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X-WR-CALDESC:Events for Virginia Bleeding Disorders Foundation
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DTSTART;VALUE=DATE:20251107
DTEND;VALUE=DATE:20251110
DTSTAMP:20260403T154253
CREATED:20250612T211224Z
LAST-MODIFIED:20251017T021342Z
UID:7077-1762473600-1762732799@vahemophilia.org
SUMMARY:VIRGINIA BEACH-Adult Retreat Weekend
DESCRIPTION:THIS EVENT IS NOW FULL. Please email info@vahemophilia.org if you woudl like to be added to the waitlist. \n🌊 Virginia Beach Adult Retreat Weekend\nNovember 7–9\, 2025 | Hyatt Place Virginia Beach / Oceanfront 3601 Atlantic Ave\, Virginia Beach\, VA 23451 \nRelax. Learn. Connect. \nTake time for yourself this fall at the VHF Adult Retreat Weekend — a rejuvenating oceanfront getaway designed for education and meaningful connection. Whether you live with a bleeding disorder or support someone who does\, this retreat offers space to rest\, learn\, and grow — all while connecting with people who truly understand your journey. \nWeekend Highlights \nFriday Evening – Kick off the weekend with a casual welcome and optional social hour. It’s the perfect chance to ease into the retreat\, meet new people\, and reconnect with old friends. \nSaturday – Our Main Day Together (go here to view the meeting agenda) \n*Morning: Shared breakfast followed by engaging educational sessions. \n*Sessions & Speakers: Joint and bone health with Chris Guelcher\, RN-BC\, MS\, PPCNP-BC\, Building resilience in the face of challenges and Caring for caregivers with Kate Nammacher\, MPH\, and Your Voice Matters: How You Can Shape the Future of Bleeding Disorders Research with VHF community member Paxton Mills \n*Wellness Activity: Light Refreshments & Group Wellness Activity: Chair Massages. Enjoy time relaxing\, sharing reflections\, and connecting with peers. Light refreshments will be available\, along with chair massages provided by The Well Virginia Beach. \n*Enjoy your evening exploring the Virginia Beach boardwalk and local dining options. A great chance to relax after a long day\, connect with friends\, or simply take in the ocean views! \n\n📝 Important Details\nThe VHF Adult Retreat is designed for VHF constituents age 21 and up with inherited bleeding disorders and/or to adults whose lives are impacted by an inherited bleeding disorder (i.e. caregivers\, spouses\, carriers\, immediate family members – some restrictions do apply) and is not open to individuals employed or compensated by Industry. \nEducational program\, scheduled meals\, and Friday and Saturday night overnight accommodations are provided at no cost for constituents that live in the VHF coverage area. There is a $50 registration fee to attend (a link to pay will be sent out after registration closes on October 16th.) \nThank you to our current sponsors: Genentech\, NBDF\, Takeda\, and UVA-HTC
URL:https://vahemophilia.org/event-program/virginia-beach-adult-retreat-weekend/
LOCATION:Hyatt Place Virginia Beach / Oceanfront\, 3601 Atlantic Ave\, Virginia Beach\, VA\, 23451
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251209T180000
DTEND;TZID=America/New_York:20251209T200000
DTSTAMP:20260403T154253
CREATED:20251011T010738Z
LAST-MODIFIED:20251201T221822Z
UID:7154-1765303200-1765310400@vahemophilia.org
SUMMARY:RICHMOND - Winter Community Event at Lewis Ginter GardenFest of Lights
DESCRIPTION:THIS EVENT IS NOW FULL. Email heather@vahemophilia.org to be placed on the waiting list. \nCelebrate the season with your bleeding disorders community at VHF’s Annual Winter Gathering — a fun education event for all ages! \nWe’ll kick off the evening with an educational dinner in a private room at the Lewis Ginter Botanical Garden\, then head out together to explore the GardenFest of Lights — a cherished holiday tradition featuring millions of sparkling lights\, beautiful botanical displays\, model trains\, warming fires\, hot chocolate\, s’mores\, and more! \nCome enjoy a cozy evening of learning\, laughter\, and light with family and friends. \n✨ Special Note: If you haven’t yet had the chance to see the VHF Sitting Wall\, now is the perfect opportunity. Overlooking the gardens and water\, this peaceful space features an engraved memorial plaque dedicated to the bleeding disorders community in honor of VHF’s 50th anniversary. It serves as a tribute to those we have lost\, a celebration of the contributions of so many\, and a lasting symbol of our community’s strength and unity. \nThis event is limited to constituents that live within the VHF coverage area and their immediate family and/or household members. There is no fee to attend and space is limited. \nPlease note that this will be the only Winter Gathering of the season. \nThank you to our sponsors: CSL Behring\, Sanofi\, and UVA-HTC
URL:https://vahemophilia.org/event-program/richmond-winter-community-event-at-lewis-ginter-gardenfest-of-lights/
LOCATION:Lewis Ginter Botanical Garden\, 1800 Lakeside Ave.\, Richmond\, Virginia\, 23228
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260120T190000
DTEND;TZID=America/New_York:20260120T200000
DTSTAMP:20260403T154253
CREATED:20251011T011407Z
LAST-MODIFIED:20260108T175852Z
UID:7155-1768935600-1768939200@vahemophilia.org
SUMMARY:VIRTUAL – 2026 Advocacy Education Training
