrichment Scholarship program. \nNational Bleeding Disorders Foundation (NBDF) Bleeding Disorders Conference (BDC) features educational sessions\, industry symposia\, networking and social events\, and exhibits. A lineup of dynamic speakers who provide essential information and insights on the evolving landscape in this exciting new era of treatment for hemophilia\, von Willebrand disease\, and rare bleeding disorders. Go here to learn more about NBDF BDC. \nMeeting Dates: August 21 – 23\, 2025 \nMeeting Location: Aurora-Denver\, CO \nVHF travel grant deadline:5:00 pm\, Friday\, April 4\, 2025 \nGo here to apply online via JotForm.\nGo here to download the PDF version of the application.
URL:https://vahemophilia.org/event-program/application-due-vhf-travel-grant-for-nbdf-bleeding-disorders-conference/
ORGANIZER;CN="Kelly Waters%2C VHF Executive Director":MAILTO:info@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250417T183000
DTEND;TZID=America/New_York:20250417T200000
DTSTAMP:20260403T095252
CREATED:20250312T191230Z
LAST-MODIFIED:20250415T183302Z
UID:6989-1744914600-1744920000@vahemophilia.org
SUMMARY:WILLIAMSBURG - World Hemophilia Day 2025 "One Family" Program
DESCRIPTION:THIS EVENT IS NOW FULL – Please email heather@vahemophilia.org to be put on the wait list. Thanks!\nYou’re invited to a World Hemophilia Day Event!\nSanofi’s 2025 One Family program will focus on the innate ties that bind the bleeding disorders community. This family friendly event will explore shared experiences\, how to forge deeper relationships\, and how the power of connection uplifts everyone. \nWho: This VHF Educational Dinner is tailored for individuals and families of all ages affected by inherited bleeding disorders who are VHF constituents and their family and/or household members. \nWhat: An interactive and educational event\, where you will receive helpful information that will foster a sense of connection within the global hemophilia community in recognition of World Hemophilia Day 2025! There will be activities such as beaded bracelet making\, instant camera selfie stations\, DIY photo frames\, and photo prop crafts. After the education session there will be plenty of time for discussion\, catching up\, and enjoying time with your family and friends! Dinner will be provided and there is no fee to attend. \nWhere: Thai Tara Sushi 240 Mclaws Circle Unit 117\, Williamsburg\, VA 23185 – Serving Thai food\, Japanese Hibachi\, Sushi\, and more!\n \nWhen: Thursday\, April 17th – World Hemophilia Day! \nThank you to our sponsor Sanofi.
URL:https://vahemophilia.org/event-program/williamsburg-world-hemophilia-day-2025-one-family-program/
LOCATION:Thai Tara Sushi\, 240 Mclaws Circle Unit 117\, Williamsburg\, VA\, 23185\, United States
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250423
DTEND;VALUE=DATE:20250424
DTSTAMP:20260403T095252
CREATED:20250328T173059Z
LAST-MODIFIED:20250425T130110Z
UID:7005-1745366400-1745452799@vahemophilia.org
SUMMARY:APPLICATION DUE: Camp Youngblood at Camp Holiday Trails
DESCRIPTION:Application Closed Wednesday\, April 23\, 2025 \nThe Virginia Hemophilia Foundation (VHF)\, the Hemophilia Association of the Capital Area (HACA)\, and Camp Holiday Trails (CHT) are excited to partner once again for Camp Youngblood (CYB) — a week-long overnight camp designed just for kids in our inherited bleeding disorders community! \n\nAbout Camp Youngblood\n📅 Dates: Sunday\, July 13 – Friday\, July 18\, 2025📍 Location: Camp Holiday Trails\, 400 Holiday Trails Ln\, Charlottesville\, VA 22903 \nCamp Youngblood is open to children ages 7–17 who: \n\nHave an inherited bleeding disorder\nAre siblings of a child with an inherited bleeding disorder\nAre children of members of the inherited bleeding disorder community\n\nAll campers must reside within the VHF or HACA coverage areas. \nKids will enjoy a week of fun\, connection\, and growth—surrounded by peers who understand their challenges and experiences. Learn more about the 2025 Camp Youngblood admission guidelines. \n\nHow to Apply\nStep 1: Pre-Screening SurveyAll applicants\, including returning campers\, must complete a short pre-screening survey. This helps determine eligibility. \nYou will be notified of your eligibility within one week by VHF or HACA. \nStep 2: Camp ApplicationIf eligible\, you’ll receive a link to the official Camp Youngblood application\, managed by Camp Holiday Trails. \nCost: $25 registration fee per child \n\nImportant Deadlines\nApplication Closed Wednesday\, April 23\, 2025All Paperwork & Medical Assessments Due: Friday\, June 6\, 2025Welcome Emails Sent to Confirmed Campers: Friday\, June 13\, 2025 \n\nCamp Youngblood operates on open enrollment—not first come\, first served. Applications are reviewed carefully based on the admission guidelines\, so please ensure all deadlines are met to be considered. \n\nThank You to Our 2025 Sponsors\nNovo Nordisk\, Pfizer\, Takeda\, and VCU-HTC
URL:https://vahemophilia.org/event-program/application-due-camp-youngblood-at-camp-holiday-trails/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250426T100000
DTEND;TZID=America/New_York:20250426T120000
DTSTAMP:20260403T095252
CREATED:20241213T044132Z
LAST-MODIFIED:20250425T130207Z
UID:6894-1745661600-1745668800@vahemophilia.org
SUMMARY:RICHMOND - New Family Support and Education
DESCRIPTION:Registration is closed\, email heather@vahemophilia.org if you have any questions. \nJoin VHF for a special program designed to support families of infants and young children diagnosed with inherited bleeding disorders. This event offers an opportunity to connect with the bleeding disorders community and gain valuable education and resources. \nTopic: Beyond Bubble Baths: Real Self-Care for Caregivers \nCaring for others\, especially in the midst of chronic illness—can feel all-consuming\, leaving little room for our own well-being. This session goes beyond surface-level self-care and explores deeper\, more sustainable ways to restore ourselves while continuing to show up for those we love. Through reflection\, discussion\, and practical strategies\, we’ll explore how to integrate real self-care into our lives in ways that actually stick. \nPresenter: Sarahbeth Spasojevich\, NCC\, MA\, MBA\, MEd \nSarahbeth Spasojevich is a mental health clinician at Connected Resilience and a mother of three – including Jack\, a fourth-generation hemophiliac. As an active member of the Virginia Hemophilia Foundation community\, she deeply understands the emotional and practical challenges of caregiving in the rare disease space. \nWhat to Expect: \n\nA private meeting space for our group\nContinental breakfast provided for all attendees\nTime for Q&A\nNetworking opportunities with other parents and families\nTime to enjoy the Richmond Zoo and see Poppy – America’s pygmy hippo princess!\n\nWho Can Attend: This program is tailored for families affected by inherited bleeding disorders with children ages 10 and under who reside in the VHF coverage area and is not open to individuals employed or compensated by Industry. \nWe look forward to providing you with a supportive and welcoming environment to learn\, share\, and connect! \nThank you to our current sponsors: CSL Behring\, Genentech\, Takeda and VCU-HTC
URL:https://vahemophilia.org/event-program/richmond-family-support-and-education/
LOCATION:Richmond Metro Zoo\, 8300 Beaver Bridge Rd.\,\, Moseley\, VA\, 23120\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250501
DTEND;VALUE=DATE:20250502
DTSTAMP:20260403T095252
CREATED:20241213T044812Z
LAST-MODIFIED:20241213T044812Z
UID:6895-1746057600-1746143999@vahemophilia.org
SUMMARY:APPLICATION DUE: VHF Lyman Fisher Scholarship
DESCRIPTION:VHF Lyman Fisher Scholarship Application Procedure & Guidelines\nAPPLICATION PROCEDURE \nApplication Deadline: Thursday\, May 1\, 2025\, at 5:00 pm \nApplications must be completed using our online application form or email the pdf version to info@vahemophilia.org. \nGo here to apply via JotForm\nGo here to download PDF version of application\nAll letters of recommendation are to be sent electronically to info@vahemophilia.org. Applications and/or supporting documents received after 5:00 PM on Thursday\, May 1st will not be considered. It is up to the applicant to follow up and make sure these items are received by the deadline. Incomplete applications will not be considered. \nPlease read and follow the application and instructions very carefully to receive full consideration for a VHF Lyman Fisher Scholarship. If you don’t know the answer\, please type N/A. DO NOT leave any section blank. \nScholarship applicants will be notified of the committee’s findings by June 1st and winners will be recognized at VHF’s Medical Symposium September 13\, 2025. \nELIGIBILITY\nIndividuals living with an inherited bleeding disorder\, their sibling or their parents who live in the territorial jurisdiction of VHF\, which includes the Commonwealth of Virginia\, with the exception of the following: The cities of Alexandria\, Fairfax\, Falls Church\, Herndon\, Manassas\, and Vienna and the counties of Arlington\, Fairfax\, Fauquier\, Loudon\, Prince William and Stafford. \nSCHOLARSHIPS\nIn 2025\, VHF will offer up to $12\,000 in scholarships. The award amount will vary based on the number of applicants that are selected and the scholarship rubric that the VHF scholarship committee uses to evaluate academic performance\, participation in school\, community\, and VHF activities\, a personal essay detailing educational and future