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DTSTART;VALUE=DATE:20240329
DTEND;VALUE=DATE:20240330
DTSTAMP:20260403T135906
CREATED:20240206T013333Z
LAST-MODIFIED:20240206T013333Z
UID:6598-1711670400-1711756799@vahemophilia.org
SUMMARY:Lyman Fisher Scholarship Application Deadline
DESCRIPTION:APPLICATION PROCEDURE & DEADLINES\nApplication Deadline: 11:59 pm (EST)\, Friday\, March 29\, 2024\nHow to Apply: Applications can be completed using our online application form or you can download the paper application form and email the application to info@vahemophilia.org. \n» Go Here to fill out the application online \n» Go Here to download the paper application \nLetters of Recommendation: You will need at least two letters of recommendation from persons who are not family members. These are to be emailed separately to info@vahemophilia.org by the deadline. \n\nOne letter should be from an HTC provider\, nurse\, social worker\, or someone who knows you well from the bleeding disorders community.\nThe other letter could be from your scout leader\, minister\, teacher\, employer\, guidance counselor\, coach\, etc.\n\n  \nApplications and/or supporting documents received after the deadline will not be considered. \n\n\n\n\n\n\n\n\nELIGIBILITY & AWARD\nScholarship Eligibility: Individuals living with an inherited bleeding disorder\, their sibling or their parents who live in the territorial jurisdiction of VHF\, which includes the State of Virginia\, with the exception of the following: The cities of Alexandria\, Fairfax\, Falls Church\, Herndon\, Manassas\, and Vienna and the counties of Arlington\, Fairfax\, Fauquier\, Loudon\, Prince William and Stafford. \nScholarship applicants must have participated in VHF activities. \nScholarship Award: Scholarships are one-year awards in the amount of $2\,000 for a full academic year. While at least two scholarships are available each year\, VHF is not obligated to award scholarships in a given year. The scholarships may be used at any accredited nonprofit college\, university\, or vocational/technical school in the United States and are to be applied toward a student’s educational expenses. \nA student who receives an award one year may reapply in later years but winning a scholarship in one year does not necessarily mean that the student will win in a later year. Also\, a student who applies in one year and does not receive an award is eligible to apply the following year for the scholarship. \nPayment of Scholarship Funds: Scholarship payments are not distributed directly to an individual\, but are made via scholarship checks\, payable to the schools. VHF staff will work with the award recipient(s) to process the scholarship funds. \n\n\n\n\n\n\n\n\nRESPONSIBILITIES OF RECIPIENTS\nScholarship recipients must enroll as a college student in the fall of the year in which the scholarships are awarded and continue in school for the entire academic year without interruption\, barring illness\, emergency\, or military service. If a scholarship recipient leaves school during the scholarship period\, VHF may ask for reimbursement of scholarship funds. Scholarship recipients are responsible for making certain that their scholarship checks are delivered to their colleges. \n\n\n\n\n\n\n\n\nSCHOLARSHIP BACKGROUND\nThe Lyman Fisher Scholarship was established to honor Dr. Lyman Fisher\, a teacher\, researcher\, and clinician in hemostasis. For many years\, he directed the adult hemophilia program for Virginia. He will be remembered for his steadfast commitment to his patients and students\, his respect for those who served under him\, his community service and his affection for his family.
URL:https://vahemophilia.org/event-program/lyman-fisher-scholarship-application-deadline-2/
ORGANIZER;CN="Kelly Waters%2C VHF Executive Director":MAILTO:info@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240410
DTEND;VALUE=DATE:20240411
DTSTAMP:20260403T135906
CREATED:20231018T211442Z
LAST-MODIFIED:20240410T164545Z
UID:6493-1712707200-1712793599@vahemophilia.org
SUMMARY:2024 Camp Youngblood Application Due!
DESCRIPTION:Pre-Screening Link\n*Wednesday\, April 10\, 2024: Registration will close\, and no other applicants will be accepted. All parts of the online camp application must be complete.*\nThe Virginia Hemophilia Foundation (VHF)\, the Hemophilia Association of the Capital Area (HACA)\, and Camp Holiday Trails (CHT) are teaming up again for Camp Youngblood (CYB) in 2024! \nCamp Youngblood is a week-long overnight camp at CHT for children ages 7-17 with inherited bleeding disorders\, their siblings\, and children of members of the inherited bleeding disorder community that reside within the VHF or HACA coverage area. Kids enjoy a week of fun and learning with others that are faced with similar challenges and life experiences. Go here to learn more about the admission guidelines. \nDates: Sunday\, July 14 – Friday\, July 19\, 2024 \nNEW THIS YEAR: Friday\, July 19\, will be “CYB Family Friday.” Camper families are invited to join in on all the fun starting at 9 a.m. Lunch will be provided by CHT\, and everyone will depart at 2 p.m. During this time\, there will be a mini “family day camp” that will allow campers and their families a glimpse of Camp Magic together! VHF/HACA are looking into providing an overnight stay at a hotel close to CHT on that Thursday\, July 18; in the pre-screening survey\, please let us know if this would be of interest to you and we will be in touch with more details. \nLocation: Camp Holiday Trails\, 400 Holiday Trails Ln\, Charlottesville\, VA 22903 \nThank you to our Camp Youngblood sponsors: Bayer\, CSL Behring\, Genentech\, Grifols\, Novo Nordisk\, Takeda\, and VCU-HTC \nThank you to our Camp Youngblood Family Education sponsors: CSL Behring\, Genentech\, Novo Nordisk\, and Takeda \n\nAPPLICATION PROCESS\nOpen Enrollment Application: The Camp Youngblood application process is open enrollment and not first come first served. This will allow VHF\, HACA\, and CHT the chance to review applications and manage the roster according to the application/admission guidelines. *Must adhere to all application deadlines to be considered* Go here to learn more about the admission guidelines. \n1. Pre-screening – This is required for ALL applicants\, even returning campers. \nThe enrolling parent/guardian will fill out the short pre-screening survey to determine eligibility » Go here to fill out the pre-screening survey \nWithin one week of filling out the pre-screening survey you will receive an email from either VHF or HACA\, if you do not\, please email Heather at heather@vahemophilia.org or 804-740-8643. \nIf you are NOT eligible you will receive an email from either VHF or HACA letting you know the reason you do not meet the eligibility requirements and a link to the other summer camp offerings from CHT. \nIf you ARE eligible\, you will receive an email from either VHF or HACA with a link to the full CYB application and other important details. \n2. Registration – \nUse the link provided in the email response to your pre-screening survey and fill out the full CYB application form.\nThe form and the application process are managed by CHT\, if you have questions or concerns regarding this part of the process contact CHT directly at program@campholidaytrails.org or 434-977-3781. \nWednesday\, April 10\, 2024: Registration is closed\, and no other applicants will be accepted. All parts of the online camp application must be complete. \n3. Submit All Paperwork and Medical Forms – \nTuesday\, May 28\, 2024: All camp paperwork must be finalized and medical assessment due – firm deadline. \n4. Confirmation and Registration Fee – \nThursday\, May 30\, 2024: VHF & HACA will email their respective campers and request written confirmation via email response of attendance or camper(s) will be removed from roster. Before removing from roster\, every effort is made to contact families (text\, phone call\, individual follow up email). Registration fee link will be included in this email\, to be collected individually by VHF/HACA. Registration fee is $25 per camper. Registration Fee Deadline is Monday\, June 3\, 2024. \n5. Acceptance Email! \nFriday\, June 7\, 2024: CHT sends welcome email to all campers with confirmed spots. \n\nCHT COVID Vaccination Policy Update: CHT consulted with their Medical Director\, Dr. Ina Stephens and CHT’s Medical Advisory Committee (MAC)\, and they have decided to update their COVID protocols for Summer 2024. CHT will no longer require campers\, staff\, or volunteers to be vaccinated against COVID. They will continue to monitor COVID and community health issues within their region and the impact on medically complex children. They strongly recommend families to speak with their healthcare providers about vaccinating their child against COVID and any other recommended pediatric immunizations. \nPlease rest assured that they will continue to implement rigorous health and safety measures – including enhanced cleaning protocols\, monitoring symptomatic individuals\, and requiring all campers\, staff\, and volunteers to complete a rapid COVID test during check-in on the first day of CYB. The Med Team and year-round staff are well trained to monitor and respond to any potential health concerns and they will remain vigilant in their efforts to create a healthy and secure environment. \nWe understand that this update may raise questions\, and CHT encourages you to reach out to their Director of Programs\, Caitlin Carroll\, MSW at program@campholidaytrails.org.
