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X-WR-CALDESC:Events for Virginia Bleeding Disorders Foundation
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DTSTART;TZID=America/New_York:20211118T190000
DTEND;TZID=America/New_York:20211118T200000
DTSTAMP:20260405T180624
CREATED:20210714T155355Z
LAST-MODIFIED:20211013T145920Z
UID:5562-1637262000-1637265600@vahemophilia.org
SUMMARY:Virtual Community Retreat - Paint Night
DESCRIPTION:» RSVP HERE BY NOVEMBER 5TH! \nJoin VHF for a highly interactive and engaging evening of virtual community connection and a family-friendly paint night. Painting is a great way to help pass the time and cope with stress so bring your creativity and a willingness to learn and you will paint a fall themed painting you’ll be proud to display in your home! \nPaint Night Activity – What To Expect: Enjoy all the fun and interaction of a paint night event from the safety of your home. \n\nEvent will be held on the zoom platform and led by Been Creative\nRegister by November 5th and you will receive in the mail: Paint\, paintbrushes\, an 11”x14” canvas (pre-sketched with a fall themed design)\, an apron and a tabletop easel. Thanks to Colburn-Keenan Foundation for sponsoring this piece of the event.\n\n This session is free and open to VHF constituents\, any participant under the age of 12 will need adult supervision to participate. \n\n» Please go here to view our Virtual Community Retreat Electronic Program This program is one way our generous sponsors can virtually connect with the community by providing links to their electronic resources\, brochures\, websites\, social media sites and more! \nWe could not provide this important event without the help of our generous sponsors.\nHemophilia Federation of America (HFA)\nPremier Sponsors: Hoos at Home and Takeda\nCorporate Sponsors: Bayer\, BioMarin\, CSL Behring\, CVS Health\, Genentech\, Novo Nordisk\, Octapharma\, and Sanofi Genzyme \n\nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement. \n\n» RSVP HERE BY NOVEMBER 5TH!
URL:https://vahemophilia.org/event-program/community-retreat/
LOCATION:Zoom
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20211204T140000
DTEND;TZID=America/New_York:20211204T150000
DTSTAMP:20260405T180624
CREATED:20211006T031607Z
LAST-MODIFIED:20211118T202822Z
UID:5821-1638626400-1638630000@vahemophilia.org
SUMMARY:Virtual Winter Gathering
DESCRIPTION:» RSVP HERE BY NOVEMBER 22ND\n\nJoin VHF and your bleeding disorders community for some virtual holiday cheer! \nWhat to Expect – There will be all-ages ornament decorating led by Michelle Stielper\, Regional Care Coordinator – Biomatrix\, (ornament kits will be shipped directly to attendees) and you will not want to miss everyone’s favorite game show host\, Shelby Smoak\, Ph.D.\, Advocate & Education Specialist – BioMatrix\, in a holiday themed trivia game. Test your holiday and bleeding disorders knowledge in this spirited\, interactive event. There will be education\, gift cards (Thanks to Colburn-Keenan Foundation)\, special guests from the north pole\, banter\, jests\, and endless fun. Laughs are a must! Please join and share in the holiday spirit. \nThis free virtual event will give you a chance to experience community connection from the comfort of your home. Great for individuals and families and designed for all ages to enjoy (open to VHF constituents\, any constituent under the age of 12 will need adult supervision to participate.) \n\nThank you to our generous sponsors: Bayer\, BioMatrix\, CSL Behring\, Hemophilia Federation of America (HFA)\, Hoos at Home\, Novo Nordisk\, and Takeda \n» Please go here to view our Virtual Sponsor Program This program is one way our generous sponsors can virtually connect with the community by providing links to their electronic resources\, brochures\, websites\, social media sites and more! \n\nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF)virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement. \n\n» RSVP HERE BY NOVEMBER 22ND \n 
URL:https://vahemophilia.org/event-program/virtual-winter-gathering-2/
LOCATION:Zoom
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220117T190000
DTEND;TZID=America/New_York:20220117T200000
DTSTAMP:20260405T180624
CREATED:20211116T193321Z
LAST-MODIFIED:20220125T142452Z
UID:5859-1642446000-1642449600@vahemophilia.org
SUMMARY:VHF & HACA Virtual Advocacy Education Meeting
DESCRIPTION:» RSVP HERE\n\nJoin VHF & HACA for a virtual advocacy education program on Martin Luther King Jr. Day\, our traditional date for our annual advocacy day. This program will focus on the 2022 General Assembly. Join in and hear details from advocacy consultant\, Becky Bowers-Lanier\, about proposed legislation of interest to the bleeding disorders community\, its partners and other stakeholders. You will also learn more about the VHF/HACA legislative updates that will occur weekly via zoom during the 2022 General Assembly session and how you might be able to get more involved. \nThis session is free and open to anyone interested in learning more about advocacy and how it relates to the Virginia inherited bleeding disorders community. \n\nThank you to our sponsors: Genentech\, National Hemophilia Foundation (NHF)\, Pfizer\, and Takeda. \n» Please go here to view our Virtual Sponsor Program This program is one way our generous sponsors can virtually connect with the community by providing links to their electronic resources\, brochures\, websites\, social media sites and more! \n\nAs we gather virtually to discuss\, share and learn\, we ask that all VHF virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/vhf-haca-virtual-advocacy-education-meeting/
LOCATION:Zoom
CATEGORIES:advocacy,education,virtual chat
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220125
DTEND;VALUE=DATE:20220309
DTSTAMP:20260405T180624
CREATED:20211116T185334Z
LAST-MODIFIED:20220315T154510Z
UID:5856-1643068800-1646783999@vahemophilia.org
SUMMARY:HACA/VHF General Assembly Weekly Check-In
DESCRIPTION:» REGISTER HERE\n\nJoin HACA and VHF for a quick weekly General Assembly check-in. We will gather to get an overview of the past week’s events in the Virginia General Assembly and get insight from our advocacy consultant\, Becky Bowers-Lanier\, on what to look for\, trends and any actions that will need to be taken about proposed legislation of interest to the bleeding disorders community. \nWhen you register you will receive an email with a re-occurring zoom link that you can use for all of the weekly check-ins on Tuesdays at 4:30 pm (EST). \nJan 25\, 2022 4:30 PM\nFeb 1\, 2022 4:30 PM\nFeb 8\, 2022 4:30 PM\nFeb 15\, 2022 4:30 PM\nFeb 22\, 2022 4:30 PM\nMar 1\, 2022 4:30 PM\nMar 8\, 2022 4:30 PM \nThis session is free and open to VHF constituents\, any constituent under the age of 12 will need adult supervision to participate. \nThank you to our advocacy sponsor Takeda. \n\nAs we gather virtually to discuss\, share and learn\, we ask that all VHF virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/haca-vhf-general-assembly-weekly-check-in/
LOCATION:Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220127T190000
DTEND;TZID=America/New_York:20220127T200000
DTSTAMP:20260405T180624
CREATED:20211116T204521Z
LAST-MODIFIED:20211208T235725Z
UID:5861-1643310000-1643313600@vahemophilia.org
SUMMARY:Virtual Education Session - Keeping and Maintaining Health Insurance During Uncertain Times
DESCRIPTION:» RSVP HERE\n\nTopic: Keeping and Maintaining Health Insurance During Uncertain Times \nGet your insurance questions answered and learn more about:\nPrior authorizations – commercial plans and documentation required for initial authorization/reauthorizations.\nMedicare eligibility and Medigap enrollment.\nAdditional protections under the Build Back Better infrastructure bill. \nSpeaker: Lynne M. Szott\, RN\, RMC\, CCM\, Senior Manager\, Reimbursement & Access\, CSL Behring\n \nThank you to our sponsor CSL Behring \n\nThis session is free and open to VHF constituents. \nAs we gather virtually to discuss\, share and learn\, we ask that all VHF virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/virtual-education-session-keeping-and-maintaining-health-insurance-during-uncertain-times/
LOCATION:Zoom
CATEGORIES:advocacy,education,virtual chat