career goals\, and recommendation letters. The scholarships may be used at any accredited college\, university\, or vocational/technical school in the United States and are to be applied toward a student’s educational expenses. VHF is not obligated to award scholarships in a given year. \nA student who receives an award one year may reapply in later years but winning a scholarship in one year does not necessarily mean that the student will win in a later year. Also\, a student who applies in one year and does not receive an award is eligible to apply the following year for the scholarship. \nScholarship applicants must have participated in VHF activities. \nPAYMENT OF SCHOLARSHIP FUNDS\nScholarship payments are not distributed directly to an individual\, but are made via scholarship checks\, payable to the schools. VHF staff will work with the award recipient(s) to process the scholarship funds. \nRESPONSIBILITIES OF RECIPIENTS\nScholarship recipients must enroll as a college student in the fall of the year in which the scholarships are awarded and continue in school for the entire academic year without interruption\, barring illness\, emergency\, or military service. If a scholarship recipient leaves school during the scholarship period\, VHF may ask for reimbursement of scholarship funds. \nScholarship recipients are responsible for making certain that their scholarship checks are delivered to their colleges. Recipients must provide VHF with information on where to send the check\, as well as other pertinent information such as student identification number. \nThe recipient is responsible for determining the impact of the scholarship or grant on their annual tax returns. For more information\, talk to a tax return preparer or go here. \nQUESTIONS\nIf you have questions about this scholarship (application process\, whether the program and/or activity that you are requesting assistance with fits within the guidelines\, how much funding is available\, etc.) please reach out to Kelly Waters at 804-740-8643 or kelly@vahemophilia.org. \n\n\n\n\nScholarship Background\nThe Virginia Hemophilia Foundation (VHF) Lyman Fisher Scholarship was established to honor Dr. Lyman Fisher\, a teacher\, researcher\, and clinician in hemostasis. For many years\, he directed the adult hemophilia program for Virginia. He will be remembered for his steadfast commitment to his patients and students\, his respect for those who served under him\, his community service and his affection for his family.
URL:https://vahemophilia.org/event-program/application-due-vhf-lyman-fisher-scholarship/
ORGANIZER;CN="Kelly Waters%2C VHF Executive Director":MAILTO:info@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250516
DTEND;VALUE=DATE:20250519
DTSTAMP:20260403T095252
CREATED:20241213T051254Z
LAST-MODIFIED:20250425T130316Z
UID:6896-1747353600-1747612799@vahemophilia.org
SUMMARY:CHARLOTTESVILLE - VHF Family Camp at Camp Holiday Trails
DESCRIPTION:A spot is open – if you are interested please email heather@vahemophilia.org \nDate: Friday\, May 16 – Sunday\, May 18\, 2025 \nLocation: Camp Holiday Trails\, 400 Holiday Trails Ln\, Charlottesville\, VA 22903 \nExperience an unforgettable weekend at Camp Holiday Trails (CHT) with the Virginia Hemophilia Foundation (VHF)! Connect with other families affected by bleeding disorders while enjoying education\, community\, and classic camp fun. This special program is designed for families with at least one child living at home who is between the ages of 5 – 17. \nAt Family Camp\, participants will enjoy a supportive environment where they can connect with others who understand the challenges of living with a bleeding disorder. Families will have the opportunity to attend educational sessions\, learn about self-advocacy and resilience\, and engage in fun outdoor activities that promote confidence\, teamwork\, and friendship. \nWho Can Attend: Family Camp is open to families impacted by an inherited bleeding disorder and is designed for families with at least one child living at home who is between the ages of 5 – 17. This program is for VHF constituents (and their immediate family and/or household members only) and is not open to individuals employed or compensated by Industry. Go here to read more about family camp guidelines. \nImportant Dates: \nFriday\, April 11\, 2025 – Registration closes \nMonday\, April 14\, 2025 – Registration fee link and confirmation email will be sent out \nWednesday\, April 16\, 2025 – Registration fee due\, $50 per family \nThis program is a perfect opportunity for families to relax\, learn\, and grow together. Don’t miss out on this incredible experience! For questions\, email info@vahemophilia.org or call 804-740-8643. \nThank you to our current sponsors: Colburn Keenan Foundation\, Inc.\, CSL Behring\, Genentech\, and Takeda
URL:https://vahemophilia.org/event-program/charlottesville-vhf-family-camp-at-camp-holiday-trails/
LOCATION:Camp Holiday Trails\, 400 Holiday Trails Lane\, Charlottesville\, VA\, 22903
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250608T110000
DTEND;TZID=America/New_York:20250608T140000
DTSTAMP:20260403T095252
CREATED:20250328T171824Z
LAST-MODIFIED:20250603T211034Z
UID:7003-1749380400-1749391200@vahemophilia.org
SUMMARY:VIRGINIA BEACH - Community Event at TopGolf
DESCRIPTION:THIS EVENT IS NOW FULL. Please email heather@vahemophilia.org to be placed on the waitlist. \nGet Active with YOUR Bleeding Disorders Community at Topgolf Virginia Beach! \nJoin the Virginia Hemophilia Foundation (VHF) on Sunday\, June 8th for a fun and educational community event focused on health\, fitness\, and connection. This unique outing offers opportunities to learn more about managing your bleeding disorder\, build relationships within the community\, and enjoy the game of golf—no experience required! \n🎯 What to Expect: \n\nLearn more about Comprehensive Care for bleeding disorders – what it is and meet some of the folks that make up the CHKD-HTC team.\nA supportive and engaging environment\nEducational content tailored to individuals with bleeding disorders\nCommunity building and family fun\nLunch and two hours of golf\, provided at no cost\n\nThis event is free to attend and open to individuals diagnosed with an inherited bleeding disorder and their immediate family or household members who reside within the VHF coverage area. \nVHF community events are held throughout the year to provide social and educational experiences for individuals and families. These gatherings are an excellent way to increase knowledge\, find support\, and enjoy time together. \nWe can’t wait to see you there! \nThank you to our current sponsor(s): CSL Behring\, Genentech\, Novo Nordisk\, Optum\, Sanofi\, and Superior Biologics \nColburn-Keenan Foundation – “Bay Fees”
URL:https://vahemophilia.org/event-program/virginia-beach-community-event-at-topgolf/
LOCATION:Topgolf Virginia Beach\, 5444 Greenwich Road\, Virginia Beach\, VA\, 23462\, United States
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250713
DTEND;VALUE=DATE:20250719
DTSTAMP:20260403T095252
CREATED:20241015T174911Z
LAST-MODIFIED:20250726T224054Z
UID:6837-1752364800-1752883199@vahemophilia.org
SUMMARY:CHARLOTTESVILLE - Camp Youngblood at Camp Holiday Trails
DESCRIPTION:REGISTRATION IS CLOSED \nThe Virginia Hemophilia Foundation (VHF)\, the Hemophilia Association of the Capital Area (HACA)\, and Camp Holiday Trails (CHT) are teaming up again for Camp Youngblood (CYB) in 2025. \nCamp Youngblood is a week-long overnight camp at CHT for children ages 7-17 with inherited bleeding disorders\, their siblings\, and children of members of the inherited bleeding disorder community that reside within the VHF or HACA coverage area. Kids enjoy a week of fun and learning with others that are faced with similar challenges and life experiences. Go here to learn more about the 2025 CYB admission guidelines. \nDates: Sunday\, July 13 – Friday\, July 18\, 2025 \nLocation: Camp Holiday Trails\, 400 Holiday Trails Ln\, Charlottesville\, VA 22903 \nOpen Enrollment Application: The CYB application process is open enrollment and not first come first served. This will allow VHF\, HACA\, and CHT the chance to review applications and manage the roster according to the application/admission guidelines. *Must adhere to all application deadlines to be considered*  \nWho is Eligible: Camp Youngblood at CHT is for children ages 7-17 with inherited bleeding disorders\, their siblings\, and children of members of the inherited bleeding disorder community that reside within the VHF or HACA coverage area. \nCost: $25 registration fee (per child) \nHow to Apply: \n\nPre-screening: Fill out a short survey to see if your child is eligible. This is required for all applicants\, even returning campers. You’ll receive notice of eligibility within one week from either VHF or HACA.\nApplication: If eligible\, you’ll receive a link to the official Camp Youngblood application which is managed by Camp Holiday Trails.\n\nApplication Deadlines: \n\nRegistration closed Wednesday\, April 23\, 2025\nAll paperwork & medical assessment due: Friday\, June 6\, 2025\nWelcome email sent to confirmed campers: Friday\, June 13\, 2025\n\n\nThank you to our Camp Youngblood sponsors: Bayer\, CSL Behring\, CVS\, Genentech\, Novo Nordisk\, Pfizer\, Sanofi\, Takeda\, UVA-HTC\, and VCU-HTC \nThank you to the Colburn-Keenan Foundation for sponsoring our Thursday and Friday Summer Camp Experience Program and helping us provide gas cards to attendees!