URL:https://vahemophilia.org/event-program/2024-camp-youngblood-application-process-and-pre-screening-survey/
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240419
DTEND;VALUE=DATE:20240422
DTSTAMP:20260403T135906
CREATED:20240206T021553Z
LAST-MODIFIED:20240402T033747Z
UID:6602-1713484800-1713743999@vahemophilia.org
SUMMARY:COMMUNITY MEMBER REGISTRATION – Annual Meeting in Natural Bridge
DESCRIPTION:RSVP Deadline: Monday\, March 18\, 2024\nVHF’s Annual Meeting brings together the inherited bleeding disorder community to share information on a wide variety of topics and it is a great opportunity for networking and support for individuals and families. \nAnnual Meeting – What To Expect: The event will kick off Friday night with an educational dinner and a family fun movie night. Then we will begin Saturday morning with breakfast and time to visit with our generous industry sponsors to learn about the latest treatments and therapies\, followed by education sessions on topics such as research and innovation\, benefits of Tai Chi and meditation\, Lyman Fisher Scholarship winners recognition\, VHF chapter updates\, and on-site childcare with A Helping Hand and children and teen programming with Camp Holiday Trails. Stay tuned for more information on the Bleeding Disorders Awareness Education Celebration that will take place on Sunday\, April 21st! \nOvernight accommodations at The Natural Bridge Hotel & Conference Center are available on the nights of Friday\, April 19th and Saturday\, April 20th. \nEducational programs\, scheduled meals\, community events\, and Friday & Saturday night overnight accommodations are provided for constituents that live in the VHF coverage area. There is a $25 registration fee per household » Go here to pay your registration fee \n*If you are a constituent that lives outside of the VHF coverage area and you are interested in registering for this meeting\, please email heather@vahemophilia.org for more information. \nFriday\, April 19th – Tentative Schedule (Agenda Coming Soon!): \n7:00 pm Educational Dinner \n8:00 pm Family Friendly Movie \n\nSaturday\, April 20th  \n8:30 am – 10:00 am Breakfast and visit exhibits \n10:00 am – 4:00 pm Education presentations\, visit exhibits\, lunch and snack breaks\, and more! \n4:00 pm Meeting wrap-up \n6:00 pm World Hemophilia Day – Community Event and Dinner \n\nSunday\, April 21st \n8:30 am to 9:30 am Bleeding Disorders Awareness Month Celebration Breakfast at The Natural Bridge Hotel \nTime and Location TBD – Bleeding Disorders Awareness Education Celebration *Community celebration event is optional and is not a part of the annual meeting. \n\nThank you to our current Annual Meeting sponsors – \nPREMIER SPONSORS \n\nCSL Behring\nPfizer\nSanofi\n\nPLATINUM SPONSORS \n\nAccredo\nBayer\nBiomarin\nGenentech\nNovo Nordisk\nTakeda\n\nCORPORATE SPONSORS \n\nBioMatrix\nChildren’s Hospital of The King’s Daughter’s (CHKD) and the University of Virginia’s (UVA) 340B Factor Program\nCottrill’s Pharmacy\nCVS\nDrugCo Health\nOctapharma\nOptum\nSuperior Biologics\nVCU-HTC\n\nFRIEND \n\nHemophilia Alliance\n\n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/community-member-registration-annual-education-meeting-in-natural-bridge/
LOCATION:Natural Bridge Historic Hotel\, 15 Appledore Ln\, Natural Bridge\, VA\, 24578\, United States
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240420T083000
DTEND;TZID=America/New_York:20240420T160000
DTSTAMP:20260403T135906
CREATED:20240206T224145Z
LAST-MODIFIED:20240206T225743Z
UID:6607-1713601800-1713628800@vahemophilia.org
SUMMARY:SPONSORS AND PRESENTERS REGISTRATION - Annual Meeting in Natural Bridge
DESCRIPTION:REGISTER HERE\nWe appreciate your interest and support of our 2024 Annual Meeting\, contact Kelly Waters at kelly@vahemophilia.org or 804-740-8643 for more information about sponsorship. Closer to the date of the event we will send a detailed email to all registered industry supporters and presenters. This email will include the agenda\, booth set up times\, what to bring\, how many people to expect\, etc. \nOvernight accommodations at The Natural Bridge Hotel & Conference Center are available on the nights of Friday\, April 19th and Saturday\, April 20th. \n\nSaturday\, April 20th (Tentative Timeline) \n7:00 am – 8:00 am Exhibit set-up (for those that plan to arrive on Friday\, April 19th there will be time to set-up your exhibit that evening) \n8:30 am – 10:00 am Breakfast and visit exhibits \n10:00 am – 4:00 pm Education presentations\, visit exhibits\, lunch and snack breaks\, and more! \n4:00 pm Meeting wrap-up \n\nPLEASE NOTE: We will not make hotel reservations for speakers\, Industry Agents OR Industry Agents who are Consumers. However\, we do have a room block at The Natural Bridge Hotel & Conference Center and they will extend the group rate of $129. There is a limited number of these rooms and they will be first come first served. If you run into any issues\, please do not hesitate to reach out to heather@vahemophilia.org. \nHow to reserve your room (Room block will close Monday\, March 18th): \nTo reserve over the phone\, please call the hotel at 540-291-2121 and reference the following information: \n\nGroup Name: VHF 2024 Annual Education Meeting\nGroup Code:  041924VHF\nEvent Dates: April 19\, 2024 – April 21\, 2024\n\nTo book online\, please visit the following link: https://naturalbridgeva.com/natural-bridge-va-lodging/ \n\nFor Industry Agents who are Consumers and a VHF Constituent – How to register your family: If your family members plan to attend the meeting go here to register them. As a reminder we still ask that you register yourself as an industry representative and make your own hotel reservation. \nVHF makes every effort to ensure that the members of the bleeding disorders community are always able to make a clear distinction between its own activities and those of Industry. Further\, it is essential that we create beneficial and pressure – free experiences for our community members\, and to protect participants in VHF events and programs. Accordingly\, VHF has developed a set of standards. Go here to read VHF’s Industry Standards. \nThank you for your continued support!
URL:https://vahemophilia.org/event-program/sponsors-and-presenters-registration-annual-meeting-in-natural-bridge/
LOCATION:Natural Bridge Historic Hotel\, 15 Appledore Ln\, Natural Bridge\, VA\, 24578\, United States
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240421T083000
DTEND;TZID=America/New_York:20240421T113000
DTSTAMP:20260403T135906
CREATED:20240207T191254Z
LAST-MODIFIED:20240412T165922Z
UID:6613-1713688200-1713699000@vahemophilia.org
SUMMARY:NATURAL BRIDGE – Bleeding Disorders Awareness Education Celebration
DESCRIPTION:To RSVP email heather@vahemophilia.org \nThe VHF Bleeding Disorders Awareness Education Celebration is an exciting new event that was designed to raise awareness\, increase education\, honor the hard work and dedication in the bleeding disorders community\, and best of all CELEBRATE and enjoy time with friends and family in a unique setting! \nWhat to expect: Check back here soon for more details! \nParticipation is open to those with an inherited bleeding disorder and their immediate family and/or household members who live within VHF territory as well as VHF donors\, volunteers\, friends and extended family. \n\nThank you to our generous sponsors:  \nGOLD SPONSOR\nTakeda \nCORPORATE SPONSORS\nBioMarin\, CSL Behring\, DrugCo Health\, Octapharma\, and Sanofi \nFRIEND SPONSORS\nBioMatrix\, and Cottrill’s Pharmacy \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/natural-bridge-bleeding-disorders-awareness-education-celebration/
LOCATION:Natural Bridge Historic Hotel\, 15 Appledore Ln\, Natural Bridge\, VA\, 24578\, United States
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240518T100000
DTEND;TZID=America/New_York:20240518T120000
DTSTAMP:20260403T135906
CREATED:20240320T004347Z
LAST-MODIFIED:20240326T230352Z
UID:6647-1716026400-1716033600@vahemophilia.org
SUMMARY:NEWPORT NEWS – New Family Support And Education Program
DESCRIPTION:Join VHF and HTC staff for a program for new families! What to Expect: This program is designed to support families of infants and young children who have been diagnosed within the last 7 years with hemophilia and other inherited bleeding disorders with community connection and education. We will gather in a private meeting space for informal education\, lunch\, time for Q&A\, networking with other parents and children\, and free admission to the Virginia Living Museum.This program is designed for VHF constituents (and their immediate family and/or household members only) and there is no fee to attend. \nThank you to our program sponsors: CSL Behring\, Genentech\, VCU-HTC\, and Takeda
URL:https://vahemophilia.org/event-program/newport-news-new-family-support-and-education-program/
LOCATION:Virginia Living Museum\, 524 J. Clyde Morris Blvd.\, Newport News\, Virginia\, 23601
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240620T183000
DTEND;TZID=America/New_York:20240620T200000
DTSTAMP:20260403T135906
CREATED:20240521T163737Z
LAST-MODIFIED:20240617T172023Z
UID:6718-1718908200-1718913600@vahemophilia.org
SUMMARY:*Cancelled* RICHMOND - Educational Dinner
DESCRIPTION:This dinner has been cancelled\, sorry for any inconvience this may have caused! Please email info@vahemophilia.org or call 804-740-8643 if you have any questions.