DESCRIPTION:RSVP HERE\nJoin VHF and the Hemophilia Association of the Capital Area (HACA) for a virtual advocacy education training focused on the 2026 Virginia General Assembly. \nLearn about proposed legislation and state policy issues that impact access to quality healthcare\, and discover how you can make your voice heard on behalf of the Virginia inherited bleeding disorders community. \nThis training is designed to help prepare participants for Richmond Days\, but you do not need to be registered for Richmond Days to join. \nWho Can Attend: This session is free and open to all community members and anyone interested in learning more about advocacy and state-level healthcare policy is encouraged to participate. \nThank you to our current advocacy sponsors and supporters: CSL Behring\, EveryLife Foundation\, Hemophilia Alliance\, National Bleeding Disorders Foundation (NBDF)\, Novo Nordisk\, PhRMA\, and Takeda \nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. » Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/virtual-2026-advocacy-education-training/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260125
DTEND;VALUE=DATE:20260127
DTSTAMP:20260403T154253
CREATED:20251011T012647Z
LAST-MODIFIED:20260126T235457Z
UID:7156-1769299200-1769471999@vahemophilia.org
SUMMARY:Richmond Days
DESCRIPTION:Please note that the in-person Richmond Days events have been canceled due to weather; we’ll be sharing more advocacy opportunities later this year.\nMonday\, January 26\, 2026: Join VHF and the Hemophilia Association of the Capital Area (HACA) for an opportunity to advocate for policies that improve access to care\, support\, and resources for those living with bleeding disorders. Your voice can directly impact legislation that affects the lives of individuals with bleeding disorders by meeting with your state legislators. Open to all community members. \nWhat to Expect: We will reserve space in the General Assembly building from 9:00 am to 10:30 am and aim to schedule two in-person legislative visits for each participant—one with your State Senate office and one with your State Delegate office. You may be joined by other advocates during these meetings and have opportunities to participate in additional legislative visits. \nSunday\, January 25\, 2026: There will be an optional education dinner and hotel rooms available for VHF/HACA community members at Hilton Richmond Downtown \nWe hope you’ll join us on Tuesday\, January 20\, 2026\, at 7:00 pm for our Virtual Advocacy Education Training where we’ll cover tips for your visits and share our 2026 legislative priorities\, RSVP here. \nThank you to our current advocacy sponsors and supporters: CSL Behring\, EveryLife Foundation\, Hemophilia Alliance\, National Bleeding Disorders Foundation (NBDF)\, Novo Nordisk\, PhRMA\, and Takeda
URL:https://vahemophilia.org/event-program/richmond-days-3/
LOCATION:General Assembly Building\, 201 North 9th St.\, Richmond\, 23219\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260210T183000
DTEND;TZID=America/New_York:20260210T193000
DTSTAMP:20260403T154253
CREATED:20251212T010221Z
LAST-MODIFIED:20260126T235425Z
UID:7197-1770748200-1770751800@vahemophilia.org
SUMMARY:VIRTUAL BRANDED EDUCATION - Learn About HYMPAVZI™ (marstacimab-hncq)
DESCRIPTION:RSVP HERE \nWe’re transitioning to our new name\, Virginia Bleeding Disorders Foundation (VABDF)\, so you may see both names for a while—thank you for your patience! \nJoin us for a virtual educational session presented by Pfizer to learn more about Hympavzi a rebalancing treatment option for hemophilia. This session is intended for people living with hemophilia\, parents\, partners\, and caregivers\, and anyone interested in learning more about treatment options and shared decision-making with a health care provider. Registered participants that attend the program are eligible to receive a gift card\, one per household.  \nYou’ll hear:\n• The science behind rebalancing therapy\n• Clinical trial data\n• Safety information\n• Information on administration\n• Shared decision-making tips for patients and caregivers \nSpeaker: Linda L. Pollhammer\, Patient Affairs Liaison\, Pfizer Rare Disease \n\nImportant notes\nThis is a branded educational program presented in partnership with Pfizer. The information shared is for educational purposes and is not medical advice. Always talk with your hemophilia treatment center (HTC) or health care provider about what’s right for you. \nThank you to our sponsor\, Pfizer\, for supporting this program.
URL:https://vahemophilia.org/event-program/virtual-education-learn-about-hympavzi-marstacimab-hncq/
LOCATION:Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260219T183000
DTEND;TZID=America/New_York:20260219T200000
DTSTAMP:20260403T154253
CREATED:20260116T052449Z
LAST-MODIFIED:20260204T005738Z
UID:7212-1771525800-1771531200@vahemophilia.org
SUMMARY:CHESAPEAKE - Educational Dinner "Understanding Your Health Insurance Options"
DESCRIPTION:RSVP HERE  \nWe’re transitioning to our new name\, Virginia Bleeding Disorders Foundation (VABDF)\, so you may see both names for a while—thank you for your patience! \nJoin us for an evening of education\, connection\, and support! This educational dinner program is for VABDF/VHF constituents (and their immediate family and/or household members.) Dinner will be provided and there is no fee to attend. \nLocation: Black Pelican Seafood Company Greenbrier | Chesapeake\, VA \nProgram Topic: Understanding Your Health Insurance Options\, designed for patients\, caregivers\, and families who want to feel more confident navigating health insurance decisions. \nWe understand health insurance can be confusing. We are here to help you understand your insurance options so you can identify the best plan for you.\nJoin us for an informative session to learn about health insurance options and how health insurance changes may affect your coverage and treatment costs. \nSpeaker: Wendy GlennRN\, BSN\, Rare Disease Hybrid Account Manager\, Genentech \nPlease note: Space may be limited\, if this event fills up priority will be given to individuals and families living in the Chesapeake area. \nThank you to our sponsor\, Genentech\, for supporting this program.