URL:https://vahemophilia.org/event-program/6837/
LOCATION:Camp Holiday Trails\, 400 Holiday Trails Lane\, Charlottesville\, VA\, 22903
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250803T110000
DTEND;TZID=America/New_York:20250803T140000
DTSTAMP:20260403T095252
CREATED:20250328T172533Z
LAST-MODIFIED:20250801T172626Z
UID:7004-1754218800-1754229600@vahemophilia.org
SUMMARY:RICHMOND - Community Event at TopGolf
DESCRIPTION: RSVP IS NOW CLOSED – email heather@vahemophilia.org to be placed on the waiting list!\nGet Active with YOUR Bleeding Disorders Community at Topgolf Richmond! \nJoin the Virginia Hemophilia Foundation (VHF) on Sunday\, August 3rd for a fun and educational community event focused on health\, fitness\, and connection. This unique outing offers opportunities to learn more about managing your bleeding disorder\, build relationships within the community\, and enjoy the game of golf—no experience required! \n🎯 What to Expect: \n\nA supportive and engaging environment\nCommunity building and family fun\nLunch and two hours of golf\, provided at no cost\n\nEducational Topic: Choosing the Right Footwear for Back-to-School\, Sports\, and Everyday Activity \nFootwear plays a key role in injury prevention and joint health\, especially for those with bleeding disorders. This talk will offer practical tips on choosing the right shoes for all ages and activity levels—from everyday use to back-to-school and sports. \nPresenter: Allyson D’Esopo\, DPT\, PT at VCU-HTC \nThis event is free to attend and open to individuals diagnosed with an inherited bleeding disorder and their immediate family or household members who reside within the VHF coverage area. \nVHF community events are held throughout the year to provide social and educational experiences for individuals and families. These gatherings are an excellent way to increase knowledge\, find support\, and enjoy time together. \nWe can’t wait to see you there! \nThank you to our current sponsor(s): CSL Behring\, CVS\, Genentech\, NovoNordisk\, Pfizer\, Sanofi\, and Superior Biologics \nColburn-Keenan Foundation – “Bay Fees”
URL:https://vahemophilia.org/event-program/richmond-community-event-at-topgolf/
LOCATION:Topgolf Richmond\, 2308 Westwood Ave\, Richmond\, Virginia\, 23230
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250807T183000
DTEND;TZID=America/New_York:20250807T200000
DTSTAMP:20260403T095252
CREATED:20250531T003357Z
LAST-MODIFIED:20250531T003357Z
UID:7055-1754591400-1754596800@vahemophilia.org
SUMMARY:CHARLOTTESVILLE-Educational Dinner "Adversity\, Strength\, and Resilience"
DESCRIPTION:RSVP HERE!\nJoin us for an evening of education\, connection\, and support! This educational dinner program is for VHF constituents (and their immediate family and/or household members.) Dinner will be provided and there is no fee to attend. \nLocation: Burtons Grill & Bar – The Shops at Stonefield\, 2010 Bond St. Charlottesville\, VA 22901 \nProgram Topic: Adversity\, Strength\, and Resilience\nCoping with a chronic condition\, communicating with the health care team and others\, financial considerations of health care through life stages\, and the importance of staying physically active with appropriate activities are all addressed in this overview. This discussion includes modules on communication with your health care team\, staying physically active\, managing your care\, treatment support\, and an insurance review. \nSpeaker: Linda L. Pollhammer\, Patient Affairs Liaison\, Pfizer Rare Disease \nPlease note: Space may be limited\, if this event fills up priority will be given to individuals and families living in the Charlottesville area. \nThank you to our sponsor\, Pfizer\, for supporting this program.
URL:https://vahemophilia.org/event-program/charlottesville-educational-dinner-adversity-strength-and-resilience/
LOCATION:Burtons Grill & Bar – The Shops at Stonefield\, 2010 Bond St.\, Charlottesville\, VA\, 22901\, United States
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250912
DTEND;VALUE=DATE:20250915
DTSTAMP:20260403T095252
CREATED:20250328T180709Z
LAST-MODIFIED:20250830T024558Z
UID:7007-1757635200-1757894399@vahemophilia.org
SUMMARY:WILLIAMSBURG - Medical Symposium at Great Wolf Lodge
DESCRIPTION:Registration is now closed. Email heather@vahemophilia.org to added to the waitlist. \n📅 September 12–14\, 2025📍 Great Wolf Lodge Conference Center | Williamsburg\, VA \nThe VHF Medical Symposium is a weekend event designed to educate\, empower\, and connect members of the bleeding disorders community. Attendees will explore current and emerging treatment options\, access to care\, and other important medical topics—all in a welcoming\, family-friendly setting. \nThis event includes educational sessions\, on-site childcare\, waterpark access\, meals\, and overnight accommodations—all at no cost to eligible VHF constituents ($50 per household registration fee). \n➡️ Please note: Access to overnight accommodations and the water park is only available to those who attend the Saturday Medical Symposium meeting. \n\nWeekend Schedule & Highlights\nFriday\, September 12 Water park access begins when it opens Friday for those staying overnight. Hotel check-in begins at 4:00 PM. \nSaturday\, September 13 – Medical Symposium (Begins at 8:00 AM) \n\nEnjoy breakfast and connect with industry sponsors to learn about the latest innovations in care.\nAttend our keynote session: “Back to the Future: Is Everything Old New Again for Bleeding Disorders?” Presented by Henry Mead\, PhD\, MBA\, MPA\nTake part in breakout sessions with diagnosis-specific content for a personalized experience.\nOn-site childcare and youth/teen programming will be provided by Camp Holiday Trails\, A Helping Hand\, and GutMonkey.\nEnjoy optional overnight accommodations and more waterpark fun Saturday evening.\n\nSunday\, September 14 No scheduled activities or meals. A relaxing departure day. \nGo here to download the meeting agenda. \n\nℹ️ Important Details\n\nOpen to all ages – not limited to families with children.\nTo reserve a room\, at least one person in your group must be age 21+.\n$50 registration fee per household – due after registration closes on August 8\, 2025 (payment link will be sent at that time).\nSpace is limited and determined by our Program Registration Guidelines.\n\n\n✅ Eligibility Requirements\nTo be eligible\, you must meet all of the following: \n\nHave an inherited bleeding disorder\, or be the spouse/partner/parent/caregiver of someone who does\nLive in the VHF coverage area or receive care for your bleeding disorder within it. Click here to see if you meet the eligibility requirements.\n\n\nWe’re so excited to welcome you for a weekend of learning\, connection\, and community fun! \nThank You to Our Current Sponsors\nStar Level: CSL Behring\, Genentech\, NovoNordisk\, Pfizer\, Sanofi\, Takeda\nCorporate Level: Bayer\, Biomatrix\, Cottrill’s\, CVS\, DrugCo Health\, Hemabiologics\, Octapharma\, Soleo\, Superior Biologics\, and UVA-HTC
URL:https://vahemophilia.org/event-program/save-the-date-williamsburg-medical-symposium-at-great-wolf-lodge/
LOCATION:Great Wolf Lodge\, 549 E Rochambeau Dr.\, Williamsburg\, VA\, 23188
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250913T083000
DTEND;TZID=America/New_York:20250913T160000
DTSTAMP:20260403T095252
CREATED:20250328T231017Z
LAST-MODIFIED:20250624T212958Z
UID:7009-1757752200-1757779200@vahemophilia.org
SUMMARY:INDUSTRY SPONSOR REGISTRATION: Medical Symposium