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220129T160000
DTEND;TZID=America/New_York:20220129T170000
DTSTAMP:20260405T180624
CREATED:20220111T184003Z
LAST-MODIFIED:20220111T184003Z
UID:5904-1643472000-1643475600@vahemophilia.org
SUMMARY:Virtual Teen Advocacy Event: Self-Advocacy for Teens
DESCRIPTION:» RSVP HERE\n\nTopic: Self-Advocacy for Teens \nThis highly interactive advocacy program explains the different types of advocacy and engages participants in conversations about self-advocacy. Participants will problem solve situations that can occur at the doctor’s\, at school\, at work\, and will work through other real world scenarios related to self-advocacy for persons with a bleeding disorder. This is a great opportunity to get your teen thinking about how they can talk about their bleeding disorder. \nSpeaker: Shelby Smoak\, Ph.D.\, Advocate and Education Specialist\, BioMatrix\n \nThank you to our teen advocacy event sponsors:  BioMatrix\, CSL Behring and Takeda \n\nThis program is free and for teens age 13–17 who live within HACA/VHF territory and meet one of the following criteria: Have a bleeding disorder\, are the sibling of someone with a bleeding disorder and/or have a parent/caregiver with a bleeding disorder. Each session must be signed up for individually\, you do not have to sign up for all in order to participate. \nAs we gather virtually to discuss\, share and learn\, we ask that all VHF virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/virtual-teen-advocacy-event-self-advocacy-for-teens/
LOCATION:Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220210T190000
DTEND;TZID=America/New_York:20220210T200000
DTSTAMP:20260405T180624
CREATED:20211213T221411Z
LAST-MODIFIED:20220210T190157Z
UID:5891-1644519600-1644523200@vahemophilia.org
SUMMARY:Virtual Education & Community Craft Night "No Sew Pillows"
DESCRIPTION:RSVP HERE \n  \nJoin VHF for a highly interactive and engaging evening of virtual community connection and education at our family-friendly craft night. Learn how crafting is a great way to help pass the time and cope with stress. So bring your creativity and a willingness to learn and you will make a “No Sew Pillow” there will be two patterns to choose from\, either a Valentines themed heart shaped pillow or recycle a favorite t-shirt into a square throw pillow! The possibilities are endless. \nWhat to Expect – There will be a virtual\, guided\, and simple no sew pillow making instruction led by Michelle Stielper\, Regional Care Coordinator\, BioMatrix. You should have most materials on-hand (think scissors\, old t-shirt) and VHF will be in touch closer to the event to make sure you have anything else that you need to participate. You will not want to miss everyone’s favorite DJ\, Shelby Smoak\, Ph.D.\, Advocate & Education Specialist – BioMatrix\, in a Valentine themed music trivia game! \nThis free virtual event will give you a chance to experience community connection and education from the comfort of your home. Great for individuals and families and designed for all ages to enjoy (open to VHF constituents\, any constituent under the age of 12 will need adult supervision to participate.) \nThank you to our sponsors: BioMatrix\, CSL Behring\, Genentech\, and Takeda \n\nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF)virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement. \n  \n 
URL:https://vahemophilia.org/event-program/5891/
LOCATION:Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220220T160000
DTEND;TZID=America/New_York:20220220T170000
DTSTAMP:20260405T180624
CREATED:20211214T202749Z
LAST-MODIFIED:20211214T210812Z
UID:5896-1645372800-1645376400@vahemophilia.org
SUMMARY:Virtual Education and Connection - Spark Your Curiosity Escape Room
DESCRIPTION:RSVP HERE \nSpark your curiosity and join us in playing an exciting virtual adventure! Unlock the science of gene therapy research… before time runs out! \nAn interactive educational program sponsored by Spark® Therapeutics in collaboration with VHF. If you like escape rooms\, puzzles\, and teamwork\, this is one event you don’t want to miss. Join a team to journey through a quest in this virtual adventure\, where solving each clue gets you one step closer to unlocking the science of gene therapy research. Time is ticking… so sign up today! \nThis free virtual event will give you a chance to experience community connection and education from the comfort of your home. Great for individuals and families and designed for all ages to enjoy (open to VHF constituents\, any constituent under the age of 12 will need adult supervision to participate.) \nThank you to our sponsors: Spark® Therapeutics \n\nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF)virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/virtual-education-and-connection-spark-your-curiosity-escape-room/
LOCATION:Zoom
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220301
DTEND;VALUE=DATE:20220303
DTSTAMP:20260405T180624
CREATED:20211213T204229Z
LAST-MODIFIED:20211213T211518Z
UID:5885-1646092800-1646265599@vahemophilia.org
SUMMARY:National Hemophilia Foundation (NHF) Washington Days
DESCRIPTION:RSVP HERE\nNHF’s Washington Days is an opportunity for people affected by inherited blood disorders to advocate for issues that are important to them. In 2021\, Washington Days had more than 400 volunteer advocates from 44 states that met with legislators and staff to discuss federal funding for bleeding disorder programs and support policies that increase affordability of coverage and access to care. \nWashington Days 2022 will be an entirely virtual experience. NHF is closely monitoring various legislative and policy opportunities as they prepare for their event in March. The issues and priorities for Washington Days 2022 will be announced at the start of the new year. » Go here to learn more
URL:https://vahemophilia.org/event-program/national-hemophilia-foundation-nhf-washington-days/
LOCATION:Virtual
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220301T235900
DTEND;TZID=America/New_York:20220301T235900
DTSTAMP:20260405T180624
CREATED:20220221T165534Z
LAST-MODIFIED:20220221T165534Z
UID:5945-1646179140-1646179140@vahemophilia.org
SUMMARY:HFA Symposium Travel Grant - Application Due Date
DESCRIPTION:VHF is pleased to offer travel grants to attend national meetings. National meetings enable our community to come together and exchange information on a wide variety of topics\, from the basics of diagnosis to the most relevant developments in treatment and technology. If applying for travel assistance for a national meeting typical award amounts depend on the availability of travel scholarships offered by the national organization. See below to learn more and contact VHF at 804-740-8643 or info@vahemophilia.org if you have any questions.  \nMeeting: Hemophilia Federation of America (HFA) Symposium\nThis beloved family event has become known as a national “family reunion” for the bleeding disorders community\, allowing community members\, their families and caregivers to come together for camaraderie and education. HFA is excited to host their first in-person Symposium since 2019. They know everyone is not comfortable traveling just yet so some sessions\, such as the keynote presentations\, will have an online component. » Go here to learn more \nWhen: April 20-23\, 2022 \nWhere: San Antonio\, TX (with virtual options) \n» RSVP HERE \n\nHFA Symposium Scholarship: VHF Terry Lamb Enrichment Scholarship awards can be used to cover travel costs for the HFA Symposium. Typical award amounts are in the range of $250 – $500 per person (not to exceed $1\,000 per family). Application Deadline: 11:59 pm (EST)\, Tuesday\, March 1\, 2022 \nHFA offers a scholarship that will cover the cost of your hotel room stay (one (1) hotel room for up to four (4) nights). To apply\, you must first register for the HFA Symposium and then a link to the scholarship information will be found in your confirmation email. Scholarships are based on financial need and first-time attendees of Symposium will be given priority. Previous attendees of Symposium will be considered dependent upon space and availability. The HFA scholarship is on a first come\, first-serve basis so apply soon. For more information about the HFA Symposium scholarship go here.