URL:https://vahemophilia.org/event-program/save-the-date-educational-dinner/
LOCATION:Black Pelican Seafood Company Greenbrier\, 1625 Ring Rd \, VA\, Chesapeake\, VA\, 23320\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260223T190000
DTEND;TZID=America/New_York:20260223T200000
DTSTAMP:20260403T154253
CREATED:20251212T012045Z
LAST-MODIFIED:20260126T235707Z
UID:7198-1771873200-1771876800@vahemophilia.org
SUMMARY:VIRTUAL – Camp Youngblood Information Session
DESCRIPTION:REGISTER HERE!\nWe’re transitioning to our new name\, Virginia Bleeding Disorders Foundation (VABDF)\, so you may see both names for a while—thank you for your patience! \nAre you thinking about sending your child to Camp Youngblood at Camp Holiday Trails (CHT) for the first time in 2025\, have questions\, or would you just like a refresher on the camp experience? Join the Hemophilia Association of the Capital Area (HACA)\, CHT\, and VABDF for a virtual information session via Zoom on Monday\, February 23\, at 7:00 pm to learn more about Camp Youngblood – even if you aren’t quite ready to send your kids this year. \nWhat to expect: Staff from CHT will talk more about camp activities and facilities; longtime Camp Youngblood parents will share their experiences with sending their kids to camp\, and staff from VABDF and HACA will be available to answer any additional questions. This virtual session will be a great opportunity to learn more and get all your questions answered in real time! \nCamp Youngblood is a week-long overnight camp at Camp Holiday Trails (CHT) for children ages 7-17 with inherited bleeding disorders\, their siblings\, and children of members of the inherited bleeding disorder community that reside within the VHF or HACA coverage area. \n» Go here to learn more about the Camp Youngblood registration process \n» REGISTER HERE One week out from the event you will receive the zoom link separately via email from heather@vahemophilia.org. \n\nAs we gather virtually to discuss\, share and learn\, we ask that all virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping us ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/virtual-vhf-haca-camp-youngblood-information-session-3/
LOCATION:Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260303T190000
DTEND;TZID=America/New_York:20260303T201500
DTSTAMP:20260403T154253
CREATED:20260204T005044Z
LAST-MODIFIED:20260210T003331Z
UID:7223-1772564400-1772568900@vahemophilia.org
SUMMARY:VIRTUAL - Education Session "Discover a New  Investigational Approach  to VWD Treatment"
DESCRIPTION:RSVP HERE!\nJoin Us for a Virtual Education Session during VWD Awareness Week\nMarch is Bleeding Disorders Awareness Month\, and in recognition of Von Willebrand Disease (VWD) Awareness Week (March 1–7)\, we are pleased to host the virtual educational session “Discover a New Investigational Approach to VWD Treatment” featuring Star Therapeutics. \nStar Therapeutics is currently investigating VGA039\, a potential once-monthly subcutaneous prophylactic treatment for VWD. \nIf you or someone in your family has any type of VWD or you are curious about new therapies in the bleeding disorders community\, we invite you to join us for this informative and engaging session. Dr. Laura Guido\, Head of Medical Affairs at Star Therapeutics\, will discuss: \n\nHow VGA039 works\nThe clinical development pathway for this investigational therapy\nEarly clinical trial results\nInformation about the VIVID Clinical Trials\, including how to explore eligibility and participation\n\n\nFeatured Speaker\nLaura Guido\, PharmD\, MBA\, BCPSExecutive Director\, Medical Affairs\, Star Therapeutics \nDr. Guido is a clinical pharmacist who leads Medical Affairs for VGA039 at Star Therapeutics. Prior to joining Star\, she supported clinical development for hemophilia A gene therapy trials at BioMarin and spent several years working in anticoagulation at Boehringer Ingelheim. Before transitioning to industry\, Dr. Guido practiced as a clinical pharmacist.
URL:https://vahemophilia.org/event-program/virtual-education-session-discover-a-new-investigational-approach-to-vwd-treatment/
LOCATION:Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260313
DTEND;VALUE=DATE:20260316
DTSTAMP:20260403T154253
CREATED:20251011T014039Z
LAST-MODIFIED:20260312T174950Z
UID:7157-1773360000-1773619199@vahemophilia.org
SUMMARY:STAUNTON - Annual Education Meeting
DESCRIPTION:REGISTRATION IS NOW CLOSED. If you would like to be added to the waitlist email Heather at info@vahemophilia.org.\nWe’re transitioning to our new name\, Virginia Bleeding Disorders Foundation (VABDF)\, so you may see both names for a while—thank you for your patience! \n✨ Annual Education Meeting: Celebrating Community and Connection \nFriday\, March 13 to Sunday\, March 15\, 2026 \nHotel 24 South\, 24 S Market St.