URL:https://vahemophilia.org/event-program/richmond-educational-dinner-6-financial-tips-for-adults/
LOCATION:The Grapevine\, Greek and Italian Restaurant\, 11055 Three Chopt Road\, Richmond\, VA\, 23233
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240623
DTEND;VALUE=DATE:20240624
DTSTAMP:20260403T135906
CREATED:20240604T170411Z
LAST-MODIFIED:20240611T140434Z
UID:6743-1719100800-1719187199@vahemophilia.org
SUMMARY:Gettin' in the Game Junior National Championship (JNC) - Application Deadline
DESCRIPTION:VHF Nominee Application Deadline: 5:00 pm EST\, Sunday\, June 23\, 2024 \nGettin’ In The Game Junior National Championship (JNC)  \nDate: September 20 – 22\, 2024 \nLocation: Henderson\, Nevada \nWho is eligible:  Children between 7–18 years of age with a bleeding disorder (nominees must be accompanied by a caregiver 25 years of age or older at the event. Due to state and federal laws\, CSL is unable to permit healthcare professionals to attend.) Special consideration will be given to first time attendees\, but all children who have attended in the past are welcome to apply again! \nCost: Free. CSL Behring will sponsor two chapter nominees and one accompanying caregiver for each nominee to participate in the program. This sponsorship will include the coordination and cost of airfare\, ground transportation in Henderson\, Nevada\, and hotel arrangements (attendees will be responsible for transportation to/from their hometown airport). This event is limited to the nominee and one caregiver only. CSL is unable to accommodate additional family members at any JNC related events. \nProgram Description: Developed by CSL Behring\, the Gettin’ in the Game Junior National Championship (JNC) was the first and is currently the only national sports competition designed specifically for the bleeding disorders community. The JNC features accomplished Gettin’ in the Game Athletes who themselves have been diagnosed with a bleeding disorder. Go here to learn more. \nVHF (along with other chapters across the nation) have been given the opportunity to nominate up to two participants\, girls and boys\, each selected for either baseball\, basketball\, golf\, or swimming. Go here to read about Matthew Lee\, one of the 2023 VHF nominees\, who was the national winner in swimming at the 2023 Gettin’ in the Game Junior National Championship (JNC)! \nDuring the JNC program nominees will have the opportunity to:  \n\nChoose from FOUR sports – baseball\, basketball\, golf\, and swimming.\nLearn about the importance of physical fitness in managing a bleeding disorder and receive instructions on proper techniques and good form.\nShow off their abilities in a national competition with fellow nominees from around the country.\nConnect and build relationships with fellow members of the bleeding disorders community.\n\nVHF Nominee Application Process: \n\nFill out the brief application form below.\nThe child applying will need to answer one essay question and provide a heartfelt answer to the question “Why do you love the sport you chose and/or why would you like to attend the JNC?” (Length should be age appropriate and around 1-2 paragraphs.)\nEssays must be original and written solely by the child applying (please\, no parental help writing the essay!)\nSubmit the application and essay by the deadline\, 5:00 pm EST\, Sunday\, June 23\, 2024.\n\nFor an idea of the program expectations go here to read the 2024 JNC nominee information packet. \nIf you have any questions please contact Kelly at info@vahemophilia.org or 804-740-8643.
URL:https://vahemophilia.org/event-program/gettin-in-the-game-junior-national-championship-jnc-application-deadline/
ORGANIZER;CN="Kelly Waters%2C VHF Executive Director":MAILTO:info@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240629T100000
DTEND;TZID=America/New_York:20240629T120000
DTSTAMP:20260403T135906
CREATED:20240327T194131Z
LAST-MODIFIED:20240513T171054Z
UID:6656-1719655200-1719662400@vahemophilia.org
SUMMARY:HAMPTON – Community Event at Sandy Bottom Nature Park
DESCRIPTION:VHF community events are social and educational gatherings that occur throughout the year. These events bring together the Virginia inherited bleeding disorders community and are an excellent opportunity for networking\, support\, increasing knowledge\, and for fun for all ages. These programs are designed for VHF constituents (and their immediate family and/or household members only) lunch will be provided and there is no fee to attend. \nWhat to Expect: A picnic style lunch\, a playground for the kids\, games\, education\, networking with new and old friends\, and plenty of time to enjoy the park (we have reserved the lakeside pavillion shelter). We are also excited to have Tim G.\, a CSL Behring Gettin’ in the Game Athlete\, join us for an informal presenation on how to stay active at every stage of life and then he will lead the group on a trail hike. \nSandy Bottom Nature Park Hampton’s premier park is a 456-acre environmental education and wildlife management facility. Born from borrow pits and garbage dumps\, the park is truly a success story of reclamation of our natural resources. From the 10\,000 square foot nature center overlooking Sandy Bottom Lake to the elusive creatures that inhabit the wetland marshes\, there is something for everyone at Sandy Bottom Nature Park. \nThank you to our sponsors – CSL Behring\, Genentech\, Sanofi\, and Takeda
URL:https://vahemophilia.org/event-program/hampton-community-event-at-sandy-bottom-nature-park/
LOCATION:Sandy Bottom Nature Park\, 1255 Big Bethel Road\, Hampton\, VA\, 23669
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240714
DTEND;VALUE=DATE:20240720
DTSTAMP:20260403T135906
CREATED:20240206T001957Z
LAST-MODIFIED:20240708T134519Z
UID:6592-1720915200-1721433599@vahemophilia.org
SUMMARY:CHARLOTTESVILLE - Camp Youngblood at Camp Holiday Trails
DESCRIPTION:The Virginia Hemophilia Foundation (VHF)\, the Hemophilia Association of the Capital Area (HACA)\, and Camp Holiday Trails (CHT) are teaming up again for Camp Youngblood (CYB) in 2024! \nCamp Youngblood is a week-long overnight camp at CHT for children ages 7-17 with inherited bleeding disorders\, their siblings\, and children of members of the inherited bleeding disorder community that reside within the VHF or HACA coverage area. Kids enjoy a week of fun and learning with others that are faced with similar challenges and life experiences. Go here to learn more about the admission guidelines. \nDates: Sunday\, July 14 – Friday\, July 19\, 2024 \nNEW THIS YEAR: Friday\, July 19\, will be “CYB Family Friday.” Camper families are invited to join in on all the fun starting at 9 a.m. Lunch will be provided by CHT\, and everyone will depart at 2 p.m. During this time\, there will be a mini “family day camp” that will allow campers and their families a glimpse of Camp Magic together! VHF/HACA are looking into providing an overnight stay at a hotel close to CHT on that Thursday\, July 18; in the pre-screening survey\, please let us know if this would be of interest to you and we will be in touch with more details. \nLocation: Camp Holiday Trails\, 400 Holiday Trails Ln\, Charlottesville\, VA 22903 \nOpen Enrollment Application: The Camp Youngblood application process is open enrollment and not first come first served. This will allow VHF\, HACA\, and CHT the chance to review applications and manage the roster according to the application/admission guidelines. *Must adhere to all application deadlines to be considered*  \n» Go here to learn more about the admission guidelines. \n» Go here to learn more about the pre-screening process and to apply  \n\nThank you to our Camp Youngblood sponsors: Bayer\, CSL Behring\, CVS\, Genentech\, Grifols\, Novo Nordisk\, Sanofi\, Takeda\, and VCU-HTC \nThank you to our Camp Youngblood Family Education sponsors: CSL Behring\, Genentech\, Novo Nordisk\, and Takeda
URL:https://vahemophilia.org/event-program/camp-youngblood-at-camp-holiday-trails/
LOCATION:Camp Holiday Trails\, 400 Holiday Trails Lane\, Charlottesville\, VA\, 22903
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240727T173000
DTEND;TZID=America/New_York:20240727T203000
DTSTAMP:20260403T135906
CREATED:20240411T213612Z
LAST-MODIFIED:20240513T171014Z
UID:6680-1722101400-1722112200@vahemophilia.org
SUMMARY:ROANOKE - Community Event Salem Red Soxs Game
DESCRIPTION:VHF community events are social and educational gatherings that occur throughout the year. These events bring together the Virginia inherited bleeding disorders community and are an excellent opportunity for networking\, support\, increasing knowledge\, and for fun for all ages. These programs are designed for VHF constituents (and their immediate family and/or household members only) dinner and tickets to the game will be provided and there is no fee to attend. \nWhat to Expect: A private\, picnic style dinner on The Patio (reserved for our group throughout the game) with an amazing field view\, just feet off of the right field foul line\, education\, networking with new and old friends\, and plenty of time to enjoy the Red Sox game. \nCarilion Clinc Field at the Salem Memorial Ballpark is one of the larger ballparks in the Carolina League and has a gorgeous view of the Blue Ridge Mountains in the distance over the right field wall. This makes Salem Memorial Ballpark one of the best views in Minor League Baseball and giving you a ballgame with a view! \nThank you to our sponsors – CSL Behring\, Genentech\, Sanofi\, and Takeda