URL:https://vahemophilia.org/event-program/hfa-symposium-travel-grant-application-due-date/
LOCATION:VA
CATEGORIES:education
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220313T160000
DTEND;TZID=America/New_York:20220313T170000
DTSTAMP:20260405T180624
CREATED:20220119T200206Z
LAST-MODIFIED:20220310T152627Z
UID:5907-1647187200-1647190800@vahemophilia.org
SUMMARY:Ages and Stages: Early Childhood
DESCRIPTION:RSVP HERE\n \nJoin VHF\, HTC staff and mentor families for a virtual program for new families! This program is designed to support families of infants and young children with hemophilia and other inherited bleeding disorders ages 0-10 with community connection and education. This program is free and open to VHF constituents. \nTopic: Ages and Stages: Early Childhood (Ages 0-10) \nThis virtual session will help parents better understand what they can expect behaviorally and emotionally throughout the early years of childhood. Child development\, temperament\, common mood and behavior problems and parenting strategies will be discussed. The session will include some bleeding disorder specific information\, for example\, when a child can start to self-infuse from a behavioral standpoint not a medical standpoint\, how (hemophilia) treatments progress with age\, and the prevalence of anxiety and other behavioral challenges among children with bleeding disorders.  \nPresenter: Juliana S. Bloom\, Ph.D.\, Pediatric Neuropsychologist at The Levin Center \n		\n			\n				\n			\n			\n		 \n		\n			Juliana S. Bloom\, Ph.D. is a licensed psychologist and pediatric neuropsychologist based in Orlando\, Florida. Dr. Bloom currently provides assessment\, therapy\, and consultation services. Dr. Bloom received her B.A. summa cum laude from Emory University and her Masters of Education and doctoral degrees from the University of Georgia. While at UGA\, she conducted clinical research on the neurobiological basis of dyslexia and ADHD. Dr. Bloom completed her internship and postdoctoral fellowship at the Children’s Hospital of Philadelphia\, where she worked with children and adolescents with complex medical and neurological illnesses\, including stroke\, epilepsy\, brain tumors\, cancer\, and traumatic brain injury\, among others. Dr. Bloom’s areas of clinical interest include dyslexia\, ADHD\, neuropsychological outcome and school re-entry following acquired brain injury and medical illness\, medical traumatic stress in patients and families\, and pediatric stroke. She is the author of seven peer reviewed journal articles\, five invited book chapters\, and more than 40 conference presentations. She is a member of the American Psychological Association and the International Neuropsychological Society. She loves spending her free time with her husband and two children.\n		\n			\n		 \nThis education program is presented in partnership with Hemophilia Federation of America (HFA). \nThank you to our New Family Education and Support Sponsors Genentech and Takeda. \n\nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/new-family-education-and-support-ages-and-stages-early-childhood/
LOCATION:Zoom
CATEGORIES:community,education,New Families,virtual
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220321T235900
DTEND;TZID=America/New_York:20220321T235900
DTSTAMP:20260405T180624
CREATED:20220221T170343Z
LAST-MODIFIED:20220315T171338Z
UID:5950-1647907140-1647907140@vahemophilia.org
SUMMARY:NHF Bleeding Disorders Conference Travel Grant - Application Due Date
DESCRIPTION:VHF is pleased to offer travel grants to attend national meetings. National meetings enable our community to come together and exchange information on a wide variety of topics\, from the basics of diagnosis to the most relevant developments in treatment and technology. If applying for travel assistance for a national meeting typical award amounts depend on the availability of travel scholarships offered by the national organization. See below to learn more and contact VHF at 804-740-8643 or info@vahemophilia.org if you have any questions.  \nNHF Bleeding Disorders Conference Scholarship: VHF Terry Lamb Enrichment Scholarship awards can be used to cover travel costs (airfare/mileage/train or bus ticket)\, hotel accommodations\, and meeting registration fees for the NHF Bleeding Disorders Conference. Not to exceed a total of $2\,000 per family. You will be responsible for all meals and other incidentals. Application Deadline Extended: 11:59 pm (EST)\, Monday\, March 21\, 2022 \n» APPLY HERE \n\nNHF’s BDC features educational sessions\, poster abstract presentations\, industry symposia\, networking and social events\, and exhibits. A lineup of dynamic speakers who provide essential information and insights on the evolving landscape in this exciting new era of treatment for hemophilia\, von Willebrand disease\, and rare bleeding disorders. To end the conference\, the NHF Awards Ceremony recognizes outstanding leaders of the bleeding disorders community whose achievements and contributions have helped transform treatment and care. » Go here to learn more \nWhen: August 25-27\, 2022 \nWhere: Houston\, TX (For those that cannot join NHF in Houston\, they will also be offering a virtual component.) \n» RSVP HERE
URL:https://vahemophilia.org/event-program/nhf-bleeding-disorders-conference-travel-grant-application-due-date/
LOCATION:VA
CATEGORIES:education
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220327T103000
DTEND;TZID=America/New_York:20220327T130000
DTSTAMP:20260405T180624
CREATED:20220204T195836Z
LAST-MODIFIED:20220323T161623Z
UID:5921-1648377000-1648386000@vahemophilia.org
SUMMARY:Community Event and Bleeding Disorders Awareness Month Celebration at Topgolf
DESCRIPTION:RSVP HERE BY MARCH 11TH\n  \nGet active with your bleeding disorders community and celebrate Bleeding Disorders Awareness Month! Join VHF on Sunday\, March 27th for education\, celebration\, community building and opportunities to enhance health and fitness at Topgolf. We look forward to exploring how you can take charge of your bleeding disorder and life\, while having fun learning about the game of golf. \nEvent is free – lunch and two hours of golf will be provided. Participation is limited to those with an inherited bleeding disorder and their immediate family and/or household members who live within VHF territory. Gas cards will be available on the day of the event if needed. Don’t let the rising gas prices keep you away! \nWith special guest Perry Parker! \n		\n			\n				\n			\n			\n		 \n		\n			Since as far back as he can remember\, Perry has known two things: he has hemophilia\, and he would be a pro golfer. Perry’s parents always encouraged him to pursue his interests. For Perry\, this led to a professional golf career\, including more than 30 professional tournament wins\, playing numerous international tours\, and founding and continued involvement with the CSL Behring Gettin’ in the Game℠ Junior National Championship. Perry wants others to know that bleeding disorders do not have to be a game changer\, and he has lots of tips to share on how to make dreams come true.\n		\n			\n		 \n\nVHF asks that all in-person event attendees be fully vaccinated against COVID-19 in the effort to help stop the spread of COVID-19. Please consider that many of our members face unique health challenges. VHF will not require that any attendees submit proof of vaccination but will rely on the honor system. VHF will continue to follow federal\, state\, and local health official guidance for all in-person event safety guidelines. As changes to these guidelines are possible\, please contact VHF at 804-740-8643 or info@vahemophilia.org if you have questions or concerns or to confirm event details. \n» Go here to read full VHF COVID-19 Safety Guidelines for In-Person Events \n\nThank you to our generous sponsors: Bayer\, BioMatrix\, CSL Behring\, Genentech\, Medexus\, Novo Nordisk\, Octapharma\, Optum\, Pfizer\, Spark Therapeutics\, SuperBiologics\, and Takeda
