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DTSTART;TZID=America/New_York:20210527T190000
DTEND;TZID=America/New_York:20210527T200000
DTSTAMP:20260407T074451
CREATED:20210420T164415Z
LAST-MODIFIED:20210519T192805Z
UID:5186-1622142000-1622145600@vahemophilia.org
SUMMARY:Advocacy Chat with Delegate Kathleen Murphy
DESCRIPTION:» RSVP HERE \nJoin us as we chat with Delegate Kathleen Murphy (34th District\, Virginia House of Delegates) to learn more about the passage of HB 1995 that created the Rare Disease Advisory Council and its proposed scope of work. Hear more about Del. Murphy’s interest and advocacy for creating the Council AND for her general impressions on the virtual nature of the General Assembly meetings. \nThank you to our advocacy chat sponsors National Hemophilia Foundation (NHF) and Takeda \nRead this article for more information on how to join a virtual meeting on the zoom platform using a desktop computer\, mobile device/tablet\, from a landline or a mobile phone. If you need assistance or have any barriers that are keeping you from participating in virtual programs please call 804-740-8643 or email info@vahemophilia.org.  \n  \n\n\nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/advocacy-chat-with-delegate-kathleen-murphy/
LOCATION:Zoom
CATEGORIES:advocacy,education,virtual chat
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210626T170000
DTEND;TZID=America/New_York:20210626T183000
DTSTAMP:20260407T074451
CREATED:20210512T154131Z
LAST-MODIFIED:20210709T144436Z
UID:5224-1624726800-1624732200@vahemophilia.org
SUMMARY:VHF Annual Meeting
DESCRIPTION:» RSVP HERE \nVHF’s Annual Meeting brings together the inherited bleeding disorder community to share information on a wide variety of topics. It is a great opportunity for education\, networking\, and support for individuals and families. The annual meeting will be held virtually on zoom and will have time for VHF chapter updates with a focus on the work of our board of directors and an exciting keynote presentation from Save One Life founder and board president Laurie Kelley and executive director Chris Bombardier. \n*VHF constituents that register and attend will receive dinner on us (details TBD)* This session is free and open to VHF constituents\, any constituent under the age of 12 will need adult supervision to participate. \n» Please go here to view our Virtual Annual Meeting Program This program is one way our generous sponsors can virtually connect with the community by providing links to their electronic resources\, brochures\, websites\, social media sites and more! \nWe could not provide this important event without the help of our generous sponsors.\nPremier Sponsors: Pfizer and Takeda\nPlatinum Sponsors: Accredo\, Bayer\, and Genentech\nCorporate Sponsors: BioMarin\, CSL Behring\, DrugCo\, HEMA Biologics\, Children’s Hospital of The King’s Daughter’s and the University of Virginia’s 340B Factor Program\, Novo Nordisk\, Octapharma\, Sanofi Genzyme\, and Superior Biologics \n\nKeynote Presentation: “The right time helping\, changes a life.” Helping People with Bleeding Disorders in Developing Countries \nDescription: Join Save One Life founder and board president Laurie Kelley and executive director Chris Bombardier for an interactive presentation that will offer a global perspective on the bleeding disorder community and the work of Save One Life. Learn the challenges that many face and how they overcome them with our help! \n\n		\n			\n				\n			\n			\n		 \n		\n			Laureen A. Kelley is president of LA Kelley Communications\, Inc. and is the author of ten books on bleeding disorders\, including Raising a Child With Hemophilia and Success as a Hemophilia Leader. Laurie was founder and publisher of the Parent Empowerment Newsletter (PEN) for 31 years\, and PEN’s Insurance Pulse for 11 years. She also founded Project SHARE\, a humanitarian program that donates millions of dollars’ worth of blood-clotting medicine annually to impoverished patients in developing countries. Laurie is founder and president of Save One Life\, a nonprofit child sponsorship agency for children with bleeding disorders in developing countries. She has an adult son with hemophilia.