\, Staunton\, Virginia \nVABDF’s Annual Meeting brings together individuals and families affected by inherited bleeding disorders for a weekend of education\, support\, and connection. This special event offers opportunities to learn about the latest in treatment and care\, share experiences\, and strengthen our community through networking and collaboration. \nAs we gather\, we’ll also celebrate March as Bleeding Disorders Awareness Month — a time to raise awareness\, promote education\, and honor the dedication and achievements of our incredible bleeding disorders community. Together\, we’ll learn\, connect\, and create lasting memories! \nWhat to Expect *Please Note That These Plans May Change*: The event kicks off Friday evening at 7:00 pm with an education session on “Caregiver Burnout”\, dinner\, and time to catch up with friends and family. Saturday begins with breakfast and an opportunity to explore exhibits hosted by our generous industry sponsors\, showcasing the latest treatments and therapies. The day continues with engaging educational sessions\, updates from VABDF\, and on-site childcare and programs for ages 0-17. \nOvernight Accommodations: We are pleased to offer overnight accommodations at the Hotel 24 South for Friday\, March 13\, and Saturday\, March 14. \nRegistration Fee: There is a $25 registration fee per household and payment instructions will be sent via email after registration closes. This event includes educational programs\, scheduled meals\, community activities\, and overnight accommodations for constituents living within the VHF coverage area. \nTentative Schedule:\nFriday\, March 13\n7:00 PM: Educational Dinner “Caregiver Burnout” \nSaturday\, March 14\n8:30 AM – 9:30 AM: Breakfast and Exhibit Visits\n9:30 AM – 4:00 PM: Educational Presentations\, Exhibit Visits\, Lunch\, Snack Breaks\, and More\n4:00 PM: Meeting Wrap-Up \nSunday\, March 15\n8:00 AM – 9:30 AM: Education Breakfast\n10:30 AM Community Event at the Frontier Culture Museum * This community event is optional and is not a part of the annual meeting. \nThank you to our current Annual Meeting sponsors: Accredo by EVERNORTH\, Bayer\, BioMatrix\, CSL Behring\, Genentech\, Hemabiologics\, Hemophilia Alliance\, InfuCare Rx\, Novo Nordisk\, Pfizer\, Sanofi\, Soleo Health\, Superior Biologics\, Takeda\, UVA-HTC\, and VCU-HTC
URL:https://vahemophilia.org/event-program/staunton-annual-education-meeting/
LOCATION:Hotel 24 South\, 24 S Market St\, Staunton\, Virginia\, 24401
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260325T180000
DTEND;TZID=America/New_York:20260325T193000
DTSTAMP:20260403T154253
CREATED:20260303T181025Z
LAST-MODIFIED:20260311T164305Z
UID:7242-1774461600-1774467000@vahemophilia.org
SUMMARY:ROANOKE - Educational Dinner "A Focus on Mental Well-being"
DESCRIPTION:RSVP HERE  \nWe’re transitioning to our new name\, Virginia Bleeding Disorders Foundation (VABDF)\, so you may see both names for a while—thank you for your patience! \nJoin us for an evening of education\, connection\, and support! This educational dinner program is for VABDF/VHF constituents (and their immediate family and/or household members.) Dinner will be provided and there is no fee to attend. \nLocation: Billy’s Roanoke \nProgram Topic: A Focus on Mental Well-being\n \nMental health is a state of well-being and is an important topic to talk about for everyone\, including those living with a bleeding disorder. That’s why we’ve partnered with an expert to discuss ways to navigate mental health\, as it includes our emotional\, psychological\, and social well-being. \nSpeaker: Kendra Wrisley\, Rare Blood Community Liaison\, Mid-Atlantic Territory\, Novo Nordisk \nPlease note: Space may be limited\, if this event fills up priority will be given to individuals and families living in the South West Virginia area. \nThank you to our sponsor\, Novo Nordisk\, for supporting this program.
URL:https://vahemophilia.org/event-program/roanoke-educational-dinner-a-focus-on-mental-well-being/
LOCATION:Billy’s\, 102 Market St SE\, Roanoke\, 24011\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260416T180000
DTEND;TZID=America/New_York:20260416T193000
DTSTAMP:20260403T154253
CREATED:20260325T012535Z
LAST-MODIFIED:20260325T013554Z
UID:7245-1776362400-1776367800@vahemophilia.org
SUMMARY:RICHMOND - Educational Dinner "World Hemophilia Day: One Family Program"
DESCRIPTION:RSVP HERE!  \nWe’re transitioning to our new name\, Virginia Bleeding Disorders Foundation (VABDF)\, so you may see both names for a while—thank you for your patience! \nJoin us for an evening of education\, connection\, and support! This educational dinner program is for VABDF/VHF constituents (and their immediate family and/or household members.) Dinner will be provided and there is no fee to attend. \nLocation: Red Salt Chophouse & Sushi \nProgram Topic: World Hemophilia Day: One Family Program\n \nEach year\, One Family brings the bleeding disorders community together to celebrate World Hemophilia Day. This year’s program is a powerful call to action\, igniting the community to redefine what’s possible in life with hemophilia. This year we’re inspiring each person to rethink their own perceived limits and explore a future of more possibilities. This year\, participants will celebrate individual empowerment\, challenge norms\, and inspire the community. Participants will be able to take part in both group and individual activities that empower\, educate\, and inspire\, leaving attendees motivated by the support of this diverse community.  \nSpeaker: Nick Cady\, Sr. CoRe Manager\, Sanofi\n \nPlease note: Space may be limited\, if this event fills up priority will be given to individuals and families living in the Central Virginia area. \nThank you to our sponsor\, Sanofi\, for supporting this program.