URL:https://vahemophilia.org/event-program/community-event-and-bleeding-disorders-awareness-month-celebration-at-topgolf/
LOCATION:Topgolf Richmond\, 2308 Westwood Ave\, Richmond\, Virginia\, 23230
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220420
DTEND;VALUE=DATE:20220424
DTSTAMP:20260405T180624
CREATED:20220221T170007Z
LAST-MODIFIED:20220221T170007Z
UID:5947-1650412800-1650758399@vahemophilia.org
SUMMARY:Hemophilia Federation of America (HFA) Symposium
DESCRIPTION:This beloved family event has become known as a national “family reunion” for the bleeding disorders community\, allowing community members\, their families and caregivers to come together for camaraderie and education. HFA is excited to host their first in-person Symposium since 2019. They know everyone is not comfortable traveling just yet so some sessions\, such as the keynote presentations\, will have an online component. » Go here to learn more \nWhen: April 20-23\, 2022 \nWhere: San Antonio\, TX (with virtual options) \n» RSVP HERE
URL:https://vahemophilia.org/event-program/hemophilia-federation-of-america-hfa-symposium/
LOCATION:San Antonio Marriott Rivercenter\, 101 Bowie Street\, San Antonio\, Texas\, 78205
CATEGORIES:education
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220428T183000
DTEND;TZID=America/New_York:20220428T193000
DTSTAMP:20260405T180624
CREATED:20220330T175627Z
LAST-MODIFIED:20220413T173936Z
UID:5965-1651170600-1651174200@vahemophilia.org
SUMMARY:Education + Connection "Gratitude Nation"
DESCRIPTION:THIS PROGRAM IS FULL *If you would like to be added to the waitlist please email heather@vahemophilia.org\n  \nJoin us for an educational program for VHF constituents (and their immediate family and/or household members only). Dinner will be provided and there is no fee to attend. \nThe topic will be: Gratitude Nation \nFind out why practicing gratitude may be good for people living with a chronic condition\, and learn how to leverage gratitude in your own life. \nSpeaker: Xaviette Pointer-Kincy\, M.Ed.\, Community Relations & Education Manager | Sanofi Genzyme \nSpace is limited and priority will be given to those members that live in the Tidewater Region. \n\nThank you to our sponsor Sanofi Genzyme.
URL:https://vahemophilia.org/event-program/education-connection-gratitude-nation/
LOCATION:Steinhilber’s\, 653 Thalia Rd\, \, VA\, Virginia Beach\, VA\, 23452\, United States
CATEGORIES:community,education
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220429T235900
DTEND;TZID=America/New_York:20220429T235900
DTSTAMP:20260405T180624
CREATED:20220221T164426Z
LAST-MODIFIED:20220221T164426Z
UID:5943-1651276740-1651276740@vahemophilia.org
SUMMARY:Lyman Fisher Scholarship Application Due Date
DESCRIPTION:APPLICATION PROCEDURE & DEADLINES\nHow to Apply: Applications can be completed using our online application form or you can download the paper application form and email the application to info@vahemophilia.org. \n» Go Here to fill out the application online \n» Go Here to download the paper application \nLetters of Recommendation: You will need at least two letters of recommendation from persons who are not family members. These are to be emailed separately to info@vahemophilia.org by the deadline. \n\nOne letter should be from an HTC provider\, nurse\, social worker\, or someone who knows you well from the bleeding disorders community.\nThe other letter could be from your scout leader\, minister\, teacher\, employer\, guidance counselor\, coach\, etc.\n\nApplication Deadline: 11:59 pm (EST)\, Friday\, April 29\, 2022 \nApplications and/or supporting documents received after the deadline will not be considered. \n\nELIGIBILITY & AWARD\nScholarship Eligibility: Individuals living with an inherited bleeding disorder\, their sibling or their parents who live in the territorial jurisdiction of VHF\, which includes the State of Virginia\, with the exception of the following: The cities of Alexandria\, Fairfax\, Falls Church\, Herndon\, Manassas\, and Vienna and the counties of Arlington\, Fairfax\, Fauquier\, Loudon\, Prince William and Stafford. \nScholarship applicants must have participated in VHF activities. \nScholarship Award: Scholarships are one-year awards in the amount of $2\,000 for a full academic year. While at least two scholarships are available each year\, VHF is not obligated to award scholarships in a given year. The scholarships may be used at any accredited nonprofit college\, university\, or vocational/technical school in the United States and are to be applied toward a student’s educational expenses. \nA student who receives an award one year may reapply in later years but winning a scholarship in one year does not necessarily mean that the student will win in a later year. Also\, a student who applies in one year and does not receive an award is eligible to apply the following year for the scholarship. \nPayment of Scholarship Funds: Scholarship payments are not distributed directly to an individual\, but are made via scholarship checks\, payable to the schools. VHF staff will work with the award recipient(s) to process the scholarship funds. \n\n 
URL:https://vahemophilia.org/event-program/lyman-fisher-scholarship-application-due-date/
LOCATION:VA
CATEGORIES:education
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220504T190000
DTEND;TZID=America/New_York:20220504T200000
DTSTAMP:20260405T180624
CREATED:20220330T181619Z
LAST-MODIFIED:20220504T185820Z
UID:5967-1651690800-1651694400@vahemophilia.org
SUMMARY:Virtual Education & Support "Mind-Body-Heart Connection"
DESCRIPTION:RSVP HERE\n  \nThe mind\, body and heart connection plays an integral role in our overall health and well-being and we wanted to honor this connection during “Mental Health Awareness” month\, which is celebrated each May. So join VHF for a virtual education presentation in partnership with Hemophilia Federation of America (HFA) with Gary McClain\, PhD. This program is free and open to VHF constituents. \nTopic: Mind-Body-Heart Connection \nThis session concentrates on supporting attendees to create a more balanced life and empowers attendees to take control of their health\, body\, and mind for a healthy lifestyle. \nPresenter: Gary McClain\, PhD \nDr. McClain is a recognized expert in understanding the emotional reactions to medical diagnosis. He has written for numerous publications and writes a regular column on mental health issues for HIV Plus Magazine. He maintains the website\, www.JustGotDiagnosed.com\, that is filled with resources for individuals recently diagnosed with chronic and catastrophic medical conditions\, their caregivers\, and loved ones. \nThis education program is presented in partnership with Hemophilia Federation of America (HFA). \n\nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/virtual-education-support-mind-body-heart-connection/