URL:https://vahemophilia.org/event-program/roanoke-community-event-at-the-salem-red-soxs-game/
LOCATION:Carilion Clinc Field at the Salem Memorial Ballpark\, 1004 Texas Street\, Salem\, Virginia\, 24153
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240810T183000
DTEND;TZID=America/New_York:20240810T210000
DTSTAMP:20260403T135906
CREATED:20240412T001048Z
LAST-MODIFIED:20240805T160219Z
UID:6684-1723314600-1723323600@vahemophilia.org
SUMMARY:RICHMOND - Community Event Kickers Soccer Game
DESCRIPTION:REGISTRATION IS CLOSED. To be added to the waitlist email heather@vahemophilia.org \nVHF community events are social and educational gatherings that occur throughout the year. These events bring together the Virginia inherited bleeding disorders community and are an excellent opportunity for networking\, support\, increasing knowledge\, and for fun for all ages. These programs are designed for VHF constituents (and their immediate family and/or household members only) tickets to the match will be provided and there is no fee to attend. \nWhat to Expect: Community building with new and old friends\, education\, and plenty of time to enjoy the Richmond Kickers match. \nThank you to our sponsors – CSL Behring\, Genentech\, Sanofi\, and Takeda
URL:https://vahemophilia.org/event-program/richmond-community-event-kickers-soccer-game/
LOCATION:City Stadium\, 3201 Maplewood Ave.\, Richmond\, VA\, 23221\, United States
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240928T083000
DTEND;TZID=America/New_York:20240928T160000
DTSTAMP:20260403T135906
CREATED:20240412T203006Z
LAST-MODIFIED:20240903T160448Z
UID:6686-1727512200-1727539200@vahemophilia.org
SUMMARY:WILLIAMSBURG - Medical Symposium at Great Wolf Lodge
DESCRIPTION:REGISTRATION IS CLOSED. \nThe VHF Medical Symposium will provide consumers with the opportunity to learn more about new and current treatment options\, access to care issues and other medical/health related topics. This program will be held at the conference center at the Great Wolf Lodge (GWL) in Williamsburg. Overnight accommodations are available at Great Wolf Lodge and entrance to the water park is included in your stay (all registrants must attend the Medical Symposium meeting for access to the water park and overnight accommodations.) \nWhat To Expect From The Weekend: \n(Optional) Friday\, September 27th\, 7:30 pm – \n* We will kick off the weekend with a family friendly movie night! Enjoy refreshments and view Redefining Impossible\, a 40-minute documentary following five elite athletes living with  hemophilia – as they share their stories of being told that they couldn’t play because of their condition and still persevering to redefine what’s possible for people living with hemophilia. There will be time for Q&A with the film’s Executive Producer\, Rob Bradford from Believe Limited. \n* If you plan to stay overnight on Friday\, you will be able to access the water park any time after opening on that day and you can check in to your room at 4:00 pm (all Friday activities are optional.)  \nSaturday\, September 28th\, 8:30 am – \n* The day will start with breakfast and time for you to visit with industry sponsors to learn about the latest treatments and therapies. \n* This year’s keynote presentation “Candid Conversations” is a moderated panel discussion that will provide you with a “bird’s eye view” into the real-world experience of both consumers and providers\, the path to shared decision-making\, and how innovative therapies are changing the landscape of the bleeding disorders community and afternoon breakout sessions will give you a small group experience with diagnosis specific content.  \n* On-site childcare and children/teen programming with Camp Holiday Trails will be provided. \n* You do not want to miss the Science Fair Roadshow\, brought to you by Believe Limited\, this inspiring\, larger-than-life\, community-facing exhibit presents teens\, adults\, and families alike with the opportunity to learn about the science behind bleeding disorders by combining the interactivity of a true “science center” exhibit with the visual style of the classic science fairs we all grew up with. \n* Overnight stay for Saturday night is also available so that you and your family can enjoy time with your community and access to the waterpark that evening. \nSunday\, September 29th – \n* There are no scheduled meals or activities. \nImportant Information: \n* Registrants’ place/number on the RSVP list will be determined by our Program Registration Guidelines. \n* This event is open to ALL AGES (not just for families with household members under 18.) To book overnight accommodation for you and/or your family\, at least one member of your group must be age 21+. \n* Overnight accommodation and scheduled meals will be provided at no cost to VHF constituents. There is a $25 registration fee to attend (a link to pay will be sent out after registration closes on August 16th.) \n* All registrants must attend the Medical Symposium meeting for access to the water park and overnight accommodation. \n* Overnight stay on Fri. & Sat. and time at the waterpark are optional\, you are welcome to attend the meeting only. \n* To Be Eligible for a Spot You Must Meet ALL the Following Eligibility Criteria: Have an inherited bleeding disorder\, have a spouse with an inherited bleeding disorder\, or be the parent/caregiver of a child with an inherited bleeding disorder; Live in the VHF coverage area (go here to learn more) and/or location of primary bleeding disorder treatment i.e. Hemophilia Treatment Center (HTC)\, hematologist\, etc. is in the VHF coverage area. \nThank you to our current sponsors! \nSTAR: BioMarin\, CSL Behring\, Novo Nordisk\, Sanofi\, and Takeda \nPREMIER: Genentech \nCORPORATE: Accredo\, Bayer\, BioMatrix\, Cottrill’s Pharmacy\, CVS Health\, DrugCo Health SP\, Hoos at Home\, Kedrion\, Pfizer\, Soleo Health\, and Superior Biologics. \n 
URL:https://vahemophilia.org/event-program/medical-symposium-at-great-wolf-lodge/
LOCATION:Great Wolf Lodge\, 549 E Rochambeau Dr.\, Williamsburg\, VA\, 23188
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241009T180000
DTEND;TZID=America/New_York:20241009T203000
DTSTAMP:20260403T135906
CREATED:20240726T023445Z
LAST-MODIFIED:20240924T173519Z
UID:6788-1728496800-1728505800@vahemophilia.org
SUMMARY:CHARLOTTESVILLE - Educational Dinner
DESCRIPTION:Join us for an educational program for VHF constituents (and their immediate family and/or household members only.) Dinner will be provided and there is no fee to attend. PLEASE NOTE: The physical well-being and exercise component of this program has been canceled. \nEducational Dinner\nTime: 6:00 pm \nLocation: Crozet Pizza 5794 Three Notch’d Rd\, Crozet\, VA 22932 \nThe topic will be: The Joint Movement: Come Together: The Intersection Between Joint Health\, Hemophilia and Joint Pain \nAn interactive workshop focused on the importance of joint health for those living with hemophilia.   \nSpeaker: Nick Cady\, Community Relations & Education Manager\, Sanofi \nThe educational dinner is for VHF constituents of all ages (and their immediate family and/or household members) and there is no fee to attend. \n\n \nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/charlottesville-educational-dinner-and-physical-wellbeing-and-exercise-program/
LOCATION:Crozet Pizza\, 5794 Three Notch'd Rd.\, Crozet\, VA\, 22932
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241017T183000
DTEND;TZID=America/New_York:20241017T200000
DTSTAMP:20260403T135906
CREATED:20240807T145603Z
LAST-MODIFIED:20240807T145603Z
UID:6802-1729189800-1729195200@vahemophilia.org
SUMMARY:CHESAPEAKE – Educational Dinner
DESCRIPTION:Join us for an educational program for VHF constituents (and their immediate family and/or household members only.) Dinner will be provided and there is no fee to attend. \nLocation: Cutlass Grille Restaurant 25 Eden Way N #700\, Chesapeake\, VA 23320 \nThe topic will be: Shared Decision Making \nShared decision making is a partnership between people with hemophilia and their care teams that may help them better manage their condition. This interactive session covers how to take an active role as part of your treatment team\, discuss therapy considerations\, and find quality sources of information. \nSpeaker: Linda L. Pollhammer\, Patient Affairs Liaison\, Pfizer Rare Disease\n \nSpace is sometimes limited and if so\, priority will be given to those members that live within the Hampton Roads region. \nThank you to our sponsor Pfizer.