URL:https://vahemophilia.org/event-program/richmond-educational-dinner-world-hemophilia-day-one-family-program/
LOCATION:Red Salt Chophouse & Sushi\, 12221 W Broad St.\, Henrico\, VA\, 23233\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260418T123000
DTEND;TZID=America/New_York:20260418T150000
DTSTAMP:20260403T154253
CREATED:20260205T012058Z
LAST-MODIFIED:20260228T203313Z
UID:7225-1776515400-1776524400@vahemophilia.org
SUMMARY:NORFOLK-New Family Support & Education Program
DESCRIPTION:RSVP HERE!\nWe’re transitioning to our new name\, Virginia Bleeding Disorders Foundation (VABDF)\, so you may see both names for a while—thank you for your patience! \nJoin VABDF and CHKD for a special program designed to support families of infants and young children (age 6 and under) diagnosed with inherited bleeding disorders. This event offers an opportunity to connect with the bleeding disorders community and gain valuable education and resources. \nWhat to Expect: \n\nInformal education with CHKD-HTC staff with time for Q&A\nMeet staff and members of the Virginia Bleeding Disorders Foundation to learn more about the organization\nA private meeting space for our group\nRefreshments provided for all attendees\nA meet and greet with an Animal Ambassador\nNetworking opportunities with other parents and families\nTime to enjoy the Virginia Zoo\n\nWho Can Attend: This program is tailored for families affected by inherited bleeding disorders with children ages 6 and under who reside in the VABDF coverage area and is not open to individuals employed or compensated by Industry. \nPlease note: Space may be limited\, if this event fills up priority will be given to individuals and families that attend CHKD-HTC and/or live in the Tidewater area. \nWe look forward to providing you with a supportive and welcoming environment to learn\, share\, and connect! \nThank you to our current sponsors: Takeda\, UVA-HTC\, and VCU-HTC
URL:https://vahemophilia.org/event-program/norfolk-new-family-support-education-program/
LOCATION:Virginia Zoo\, 3500 Granby St\, Norfolk\, VA\, 23504
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260424
DTEND;VALUE=DATE:20260427
DTSTAMP:20260403T154253
CREATED:20251211T234511Z
LAST-MODIFIED:20260325T013430Z
UID:7196-1776988800-1777247999@vahemophilia.org
SUMMARY:WILLIAMSBURG - Lady Bugs Program National Conference for Women - In Partnership with CHES Foundation
DESCRIPTION:Learn More and Register Here!\n🐞 LadyBugs Program National Conference for Women 🐞 \nRegistration: CURRENTLY OPEN!\nApplications received after March 1\, 2026 will be immediately waitlisted if registration is at capacity\, go here to learn more and register. \nWe’re proud to partner with CHES Foundation to bring you the LadyBugs Program National Conference\, a national event dedicated to empowering women and girls ages 16+ impacted by bleeding disorders. \nThis unique conference is designed for women who: \n\nAre diagnosed with a clotting factor and/or platelet deficiency\nCare for someone\, or carry any other bleeding disorder\nIdentify with the SHEmophilia community\n\nThe goal is to provide education about medical developments\, advocacy skill building\, stress management techniques and more to encourage women to recognize that their health is equally important. \n📅 April 24–26\, 2026📍 Williamsburg Lodge Colonial Williamsburg\, Virginia \n📝 Registration is open!🔗 https://ches.education/ladybugs
URL:https://vahemophilia.org/event-program/lady-bugs-program-national-confernce-for-women-in-partnership-with-ches-foundation/
LOCATION:The Williamsburg Lodge\, 310 South England Street\, Williamsburg\, VA\, 23185\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260501
DTEND;VALUE=DATE:20260504
DTSTAMP:20260403T154253
CREATED:20251106T005830Z
LAST-MODIFIED:20260116T051603Z
UID:7173-1777593600-1777852799@vahemophilia.org
SUMMARY:Gettin’ in the Game Junior National Championship (JNC)
DESCRIPTION:VHF (along with other chapters across the nation) have been given the opportunity to nominate up to two participants\, girls and boys\, each selected for either baseball\, basketball\, golf\, or swimming. The 23rd Junior National Championship (JNC) is taking place in Henderson\, NV from May 1 – 3\, 2026. \nVHF nominee application deadline is 5:00 pm EST\, Friday\, December 5\, 2025.  \nWho is eligible:  Children between 7–18 years of age with a bleeding disorder (nominees must be accompanied by a caregiver 25 years of age or older at the event. Due to state and federal laws\, CSL is unable to permit healthcare professionals to attend.) As a reminder\, prior experience or expertise in the chosen sport is not required to participate\, just a positive attitude and a willingness to learn and take part! Also\, special consideration will be given to first time attendees\, but all children who have attended in the past are welcome to apply again! \nCost: Free. CSL Behring will sponsor two chapter nominees and one accompanying caregiver for each nominee to participate in the program. This sponsorship will include the coordination and cost of airfare\, ground transportation in Henderson\, Nevada\, and hotel arrangements (attendees will be responsible for transportation to/from their hometown airport). This event is limited to the nominee and one caregiver only. CSL is unable to accommodate additional family members at any JNC related events. \nProgram Description: Developed by CSL Behring\, the Gettin’ in the Game Junior National Championship (JNC) was the first and is currently the only national sports competition designed specifically for the bleeding disorders community. The JNC features accomplished Gettin’ in the Game Athletes who themselves have been diagnosed with a bleeding disorder. Go here to learn more. \nDuring the JNC program nominees will have the opportunity to:  \n\nChoose from FOUR sports – baseball\, basketball\, golf\, and swimming.\nLearn about the importance of physical fitness in managing a bleeding disorder and receive instructions on proper techniques and good form.\nShow off their abilities in a national competition with fellow nominees from around the country.\nConnect and build relationships with fellow members of the bleeding disorders community.\n\nVHF Nominee Application Process: \n\nFill out the brief application form here.\nThe child applying will need to answer one essay question and provide a heartfelt answer to the question “Why do you love the sport you chose and/or why would you like to attend the JNC?” (Length should be age appropriate and around 1-2 paragraphs.)\nEssays must be original and written solely by the child applying (please\, no parental help writing the essay!)\nSubmit the application and essay by the deadline\, 5:00 pm EST\, Friday\, December 5\, 2025.\n\nFor an idea of the program expectations go here to read the 2026 JNC nominee information packet. \nIf you have any questions please contact Heather at info@vahemophilia.org or 804-740-8643. \n 