LOCATION:Online
CATEGORIES:community,education,virtual
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220514T103000
DTEND;TZID=America/New_York:20220514T130000
DTSTAMP:20260405T180624
CREATED:20220401T194756Z
LAST-MODIFIED:20220511T190057Z
UID:5973-1652524200-1652533200@vahemophilia.org
SUMMARY:Women's Day Out
DESCRIPTION:RSVP HERE\n  \nA rejuvenating day filled with educational programming and community building. This day out is open to VHF constituents who are women age 21 and up with inherited bleeding disorders/carriers and/or to women whose lives are impacted by a bleeding disorder (i.e. caregivers\, spouses\, immediate family members). \nJoin VHF at The Loft at Saude Creek Vineyards where you will learn how to design your own plant terrarium while visiting with fellow members at this fun and crafty workshop\, led by Abby Curry of CurryKreates! There is no charge for this event and it will include 3 plants\, decorations\, and a glass container to build your own terrarium. Additional Plants/Décor can be purchased on site. Refreshments will be provided. \n\nThank you to our women’s day out sponsors: CSL Behring\, Genentech and Takeda
URL:https://vahemophilia.org/event-program/womens-day-out/
LOCATION:Saude Creek Vineyards\, 16230 Cooks Mill Rd\, Lanexa\, 23089\, United States
CATEGORIES:community,education
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220521T110000
DTEND;TZID=America/New_York:20220521T130000
DTSTAMP:20260405T180624
CREATED:20220401T203709Z
LAST-MODIFIED:20220413T175804Z
UID:5976-1653130800-1653138000@vahemophilia.org
SUMMARY:Community Event - Luray Caverns Rope Adventure Park
DESCRIPTION:RSVP HERE\n  \nVHF community events are social and educational gatherings that occur throughout the year. These events bring together the Virginia inherited bleeding disorders community and are an excellent opportunity for family fun\, networking\, support\, and increasing knowledge. \nGet active with your bleeding disorders community at the Luray Caverns Rope Adventure Park. This fun physical activity enables participants to grow at an individual or team level\, exploring risk\, self-discovery\, communication\, and problem-solving all on different levels of ropes course challenges! \nEvent is limited to VHF constituents (and their immediate family and/or household members only). There is no fee to attend and lunch will be provided. \n\nThank you to our generous sponsors: Genentech and Takeda
URL:https://vahemophilia.org/event-program/community-event-at-luray-caverns-rope-adventure-park/
LOCATION:Luray Caverns Rope Adventure Park\, 970 US-211\, Luray\, Virginia\, 22835\, United States
CATEGORIES:community,education
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220625T090000
DTEND;TZID=America/New_York:20220625T160000
DTSTAMP:20260405T180624
CREATED:20220404T193252Z
LAST-MODIFIED:20220617T160253Z
UID:5979-1656147600-1656172800@vahemophilia.org
SUMMARY:Annual Meeting - Community Member Registration
DESCRIPTION:RSVP HERE\n  \nVHF’s Annual Meeting brings together the inherited bleeding disorder community to share information on a wide variety of topics and it is a great opportunity for networking and support for individuals and families. \n» Go here to view the meeting agenda \nAnnual Meeting Highlights and Sessions Include: Understanding all sides – Keys to effective grassroots advocacy on the state and federal level\, Looking from the Outside in: Musculoskeletal Ultrasound\, Strategies for Managing Child\, Adolescent\, and Caregiver Mental Health\, Aging as a Person with a Bleeding Disorder and more; Lyman Fisher Scholarship recognition; VHF chapter updates; and on-site children and teen programming with Camp Holiday Trails. \nSaturday\, June 25th | 10:00 am: Annual Meeting will begin (light refreshments starting at 9:00 am and meeting will conclude by 4:00 pm) \n\nYou Do Not Want To Miss our Community Event – Richmond Flying Squirrels Baseball Game on Sunday\, June 26th! » Go here to learn more and register *Community event is optional and is not a part of the annual meeting. \nOvernight accommodations at Virginia Crossings Hotel & Conference Center are available on Saturday\, June 25th. Educational programs\, scheduled meals\, community events\, and overnight accommodations are provided at no cost for constituents that live in the VHF coverage area. There is a $25 registration fee per household (after you register you will receive a link to pay your fee.) \nIf you are a constituent that lives outside of the VHF coverage area and you are interested in registering for this meeting\, please email heather@vahemophilia.org for more information. \n\nThank you to our sponsors –  \nPremier Sponsors\nPfizer and Takeda \nPlatinum Sponsors\nAccredo\, Bayer\, CSL Behring\, Genentech\, HemaBiologics\, Octapharma\, Sanofi\, and Spark Therapeutics \nCorporate Sponsors\nBioMarin\, BioMatrix\, Children’s Hospital of The King’s Daughter’s (CHKD) and the University of Virginia’s (UVA) 340B Factor Program\, CVS Specialty Pharmacy\, DrugCo Health\, NovoNordisk\, and Optum \nFriends – National Hemophilia Foundation (NHF)
URL:https://vahemophilia.org/event-program/annual-meeting-community-member-registration-2/
LOCATION:Virginia Crossings Hotel\, Tapestry Collection by Hilton\, 1000 Virginia Center Pkwy\, Glen Allen\, VA\, 23059\, United States
CATEGORIES:advocacy,community,education
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220625T090000
DTEND;TZID=America/New_York:20220625T160000
DTSTAMP:20260405T180624
CREATED:20220404T195847Z
LAST-MODIFIED:20220606T190111Z
UID:5981-1656147600-1656172800@vahemophilia.org
SUMMARY:Annual Meeting – Sponsors and Speakers Registration
DESCRIPTION:RSVP HERE \nWe appreciate your interest and support of our 2022 Annual Meeting\, contact Kelly Waters at kelly@vahemophilia.org or 804-740-8643 for more information about sponsorship. Closer to the date of the event we will send a detailed email to all registered industry supporters and speakers. This email will include the agenda\, booth set up times\, what to bring\, how many people to expect\, etc. \nPLEASE NOTE: We will not make hotel reservations for speakers\, Industry Agents OR Industry Agents who are Consumers. However\, we do have a room block at the Virginia Crossings Hotel & Conference Center and they will extend the group rate of $119 a night for a King size room. \nTo make your reservation email your room request with the date of arrival and departure to mike.pramshafer@vacrossings.com\, and please include/cc this email address heather@vahemophilia.org please let us know if you have any issues or if you do not hear back from the hotel. \nFor Industry Agents who are Consumers and a VHF Constituent: If your family members plan to attend the meeting go here to register them. As a reminder we still ask that you register yourself as an industry representative and make your own hotel reservation. \nVHF makes every effort to ensure that the members of the bleeding disorders community are always able to make a clear distinction between its own activities and those of Industry. Further\, it is essential that we create beneficial and pressure – free experiences for our community members\, and to protect participants in VHF events and programs. Accordingly\, VHF has developed a set of standards. Go here to read VHF’s Industry Standards. \nThank you for your continued support!