URL:https://vahemophilia.org/event-program/chesapeake-educational-dinner/
LOCATION:Cutlass Grille\, 725 Eden Way N\, Ste 700\, Chesapeake\, VA\, 23320
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241023T183000
DTEND;TZID=America/New_York:20241023T200000
DTSTAMP:20260403T135906
CREATED:20240807T030050Z
LAST-MODIFIED:20241021T173213Z
UID:6797-1729708200-1729713600@vahemophilia.org
SUMMARY:WINCHESTER – Educational Dinner
DESCRIPTION:Unfortunately\, this educational dinner has been canceled. Please contact info@vahemophilia.org for more information. \nJoin us Wednesday\, October 23rd at 6:30 pm for an educational program for VHF constituents (and their immediate family and/or household members.) Dinner will be provided and there is no fee to attend. \nLocation: IJ Canns American Grille \nThe topic will be: Gene Therapy for Hemophilia \nPresentation on the advances in gene therapy research for hemophilia.Join us for a session which dives into gene therapy for hemophilia\, how it works\, and the goals of gene therapy. \nSpeaker: Betsy Koval\, Patient Resource Navigator\, CSL Behring\n		\n			\n				\n			\n			\n		 \n		\n			Betsy Koval is a Patient Resource Navigator with CSL Behring and will be working with patients who are interested in gene therapy. She has over 15 years of experience in the bleeding disorders community. Betsy has industry experience as a senior clinical educator and in training within learning and development. Prior to that she was the lead pediatric and adolescent transition nurse coordinator at the Hemophilia of Georgia Center for Bleeding and Clotting Disorders at Emory University and Children’s Healthcare of Atlanta. She has presented posters and spoken at regional and national conferences on bleeding disorders and transition of care. She was a certified clinical research coordinator for a multispecialty clinic which supported research for cardiovascular\, diabetic\, pulmonary\, dermatologic and other conditions as well as having worked in critical care and solid organ transplantation in the ICU at Emory University Hospital. Empowering patients\, families and providers with knowledge for improving health is Betsy’s favorite part of her role and she is honored to work within the bleeding disorders community.\n		\n			\n		 \n\nSpace is sometimes limited and if so\, priority will be given to those members that live within the Shenandoah region. \nThank you to our sponsor CSL Behring.
URL:https://vahemophilia.org/event-program/winchester-educational-dinner/
LOCATION:IJ Canns American Grille\, 3111 Valley Ave\, Winchester\, VA\, 22601\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241101
DTEND;VALUE=DATE:20241104
DTSTAMP:20260403T135906
CREATED:20240528T173132Z
LAST-MODIFIED:20241011T151931Z
UID:6724-1730419200-1730678399@vahemophilia.org
SUMMARY:RICHMOND - Adult Retreat Weekend
DESCRIPTION:*Registration is now closed\, email heather@vahemophilia.org to be placed on the wait list. \nHyatt House Richmond/Short Pump11800 West Broad Street Suite 1098\, Henrico\, VA 23233 (located in Short Pump Town Center) \nVHF’s Adult Retreat is a weekend designed for education\, relaxation\, support\, and friendship. This fall retreat is the perfect opportunity for you to learn\, unwind and connect with others who share your experience. Registration will close Thursday\, October 10th. \nEnjoy an (optional) Friday night educational dinner “Cognitive Conversations: Think\, Feel\, Act” and movie screening of On The Shoulders Of Giants\, then on Saturday GutMonkey  facilitator Joe Torrey\, will present their leading Edge Program which will tackle topics like building communities\, teamwork\, getting clued in on current topics in bleeding disorders\, and shared decision making. Joe will have you laughing and making new connections in the community. There will be an (optional) Saturday night educational dinner “Fueling Your Future with Smart Choices” where you will learn healthy eating habits to fuel your body and improve your emotional well-being and we will end the weekend with an educational breakfast “Better Together: Integrating Mind\, Body\, and Joint Health in Bleeding Disorders.” Go here to see the agenda. \n\n		\n			\n				\n			\n			\n		 \n		\n			Presenter: Joe Torrey believes good learning begins with intentional design and a playful approach. With a degree in Outdoor Education and years of professional experience in team building\, summer camp\, and environmental education programs\, Joe crafts and implements experiences to facilitate positive change in communities\, teams\, and mindsets. At GutMonkey\, Joe uses creative design and digital content to empower folks to share their stories.\n		\n			\n		\n  \nPLEASE NOTE: \n\nThe VHF Adult Retreat is designed for VHF constituents age 21 and up with inherited bleeding disorders and/or to adults whose lives are impacted by an inherited bleeding disorder (i.e. caregivers\, spouses\, carriers\, immediate family members – some restrictions do apply) and is not open to individuals employed or compensated by Industry.\nEducational program\, scheduled meals\, and Friday and Saturday night overnight accommodations are provided at no cost for constituents that live in the VHF coverage area. There is a $25 registration fee to attend (a link to pay will be sent out after registration closes on October 11th.)\n\n  \nThank you to our current sponsors: BioMarin\, CSL Behring\, Genentech\, Hoos at Home\, and Takeda
URL:https://vahemophilia.org/event-program/richmond-adult-retreat-weekend/
LOCATION:Hyatt House Richmond / Short Pump\, 11800 W Broad St #1098\, Henrico\, VA\, 23233\, United States
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241107T160000
DTEND;TZID=America/New_York:20241107T180000
DTSTAMP:20260403T135906
CREATED:20240607T162433Z
LAST-MODIFIED:20241029T234359Z
UID:6754-1730995200-1731002400@vahemophilia.org
SUMMARY:VIRTUAL – VHF/HACA Advocacy Stakeholder and Education Meeting
DESCRIPTION:Join community stakeholders within the bleeding disorders community for a virtual education meeting. Stay informed with the latest state and federal advocacy news\, connect with fellow Virginians\, and collaborate on improving the lives of those affected by bleeding disorders. Share experiences\, gain knowledge\, and build a stronger community. Go here to download a copy of our 2025 Advocacy Calendar. \nMEETING AGENDA \nWelcome and Introductions \nAdvocacy From the Perspective of a Legislative Assistant\nLuke Sweeney\, Chief of Staff to Delegate Betsy B. Carr \nVirginia Bleeding Disorders Program Update (VBDP)\nLauren Dunn\, MSW\, Health Insurance Consultant\, Virginia Bleeding Disorders Program AND Erika J. Martin\, MT (ASCP) Program Manager\, Virginia Bleeding Disorders Program \nWhat Can We Expect in the 2025 General Assembly\nBecky Bowers-Lanier\, VHF/HACA Advocacy Consultant \nFederal Update\nMatt Delaney\, Government Relations Manager at National Bleeding Disorder Foundation (NBDF) \nOnce you RSVP you will receive the zoom link separately via email from heather@vahemophilia.org.  \nThank you to our sponsors: Genentech\, NBDF\, Pfizer\, PhRMA\, VCU-HTC\, and Takeda\n \nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/virtual-vhf-haca-advocacy-stakeholder-and-education-meeting-2/
LOCATION:Zoom
ORGANIZER;CN="Kelly Waters%2C VHF Executive Director":MAILTO:info@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241207T160000
DTEND;TZID=America/New_York:20241207T200000
DTSTAMP:20260403T135906
CREATED:20240729T220228Z
LAST-MODIFIED:20241116T230004Z
UID:6790-1733587200-1733601600@vahemophilia.org
SUMMARY:RICHMOND - Winter Gathering - Tacky Lights Bus Tour
DESCRIPTION:REGISTRATION IS FULL – email heather@vahemophilia.org if you would like to be placed on the waiting list. \nVHF invites you to our Annual Winter Gathering – come celebrate the winter season with your bleeding disorders community! We will start the afternoon with holiday refreshements and time to gather with friends and then we will hop on a motor coach for a Tacky Lights Bus Tour of Richmond. A fun tradition that is fun for all ages and a great way to get into the holiday spirit. Please come whether you are young or just young at heart… \nWe will meet for holiday refreshments at 4:00 pm in the community room at the Publix Supermarket located in John Rolfe Commons 2250 John Rolfe Pkwy\, Henrico\, VA 23233 and will board the bus from there. \nThis event is limited to constituents that live within the VHF coverage area and their immediate family and/or household members. There is no fee to attend and space is limited. \nPlease note that this will be the only Winter Gathering of the season. \nThank you to our sponsors: CSL Behring and Takeda
URL:https://vahemophilia.org/event-program/richmond-winter-gathering-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250204
DTEND;VALUE=DATE:20250219
DTSTAMP:20260403T135906
CREATED:20241124T202452Z
LAST-MODIFIED:20250123T233952Z
UID:6872-1738627200-1739923199@vahemophilia.org
SUMMARY:VIRTUAL – Virginia General Assembly Weekly Check In