\n		\n			\n		\n\n		\n			\n				\n			\n			\n		 \n		\n			Chris Bombardier is executive director of Save One Life\, an international nonprofit that provides direct financial aid to patients with hemophilia in developing countries. Chris was a board member of Save One Life from 2012 to 2019. During that time\, Chris was actively involved on the program and scholarship committees. A mountaineer\, Chris became the first person with hemophilia to successfully climb the Seven Summits and dedicated his climbs to raising funds for Save One Life. He eventually raised over $100\,000 and helped 75 children receive sponsorships. Chris began his career as a professional research assistant with the University of Colorado Hemophilia and Thrombosis Center after graduating from Doane College with a bachelor’s degree in biology. He later worked with GutMonkey\, an experienced-based education company that works with people with chronic medical conditions. Through his travels around the world for the Seven Summits\, and his work with Save One Life\, Chris discovered his passion for global health work and returned to school. He recently earned his master’s in global health from Northwestern University in 2020.\n		\n			\n		\n\nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/vhf-annual-meeting/
LOCATION:Zoom
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210627T160000
DTEND;TZID=America/New_York:20210627T170000
DTSTAMP:20260407T074451
CREATED:20210511T174637Z
LAST-MODIFIED:20210512T174932Z
UID:5217-1624809600-1624813200@vahemophilia.org
SUMMARY:Community Event and Unite Walk Kick-Off
DESCRIPTION:»RSVP HERE \nJoin VHF for a highly interactive and engaging afternoon! \nIf you have been to one of our Unite for Bleeding Disorders Walk events then you may be familiar with the amazing Jonathan Austin – Juggler\, Magician and Entertainer! Come one\, come all and be dazzled by Jonathan’s spirit-lifting performance and then be prepared to learn one or two magic tricks that you too can show-off to friends and family! We will also spend some time learning more about this years Unite for Bleeding Disorders Walk – don’t miss out on this opportunity to give back to your bleeding disorders community! \nAll registrants that attend will be entered into a drawing to win one of our numerous gift cards. We plan on having several winners (one per household)! Also anyone that is registered for the walk at www.uniteforbleedingdisorders.org/event/rva before the kickoff will be entered to win an additional prize! \nThis session is free and open to VHF constituents and anyone interested in learning more about the Unite for Bleeding Disorders Walk\, any participant under the age of 12 will need adult supervision to participate. \nThank you to our community connection sponsors Accredo\, Hemophilia Federation of America and Takeda \n\nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/community-event-and-unite-walk-kick-off/
LOCATION:Zoom
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210731T100000
DTEND;TZID=America/New_York:20210731T140000
DTSTAMP:20260407T074451
CREATED:20210519T191402Z
LAST-MODIFIED:20210819T003016Z
UID:5348-1627725600-1627740000@vahemophilia.org
SUMMARY:VHF & HACA Pop-Up Day Program for Families
DESCRIPTION:» RSVP HERE \nPop-up day program is for families affected by inherited bleeding disorders who live in either Virginia Hemophilia Foundation (VHF) and/or Hemophilia Association of the Capital (HACA) territories – go here to learn more. \nWE’RE TAKING CAMP ON THE ROAD! \nThis Summer we are working with Camp Holiday Trails to bring an in-person family camp day program to a park near you! \nWhat you can expect: \n\nA safe in-person event that will include protocols such as mask-wearing\, social distancing\, and using a family “pod” model\nCreative activity programming for the whole family\n\nAt least one parent and/or caregiver per family needs to be in attendance\nProgramming is geared toward ages 5-17. Ages 5 and under are welcome to attend\, but there will not be any childcare/supervision provided\n\n\nBoxed lunch and snacks during event\nCHT t-shirt and other swag!