DESCRIPTION:REGISTER HERE!\nWe appreciate your interest and support of the Virginia Hemophilia Foundation’s 2025 Medical Symposium\, taking place at Great Wolf Lodge Conference Center in Williamsburg\, VA. \nAbout the VHF Medical Symposium The VHF Medical Symposium is our largest and one of the most impactful programs of the year. This weekend event is designed to educate\, empower\, and connect individuals and families affected by inherited bleeding disorders. Attendees gain valuable insights into current and emerging treatment options\, access to care\, and other key medical topics—all within a supportive\, family-friendly environment. Your sponsorship helps make this meaningful experience possible and strengthens our shared commitment to improving the lives of those living with inherited bleeding disorders. \nIf you are interested in sponsoring this event or have any questions\, please contact Kelly Waters at kelly@vahemophilia.org or call 804-740-8643. \n\nEvent Details\nMedical Symposium – Saturday\, September 13\, 2025Sample Agenda (Subject to Change) \n7:00 am – 8:00 am | Exhibit table set-up\n8:30 – 9:30 am | Breakfast\, Registration & Exhibits Open\n9:00 am – 4:00 pm | Kids & Teens Program\n9:30 am – 10:00 am | Welcome\n10:00 am – 11:30 am | Keynote Presentation (TBD)\n11:30 am – 12:15 pm | Breakout Session 1 (TBD)\n12:15 pm – 1:15 pm | Lunch & Visit Exhibits\n1:15 pm – 2:00 pm | Breakout Session 2 (TBD)\n2:00 pm – 2:15 pm | Break & Visit Exhibits\n2:15 pm – 3:00 pm | Breakout Session 3 (TBD)\n3:00 pm – 3:15 pm | Break & Visit Exhibits (Light Refreshments)\n3:15 pm – 4:00 pm | Wrap-Up \n\nImportant Info for Industry\, Associated Organizations\, and their Agents\nCloser to the event\, we will email all registered industry partners and speakers with key event information\, including: Final agenda\, Booth setup times\, Shipping Information\, What to bring\, and Expected attendance numbers. \nHotel Accommodations – Vendor Call-In Block\nPlease Note: VHF does not arrange accommodations for Industry\, Associated Organizations\, and their Agents (including those who are also consumers). However\, we have reserved a vendor room block at Great Wolf Lodge. \nIndustry Agents who are also VHF Constituents: Please register your family members here if they plan to attend. You must still register as an industry representative and book your own room. \nVendor Call-In Block: A credit card will be requested for the first night’s room and tax as a deposit. Each room has up to 72 hours prior to check-in to cancel the individual room. If the room is cancelled within 72 hours of check-in\, 100% of the first room night plus tax will be charged to the credit card or taken from the deposit\, as applicable. \n\nDates Available: Friday\, September 12 & Saturday\, September 13\, 2025\nTo Book: Call Great Wolf Customer Contact Center at 1-800-551-9654 or visit their website at www.greatwolf.com\nUse Group Code: VENDOR25\nGroup Rate: $199.00 + taxes/fees (Daily resort fee of $39.99 and parking fee of $15.00 is waived)\nIncludes: A standard suite that sleeps 4-6 and Water Park Passes for up to 6 guests.\nBooking Deadline: Wednesday\, August 13\, 2025\, at 11:59 PM\n\nPlease note that rooms are limited and available on a first-come\, first-served basis. Once the block is full or after the deadline\, availability and rates are not guaranteed. \n\nPolicies and Guidelines\nVHF is committed to supporting all individuals affected by inherited bleeding disorders while maintaining clear boundaries between VHF-hosted activities and those of Industry or Associated Organizations. To ensure a welcoming\, inclusive\, and pressure-free experience for our community\, we ask all industry supporters to review and adhere to our Standards for Industry\, Associated Organizations\, and their Agents Guidelines and Event Behavior Guidelines. \n\nThank you for your continued partnership and support!
URL:https://vahemophilia.org/event-program/industry-sponsor-registration-medical-symposium/
LOCATION:Great Wolf Lodge\, 549 E Rochambeau Dr.\, Williamsburg\, VA\, 23188
ORGANIZER;CN="Kelly Waters%2C VHF Executive Director":MAILTO:info@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251018T120000
DTEND;TZID=America/New_York:20251018T140000
DTSTAMP:20260403T095252
CREATED:20250612T183351Z
LAST-MODIFIED:20251016T221131Z
UID:7074-1760788800-1760796000@vahemophilia.org
SUMMARY:ROSELAND - Fall Community Event at Blue Ridge Mountain Maze
DESCRIPTION:THIS EVENT IS NOW FULL.\n🍂 Fall Community Event at the Blue Ridge Mountain Maze\nSaturday\, October 18\, 2025 | 12:00 – 2:00 pm \nBlue Ridge Mountain Maze in Roseland is conveniently located 40 minutes from Charlottesville at Blue Toad Hard Cider\, in the Heart of the Blue Ridge Mountains and located at the base of the entrance to Wintergreen Mountain Resort. \nJoin VHF for an A-Maze-ing Day of Fall Fun! \nCelebrate the season with fresh air\, community connection\, and plenty of outdoor adventure at the Blue Ridge Mountain Maze. This family-friendly all ages event has something for everyone — from toddlers to teens to adults — and is the perfect way to enjoy autumn in the mountains. \n🍁 What to Expect\nCorn Maze & Pumpkin Patch: Get lost in the 5-acre maze\, pick your perfect pumpkin\, and snap the ultimate fall photos. \nFarmy Fun Zone: Giant slides\, mini mazes\, farm obstacle course\, roll tubes\, farm animals\, pony rides and more. \nSpecial VHF Gathering Area: Relax\, recharge\, and connect with others in a private area just for our group — located in the heart of the action. \nFood & Treats: Lunch from a local food truck is provided by VHF. Plus you will have time to explore on your own and enjoy cider donuts\, homemade ice cream\, kettle corn\, and other fall favorites from the country store. \nEducation & Community: Learn\, share\, and build connections with others in the bleeding disorders community. \nWhether you’re navigating the corn maze\, launching apples\, or simply soaking up the mountain views\, this event is the perfect opportunity to unwind and celebrate fall — together. \nThis event is free to attend and open to individuals diagnosed with an inherited bleeding disorder and their immediate family or household members who reside within the VHF coverage area. \nVHF community events are held throughout the year to provide social and educational experiences for individuals and families. These gatherings are an excellent way to increase knowledge\, find support\, and enjoy time together. We can’t wait to see you there! \nThank you to our current sponsor(s): CSL Behring\, Sanofi\, and UVA-HTC
URL:https://vahemophilia.org/event-program/roseland-fall-community-event-at-blue-ridge-mountain-maze/
LOCATION:Blue Ridge Mountain Maze\, 462 Winery Lane\, Roseland\, Virginia\, 22967
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251106T160000
DTEND;TZID=America/New_York:20251106T180000
DTSTAMP:20260403T095252
CREATED:20250612T185055Z
LAST-MODIFIED:20251031T022000Z
UID:7076-1762444800-1762452000@vahemophilia.org
SUMMARY:VIRTUAL – VHF/HACA Advocacy Stakeholder and Education Meeting
DESCRIPTION:RSVP HERE \nThursday\, November 6\, 2025 | Time 4:00 – 6:00 pm | Held via Zoom \nJoin fellow Virginians and community stakeholders from across the bleeding disorders community for an engaging virtual education session focused on advocacy. Stay informed with the latest state and federal advocacy news\, connect with community members\, and collaborate on improving the lives of those affected by bleeding disorders. Share experiences\, gain knowledge\, and build a stronger community. \nAgenda highlights will include what to expect in the 2026 Virginia General Assembly and updates on federal policy and legislation. \nYou will receive the Zoom link in a separate email from heather@vahemophilia.org. \nLet’s come together to learn\, connect\, and make a difference. \nThank you to our current sponsors: Genentech\, National Bleeding Disorders Foundation NBDF\, Pfizer\, Takeda\, UVA-HTC\, and VCU-HTC \nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/virtual-vhf-haca-advocacy-stakeholder-and-education-meeting-3/
LOCATION:Zoom
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20251107
DTEND;VALUE=DATE:20251110
DTSTAMP:20260403T095252
CREATED:20250612T211224Z
LAST-MODIFIED:20251017T021342Z
UID:7077-1762473600-1762732799@vahemophilia.org
SUMMARY:VIRGINIA BEACH-Adult Retreat Weekend