DESCRIPTION:REGISTER HERE\nJoin VHF & the Hemophilia Association of the Capital Area (HACA) for an informal\, virtual General Assembly check-in. We will gather to get an overview of the past week’s events in the Virginia General Assembly and get insight from our advocacy consultant\, Becky Bowers-Lanier\, on what to look for\, trends and any actions that will need to be taken about proposed legislation of interest to the bleeding disorders community. These check-ins are open to all community members. \nOnce you register you will receive a zoom link separately via email from heather@vahemophilia.org – you will use the same link each week. \nPlease note that these are informal weekly check-ins and if you register you are not required to attend all dates listed – feel free to join us for one session or for all! \nWEEKLY CHECK IN DATES: \nTues.\, Feb 4\, 2025  12:00 – 12:30 PM\nTues.\, Feb 11\, 2025  12:00 – 12:30 PM\nTues.\, Feb 18\, 2025  12:00 – 12:30 PM \nGo here to download 2025 VHF HACA Advocacy Calendar \nThank you to our current sponsor(s): National Bleeding Disorders Foundation (NBDF) and Takeda \n\nAs we gather virtually to discuss\, share and learn\, we ask that all VHF virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff.Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/virtual-virginia-general-assembly-weekly-check-in-3/
LOCATION:Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250116T190000
DTEND;TZID=America/New_York:20250116T200000
DTSTAMP:20260403T135906
CREATED:20241213T031201Z
LAST-MODIFIED:20241213T031355Z
UID:6889-1737054000-1737057600@vahemophilia.org
SUMMARY:VIRTUAL – VHF/HACA Camp Youngblood Information Session
DESCRIPTION:RSVP HERE!\nAre you thinking about sending your child to Camp Youngblood at Camp Holiday Trails (CHT) for the first time in 2025\, have questions\, or would you just like a refresher on the camp experience? Join the Hemophilia Association of the Capital Area (HACA)\, CHT\, and VHF for a virtual information session via Zoom on Thursday\, January 16\, at 7:00 pm to learn more about Camp Youngblood – even if you aren’t quite ready to send your kids this year. \nWhat to expect: Staff from CHT will talk more about camp activities and facilities; longtime Camp Youngblood parents will share their experiences with sending their kids to camp\, and staff from VHF and HACA will be available to answer any additional questions. This virtual session will be a great opportunity to learn more and get all your questions answered in real time! \nCamp Youngblood is a week-long overnight camp at Camp Holiday Trails (CHT) for children ages 7-17 with inherited bleeding disorders\, their siblings\, and children of members of the inherited bleeding disorder community that reside within the VHF or HACA coverage area. \n» Go here to learn more about the Camp Youngblood registration process \n» REGISTER HERE Once you RSVP you will receive the zoom link separately via email from heather@vahemophilia.org. \n\nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/virtual-vhf-haca-camp-youngblood-information-session-2/
LOCATION:Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250121T190000
DTEND;TZID=America/New_York:20250121T200000
DTSTAMP:20260403T135906
CREATED:20240822T202945Z
LAST-MODIFIED:20241217T164231Z
UID:6813-1737486000-1737489600@vahemophilia.org
SUMMARY:VIRTUAL – 2025 Advocacy Education Training
DESCRIPTION:REGISTER HERE\n  \nJoin VHF and the Hemophilia Association of the Capital Area (HACA) for a virtual advocacy education training program that will focus on the 2025 Virginia General Assembly. Join in and hear details about proposed legislation and state policy issues that focus on access to quality healthcare.This training will be in preparation for Richmond Days but you do not have to be registered for Richmond Days to participate. Open to all community members. \nThis session is free and open to anyone interested in learning more about advocacy and how it relates to the Virginia inherited bleeding disorders community. \n» Go here to download the 2025 VHF Advocacy Calendar \nThank you to our current sponsor(s): Takeda  \n\nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. » Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/virtual-2025-advocacy-education-training/
LOCATION:Zoom
ORGANIZER;CN="Kelly Waters%2C VHF Executive Director":MAILTO:info@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250127T090000
DTEND;TZID=America/New_York:20250127T103000
DTSTAMP:20260403T135906
CREATED:20240822T202659Z
LAST-MODIFIED:20250123T235138Z
UID:6811-1737968400-1737973800@vahemophilia.org
SUMMARY:Richmond Days
DESCRIPTION:REGISTER HERE\nRSVP Deadline: Thursday\, January 16\, 2025 \nMonday\, January 27\, 2025: Join VHF and the Hemophilia Association of the Capital Area (HACA) for an opportunity to advocate for policies that improve access to care\, support\, and resources for those living with bleeding disorders. Your voice can directly impact legislation that affects the lives of individuals with bleeding disorders by meeting with your state legislators. Open to all community members. \nWhat to Expect: We will reserve space in the General Assembly building from 9:00 am to 10:30 am and aim to schedule two in-person legislative visits for each participant—one with your State Senate office and one with your State Delegate office. You may be joined by other advocates during these meetings and have opportunities to participate in additional legislative visits. \nSunday\, January 26\, 2025: There will be an optional education dinner and hotel rooms available for VHF/HACA community members at Hampton Inn & Suites Richmond – Downtown 700 East Main Street – Suite A\, Richmond\, Virginia\, 23219. \nWe hope you’ll join us on Tuesday\, January 21\, 2025\, at 6:00 pm for our Virtual Advocacy Education Training where we’ll cover tips for your visits and share our 2025 legislative priorities\, RSVP here. \nThank you to our current sponsor(s): CSL Behring\, Genentech\, National Bleeding Disorders Foundation (NBDF)\, Takeda\, and VCU-HTC
URL:https://vahemophilia.org/event-program/richmond-days-2/
LOCATION:General Assembly Building\, 201 North 9th St.\, Richmond\, 23219\, United States
ORGANIZER;CN="Kelly Waters%2C VHF Executive Director":MAILTO:info@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250215
DTEND;VALUE=DATE:20250217
DTSTAMP:20260403T135906
CREATED:20241213T031610Z
LAST-MODIFIED:20250204T212444Z
UID:6886-1739577600-1739750399@vahemophilia.org
SUMMARY:MONTPELIER - Women’s Retreat Weekend
DESCRIPTION:RSVP HERE!\nRSVP Deadline: Monday\, February 3\, 2025 \nJoin us for a rejuvenating weekend retreat designed to bring together women affected by and connected to inherited bleeding disorders. This special weekend is an opportunity to learn\, grow\, and build lasting connections within a supportive community. Download Agenda Here. \nRetreat Location: This inspiring weekend will be held at the Shalom Retreat Center\, a peaceful and welcoming venue that offers the perfect setting for reflection\, learning\, and connection. Nestled in a serene environment\, the Shalom Retreat Center provides comfortable accommodations\, beautiful surroundings\, and a calm atmosphere that encourages personal growth and community bonding. \nPlease Note: The VHF Women’s Retreat is designed for VHF constituents age 21 and up with inherited bleeding disorders and/or adults whose lives are impacted by an inherited bleeding disorder (i.e. caregivers\, spouses\, carriers\, immediate family members – some restrictions do apply) and is not open to individuals employed or compensated by Industry. \nRegistration Fee: This fee helps cover the retreat costs\, including access to educational programs\, scheduled meals\, and overnight accommodations. Saturday night accommodations will be provided at the Shalom Retreat House. Due to a limited number of rooms\, we encourage attendees to consider sharing a room if possible. Thank you for your understanding and cooperation in helping us make this retreat accessible for everyone! \nPayment: After submitting your RSVP\, you will receive a confirmation email from heather@vahemophilia.org with a link to submit the registration fee. \nDeadline: Registration will close on Monday\, February 3\, 2025 and the registration fee must be paid by Friday\, February 7\, 2025. \nDon’t miss this unique opportunity to connect with others who truly understand. We look forward to seeing you there! \nThank you to our current sponsor(s): CSL Behring\, Genentech\, and Takeda
URL:https://vahemophilia.org/event-program/womens-wellness-retreat/
LOCATION:Shalom House Retreat Center\, 15340 Robert Terrell Rd.\, Montpelier\, VA\, 23192\, United States
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250314
DTEND;VALUE=DATE:20250317
DTSTAMP:20260403T135906
CREATED:20240528T225322Z
LAST-MODIFIED:20250219T184613Z
UID:6733-1741910400-1742169599@vahemophilia.org
SUMMARY:COMMUNITY MEMBERS - Registration for Annual Meeting