URL:https://vahemophilia.org/event-program/annual-meeting-sponsors-and-speakers-registration-2/
LOCATION:Virginia Crossings Hotel\, Tapestry Collection by Hilton\, 1000 Virginia Center Pkwy\, Glen Allen\, VA\, 23059\, United States
ORGANIZER;CN="Kelly Waters%2C VHF Executive Director":MAILTO:info@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220626T123000
DTEND;TZID=America/New_York:20220626T153000
DTSTAMP:20260405T180624
CREATED:20220404T201435Z
LAST-MODIFIED:20220509T234258Z
UID:5982-1656246600-1656257400@vahemophilia.org
SUMMARY:Community Event - Flying Squirrels Baseball Game
DESCRIPTION:RSVP HERE\n  \nVHF community events are social and educational gatherings that occur throughout the year. These events bring together the Virginia inherited bleeding disorders community and are an excellent opportunity for family fun\, networking\, support\, and increasing knowledge. \nEnjoy time catching up with your bleeding disorders community at the Flying Squirrels Baseball Game. We will start when the gates open at 12:30 pm with time for education and lunch in the picnic zone. The game will begin at 1:35 pm and we will have reserved seats as a group in an exclusive area down the third base line and adjacent to the picnic zone. \nPicnic Zone Buffet Menu: Hamburgers\, Hot Dogs\, BBQ Pulled Pork\, Grilled Chicken\, Mac and Cheese\, Coleslaw\, and Non-Alcoholic Drinks are included. \nEvent is limited to VHF constituents (and their immediate family and/or household members only). There is no fee to attend. \n\nThank you to our generous sponsors: Accredo\, Genentech\, Superior Biologics\, and Takeda
URL:https://vahemophilia.org/event-program/community-event-flying-squirrels-baseball-game/
LOCATION:The Diamond\, 3001 N. Arthur Ashe Blvd.\, Richmond\, VA\, 23230
CATEGORIES:community,education
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220716T090000
DTEND;TZID=America/New_York:20220716T160000
DTSTAMP:20260405T180624
CREATED:20220131T193021Z
LAST-MODIFIED:20220614T190244Z
UID:5913-1657962000-1657987200@vahemophilia.org
SUMMARY:VHF/HACA Family Day Camp at Camp Holiday Trails
DESCRIPTION:REGISTER HERE\n  \nREGISTRATION IS NOW CLOSED – email heather@vahemophilia.org if you would like to be placed on the waiting list. \nJoin the Virginia Hemophilia Foundation (VHF) & the Hemophilia Association of the Capital Area (HACA) for Family Day Camp\, a day of fun camp activities at Camp Holiday Trails (CHT) in Charlottesville\, VA.  \nThe event will include arts and crafts; canoeing and kayaking; archery; the challenge course\, which features ziplining and rock wall climbing; and traditional camp songs. This program is designed for families with children who are between the ages of 5 – 17\, whose children are camp ready and/or are looking to attend camp in the next two years. Eligible families are those impacted by an inherited bleeding disorder who live in the territorial jurisdiction of VHF & HACA (this event is for VHF/HACA constituents and their immediate family and/or household members only.) » Go here to read Family Camp Guidelines \nLodging: Available for attendees on Friday\, July 15th and/or Saturday\, July 16th at the Sleep Inn and Suites Monticello. \nProgramming: On Saturday\, July 16th Family Day Camp will begin at CHT at 9:00 am and run through 4:00 pm and then that evening in Charlottesville you will not want to miss the Educational Dinner – “Gene Therapy Jeopardy” presented by BioMarin (restaurant TBD.) *Educational dinner is optional and is not a part of the Family Day Camp at CHT. There is no programming on Sunday. \nAcceptance to Family Day Camp: Prospective participants must complete the application by Friday\, May 13 (this is not a guarantee of participation). VHF and HACA staff will reach out via email to offer you a spot. Once you have been offered a spot you will need to provide your Covid-19 vaccination card and pay your $25 registration fee by Friday\, May 20th in order to secure your spot REGISTRATION IS NOW CLOSED \nCOVID-19 Vaccination Policy: CHT requires that all staff\, campers\, and volunteers will need to be fully vaccinated for COVID-19 as per the Centers for Disease Control (CDC) with no exemptions. All participants (children and adults) will need to provide proof of vaccination by providing a copy of their vaccination card at least 3 weeks prior to event (Friday\, June 24). Also\, additional mitigation efforts will be utilized: masks and social distancing when indoors\, sanitizing/cleaning on a regular basis along with ventilation and moving activities outside as much as possible to decrease the possibility of exposure to COVID-19. Please note that this policy is based on CDC guidelines and may change. For additional information or questions about the policy contact CHT directly at campisgood@campholidaytrails.org or 434-977-3781. \n\nThank you to our sponsors: CSL Behring\, CVS Health\, DrugCo Health\, Genentech\, Grifols\, Hoos at Home\, NovoNordisk\, Pfizer\, Sanofi Genzyme\, and Takeda
URL:https://vahemophilia.org/event-program/vhf-haca-family-camp-weekend-at-camp-holiday-trails/
LOCATION:Camp Holiday Trails\, 400 Holiday Trails Lane\, Charlottesville\, VA\, 22903
CATEGORIES:community,education
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220731T100000
DTEND;TZID=America/New_York:20220731T120000
DTSTAMP:20260405T180624
CREATED:20220518T190444Z
LAST-MODIFIED:20220705T140355Z
UID:6032-1659261600-1659268800@vahemophilia.org
SUMMARY:Community Event - Little Island Park