DESCRIPTION:THIS EVENT IS NOW FULL. Please email info@vahemophilia.org if you woudl like to be added to the waitlist. \n🌊 Virginia Beach Adult Retreat Weekend\nNovember 7–9\, 2025 | Hyatt Place Virginia Beach / Oceanfront 3601 Atlantic Ave\, Virginia Beach\, VA 23451 \nRelax. Learn. Connect. \nTake time for yourself this fall at the VHF Adult Retreat Weekend — a rejuvenating oceanfront getaway designed for education and meaningful connection. Whether you live with a bleeding disorder or support someone who does\, this retreat offers space to rest\, learn\, and grow — all while connecting with people who truly understand your journey. \nWeekend Highlights \nFriday Evening – Kick off the weekend with a casual welcome and optional social hour. It’s the perfect chance to ease into the retreat\, meet new people\, and reconnect with old friends. \nSaturday – Our Main Day Together (go here to view the meeting agenda) \n*Morning: Shared breakfast followed by engaging educational sessions. \n*Sessions & Speakers: Joint and bone health with Chris Guelcher\, RN-BC\, MS\, PPCNP-BC\, Building resilience in the face of challenges and Caring for caregivers with Kate Nammacher\, MPH\, and Your Voice Matters: How You Can Shape the Future of Bleeding Disorders Research with VHF community member Paxton Mills \n*Wellness Activity: Light Refreshments & Group Wellness Activity: Chair Massages. Enjoy time relaxing\, sharing reflections\, and connecting with peers. Light refreshments will be available\, along with chair massages provided by The Well Virginia Beach. \n*Enjoy your evening exploring the Virginia Beach boardwalk and local dining options. A great chance to relax after a long day\, connect with friends\, or simply take in the ocean views! \n\n📝 Important Details\nThe VHF Adult Retreat is designed for VHF constituents age 21 and up with inherited bleeding disorders and/or to adults whose lives are impacted by an inherited bleeding disorder (i.e. caregivers\, spouses\, carriers\, immediate family members – some restrictions do apply) and is not open to individuals employed or compensated by Industry. \nEducational program\, scheduled meals\, and Friday and Saturday night overnight accommodations are provided at no cost for constituents that live in the VHF coverage area. There is a $50 registration fee to attend (a link to pay will be sent out after registration closes on October 16th.) \nThank you to our current sponsors: Genentech\, NBDF\, Takeda\, and UVA-HTC
URL:https://vahemophilia.org/event-program/virginia-beach-adult-retreat-weekend/
LOCATION:Hyatt Place Virginia Beach / Oceanfront\, 3601 Atlantic Ave\, Virginia Beach\, VA\, 23451
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251209T180000
DTEND;TZID=America/New_York:20251209T200000
DTSTAMP:20260403T095252
CREATED:20251011T010738Z
LAST-MODIFIED:20251201T221822Z
UID:7154-1765303200-1765310400@vahemophilia.org
SUMMARY:RICHMOND - Winter Community Event at Lewis Ginter GardenFest of Lights
DESCRIPTION:THIS EVENT IS NOW FULL. Email heather@vahemophilia.org to be placed on the waiting list. \nCelebrate the season with your bleeding disorders community at VHF’s Annual Winter Gathering — a fun education event for all ages! \nWe’ll kick off the evening with an educational dinner in a private room at the Lewis Ginter Botanical Garden\, then head out together to explore the GardenFest of Lights — a cherished holiday tradition featuring millions of sparkling lights\, beautiful botanical displays\, model trains\, warming fires\, hot chocolate\, s’mores\, and more! \nCome enjoy a cozy evening of learning\, laughter\, and light with family and friends. \n✨ Special Note: If you haven’t yet had the chance to see the VHF Sitting Wall\, now is the perfect opportunity. Overlooking the gardens and water\, this peaceful space features an engraved memorial plaque dedicated to the bleeding disorders community in honor of VHF’s 50th anniversary. It serves as a tribute to those we have lost\, a celebration of the contributions of so many\, and a lasting symbol of our community’s strength and unity. \nThis event is limited to constituents that live within the VHF coverage area and their immediate family and/or household members. There is no fee to attend and space is limited. \nPlease note that this will be the only Winter Gathering of the season. \nThank you to our sponsors: CSL Behring\, Sanofi\, and UVA-HTC
URL:https://vahemophilia.org/event-program/richmond-winter-community-event-at-lewis-ginter-gardenfest-of-lights/
LOCATION:Lewis Ginter Botanical Garden\, 1800 Lakeside Ave.\, Richmond\, Virginia\, 23228
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260120T190000
DTEND;TZID=America/New_York:20260120T200000
DTSTAMP:20260403T095252
CREATED:20251011T011407Z
LAST-MODIFIED:20260108T175852Z
UID:7155-1768935600-1768939200@vahemophilia.org
SUMMARY:VIRTUAL – 2026 Advocacy Education Training
DESCRIPTION:RSVP HERE\nJoin VHF and the Hemophilia Association of the Capital Area (HACA) for a virtual advocacy education training focused on the 2026 Virginia General Assembly. \nLearn about proposed legislation and state policy issues that impact access to quality healthcare\, and discover how you can make your voice heard on behalf of the Virginia inherited bleeding disorders community. \nThis training is designed to help prepare participants for Richmond Days\, but you do not need to be registered for Richmond Days to join. \nWho Can Attend: This session is free and open to all community members and anyone interested in learning more about advocacy and state-level healthcare policy is encouraged to participate. \nThank you to our current advocacy sponsors and supporters: CSL Behring\, EveryLife Foundation\, Hemophilia Alliance\, National Bleeding Disorders Foundation (NBDF)\, Novo Nordisk\, PhRMA\, and Takeda \nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. » Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/virtual-2026-advocacy-education-training/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260125
DTEND;VALUE=DATE:20260127
DTSTAMP:20260403T095252
CREATED:20251011T012647Z
LAST-MODIFIED:20260126T235457Z
UID:7156-1769299200-1769471999@vahemophilia.org
SUMMARY:Richmond Days
DESCRIPTION:Please note that the in-person Richmond Days events have been canceled due to weather; we’ll be sharing more advocacy opportunities later this year.\nMonday\, January 26\, 2026: Join VHF and the Hemophilia Association of the Capital Area (HACA) for an opportunity to advocate for policies that improve access to care\, support\, and resources for those living with bleeding disorders. Your voice can directly impact legislation that affects the lives of individuals with bleeding disorders by meeting with your state legislators. Open to all community members. \nWhat to Expect: We will reserve space in the General Assembly building from 9:00 am to 10:30 am and aim to schedule two in-person legislative visits for each participant—one with your State Senate office and one with your State Delegate office. You may be joined by other advocates during these meetings and have opportunities to participate in additional legislative visits. \nSunday\, January 25\, 2026: There will be an optional education dinner and hotel rooms available for VHF/HACA community members at Hilton Richmond Downtown \nWe hope you’ll join us on Tuesday\, January 20\, 2026\, at 7:00 pm for our Virtual Advocacy Education Training where we’ll cover tips for your visits and share our 2026 legislative priorities\, RSVP here. \nThank you to our current advocacy sponsors and supporters: CSL Behring\, EveryLife Foundation\, Hemophilia Alliance\, National Bleeding Disorders Foundation (NBDF)\, Novo Nordisk\, PhRMA\, and Takeda
URL:https://vahemophilia.org/event-program/richmond-days-3/
LOCATION:General Assembly Building\, 201 North 9th St.\, Richmond\, 23219\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260210T183000
DTEND;TZID=America/New_York:20260210T193000
DTSTAMP:20260403T095252
CREATED:20251212T010221Z
LAST-MODIFIED:20260126T235425Z
UID:7197-1770748200-1770751800@vahemophilia.org
SUMMARY:VIRTUAL BRANDED EDUCATION - Learn About HYMPAVZI™ (marstacimab-hncq)
DESCRIPTION:RSVP HERE \nWe’re transitioning to our new name\, Virginia Bleeding Disorders Foundation (VABDF)\, so you may see both names for a while—thank you for your patience! \nJoin us for a virtual educational session presented by Pfizer to learn more about Hympavzi a rebalancing treatment option for hemophilia. This session is intended for people living with hemophilia\, parents\, partners\, and caregivers\, and anyone interested in learning more about treatment options and shared decision-making with a health care provider. Registered participants that attend the program are eligible to receive a gift card\, one per household.  \nYou’ll hear:\n• The science behind rebalancing therapy\n• Clinical trial data\n• Safety information\n• Information on administration\n• Shared decision-making tips for patients and caregivers \nSpeaker: Linda L. Pollhammer\, Patient Affairs Liaison\, Pfizer Rare Disease \n\nImportant notes\nThis is a branded educational program presented in partnership with Pfizer. The information shared is for educational purposes and is not medical advice. Always talk with your hemophilia treatment center (HTC) or health care provider about what’s right for you. \nThank you to our sponsor\, Pfizer\, for supporting this program.