DESCRIPTION:RSVP HERE! \nRSVP Deadline: Thursday\, February 20\, 2025\nVHF’s Annual Meeting brings together the inherited bleeding disorder community to share information on a wide variety of topics and it is a great opportunity for networking and support for individuals and families. \nWhat to expect: The event kicks off Friday evening with an educational dinner and time to catch up with friends and family. Saturday begins with breakfast and an opportunity to explore exhibits hosted by our generous industry sponsors\, showcasing the latest treatments and therapies. The day continues with engaging educational sessions\, updates from VHF\, and on-site childcare for ages 0-17 provided by A Helping Hand. \nMarch is Bleeding Disorders Awareness Month: A time to raise awareness\, promote education\, and honor the dedication and achievements of the bleeding disorders community. Join YOUR VHF community to celebrate this meaningful month at our Annual Meeting and again on Sunday\, March 16\, 2025\, for our milestone 50th Anniversary Celebration at Lewis Ginter Botanical Garden. Together\, we’ll learn\, connect\, and create lasting memories in a festive and supportive setting. Don’t forget to check out our exclusive 50th Anniversary merchandise—$1 from every sale supports the creation of VHF’s Sitting Wall\, a serene memorial to honor our community\, which will be unveiled at the celebration. Learn more here. \nOvernight Accommodations: We are pleased to offer overnight accommodations at the Hilton Richmond Hotel & Spa/Short Pump for Friday\, March 14\, and Saturday\, March 15. \nRegistration Fee: There is a $25 registration fee per household and payment instructions will be sent via email after registration closes. This event includes educational programs\, meals\, community activities\, and overnight accommodations for constituents living within the VHF coverage area. \nTentative Schedule:\nFriday\, March 14\n7:00 PM: Educational Dinner \nSaturday\, March 15\n8:30 AM – 9:30 AM: Breakfast and Exhibit Visits\n9:30 AM – 4:00 PM: Educational Presentations\, Exhibit Visits\, Lunch\, Snack Breaks\, and More\n4:00 PM: Meeting Wrap-Up\n6:00 PM: Educational Dinner \nSunday\, March 16\n10:30 AM – 1:00 PM: Celebrate VHF’s 50th Anniversary at the Lewis Ginter Botanical Garden in Richmond *50th Anniversary Celebration event is optional and is not a part of the annual meeting. \nWe can’t wait to see you there for this memorable weekend filled with education\, connection\, and celebration! \nThank you to our current Annual Meeting sponsors: Accredo\, Bayer\, BioMatrix\, Cottrill’s Pharmacy\, CSL Behring\, DrugCo Health\, Genentech\, Hemabiologics\, Novo Nordisk\, Octapharma\, Pfizer\, Sanofi\, Soleo Health\, Superior Biologics\, Takeda\, UVA-HTC\, and VCU-HTC \nRSVP HERE!
URL:https://vahemophilia.org/event-program/richmond-annual-meeting/
LOCATION:Hilton Richmond Hotel & Spa/Short Pump\, 12042 W Broad St\, Richmond\, VA 23233\, Richmond\, VA\, 23233\, United States
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250315T083000
DTEND;TZID=America/New_York:20250315T160000
DTSTAMP:20260403T135906
CREATED:20241213T063348Z
LAST-MODIFIED:20241213T204356Z
UID:6899-1742027400-1742054400@vahemophilia.org
SUMMARY:SPONSORS AND PRESENTERS - Registration for Annual Meeting
DESCRIPTION:Register Here \nWe appreciate your interest and support of our 2025 Annual Meeting\, contact Kelly Waters at kelly@vahemophilia.org or 804-740-8643 for more information about sponsorship. Closer to the date of the event we will send a detailed email to all registered industry supporters and presenters. This email will include the agenda\, booth set up times\, what to bring\, how many people to expect\, etc. \nOvernight accommodations at Hilton Richmond Hotel & Spa/Short Pump are available on the nights of Friday\, March 14th and Saturday\, March 15. Scroll down for more information. \n\nSaturday\, March 15th (Tentative Timeline) \n7:00 am – 8:00 am Exhibit set-up (for those that plan to arrive on Friday\, March14th there may be time to set-up your exhibit that evening) \n8:30 am – 9:30 am Breakfast and visit exhibits \n9:30 am – 4:00 pm Education presentations\, visit exhibits\, lunch and snack breaks\, and more! \n4:00 pm Meeting wrap-up \n\nPLEASE NOTE: We will not make hotel reservations for speakers\, Industry Agents OR Industry Agents who are Consumers. However\, we do have a courtesy room block at Hilton Richmond Hotel & Spa/Short Pump for Friday\, March 14 and Saturday\, March 15 and they will extend the group rate of $179 (does not include taxes and fees). There are a limited number of rooms and they will be first come first served and please be advised that the cut-off date for the room block will be on Thursday\, February 20th\, 2025. \nGo here to book your room online (the link is pre-set for 2 nights please edit your stay if you are only staying for 1)  Booking Link: VHF Annual Meeting \nIf you run into any issues\, please do not hesitate to reach out to the reservation coordinator Jaynec Dickens\, jaynec.dickens@hilton.com\, 804-592-2247. \n\nFor Industry Agents who are Consumers and a VHF Constituent: If your family members plan to attend the annual meeting go here to register them. As a reminder we still ask that you register yourself as an industry representative and make your own hotel reservation. \nVHF makes every effort to ensure that members of the bleeding disorders community are able to make a clear distinction between its own activities and those of Industry. Further\, it is essential that we create beneficial and pressure – free experiences for our community members\, and to protect participants in VHF events and programs. Accordingly\, VHF has developed a set of standards. Go here to read Standards for Industry\, Associated Organizations\, and their Agents. In addition\, VHF is committed to offering programs that are safe and inclusive for all members of the inherited bleeding disorders community. All participants—including attendees\, exhibitors\, vendors\, staff\, volunteers\, and other stakeholders—are expected to adhere to the VHF Event Behavior Guidelines. \nThank you for your continued support! \nRegister Here
URL:https://vahemophilia.org/event-program/sponsors-and-presenters-registration-annual-meeting/
LOCATION:Hilton Richmond Hotel & Spa/Short Pump\, 12042 W Broad St\, Richmond\, VA 23233\, Richmond\, VA\, 23233\, United States
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250316T103000
DTEND;TZID=America/New_York:20250316T133000
DTSTAMP:20260403T135906
CREATED:20240521T115723Z
LAST-MODIFIED:20250226T152507Z
UID:6716-1742121000-1742131800@vahemophilia.org
SUMMARY:RICHMOND - VHF 50th Anniversary Celebration! A Golden Milestone: Honoring Our Past\, Building Our Future
DESCRIPTION:RSVP HERE!\nA Golden Milestone: Honoring Our Past\, Building Our Future. Celebrate 50 Years of the Virginia Hemophilia Foundation (VHF) at the beautiful Lewis Ginter Botanical Gardens! On March 16\, 2025\, everyone is welcome to join us for this special celebration as we come together to honor 50 years of support\, connection\, and progress within our bleeding disorders community. Set against the backdrop of Lewis Ginter’s 50 acres of year-round beauty with themed gardens like the Rose Garden and Cherry Tree Walk\, a children’s area\, and the iconic domed Conservatory\, this celebration offers a perfect space for reflection\, connection\, and inspiration. \nMarch is Bleeding Disorders Awareness Month\, a time to raise awareness\, promote education\, and celebrate the achievements of our community. Join YOUR VHF family for a special 50th Anniversary Celebration at Lewis Ginter Botanical Garden\, where we will come together to connect\, reflect\, and create lasting memories while enjoying great food and the chance to explore exhibit booths from our industry partners. Capture the moment with a caricature artist and photo booth and you do not want to miss our inspiring program\, where we will honor 50 years of support\, advocacy\, and connection\, recognizing the impact of those who created and shaped our mission. \nAt 1:00 PM\, take part in a group walk through the gardens for the first look at the new VHF Sitting Wall. Overlooking the gardens and water\, this peaceful space will feature an engraved memorial plaque\, serving as a tribute to those we have lost\, a celebration of the contributions of so many\, and a lasting symbol of our community’s strength and unity. Wear your favorite VHF T-shirt/sweatshirt or shop our exclusive 50th Anniversary merchandise—$1 from every sale supports the creation of VHF’s Sitting Wall learn more here. After the event\, guests are welcome to continue exploring the gardens. We look forward to celebrating this milestone with you! \nProgram Schedule:\n10:30 AM – 11:15 AM: Guest Arrival\, Refreshments\, Photo Booth\, Caricature Artist\, and Exhibit Tables\n11:15 AM – 11:25 AM: Welcome & Opening Remarks\n11:25 AM – 11:35 AM: Greetings and Recognition Ceremony led by Dawn Rotellini\, NBDF COO\n11:35 AM – 11:40 AM: Moment of Silence led by Don Smith\, VHF Board Member\n11:40 AM – 12:00 PM: “Honoring Our Past” – Reflections from past leaders and contributors\n12:00 PM – 12:10 PM: “Celebrating Our Present” – Keynote by Phil Gattone\, NBDF CEO\n12:10 PM – 12:25 PM: “Building Our Future” – Closing Remarks\n12:25 PM – 1:00 PM: Networking\, Refreshments\, Entertainment\, Exhibit Tables\, Walk to Sitting Wall \nThe event is free to attend\, and casual dress is encouraged\, but we kindly ask that you register in advance here. If you have any questions contact Kelly Waters at info@vahemophilia.org or 804-740-8643. \nThank you to our current sponsor(s): Accredo\, Bayer\, DrugCo Health\, Genentech\, Novo Nordisk\, Optum\, Pfizer\, Takeda\, and UVA Hemophilia Treatment Center \nVHF Behavior Guidelines: VHF is committed to offering programs that are safe and inclusive for all members of the inherited bleeding disorders community. All participants—including attendees\, exhibitors\, vendors\, staff\, volunteers\, and other stakeholders—are expected to adhere to the VHF Event Behavior Guidelines.