DESCRIPTION:RSVP HERE\nCome Celebrate Summer with your bleeding disorders community! Join us for a fun filled educational picnic for individuals with inherited bleeding disorders and their immediate family and/or household members at Little Island Park – a 144-acre beach park in Sandbridge\, just north of Back Bay Wildlife Refuge. \nWe have reserved a covered shelter for the day and highlights include: a picnic style lunch\, a playground for the kids\, games\, education\, networking with new and old friends\, and plenty of time to enjoy the beach (the beach access leads right up to the reserved shelter). \nLittle Island Park: The park has a 775-foot beach north of the 400-foot fishing pier for surfing and a 2\,000-foot beach for swimming and fishing south of the pier. Back Bay\, a brackish lake\, provides excellent fishing and crabbing along the western border of this unique park. Park highlights: Picnic Area with Charcoal Grills\, Tennis Courts\, Basketball Courts\, Volleyball Court and Beach Volleyball\, Playground\, Canoe/Kayak Launch Area on Back Bay\, Public Restrooms\, Seasonal Rental Items: kayaks\, paddleboards and fishing poles\, Seasonal Concessions\, Vending Machines\, and Beach Wheelchairs – Three beach wheelchairs are available on a first come\, first served basis. Please visit the park office to check one out with a driver license or photo ID. \nEvent is limited to VHF constituents (and their immediate family and/or household members only). There is no fee to attend. \nThank you to our sponsors: Bayer\, BioMatrix\, Genentech and Takeda \n\n» RSVP here by July 15th
URL:https://vahemophilia.org/event-program/community-event-little-island-park/
LOCATION:Little Island Park\, 3820 S Sandpiper Rd\, Virginia Beach\, VA\, 23456
CATEGORIES:community
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220813T100000
DTEND;TZID=America/New_York:20220813T120000
DTSTAMP:20260405T180624
CREATED:20220518T191313Z
LAST-MODIFIED:20220813T010629Z
UID:6035-1660384800-1660392000@vahemophilia.org
SUMMARY:Community Picnic - Deep Run Park
DESCRIPTION:RSVP HERE\nCome Celebrate Summer with your bleeding disorders community! Join us for a fun filled educational picnic\, community building and try out recreational tree climbing – a one-of-a-kind adventure for you and your family! \nEducation Session: Adapting Physical Activities for Joint Health \nThis session discusses the importance of physical activity and introduces ways to adapt activities to participant’s individual physical condition. This session includes exercise demonstrations.  \nPresenter: Marc Gilgannon\, PT \nWhat to expect if you choose to try tree climbing: Experience trees from a whole new perspective! Participants will ascend into the tree canopy using arborist-style rope climbing systems. They will wear helmets\, and be harnessed in and on belay by an instructor while climbing. Climbing is always challenge-by-choice: participants can decide to come down at any point. Recommendations on what to wear/bring: gloves – well fitted gardening-style with a rubberized palm (helps grip the rope)\, closed-toe shoes (high top preferred)\, long pants or longer shorts\, (short-shorts will be uncomfortable with the harness). » Go here to learn more about Riverside Outfitters and Recreational Tree Climbing \nEvent is limited to VHF constituents (and their immediate family and/or household members only). There is no fee to attend. \nThank you to our sponsors: Accredo\, BioMatrix\, CSL Behring\, Takeda\, Genentech\, Hemophilia Federation of America (HFA)\, and Hoos at Home \n\n» RSVP HERE
URL:https://vahemophilia.org/event-program/community-event-richmond-save-the-date/
LOCATION:Deep Run Park\, 9900 Ridgefield Pkwy\, Richmond\, VA\, 23233
CATEGORIES:community
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220818T183000
DTEND;TZID=UTC:20220818T193000
DTSTAMP:20260405T180624
CREATED:20220801T144457Z
LAST-MODIFIED:20220801T151114Z
UID:6092-1660847400-1660851000@vahemophilia.org
SUMMARY:Education + Connection "Laughing Through Stress"
DESCRIPTION:RSVP HERE\n \nJoin us for an educational program for VHF constituents (and their immediate family and/or household members only). Dinner will be provided and there is no fee to attend. \nThe presentation theme will be: Laughing Through Stress \nSpeaker: Lori K.\, CSL Behring Common Factors Advocate and Caregiver to 3 sons and 1 granddaughter with hemophilia \nLori K. Bio: When our first child\, Jeff\, was born\, the umbilical cord was wrapped around his neck and his delivery was traumatic for both of us. Then Jeff’s newborn heel prick wouldn’t stop bleeding and his head began to swell. He was whisked out of my arms to a neonatal ICU unit in another hospital. Three days later doctors diagnosed him with severe hemophilia A. My husband and I were shocked—we didn’t even know what hemophilia was! Thankfully\, we were immediately introduced to the expertise and support of a hemophilia treatment center and the bleeding disorder community. Refusing to let hemophilia consume us\, we stashed it in the back seat and fulfilled our dream of having three children\, all of whom just happen to need a little extra help with blood clotting. \nToday our three sons are happy\, successful adults with lives of their own. Now I enjoy spending time with my grandchildren\, including my granddaughter who was also diagnosed with hemophilia A. \nSpace is limited and priority will be given to those members that live in the South West Virginia Region. \n\nThank you to our sponsor CSL Behring.