\n\nDates\, Times & Locations: \n\nSaturday\, July 31st\, 10:00 am – 2:00 pm – Location: Lake Fairfax Park\, Fairfax\nSaturday\, August 7th\, 10:00 am – 2:00 pm – Location: Sandy Bottom Nature Park\, Hampton\nSaturday\, August 14th\, 10:00 am – 2:00 pm – Location: Camp Holiday Trails\, Charlottesville\n\n*Only one day program/location per family \nFees: Free! \nFinal decisions for eligibility are determined by VHF\, HACA\, and CHT using Program Registration Guidelines. \nAll in-person safety protocols will be based upon the recommendations of the Camp Holiday Trails Medical Advisory Committee\, and they will continue to monitor local\, state\, and federal guidelines.  \nThank you to our sponsors:  Accredo\, Bayer\, CSL Behring\, CVS Health\, Genentech\, Grifols\, Hemophilia Federation of America (HFA)\, Hoos at Home\, Novo Nordisk\, Pfizer\, Sanofi Genzyme\, Superior Biologics\, and Takeda
URL:https://vahemophilia.org/event-program/vhf-haca-pop-up-day-camp-for-families/
LOCATION:Lake Fairfax Park\, 1400 Lake Fairfax Drive\, Reston\, VA\, 20190
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210805T190000
DTEND;TZID=America/New_York:20210805T200000
DTSTAMP:20260407T074451
CREATED:20210519T141738Z
LAST-MODIFIED:20210519T170752Z
UID:5344-1628190000-1628193600@vahemophilia.org
SUMMARY:Virtual Education Session - Gratitude Nation
DESCRIPTION:» RSVP Here \nTopic: Gratitude Nation \nFind out why practicing gratitude may be good for people living with a chronic condition and learn how to leverage gratitude in your own life. \nSpeaker: Xaviette Pointer-Kincy\, M.Ed\, Community Relations & Education Manager | Sanofi Genzyme \nThank you to our sponsor Sanofi Genzyme \n\nThis session is free and open to VHF constituents\, any constituent under the age of 12 will need adult supervision to participate. \nAs we gather virtually to discuss\, share and learn\, we ask that all VHF virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement. \n  \n 
URL:https://vahemophilia.org/event-program/virtual-education-session-gratitude-nation/
LOCATION:Zoom
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210807T100000
DTEND;TZID=America/New_York:20210807T140000
DTSTAMP:20260407T074451
CREATED:20210519T194923Z
LAST-MODIFIED:20210819T003052Z
UID:5354-1628330400-1628344800@vahemophilia.org
SUMMARY:VHF & HACA Pop-Up Day Program for Families
DESCRIPTION:» RSVP HERE \nPop-up day program is for families affected by inherited bleeding disorders who live in either Virginia Hemophilia Foundation (VHF) and/or Hemophilia Association of the Capital (HACA) territories – go here to learn more. \nWE’RE TAKING CAMP ON THE ROAD! \nThis Summer we are working with Camp Holiday Trails to bring an in-person family camp day program to a park near you! \nWhat you can expect: \n\nA safe in-person event that will include protocols such as mask-wearing\, social distancing\, and using a family “pod” model\nCreative activity programming for the whole family\n\nAt least one parent and/or caregiver per family needs to be in attendance\nProgramming is geared toward ages 5-17. Ages 5 and under are welcome to attend\, but there will not be any childcare/supervision provided\n\n\nBoxed lunch and snacks during event\nCHT t-shirt and other swag!\n\nDates\, Times & Locations: \n\nSaturday\, July 31st\, 10:00 am – 2:00 pm – Location: Lake Fairfax Park\, Fairfax\nSaturday\, August 7th\, 10:00 am – 2:00 pm – Location: Sandy Bottom Nature Park\, Hampton\nSaturday\, August 14th\, 10:00 am – 2:00 pm – Location: Camp Holiday Trails\, Charlottesville\n\n*Only one day program/location per family \nFees: Free! \nFinal decisions for eligibility are determined by VHF\, HACA\, and CHT using Program Registration Guidelines. \nAll in-person safety protocols will be based upon the recommendations of the Camp Holiday Trails Medical Advisory Committee\, and they will continue to monitor local\, state\, and federal guidelines.  \nThank you to our sponsors:  Accredo\, Bayer\, CSL Behring\, CVS Health\, Genentech\, Grifols\, Hemophilia Federation of America (HFA)\, Hoos at Home\, Novo Nordisk\, Pfizer\, Sanofi Genzyme\, Superior Biologics\, and Takeda