URL:https://vahemophilia.org/event-program/virginia-hemophilia-foundation-vhf-50th-anniversary-celebration/
LOCATION:Lewis Ginter Botanical Garden\, 1800 Lakeside Ave.\, Richmond\, Virginia\, 23228
ORGANIZER;CN="Kelly Waters%2C VHF Executive Director":MAILTO:info@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250404
DTEND;VALUE=DATE:20250405
DTSTAMP:20260403T135906
CREATED:20241213T042625Z
LAST-MODIFIED:20250131T173946Z
UID:6891-1743724800-1743811199@vahemophilia.org
SUMMARY:APPLICATION DUE: VHF Travel Grant for NBDF Bleeding Disorders Conference
DESCRIPTION:VHF Travel Grants to National Meetings: The Virginia Hemophilia Foundation (VHF) is pleased to offer Travel Grants to attend national meetings as part of the Terry Lamb Enrichment Scholarship. National meetings enable our community to come together and exchange information on treatment and technology. Click here to learn more about the Terry Lamb Enrichment Scholarship program. \nNational Bleeding Disorders Foundation (NBDF) Bleeding Disorders Conference (BDC) features educational sessions\, industry symposia\, networking and social events\, and exhibits. A lineup of dynamic speakers who provide essential information and insights on the evolving landscape in this exciting new era of treatment for hemophilia\, von Willebrand disease\, and rare bleeding disorders. Go here to learn more about NBDF BDC. \nMeeting Dates: August 21 – 23\, 2025 \nMeeting Location: Aurora-Denver\, CO \nVHF travel grant deadline:5:00 pm\, Friday\, April 4\, 2025 \nGo here to apply online via JotForm.\nGo here to download the PDF version of the application.
URL:https://vahemophilia.org/event-program/application-due-vhf-travel-grant-for-nbdf-bleeding-disorders-conference/
ORGANIZER;CN="Kelly Waters%2C VHF Executive Director":MAILTO:info@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250417T183000
DTEND;TZID=America/New_York:20250417T200000
DTSTAMP:20260403T135906
CREATED:20250312T191230Z
LAST-MODIFIED:20250415T183302Z
UID:6989-1744914600-1744920000@vahemophilia.org
SUMMARY:WILLIAMSBURG - World Hemophilia Day 2025 "One Family" Program
DESCRIPTION:THIS EVENT IS NOW FULL – Please email heather@vahemophilia.org to be put on the wait list. Thanks!\nYou’re invited to a World Hemophilia Day Event!\nSanofi’s 2025 One Family program will focus on the innate ties that bind the bleeding disorders community. This family friendly event will explore shared experiences\, how to forge deeper relationships\, and how the power of connection uplifts everyone. \nWho: This VHF Educational Dinner is tailored for individuals and families of all ages affected by inherited bleeding disorders who are VHF constituents and their family and/or household members. \nWhat: An interactive and educational event\, where you will receive helpful information that will foster a sense of connection within the global hemophilia community in recognition of World Hemophilia Day 2025! There will be activities such as beaded bracelet making\, instant camera selfie stations\, DIY photo frames\, and photo prop crafts. After the education session there will be plenty of time for discussion\, catching up\, and enjoying time with your family and friends! Dinner will be provided and there is no fee to attend. \nWhere: Thai Tara Sushi 240 Mclaws Circle Unit 117\, Williamsburg\, VA 23185 – Serving Thai food\, Japanese Hibachi\, Sushi\, and more!\n \nWhen: Thursday\, April 17th – World Hemophilia Day! \nThank you to our sponsor Sanofi.
URL:https://vahemophilia.org/event-program/williamsburg-world-hemophilia-day-2025-one-family-program/
LOCATION:Thai Tara Sushi\, 240 Mclaws Circle Unit 117\, Williamsburg\, VA\, 23185\, United States
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250423
DTEND;VALUE=DATE:20250424
DTSTAMP:20260403T135906
CREATED:20250328T173059Z
LAST-MODIFIED:20250425T130110Z
UID:7005-1745366400-1745452799@vahemophilia.org
SUMMARY:APPLICATION DUE: Camp Youngblood at Camp Holiday Trails
DESCRIPTION:Application Closed Wednesday\, April 23\, 2025 \nThe Virginia Hemophilia Foundation (VHF)\, the Hemophilia Association of the Capital Area (HACA)\, and Camp Holiday Trails (CHT) are excited to partner once again for Camp Youngblood (CYB) — a week-long overnight camp designed just for kids in our inherited bleeding disorders community! \n\nAbout Camp Youngblood\n📅 Dates: Sunday\, July 13 – Friday\, July 18\, 2025📍 Location: Camp Holiday Trails\, 400 Holiday Trails Ln\, Charlottesville\, VA 22903 \nCamp Youngblood is open to children ages 7–17 who: \n\nHave an inherited bleeding disorder\nAre siblings of a child with an inherited bleeding disorder\nAre children of members of the inherited bleeding disorder community\n\nAll campers must reside within the VHF or HACA coverage areas. \nKids will enjoy a week of fun\, connection\, and growth—surrounded by peers who understand their challenges and experiences. Learn more about the 2025 Camp Youngblood admission guidelines. \n\nHow to Apply\nStep 1: Pre-Screening SurveyAll applicants\, including returning campers\, must complete a short pre-screening survey. This helps determine eligibility. \nYou will be notified of your eligibility within one week by VHF or HACA. \nStep 2: Camp ApplicationIf eligible\, you’ll receive a link to the official Camp Youngblood application\, managed by Camp Holiday Trails. \nCost: $25 registration fee per child \n\nImportant Deadlines\nApplication Closed Wednesday\, April 23\, 2025All Paperwork & Medical Assessments Due: Friday\, June 6\, 2025Welcome Emails Sent to Confirmed Campers: Friday\, June 13\, 2025 \n\nCamp Youngblood operates on open enrollment—not first come\, first served. Applications are reviewed carefully based on the admission guidelines\, so please ensure all deadlines are met to be considered. \n\nThank You to Our 2025 Sponsors\nNovo Nordisk\, Pfizer\, Takeda\, and VCU-HTC
URL:https://vahemophilia.org/event-program/application-due-camp-youngblood-at-camp-holiday-trails/
END:VEVENT
END:VCALENDAR