URL:https://vahemophilia.org/event-program/virtual-education-learn-about-hympavzi-marstacimab-hncq/
LOCATION:Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260219T183000
DTEND;TZID=America/New_York:20260219T200000
DTSTAMP:20260403T095252
CREATED:20260116T052449Z
LAST-MODIFIED:20260204T005738Z
UID:7212-1771525800-1771531200@vahemophilia.org
SUMMARY:CHESAPEAKE - Educational Dinner "Understanding Your Health Insurance Options"
DESCRIPTION:RSVP HERE  \nWe’re transitioning to our new name\, Virginia Bleeding Disorders Foundation (VABDF)\, so you may see both names for a while—thank you for your patience! \nJoin us for an evening of education\, connection\, and support! This educational dinner program is for VABDF/VHF constituents (and their immediate family and/or household members.) Dinner will be provided and there is no fee to attend. \nLocation: Black Pelican Seafood Company Greenbrier | Chesapeake\, VA \nProgram Topic: Understanding Your Health Insurance Options\, designed for patients\, caregivers\, and families who want to feel more confident navigating health insurance decisions. \nWe understand health insurance can be confusing. We are here to help you understand your insurance options so you can identify the best plan for you.\nJoin us for an informative session to learn about health insurance options and how health insurance changes may affect your coverage and treatment costs. \nSpeaker: Wendy GlennRN\, BSN\, Rare Disease Hybrid Account Manager\, Genentech \nPlease note: Space may be limited\, if this event fills up priority will be given to individuals and families living in the Chesapeake area. \nThank you to our sponsor\, Genentech\, for supporting this program.
URL:https://vahemophilia.org/event-program/save-the-date-educational-dinner/
LOCATION:Black Pelican Seafood Company Greenbrier\, 1625 Ring Rd \, VA\, Chesapeake\, VA\, 23320\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260223T190000
DTEND;TZID=America/New_York:20260223T200000
DTSTAMP:20260403T095252
CREATED:20251212T012045Z
LAST-MODIFIED:20260126T235707Z
UID:7198-1771873200-1771876800@vahemophilia.org
SUMMARY:VIRTUAL – Camp Youngblood Information Session
DESCRIPTION:REGISTER HERE!\nWe’re transitioning to our new name\, Virginia Bleeding Disorders Foundation (VABDF)\, so you may see both names for a while—thank you for your patience! \nAre you thinking about sending your child to Camp Youngblood at Camp Holiday Trails (CHT) for the first time in 2025\, have questions\, or would you just like a refresher on the camp experience? Join the Hemophilia Association of the Capital Area (HACA)\, CHT\, and VABDF for a virtual information session via Zoom on Monday\, February 23\, at 7:00 pm to learn more about Camp Youngblood – even if you aren’t quite ready to send your kids this year. \nWhat to expect: Staff from CHT will talk more about camp activities and facilities; longtime Camp Youngblood parents will share their experiences with sending their kids to camp\, and staff from VABDF and HACA will be available to answer any additional questions. This virtual session will be a great opportunity to learn more and get all your questions answered in real time! \nCamp Youngblood is a week-long overnight camp at Camp Holiday Trails (CHT) for children ages 7-17 with inherited bleeding disorders\, their siblings\, and children of members of the inherited bleeding disorder community that reside within the VHF or HACA coverage area. \n» Go here to learn more about the Camp Youngblood registration process \n» REGISTER HERE One week out from the event you will receive the zoom link separately via email from heather@vahemophilia.org. \n\nAs we gather virtually to discuss\, share and learn\, we ask that all virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping us ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/virtual-vhf-haca-camp-youngblood-information-session-3/
LOCATION:Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260303T190000
DTEND;TZID=America/New_York:20260303T201500
DTSTAMP:20260403T095252
CREATED:20260204T005044Z
LAST-MODIFIED:20260210T003331Z
UID:7223-1772564400-1772568900@vahemophilia.org
SUMMARY:VIRTUAL - Education Session "Discover a New  Investigational Approach  to VWD Treatment"
DESCRIPTION:RSVP HERE!\nJoin Us for a Virtual Education Session during VWD Awareness Week\nMarch is Bleeding Disorders Awareness Month\, and in recognition of Von Willebrand Disease (VWD) Awareness Week (March 1–7)\, we are pleased to host the virtual educational session “Discover a New Investigational Approach to VWD Treatment” featuring Star Therapeutics. \nStar Therapeutics is currently investigating VGA039\, a potential once-monthly subcutaneous prophylactic treatment for VWD. \nIf you or someone in your family has any type of VWD or you are curious about new therapies in the bleeding disorders community\, we invite you to join us for this informative and engaging session. Dr. Laura Guido\, Head of Medical Affairs at Star Therapeutics\, will discuss: \n\nHow VGA039 works\nThe clinical development pathway for this investigational therapy\nEarly clinical trial results\nInformation about the VIVID Clinical Trials\, including how to explore eligibility and participation\n\n\nFeatured Speaker\nLaura Guido\, PharmD\, MBA\, BCPSExecutive Director\, Medical Affairs\, Star Therapeutics \nDr. Guido is a clinical pharmacist who leads Medical Affairs for VGA039 at Star Therapeutics. Prior to joining Star\, she supported clinical development for hemophilia A gene therapy trials at BioMarin and spent several years working in anticoagulation at Boehringer Ingelheim. Before transitioning to industry\, Dr. Guido practiced as a clinical pharmacist.