URL:https://vahemophilia.org/event-program/5354/
LOCATION:Sandy Bottom Nature Park\, 1255 Big Bethel Road\, Hampton\, VA\, 23669
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210814T100000
DTEND;TZID=America/New_York:20210814T140000
DTSTAMP:20260407T074451
CREATED:20210519T201442Z
LAST-MODIFIED:20210819T003140Z
UID:5360-1628935200-1628949600@vahemophilia.org
SUMMARY:VHF & HACA Pop-Up Day Program for Families
DESCRIPTION:» RSVP HERE \nPop-up day program is for families affected by inherited bleeding disorders who live in either Virginia Hemophilia Foundation (VHF) and/or Hemophilia Association of the Capital (HACA) territories – go here to learn more. \nWE’RE TAKING CAMP ON THE ROAD! \nThis Summer we are working with Camp Holiday Trails to bring an in-person family camp day program to a park near you! \nWhat you can expect: \n\nA safe in-person event that will include protocols such as mask-wearing\, social distancing\, and using a family “pod” model\nCreative activity programming for the whole family\n\nAt least one parent and/or caregiver per family needs to be in attendance\nProgramming is geared toward ages 5-17. Ages 5 and under are welcome to attend\, but there will not be any childcare/supervision provided\n\n\nBoxed lunch and snacks during event\nCHT t-shirt and other swag!\n\nDates\, Times & Locations: \n\nSaturday\, July 31st\, 10:00 am – 2:00 pm – Location: Lake Fairfax Park\, Fairfax\nSaturday\, August 7th\, 10:00 am – 2:00 pm – Location: Sandy Bottom Nature Park\, Hampton\nSaturday\, August 14th\, 10:00 am – 2:00 pm – Location: Camp Holiday Trails\, Charlottesville\n\n*Only one day program/location per family \nFees: Free! \nFinal decisions for eligibility are determined by VHF\, HACA\, and CHT using Program Registration Guidelines. \nAll in-person safety protocols will be based upon the recommendations of the Camp Holiday Trails Medical Advisory Committee\, and they will continue to monitor local\, state\, and federal guidelines.  \nThank you to our sponsors:  Accredo\, Bayer\, CSL Behring\, CVS Health\, Genentech\, Grifols\, Hemophilia Federation of America (HFA)\, Hoos at Home\, Novo Nordisk\, Pfizer\, Sanofi Genzyme\, Superior Biologics\, and Takeda
URL:https://vahemophilia.org/event-program/vhf-haca-pop-up-day-camp-for-families-2/
LOCATION:Camp Holiday Trails\, 400 Holiday Trails Lane\, Charlottesville\, VA\, 22903
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210819T190000
DTEND;TZID=America/New_York:20210819T200000
DTSTAMP:20260407T074451
CREATED:20210719T142246Z
LAST-MODIFIED:20210719T142246Z
UID:5576-1629399600-1629403200@vahemophilia.org
SUMMARY:Virtual Education Session - Lesson Plans: Navigating School with a Bleeding Disorder
DESCRIPTION:» RSVP Here \nTopic: Lesson Plans: Navigating School with a Bleeding Disorder \nLearn how students\, parents\, family members\, and school staff can work together to provide a positive learning environment for students with a bleeding disorder—from preschool through college. \nSpeaker: Jan Martin\, Nurse Educator\, Takeda \nThank you to our sponsor Takeda \n\nThis session is free and open to VHF constituents\, any constituent under the age of 12 will need adult supervision to participate. \nAs we gather virtually to discuss\, share and learn\, we ask that all VHF virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/virtual-education-session-lesson-plans-navigating-school-with-a-bleeding-disorder/
LOCATION:Zoom
CATEGORIES:education
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210916T190000
DTEND;TZID=America/New_York:20210916T200000
DTSTAMP:20260407T074451
CREATED:20210818T192214Z
LAST-MODIFIED:20210818T192214Z
UID:5622-1631818800-1631822400@vahemophilia.org
SUMMARY:Virtual Education Session – Balancing Emotional Well-Being