URL:https://vahemophilia.org/event-program/gettin-in-the-game-junior-national-championship-jnc/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260501
DTEND;VALUE=DATE:20260504
DTSTAMP:20260403T154253
CREATED:20251212T012740Z
LAST-MODIFIED:20260331T052331Z
UID:7199-1777593600-1777852799@vahemophilia.org
SUMMARY:CHARLOTTESVILLE – VABDF Family Camp Weekend
DESCRIPTION:RSVP HERE!\nDate: Friday\, May 1 – Sunday\, May 3\, 2026 \nApplication Deadline: Friday\, April 10th \nLocation: Camp Holiday Trails\, 400 Holiday Trails Ln\, Charlottesville\, VA 22903 \nExperience an unforgettable weekend at Camp Holiday Trails (CHT) with VABDF’s Annual Family Camp Weekend! Connect with other families affected by bleeding disorders while enjoying education\, community\, and classic camp fun. This special program is designed for families with at least one child living at home who is between the ages of 7 – 17. \nAt Family Camp\, participants will enjoy a supportive environment where they can connect with others who understand the challenges of living with a bleeding disorder. Families will have the opportunity to attend educational sessions\, learn about self-advocacy and resilience\, and engage in fun outdoor activities that promote confidence\, teamwork\, and friendship. \nWho Can Attend: Family Camp is open to families impacted by an inherited bleeding disorder and is designed for families with at least one child living at home who is between the ages of 7 – 17. This program is for VABDF constituents (and their immediate family and/or household members only) and is not open to individuals employed or compensated by Industry. \nGo here to read and download the 2026 VABDF Family Camp Program Guidelines. \nThis program is a perfect opportunity for families to relax\, learn\, and grow together. Don’t miss out on this incredible experience! For questions\, email info@vahemophilia.org or call 804-740-8643. \nThank you to our sponsors: CSL Behring\, Genentech\, Sanofi\, Takeda and UVA-HTC
URL:https://vahemophilia.org/event-program/charlottesville-family-camp-at-camp-holiday-trails/
LOCATION:Camp Holiday Trails\, 400 Holiday Trails Lane\, Charlottesville\, VA\, 22903
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260501T170000
DTEND;TZID=America/New_York:20260501T170000
DTSTAMP:20260403T154253
CREATED:20251212T013255Z
LAST-MODIFIED:20260116T051953Z
UID:7200-1777654800-1777654800@vahemophilia.org
SUMMARY:APPLICATION DUE:Lyman Fisher Scholarship
DESCRIPTION:Lyman Fisher Scholarship Application Procedure & Guidelines\nAPPLICATION PROCEDURE \nApplication Deadline: Friday\, May 1\, 2026\, at 5:00 pm \nGo here to apply via JotForm\nGo here to download PDF version of application\nApplications must be completed using our online application form or email the pdf version to info@vahemophilia.org. \nAll letters of recommendation are to be sent electronically to info@vahemophilia.org. Applications and/or supporting documents received after 5:00 PM on Thursday\, May 1st will not be considered. It is up to the applicant to follow up and make sure these items are received by the deadline. Incomplete applications will not be considered. \nPlease read and follow the application and instructions very carefully to receive full consideration for a Lyman Fisher Scholarship. If you don’t know the answer\, please type N/A. DO NOT leave any section blank. \nScholarship applicants will be notified of the committee’s findings by June 1st. \nELIGIBILITY\nIndividuals living with an inherited bleeding disorder\, their sibling or their parents who live in the territorial jurisdiction of VHF\, which includes the Commonwealth of Virginia\, with the exception of the following: The cities of Alexandria\, Fairfax\, Falls Church\, Herndon\, Manassas\, and Vienna and the counties of Arlington\, Fairfax\, Fauquier\, Loudon\, Prince William and Stafford. \nSCHOLARSHIPS\nIn 2026\, VABDF/VHF will offer over $10\,000 in scholarships. The award amount will vary based on the number of applicants that are selected and the scholarship rubric that the VABDF/VHF scholarship committee uses to evaluate academic performance\, participation in school\, community\, and VABDF/VHF activities\, a personal essay detailing educational and future career goals\, and recommendation letters. The scholarships may be used at any accredited college\, university\, or vocational/technical school in the United States and are to be applied toward a student’s educational expenses. VABDF/VHF is not obligated to award scholarships in a given year. \nA student who receives an award one year may reapply in later years but winning a scholarship in one year does not necessarily mean that the student will win in a later year. Also\, a student who applies in one year and does not receive an award is eligible to apply the following year for the scholarship. \nScholarship applicants must have participated in VABDF/VHF activities. \nPAYMENT OF SCHOLARSHIP FUNDS\nScholarship payments are not distributed directly to an individual\, but are made via scholarship checks\, payable to the schools. VABDF/VHF staff will work with the award recipient(s) to process the scholarship funds. \nRESPONSIBILITIES OF RECIPIENTS\nScholarship recipients must enroll as a college student in the fall of the year in which the scholarships are awarded and continue in school for the entire academic year without interruption\, barring illness\, emergency\, or military service. If a scholarship recipient leaves school during the scholarship period\, VABDF/VHF may ask for reimbursement of scholarship funds. \nScholarship recipients are responsible for making certain that their scholarship checks are delivered to their colleges. Recipients must provide VABDF/VHF with information on where to send the check\, as well as other pertinent information such as student identification number. \nThe recipient is responsible for determining the impact of the scholarship or grant on their annual tax returns. For more information\, talk to a tax return preparer or go here. \nQUESTIONS\nIf you have questions about this scholarship (application process\, whether the program and/or activity that you are requesting assistance with fits within the guidelines\, how much funding is available\, etc.) please reach out to Heather Conner at 804-740-8643 or info@vahemophilia.org. \n\n\n\n\n\n\n\n\nScholarship Background\nThe Virginia Bleeding Disorders Foundation (VABDF) formerly Virginia Hemophilia Foundation (VHF) Lyman Fisher Scholarship was established to honor Dr. Lyman Fisher\, a teacher\, researcher\, and clinician in hemostasis. For many years\, he directed the adult hemophilia program for Virginia. He will be remembered for his steadfast commitment to his patients and students\, his respect for those who served under him\, his community service and his affection for his family.