URL:https://vahemophilia.org/event-program/virtual-education-session-discover-a-new-investigational-approach-to-vwd-treatment/
LOCATION:Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260313
DTEND;VALUE=DATE:20260316
DTSTAMP:20260403T095252
CREATED:20251011T014039Z
LAST-MODIFIED:20260312T174950Z
UID:7157-1773360000-1773619199@vahemophilia.org
SUMMARY:STAUNTON - Annual Education Meeting
DESCRIPTION:REGISTRATION IS NOW CLOSED. If you would like to be added to the waitlist email Heather at info@vahemophilia.org.\nWe’re transitioning to our new name\, Virginia Bleeding Disorders Foundation (VABDF)\, so you may see both names for a while—thank you for your patience! \n✨ Annual Education Meeting: Celebrating Community and Connection \nFriday\, March 13 to Sunday\, March 15\, 2026 \nHotel 24 South\, 24 S Market St.\, Staunton\, Virginia \nVABDF’s Annual Meeting brings together individuals and families affected by inherited bleeding disorders for a weekend of education\, support\, and connection. This special event offers opportunities to learn about the latest in treatment and care\, share experiences\, and strengthen our community through networking and collaboration. \nAs we gather\, we’ll also celebrate March as Bleeding Disorders Awareness Month — a time to raise awareness\, promote education\, and honor the dedication and achievements of our incredible bleeding disorders community. Together\, we’ll learn\, connect\, and create lasting memories! \nWhat to Expect *Please Note That These Plans May Change*: The event kicks off Friday evening at 7:00 pm with an education session on “Caregiver Burnout”\, dinner\, and time to catch up with friends and family. Saturday begins with breakfast and an opportunity to explore exhibits hosted by our generous industry sponsors\, showcasing the latest treatments and therapies. The day continues with engaging educational sessions\, updates from VABDF\, and on-site childcare and programs for ages 0-17. \nOvernight Accommodations: We are pleased to offer overnight accommodations at the Hotel 24 South for Friday\, March 13\, and Saturday\, March 14. \nRegistration Fee: There is a $25 registration fee per household and payment instructions will be sent via email after registration closes. This event includes educational programs\, scheduled meals\, community activities\, and overnight accommodations for constituents living within the VHF coverage area. \nTentative Schedule:\nFriday\, March 13\n7:00 PM: Educational Dinner “Caregiver Burnout” \nSaturday\, March 14\n8:30 AM – 9:30 AM: Breakfast and Exhibit Visits\n9:30 AM – 4:00 PM: Educational Presentations\, Exhibit Visits\, Lunch\, Snack Breaks\, and More\n4:00 PM: Meeting Wrap-Up \nSunday\, March 15\n8:00 AM – 9:30 AM: Education Breakfast\n10:30 AM Community Event at the Frontier Culture Museum * This community event is optional and is not a part of the annual meeting. \nThank you to our current Annual Meeting sponsors: Accredo by EVERNORTH\, Bayer\, BioMatrix\, CSL Behring\, Genentech\, Hemabiologics\, Hemophilia Alliance\, InfuCare Rx\, Novo Nordisk\, Pfizer\, Sanofi\, Soleo Health\, Superior Biologics\, Takeda\, UVA-HTC\, and VCU-HTC
URL:https://vahemophilia.org/event-program/staunton-annual-education-meeting/
LOCATION:Hotel 24 South\, 24 S Market St\, Staunton\, Virginia\, 24401
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260325T180000
DTEND;TZID=America/New_York:20260325T193000
DTSTAMP:20260403T095252
CREATED:20260303T181025Z
LAST-MODIFIED:20260311T164305Z
UID:7242-1774461600-1774467000@vahemophilia.org
SUMMARY:ROANOKE - Educational Dinner "A Focus on Mental Well-being"
DESCRIPTION:RSVP HERE  \nWe’re transitioning to our new name\, Virginia Bleeding Disorders Foundation (VABDF)\, so you may see both names for a while—thank you for your patience! \nJoin us for an evening of education\, connection\, and support! This educational dinner program is for VABDF/VHF constituents (and their immediate family and/or household members.) Dinner will be provided and there is no fee to attend. \nLocation: Billy’s Roanoke \nProgram Topic: A Focus on Mental Well-being\n \nMental health is a state of well-being and is an important topic to talk about for everyone\, including those living with a bleeding disorder. That’s why we’ve partnered with an expert to discuss ways to navigate mental health\, as it includes our emotional\, psychological\, and social well-being. \nSpeaker: Kendra Wrisley\, Rare Blood Community Liaison\, Mid-Atlantic Territory\, Novo Nordisk \nPlease note: Space may be limited\, if this event fills up priority will be given to individuals and families living in the South West Virginia area. \nThank you to our sponsor\, Novo Nordisk\, for supporting this program.
URL:https://vahemophilia.org/event-program/roanoke-educational-dinner-a-focus-on-mental-well-being/
LOCATION:Billy’s\, 102 Market St SE\, Roanoke\, 24011\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260416T180000
DTEND;TZID=America/New_York:20260416T193000
DTSTAMP:20260403T095252
CREATED:20260325T012535Z
LAST-MODIFIED:20260325T013554Z
UID:7245-1776362400-1776367800@vahemophilia.org
SUMMARY:RICHMOND - Educational Dinner "World Hemophilia Day: One Family Program"
DESCRIPTION:RSVP HERE!  \nWe’re transitioning to our new name\, Virginia Bleeding Disorders Foundation (VABDF)\, so you may see both names for a while—thank you for your patience! \nJoin us for an evening of education\, connection\, and support! This educational dinner program is for VABDF/VHF constituents (and their immediate family and/or household members.) Dinner will be provided and there is no fee to attend. \nLocation: Red Salt Chophouse & Sushi \nProgram Topic: World Hemophilia Day: One Family Program\n \nEach year\, One Family brings the bleeding disorders community together to celebrate World Hemophilia Day. This year’s program is a powerful call to action\, igniting the community to redefine what’s possible in life with hemophilia. This year we’re inspiring each person to rethink their own perceived limits and explore a future of more possibilities. This year\, participants will celebrate individual empowerment\, challenge norms\, and inspire the community. Participants will be able to take part in both group and individual activities that empower\, educate\, and inspire\, leaving attendees motivated by the support of this diverse community.  \nSpeaker: Nick Cady\, Sr. CoRe Manager\, Sanofi\n \nPlease note: Space may be limited\, if this event fills up priority will be given to individuals and families living in the Central Virginia area. \nThank you to our sponsor\, Sanofi\, for supporting this program.
URL:https://vahemophilia.org/event-program/richmond-educational-dinner-world-hemophilia-day-one-family-program/
LOCATION:Red Salt Chophouse & Sushi\, 12221 W Broad St.\, Henrico\, VA\, 23233\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260418T123000
DTEND;TZID=America/New_York:20260418T150000
DTSTAMP:20260403T095252
CREATED:20260205T012058Z
LAST-MODIFIED:20260228T203313Z
UID:7225-1776515400-1776524400@vahemophilia.org
SUMMARY:NORFOLK-New Family Support & Education Program
DESCRIPTION:RSVP HERE!\nWe’re transitioning to our new name\, Virginia Bleeding Disorders Foundation (VABDF)\, so you may see both names for a while—thank you for your patience! \nJoin VABDF and CHKD for a special program designed to support families of infants and young children (age 6 and under) diagnosed with inherited bleeding disorders. This event offers an opportunity to connect with the bleeding disorders community and gain valuable education and resources. \nWhat to Expect: \n\nInformal education with CHKD-HTC staff with time for Q&A\nMeet staff and members of the Virginia Bleeding Disorders Foundation to learn more about the organization\nA private meeting space for our group\nRefreshments provided for all attendees\nA meet and greet with an Animal Ambassador\nNetworking opportunities with other parents and families\nTime to enjoy the Virginia Zoo\n\nWho Can Attend: This program is tailored for families affected by inherited bleeding disorders with children ages 6 and under who reside in the VABDF coverage area and is not open to individuals employed or compensated by Industry. \nPlease note: Space may be limited\, if this event fills up priority will be given to individuals and families that attend CHKD-HTC and/or live in the Tidewater area. \nWe look forward to providing you with a supportive and welcoming environment to learn\, share\, and connect! \nThank you to our current sponsors: Takeda\, UVA-HTC\, and VCU-HTC
URL:https://vahemophilia.org/event-program/norfolk-new-family-support-education-program/
LOCATION:Virginia Zoo\, 3500 Granby St\, Norfolk\, VA\, 23504
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260424
DTEND;VALUE=DATE:20260427
DTSTAMP:20260403T095252
CREATED:20251211T234511Z
LAST-MODIFIED:20260325T013430Z
UID:7196-1776988800-1777247999@vahemophilia.org
SUMMARY:WILLIAMSBURG - Lady Bugs Program National Conference for Women - In Partnership with CHES Foundation
DESCRIPTION:Learn More and Register Here!\n🐞 LadyBugs Program National Conference for Women 🐞 \nRegistration: CURRENTLY OPEN!\nApplications received after March 1\, 2026 will be immediately waitlisted if registration is at capacity\, go here to learn more and register. \nWe’re proud to partner with CHES Foundation to bring you the LadyBugs Program National Conference\, a national event dedicated to empowering women and girls ages 16+ impacted by bleeding disorders. \nThis unique conference is designed for women who: \n\nAre diagnosed with a clotting factor and/or platelet deficiency\nCare for someone\, or carry any other bleeding disorder\nIdentify with the SHEmophilia community\n\nThe goal is to provide education about medical developments\, advocacy skill building\, stress management techniques and more to encourage women to recognize that their health is equally important. \n📅 April 24–26\, 2026📍 Williamsburg Lodge Colonial Williamsburg\, Virginia \n📝 Registration is open!🔗 https://ches.education/ladybugs
URL:https://vahemophilia.org/event-program/lady-bugs-program-national-confernce-for-women-in-partnership-with-ches-foundation/
LOCATION:The Williamsburg Lodge\, 310 South England Street\, Williamsburg\, VA\, 23185\, United States