DESCRIPTION:» RSVP HERE \n\nTopic: Balancing Emotional Well-Being \nAn overview of how our current environment can impact our emotional well-being\, what signs and symptoms to look for when you find yourself in a challenging situation or feeling low\, and how to encourage dialogue with family\, friends\, and healthcare providers. \nSpeaker: Linda Pollhammer | Patient Affairs Liaison – Pfizer \nThank you to our sponsor Pfizer \n\nThis session is free and open to VHF constituents\, any constituent under the age of 12 will need adult supervision to participate. \nAs we gather virtually to discuss\, share and learn\, we ask that all VHF virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/virtual-education-session-balancing-emotional-well-being-2/
LOCATION:Zoom
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210928T190000
DTEND;TZID=America/New_York:20210928T200000
DTSTAMP:20260407T074451
CREATED:20210818T191146Z
LAST-MODIFIED:20210920T194433Z
UID:5619-1632855600-1632859200@vahemophilia.org
SUMMARY:VHF/HACA Advocacy Chat - Getting into Committee
DESCRIPTION:» RSVP HERE \nEver wonder how a bill winds its way from a proposed bill\, through both houses of the General Assembly to enacted legislation? Committees are the answer — and where much of the debate about any bill take place. Join us to learn more about the process as we hear from State Senator Ghazala F. Hashmi and Delegate Roxann Robinson – key committee members that work on issues that affect our community. \nThank you to our sponsors: National Hemophilia Foundation (NHF) and Takeda \nRead this article for more information on how to join a virtual meeting on the zoom platform using a desktop computer\, mobile device/tablet\, from a landline or a mobile phone. If you need assistance or have any barriers that are keeping you from participating in virtual programs please call 804-740-8643 or email info@vahemophilia.org.  \n\n\nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/vhf-haca-advocacy-chat-getting-into-committee/
LOCATION:Zoom
CATEGORIES:advocacy,education,virtual chat
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20211017T130000
DTEND;TZID=America/New_York:20211017T140000
DTSTAMP:20260407T074451
CREATED:20210512T164923Z
LAST-MODIFIED:20211008T123359Z
UID:5242-1634475600-1634479200@vahemophilia.org
SUMMARY:Unite For Bleeding Disorders Virtual Walk
DESCRIPTION:REGISTER \nWe are very excited to announce registration is open for the 2021 Virginia Hemophilia Foundation VIRTUAL Unite for Bleeding Disorders Walk! \n9/12/21 – We have made the difficult decision to move the VHF Unite for Bleeding Disorders Walk to a virtual only opportunity. Given current COVID-19 transmission rates in Virginia and CDC and VDH guidance regarding the risk of in-person events VHF has decided to shift this event to a virtual platform for the health and safety of our community members. \nWe are excited for the opportunity to celebrate with all of our teams and sponsors on Zoom at 1 pm on Sunday October 17th! \nAll teams that are registered by Thursday October 7th\, will receive a walk box with all the supplies you need for an at-home walk experience\, including t-shirts for any participants that raised $25 or more. Please make plans to distribute these materials to your team members before walk day! \nUNITE WALK VIRTUAL PROGRAM AGENDA \n1:00 pm: Zoom Opens for Participants\, Team Roll Call \n1:05 pm: Welcome & Awards \n1:10 pm: Sponsor Recognition \n1:25 pm: Entertainment with Jonathan the Juggler \n1:55 pm: Closing Remarks\, Pinwheel Ceremony and Start Your Walk! \nWe hope you will join us on Zoom on October 17th\, because this event is about more than just fundraising. This is a day where our community and everyone who supports it can come together\, even when apart\, to celebrate each other and support each other! The event will include live entertainment from magician Jonathan Austin and fun for people of all ages! \nUnite with us Today \nFor more information contact Megan Schowengerdt at 804-740-8643 or megan@vahemophilia.org. \nPLUS register and raise or donate $100 in new donations in September and get entered to win a $50 gift card to Sheetz! Join Us and Start Your Team Today! \n 
URL:https://vahemophilia.org/event-program/unite-for-bleeding-disorders-walk/
LOCATION:Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20211106T160000
DTEND;TZID=America/New_York:20211106T180000
DTSTAMP:20260407T074451
CREATED:20211006T025642Z