URL:https://vahemophilia.org/event-program/application-due-vhf-lyman-fisher-scholarship-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260501T170000
DTEND;TZID=America/New_York:20260501T170000
DTSTAMP:20260403T154253
CREATED:20251212T013719Z
LAST-MODIFIED:20260228T193523Z
UID:7201-1777654800-1777654800@vahemophilia.org
SUMMARY:APPLICATION DUE: Camp Youngblood at Camp Holiday Trails
DESCRIPTION:Application Closes Friday\, May 1\, 2026 at 5:00 pm \n🏕️ Camp Youngblood 2026\nDates: Sunday\, July 12 – Friday\, July 17\, 2026 \nLocation: Camp Holiday Trails 400 Holiday Trails Ln\, Charlottesville\, VA 22903 \n👉 Start the Pre-Screen Application › Go Here! \nAbout Camp Youngblood – Camp Youngblood is a week-long overnight summer camp\, funded by Virginia Bleeding Disorders Foundation (VABDF) formerly Virginia Hemophilia Foundation (VHF)and the  Hemophilia Association of the Capital Area (HACA)\, that provides children and teens from the inherited bleeding disorders community with a traditional camp experience in a safe\, supportive environment. Campers enjoy a variety of activities while forming lasting friendships with peers who share similar life experiences. \nHosted at Camp Holiday Trails (CHT)\, a year-round camp for children with medical needs and their siblings\, campers must be socially\, emotionally\, behaviorally and developmentally able to participate in group activities. With 24/7 on-site medical care\, CHT ensures each camper’s individual needs are met. \nEligibility \nCYB is open to campers ages 7–17 who: \n\nHave an *inherited bleeding disorder\nAre siblings of someone with an inherited bleeding disorder\nAre children of members of the inherited bleeding disorder community\nLive within the VHF or HACA coverage area\n\nCost – $50 non-refundable application fee (per camper). This fee is charged after your application is reviewed and enrollment is confirmed by CHT via an enrollment email sent from CHT’s Director of Programs\, Caitlin Carroll. If the application fee is a barrier to attendance\, please contact Heather Conner: info@vahemophilia.org or Brenda Bordelon: director@hacacares.org \nApplication Process \n\nFamilies complete the pre-screen form.\nEligible families receive the CHT application link.\nEnrollment is confirmed once all materials are complete.\n\nDeadlines \n\nRegistration closes: May 1\, 2026\nAll forms due: June 5\, 2026\nConfirmation emails sent by: June 12\, 2026\n\nCancellation – We understand that emergencies and illnesses can happen and that late cancellations may be unavoidable. If you know that your child will not be able to attend after applying\, we ask that you cancel by Sunday\, June 21 so that VABDF/VHF and HACA are not responsible for covering the cost of campers who are not in attendance. Please note that the $50 registration fee is non-refundable. \nContact for cancellations or questions: Caitlin Carroll\, MSW\, Director of Programs\ncaitlin@campholidaytrails.org | 434-977-3781 (office) | 434-282-7213 (cell) \nCHT Immunization Policy – All standard childhood immunizations are required (per the American Academy of Pediatrics). Given the population at CHT and for the safety of all Campers\, only medical exemptions will be considered. ALL medical exemptions require physician (MD/NP/PA) documentation and approval from CHT’s Medial Director. \nThank you to our current sponsors: Takeda and VCU-HTC
URL:https://vahemophilia.org/event-program/application-due-camp-youngblood-at-camp-holiday-trails-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260604T183000
DTEND;TZID=America/New_York:20260604T200000
DTSTAMP:20260403T154253
CREATED:20260116T053833Z
LAST-MODIFIED:20260116T053833Z
UID:7213-1780597800-1780603200@vahemophilia.org
SUMMARY:VIRGINIA BEACH - Educational Dinner “Shared Decision Making”
DESCRIPTION:RSVP HERE  \nJoin us for an evening of education\, connection\, and support! This educational dinner program is for constituents (and their immediate family and/or household members.) Dinner will be provided and there is no fee to attend. \nLocation: Cooper’s Hawk Winery & Restaurant 733 Lynnhaven Mall Loop\, Virginia Beach\, VA 23452 \nProgram Topic: Shared Decision Making \nShared decision making is a partnership between people with hemophilia and their care teams that may help them better manage their condition. This interactive session covers how to take an active role as part of your treatment team\, discuss therapy considerations\, and find quality sources of information. \nSpeaker: Linda L. Pollhammer\, Patient Affairs Liaison\, Pfizer Rare Disease \nPlease note: Space may be limited\, if this event fills up priority will be given to individuals and families living in the Virginia Beach area. \nThank you to our sponsor\, Pfizer\, for supporting this program.