URL:https://vahemophilia.org/event-program/education-connection-laughing-through-stress/
LOCATION:Montano’s Restaurant\, 3733 Franklin Rd SW\, Roanoke\, VA\, 24014\, United States
CATEGORIES:community,education
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220825
DTEND;VALUE=DATE:20220828
DTSTAMP:20260405T180624
CREATED:20220221T171317Z
LAST-MODIFIED:20220315T170203Z
UID:5951-1661385600-1661644799@vahemophilia.org
SUMMARY:National Hemophilia Foundation (NHF) Bleeding Disorders Conference
DESCRIPTION:Meeting: National Hemophilia Foundation (NHF) Bleeding Disorders Conference \nNHF’s BDC features educational sessions\, poster abstract presentations\, industry symposia\, networking and social events\, and exhibits. A lineup of dynamic speakers who provide essential information and insights on the evolving landscape in this exciting new era of treatment for hemophilia\, von Willebrand disease\, and rare bleeding disorders. To end the conference\, the NHF Awards Ceremony recognizes outstanding leaders of the bleeding disorders community whose achievements and contributions have helped transform treatment and care. » Go here to learn more \nWhen: August 25-27\, 2022 \nWhere: Houston\, TX (For those that cannot join NHF in Houston\, they will also be offering a virtual component.) \n» RSVP HERE
URL:https://vahemophilia.org/event-program/national-hemophilia-foundation-nhf-bleeding-disorders-conference/
LOCATION:Houston\, TX
CATEGORIES:education
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220915T180000
DTEND;TZID=UTC:20220915T190000
DTSTAMP:20260405T180624
CREATED:20220805T004058Z
LAST-MODIFIED:20220909T181203Z
UID:6096-1663264800-1663268400@vahemophilia.org
SUMMARY:Virtual - Education + Connection “Trauma and PTSD in the Bleeding Disorders Community”
DESCRIPTION:RSVP HERE\nParticipants will enjoy meaningful education and time to gather and share with other people who encounter similar challenges. This virtual session is free and open to VHF constituents. \nTopic: Trauma and PTSD in the Bleeding Disorders Community \nThe session will introduce the signs and symptoms of Post-Traumatic Stress Disorder (PTSD) and discuss how to assess PTSD in the bleeding disorder community and in chronic health conditions generally. Clinical manifestations in acute and chronic stress will be reviewed. The session includes a discussion of evidence based treatments for PTSD and trauma and when to connect patients to more intensive mental health care. Resources for PTSD and Trauma are shared.  \nPresenter: Dr. Eric Russ\, Clinical Psychologist \n\n		\n			\n				\n			\n			\n		 \n		\n			Dr. Russ is a licensed clinical psychologist in Louisville\, KY with leadership experience in academic\, healthcare\, and corporate settings. His clinical expertise is focused on helping people recover from the effects of trauma. In addition to his clinical work\, Dr. Russ also serves as the Executive Director of the Kentucky Psychological Association. He has a passion for helping organizations create psychologically healthy environments with a resilient and engaged workforce. Dr. Russ received his Ph.D. in Clinical Psychology from Emory University and completed his internship at the San Francisco VA and fellowship in trauma psychology at Rush University Medical Center in Chicago. After training\, Dr. Russ moved back to Louisville where he works clinically and works to improve the psychological wellbeing ok Kentucky.\n		\n			\n		\n» RSVP HERE Once you RSVP you will receive the zoom link separately via email from heather@vahemophilia.org.  \n\nThis education program is presented in partnership with Hemophilia Federation of America (HFA). \nThank you to our Sponsors: BioMarin\, CSL Behring\, Genentech\, and Takeda \n\nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/mens-virtual-education-connection-trauma-and-ptsd-in-the-bleeding-disorders-community/
LOCATION:Virtual
CATEGORIES:community,education
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
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BEGIN:VEVENT
DTSTART;TZID=UTC:20220921T183000
DTEND;TZID=UTC:20220921T193000
DTSTAMP:20260405T180624
CREATED:20220714T001051Z
LAST-MODIFIED:20220909T141149Z
UID:6088-1663785000-1663788600@vahemophilia.org
SUMMARY:Education + Connection “Expect the Unexpected: Prepare for Anything”
DESCRIPTION:RSVP HERE\nJoin us for an educational program for VHF constituents (and their immediate family and/or household members only). Dinner will be provided and there is no fee to attend. \nThe topic will be: Expect the Unexpected: Prepare for Anything \nEmergency room staff\, including physicians\, may have little experience in the management of patients with bleeding disorders because they are rare conditions. This presentation will help you avoid and prepare for a possible trip to the ER\, anytime\, anywhere—even when traveling or during a natural disaster. \nSpeaker: Jan Martin MSN\, RN-BC\, CPN\, Community Education Specialist | Takeda \nSpace is limited and priority will be given to those members that live in the Tidewater Region. \n\nThank you to our sponsor Takeda.
URL:https://vahemophilia.org/event-program/6088/
LOCATION:Cutlass Grille\, 725 Eden Way N\, Ste 700\, Chesapeake\, VA\, 23320
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
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BEGIN:VEVENT
DTSTART;TZID=UTC:20221015T100000
DTEND;TZID=UTC:20221015T160000
DTSTAMP:20260405T180624
CREATED:20220623T205424Z
LAST-MODIFIED:20221004T160703Z
UID:6063-1665828000-1665849600@vahemophilia.org
SUMMARY:Medical Symposium at Great Wolf Lodge
DESCRIPTION:The VHF Medical Symposium will provide consumers with the opportunity to learn more about new and current treatment options\, access to care issues and other medical/health related topics. \nThis program will be held at Great Wolf Lodge (GWL) in Williamsburg – an indoor water park and resort designed to bring together the Virginia inherited bleeding disorders community for education\, networking\, and support. This weekend is open to individuals with an inherited bleeding disorder and their immediate family and/or household members. Overnight accommodations are available at Great Wolf Lodge and entrance to the water park is included in your stay. \nHighlights Include:\nMedical Symposium\, kids and teens program and lunch for all ages on Saturday (all registrants must attend the meeting for access to the water park and overnight accommodations.)\nAccess to GWL water park Saturday and Sunday.\n*OPTIONAL* Unite For Bleeding Disorders Breakfast & Celebration on Sunday at GWL – must register separately for this event » Go here to learn more \nImportant Information:\nRegistration for this event will close on August 15\, 2022.\nRegistrants place/number on the RSVP list will be determined by our Program Registration Guidelines.\nThis event is open to ALL AGES (not just for families with children under 18.)\nThere is a $25 registration fee to attend\, you will be asked to pay once you receive a spot at the event (this fee will be waived for those constituents that have registered and donated to Unite For Bleeding Disorders.) \nTo Be Eligible For a Spot You Must Meet ALL of the Following Eligibility Criteria:\nHave an inherited bleeding disorder\, have a spouse with an inherited bleeding disorder\, or be the parent/caregiver of a child with an inherited bleeding disorder.\nLive in the VHF coverage area (go here to learn more) and/or location of primary bleeding disorder treatment i.e. Hemophilia Treatment Center (HTC)\, hematologist\, etc. is in the VHF coverage area. \n\nThank you to our Program Sponsors –\nColburn-Keenan Foundation – Program Support\nHemophilia Federation of America (HFA) – Educational Programming\nNational Hemophilia Foundation (NHF) – Community Voices in Research \nThank you to our Medical Symposium Sponsors –\nStar Level: BioMarin\, CSL Behring\, Novo Nordisk\, Sanofi\, Spark Therapeutics and Takeda\nPremier Level: Hema Biologics and Hoos at Home\nCorporate Level: Bayer\, BioMatrix\, CSI Pharmacy\, CVS Specialty Pharmacy\, Drugco Health\, Genentech\, Medexus\, Octapharma\, Optum\, Paragon Healthcare\, Pfizer and SoleoHealth
URL:https://vahemophilia.org/event-program/vhf-medical-symposium-at-great-wolf-lodge/
LOCATION:Great Wolf Lodge\, 549 E Rochambeau Dr.\, Williamsburg\, VA\, 23188
CATEGORIES:community,education
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
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END:VCALENDAR