LAST-MODIFIED:20211102T145609Z
UID:5820-1636214400-1636221600@vahemophilia.org
SUMMARY:VHF/HACA Virtual Men's Health & Wellness Retreat
DESCRIPTION:» RSVP HERE! \nIn partnership with the Hemophilia Association of the Capital Area (HACA)\, we are offering a virtual Men’s Health & Wellness Retreat!  \nParticipants will enjoy meaningful education and time to gather and share with other people who encounter similar challenges. This retreat is free and open to men age 21 and up with inherited bleeding disorders and/or to men whose lives are impacted by a bleeding disorder (i.e. caregivers\, spouses\, immediate family members). \nWhat to Expect: \n\nInteractive fun-filled music trivia with Shelby Smoak\, Ph.D.\, Advocate & Education Specialist\, Biomatrix.\nHints and recommendations for living a healthier lifestyle and ideas for home fitness with Zack Bordone\, PTA\, CSCS\, PN\, National Wellness Director\, DrugCo Health.\n\n Tech neck and lower back pain remedies\, office ergonomics\, quick information about KT tape\, nutrition and supplements to make you feel your best.\n\n\nCooking demonstration with Mike Hargett – a professional chef\, double transplant recipient\, and person with hemophilia who lives by the mantra that his conditions don’t define him; he defines them.\n\nYou will learn how to make “Sexy Sheet Pan Gnocchi with Sausage\, Mushrooms\, and Peppers” – a healthy\, weeknight meal and how to put together your own Italian spice blend from scratch!\n\n\nHFA Rap Session\n\nPlease RSVP by November 3rd so that VHF can send the recipe and ingredients list ahead of time along with an Amazon gift card so you can purchase what you need. Thanks to Colburn-Keenan Foundation for sponsoring this piece of the event.   \n\nThank you to our generous sponsors: BioMarin\, BioMatrix\, CSL Behring\, DrugCo Health\, Genentech\, Hemophilia Federation of America (HFA)\, Novo Nordisk\, and Takeda \n\nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement. \n\n» RSVP HERE \n 
URL:https://vahemophilia.org/event-program/vhf-haca-virtual-mens-health-wellness-retreat/
LOCATION:Zoom
ATTACH;FMTTYPE=image/jpeg:https://vahemophilia.org/wp-content/uploads/2020/09/49071881157_a9be747366_o.jpg
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20211113T160000
DTEND;TZID=America/New_York:20211113T180000
DTSTAMP:20260407T074451
CREATED:20210923T001103Z
LAST-MODIFIED:20211013T152208Z
UID:5801-1636819200-1636826400@vahemophilia.org
SUMMARY:VHF/HACA Virtual Advocacy Stakeholder and Education Meeting
DESCRIPTION:» RSVP HERE \nJoin constituents\, advocacy committee members\, and community stakeholders from throughout Virginia for an education meeting that will cover a wide range of advocacy topics relevant to the bleeding disorders community! \nMEETING AGENDA \nNon-profit Policy Advocacy and the Executive Branch: Lessons learned on policy and politics in Health Care Melissa Assalone\, MSW\, Deputy Legislative Director for Governor Northam\, and Freddy Mejia\, MSW\, Policy Analyst\, The Commonwealth Institute for Fiscal Analysis \nVirginia Bleeding Disorder Program (VBDP) Update Jan Kuhn RN\, MPH\, Coordinator of VBDP \nState Update AND What Can We Expect in 2022 General Assembly Becky Bowers-Lanier\, VHF/HACA Advocacy Consultant \nFederal Update Miriam Goldstein\, J.D\, Director of Policy at Hemophilia Federation of America (HFA) and Nathan Schaefer\, Vice President of Public Policy at National Hemophilia Foundation (NHF) \n\nThank you to our sponsors: CVS Caremark\, Genentech\, National Hemophilia Foundation (NHF)\, and Takeda \n» Please go here to view our Virtual Sponsor Program This program is one way our generous sponsors can virtually connect with the community by providing links to their electronic resources\, brochures\, websites\, social media sites and more! \n\nRead this article for more information on how to join a virtual meeting on the zoom platform using a desktop computer\, mobile device/tablet\, from a landline or a mobile phone. If you need assistance or have any barriers that are keeping you from participating in virtual programs please call 804-740-8643 or email info@vahemophilia.org. 