URL:https://vahemophilia.org/event-program/virginia-beach-educational-dinner-shared-decision-making/
LOCATION:Cooper’s Hawk Winery & Restaurant\, 733 Lynnhaven Mall Loop\, Virginia Beach\, VA\, 23452\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260712
DTEND;VALUE=DATE:20260718
DTSTAMP:20260403T154253
CREATED:20251007T040359Z
LAST-MODIFIED:20260331T052603Z
UID:7152-1783814400-1784332799@vahemophilia.org
SUMMARY:CHARLOTTESVILLE – Camp Youngblood at Camp Holiday Trails
DESCRIPTION:PRE-SCREEN APPLICATION\n🏕️ Camp Youngblood 2026\nDates: Sunday\, July 12 – Friday\, July 17\, 2026 \nLocation: Camp Holiday Trails 400 Holiday Trails Ln\, Charlottesville\, VA 22903 \n👉 Start the Pre-Screen Application › Go Here! \nAbout Camp Youngblood – Camp Youngblood is a week-long overnight summer camp\, funded by Virginia Bleeding Disorders Foundation (VABDF) formerly Virginia Hemophilia Foundation (VHF) and the Hemophilia Association of the Capital Area (HACA)\, that provides children and teens from the inherited bleeding disorders community with a traditional camp experience in a safe\, supportive environment. Campers enjoy a variety of activities while forming lasting friendships with peers who share similar life experiences. \nHosted at Camp Holiday Trails (CHT)\, a year-round camp for children with medical needs and their siblings\, campers must be socially\, emotionally\, behaviorally and developmentally able to participate in group activities. With 24/7 on-site medical care\, CHT ensures each camper’s individual needs are met. \nEligibility \nCYB is open to campers ages 7–17 who: \n\nHave an *inherited bleeding disorder\nAre siblings of someone with an inherited bleeding disorder\nAre children of members of the inherited bleeding disorder community\nLive within the VABDF/VHF or HACA coverage area\n\nCost – $50 non-refundable application fee (per camper). This fee is charged after your application is reviewed and enrollment is confirmed by CHT via an enrollment email sent from CHT’s Director of Programs\, Caitlin Carroll. If the application fee is a barrier to attendance\, please contact Heather Conner: info@vahemophilia.org or Brenda Bordelon: director@hacacares.org \nApplication Process \n\nFamilies complete the pre-screen form.\nEligible families receive the CHT application link.\nEnrollment is confirmed once all materials are complete.\n\nDeadlines \n\nRegistration closes: May 1\, 2026\nAll forms due: June 5\, 2026\nConfirmation emails sent by: June 12\, 2026\n\nCancellation – We understand that emergencies and illnesses can happen and that late cancellations may be unavoidable. If you know that your child will not be able to attend after applying\, we ask that you cancel by Sunday\, June 21 so that VABDF/VHF and HACA are not responsible for covering the cost of campers who are not in attendance. Please note that the $50 registration fee is non-refundable. \nContact for cancellations or questions: Caitlin Carroll\, MSW\, Director of Programs\ncaitlin@campholidaytrails.org | 434-977-3781 (office) | 434-282-7213 (cell) \nCHT Immunization Policy – All standard childhood immunizations are required (per the American Academy of Pediatrics). Given the population at CHT and for the safety of all Campers\, only medical exemptions will be considered. ALL medical exemptions require physician (MD/NP/PA) documentation and approval from CHT’s Medial Director. \nThank you to our current sponsors: Genentech\, Takeda\, and VCU-HTC
URL:https://vahemophilia.org/event-program/charlottesville-camp-youngblood-at-camp-holiday-trails/
LOCATION:Camp Holiday Trails\, 400 Holiday Trails Lane\, Charlottesville\, VA\, 22903
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260911
DTEND;VALUE=DATE:20260914
DTSTAMP:20260403T154253
CREATED:20260116T054720Z
LAST-MODIFIED:20260116T054947Z
UID:7215-1789084800-1789343999@vahemophilia.org
SUMMARY:SAVE THE DATE: Fall Community Education Weekend at Great Wolf Lodge
DESCRIPTION:📅 September 11–13\, 2026📍 Great Wolf Lodge Conference Center | Williamsburg\, VA \nThis community education weekend is designed to educate and connect members of the bleeding disorders community. \nThis event includes educational sessions\, on-site childcare\, waterpark access\, meals\, and overnight accommodations. \n➡️ Please note: Access to overnight accommodations and the water park is only available to those who attend the Saturday education meeting. \n\nWeekend Schedule & Highlights\nFriday\, September 11 Water park access begins when it opens Friday for those staying overnight. Hotel check-in begins at 4:00 PM. \nSaturday\, September 12 – Education Meeting (Begins at 8:00 AM) \n\nEnjoy breakfast and visit exhibits.\nAttend our keynote session: TBD\nTake part in breakout sessions: TBD\nOn-site childcare and youth/teen programming will be provided by Camp Holiday Trails and A Helping Hand.\nEnjoy optional overnight accommodations and more waterpark fun Saturday evening.\n\nSunday\, September 13 No scheduled activities or meals. A relaxing departure day. \n\nℹ️ Important Details\n\nOpen to all ages – not limited to families with children.\nTo reserve a room\, at least one person in your group must be age 21+.\nRegistration fee per household: TBD\nSpace is limited and determined by our Program Registration Guidelines.\n\n\n✅ Eligibility Requirements\nTo be eligible\, you must meet all of the following: \n\nHave an inherited bleeding disorder\, or be the spouse/partner/parent/caregiver of someone who does\nLive in the VABDF/VHF coverage area or receive care for your bleeding disorder within it. Click here to see if you meet the eligibility requirements.\n\n\nWe’re so excited to welcome you for a weekend of learning\, connection\, and community fun! \nThank You to Our Current Sponsor(s): 
URL:https://vahemophilia.org/event-program/save-the-date-fall-community-education-weekend-at-great-wolf-lodge/
LOCATION:Great Wolf Lodge\, 549 E Rochambeau Dr.\, Williamsburg\, VA\, 23188
END:VEVENT
END:VCALENDAR