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260501
DTEND;VALUE=DATE:20260504
DTSTAMP:20260403T095252
CREATED:20251106T005830Z
LAST-MODIFIED:20260116T051603Z
UID:7173-1777593600-1777852799@vahemophilia.org
SUMMARY:Gettin’ in the Game Junior National Championship (JNC)
DESCRIPTION:VHF (along with other chapters across the nation) have been given the opportunity to nominate up to two participants\, girls and boys\, each selected for either baseball\, basketball\, golf\, or swimming. The 23rd Junior National Championship (JNC) is taking place in Henderson\, NV from May 1 – 3\, 2026. \nVHF nominee application deadline is 5:00 pm EST\, Friday\, December 5\, 2025.  \nWho is eligible:  Children between 7–18 years of age with a bleeding disorder (nominees must be accompanied by a caregiver 25 years of age or older at the event. Due to state and federal laws\, CSL is unable to permit healthcare professionals to attend.) As a reminder\, prior experience or expertise in the chosen sport is not required to participate\, just a positive attitude and a willingness to learn and take part! Also\, special consideration will be given to first time attendees\, but all children who have attended in the past are welcome to apply again! \nCost: Free. CSL Behring will sponsor two chapter nominees and one accompanying caregiver for each nominee to participate in the program. This sponsorship will include the coordination and cost of airfare\, ground transportation in Henderson\, Nevada\, and hotel arrangements (attendees will be responsible for transportation to/from their hometown airport). This event is limited to the nominee and one caregiver only. CSL is unable to accommodate additional family members at any JNC related events. \nProgram Description: Developed by CSL Behring\, the Gettin’ in the Game Junior National Championship (JNC) was the first and is currently the only national sports competition designed specifically for the bleeding disorders community. The JNC features accomplished Gettin’ in the Game Athletes who themselves have been diagnosed with a bleeding disorder. Go here to learn more. \nDuring the JNC program nominees will have the opportunity to:  \n\nChoose from FOUR sports – baseball\, basketball\, golf\, and swimming.\nLearn about the importance of physical fitness in managing a bleeding disorder and receive instructions on proper techniques and good form.\nShow off their abilities in a national competition with fellow nominees from around the country.\nConnect and build relationships with fellow members of the bleeding disorders community.\n\nVHF Nominee Application Process: \n\nFill out the brief application form here.\nThe child applying will need to answer one essay question and provide a heartfelt answer to the question “Why do you love the sport you chose and/or why would you like to attend the JNC?” (Length should be age appropriate and around 1-2 paragraphs.)\nEssays must be original and written solely by the child applying (please\, no parental help writing the essay!)\nSubmit the application and essay by the deadline\, 5:00 pm EST\, Friday\, December 5\, 2025.\n\nFor an idea of the program expectations go here to read the 2026 JNC nominee information packet. \nIf you have any questions please contact Heather at info@vahemophilia.org or 804-740-8643. \n 
URL:https://vahemophilia.org/event-program/gettin-in-the-game-junior-national-championship-jnc/
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260501
DTEND;VALUE=DATE:20260504
DTSTAMP:20260403T095252
CREATED:20251212T012740Z
LAST-MODIFIED:20260331T052331Z
UID:7199-1777593600-1777852799@vahemophilia.org
SUMMARY:CHARLOTTESVILLE – VABDF Family Camp Weekend
DESCRIPTION:RSVP HERE!\nDate: Friday\, May 1 – Sunday\, May 3\, 2026 \nApplication Deadline: Friday\, April 10th \nLocation: Camp Holiday Trails\, 400 Holiday Trails Ln\, Charlottesville\, VA 22903 \nExperience an unforgettable weekend at Camp Holiday Trails (CHT) with VABDF’s Annual Family Camp Weekend! Connect with other families affected by bleeding disorders while enjoying education\, community\, and classic camp fun. This special program is designed for families with at least one child living at home who is between the ages of 7 – 17. \nAt Family Camp\, participants will enjoy a supportive environment where they can connect with others who understand the challenges of living with a bleeding disorder. Families will have the opportunity to attend educational sessions\, learn about self-advocacy and resilience\, and engage in fun outdoor activities that promote confidence\, teamwork\, and friendship. \nWho Can Attend: Family Camp is open to families impacted by an inherited bleeding disorder and is designed for families with at least one child living at home who is between the ages of 7 – 17. This program is for VABDF constituents (and their immediate family and/or household members only) and is not open to individuals employed or compensated by Industry. \nGo here to read and download the 2026 VABDF Family Camp Program Guidelines. \nThis program is a perfect opportunity for families to relax\, learn\, and grow together. Don’t miss out on this incredible experience! For questions\, email info@vahemophilia.org or call 804-740-8643. \nThank you to our sponsors: CSL Behring\, Genentech\, Sanofi\, Takeda and UVA-HTC
URL:https://vahemophilia.org/event-program/charlottesville-family-camp-at-camp-holiday-trails/
LOCATION:Camp Holiday Trails\, 400 Holiday Trails Lane\, Charlottesville\, VA\, 22903
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260501T170000
DTEND;TZID=America/New_York:20260501T170000
DTSTAMP:20260403T095252
CREATED:20251212T013255Z
LAST-MODIFIED:20260116T051953Z
UID:7200-1777654800-1777654800@vahemophilia.org
SUMMARY:APPLICATION DUE:Lyman Fisher Scholarship
DESCRIPTION:Lyman Fisher Scholarship Application Procedure & Guidelines\nAPPLICATION PROCEDURE \nApplication Deadline: Friday\, May 1\, 2026\, at 5:00 pm \nGo here to apply via JotForm\nGo here to download PDF version of application\nApplications must be completed using our online application form or email the pdf version to info@vahemophilia.org. \nAll letters of recommendation are to be sent electronically to info@vahemophilia.org. Applications and/or supporting documents received after 5:00 PM on Thursday\, May 1st will not be considered. It is up to the applicant to follow up and make sure these items are received by the deadline. Incomplete applications will not be considered. \nPlease read and follow the application and instructions very carefully to receive full consideration for a Lyman Fisher Scholarship. If you don’t know the answer\, please type N/A. DO NOT leave any section blank. \nScholarship applicants will be notified of the committee’s findings by June 1st. \nELIGIBILITY\nIndividuals living with an inherited bleeding disorder\, their sibling or their parents who live in the territorial jurisdiction of VHF\, which includes the Commonwealth of Virginia\, with the exception of the following: The cities of Alexandria\, Fairfax\, Falls Church\, Herndon\, Manassas\, and Vienna and the counties of Arlington\, Fairfax\, Fauquier\, Loudon\, Prince William and Stafford. \nSCHOLARSHIPS\nIn 2026\, VABDF/VHF will offer over $10\,000 in scholarships. The award amount will vary based on the number of applicants that are selected and the scholarship rubric that the VABDF/VHF scholarship committee uses to evaluate academic performance\, participation in school\, community\, and VABDF/VHF activities\, a personal essay detailing educational and future career goals\, and recommendation letters. The scholarships may be used at any accredited college\, university\, or vocational/technical school in the United States and are to be applied toward a student’s educational expenses. VABDF/VHF is not obligated to award scholarships in a given year. \nA student who receives an award one year may reapply in later years but winning a scholarship in one year does not necessarily mean that the student will win in a later year. Also\, a student who applies in one year and does not receive an award is eligible to apply the following year for the scholarship. \nScholarship applicants must have participated in VABDF/VHF activities. \nPAYMENT OF SCHOLARSHIP FUNDS\nScholarship payments are not distributed directly to an individual\, but are made via scholarship checks\, payable to the schools. VABDF/VHF staff will work with the award recipient(s) to process the scholarship funds. \nRESPONSIBILITIES OF RECIPIENTS\nScholarship recipients must enroll as a college student in the fall of the year in which the scholarships are awarded and continue in school for the entire academic year without interruption\, barring illness\, emergency\, or military service. If a scholarship recipient leaves school during the scholarship period\, VABDF/VHF may ask for reimbursement of scholarship funds. \nScholarship recipients are responsible for making certain that their scholarship checks are delivered to their colleges. Recipients must provide VABDF/VHF with information on where to send the check\, as well as other pertinent information such as student identification number. \nThe recipient is responsible for determining the impact of the scholarship or grant on their annual tax returns. For more information\, talk to a tax return preparer or go here. \nQUESTIONS\nIf you have questions about this scholarship (application process\, whether the program and/or activity that you are requesting assistance with fits within the guidelines\, how much funding is available\, etc.) please reach out to Heather Conner at 804-740-8643 or info@vahemophilia.org. \n\n\n\n\n\n\n\n\nScholarship Background\nThe Virginia Bleeding Disorders Foundation (VABDF) formerly Virginia Hemophilia Foundation (VHF) Lyman Fisher Scholarship was established to honor Dr. Lyman Fisher\, a teacher\, researcher\, and clinician in hemostasis. For many years\, he directed the adult hemophilia program for Virginia. He will be remembered for his steadfast commitment to his patients and students\, his respect for those who served under him\, his community service and his affection for his family.
URL:https://vahemophilia.org/event-program/application-due-vhf-lyman-fisher-scholarship-2/
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END:VCALENDAR