URL:https://vahemophilia.org/event-program/vhf-haca-virtual-advocacy-stakeholder-and-education-meeting-2/
LOCATION:Zoom
ATTACH;FMTTYPE=image/jpeg:https://vahemophilia.org/wp-content/uploads/2020/09/49070330053_1e501533f5_o.jpg
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20211118T190000
DTEND;TZID=America/New_York:20211118T200000
DTSTAMP:20260407T074451
CREATED:20210714T155355Z
LAST-MODIFIED:20211013T145920Z
UID:5562-1637262000-1637265600@vahemophilia.org
SUMMARY:Virtual Community Retreat - Paint Night
DESCRIPTION:» RSVP HERE BY NOVEMBER 5TH! \nJoin VHF for a highly interactive and engaging evening of virtual community connection and a family-friendly paint night. Painting is a great way to help pass the time and cope with stress so bring your creativity and a willingness to learn and you will paint a fall themed painting you’ll be proud to display in your home! \nPaint Night Activity – What To Expect: Enjoy all the fun and interaction of a paint night event from the safety of your home. \n\nEvent will be held on the zoom platform and led by Been Creative\nRegister by November 5th and you will receive in the mail: Paint\, paintbrushes\, an 11”x14” canvas (pre-sketched with a fall themed design)\, an apron and a tabletop easel. Thanks to Colburn-Keenan Foundation for sponsoring this piece of the event.\n\n This session is free and open to VHF constituents\, any participant under the age of 12 will need adult supervision to participate. \n\n» Please go here to view our Virtual Community Retreat Electronic Program This program is one way our generous sponsors can virtually connect with the community by providing links to their electronic resources\, brochures\, websites\, social media sites and more! \nWe could not provide this important event without the help of our generous sponsors.\nHemophilia Federation of America (HFA)\nPremier Sponsors: Hoos at Home and Takeda\nCorporate Sponsors: Bayer\, BioMarin\, CSL Behring\, CVS Health\, Genentech\, Novo Nordisk\, Octapharma\, and Sanofi Genzyme \n\nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement. \n\n» RSVP HERE BY NOVEMBER 5TH!
URL:https://vahemophilia.org/event-program/community-retreat/
LOCATION:Zoom
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20211204T140000
DTEND;TZID=America/New_York:20211204T150000
DTSTAMP:20260407T074451
CREATED:20211006T031607Z
LAST-MODIFIED:20211118T202822Z
UID:5821-1638626400-1638630000@vahemophilia.org
SUMMARY:Virtual Winter Gathering
DESCRIPTION:» RSVP HERE BY NOVEMBER 22ND\n\nJoin VHF and your bleeding disorders community for some virtual holiday cheer! \nWhat to Expect – There will be all-ages ornament decorating led by Michelle Stielper\, Regional Care Coordinator – Biomatrix\, (ornament kits will be shipped directly to attendees) and you will not want to miss everyone’s favorite game show host\, Shelby Smoak\, Ph.D.\, Advocate & Education Specialist – BioMatrix\, in a holiday themed trivia game. Test your holiday and bleeding disorders knowledge in this spirited\, interactive event. There will be education\, gift cards (Thanks to Colburn-Keenan Foundation)\, special guests from the north pole\, banter\, jests\, and endless fun. Laughs are a must! Please join and share in the holiday spirit. \nThis free virtual event will give you a chance to experience community connection from the comfort of your home. Great for individuals and families and designed for all ages to enjoy (open to VHF constituents\, any constituent under the age of 12 will need adult supervision to participate.) \n\nThank you to our generous sponsors: Bayer\, BioMatrix\, CSL Behring\, Hemophilia Federation of America (HFA)\, Hoos at Home\, Novo Nordisk\, and Takeda \n» Please go here to view our Virtual Sponsor Program This program is one way our generous sponsors can virtually connect with the community by providing links to their electronic resources\, brochures\, websites\, social media sites and more! \n\nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF)virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement. \n\n» RSVP HERE BY NOVEMBER 22ND \n 
URL:https://vahemophilia.org/event-program/virtual-winter-gathering-2/
LOCATION:Zoom
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220117T190000
DTEND;TZID=America/New_York:20220117T200000
DTSTAMP:20260407T074451
CREATED:20211116T193321Z
LAST-MODIFIED:20220125T142452Z
UID:5859-1642446000-1642449600@vahemophilia.org
SUMMARY:VHF & HACA Virtual Advocacy Education Meeting
DESCRIPTION:» RSVP HERE\n\nJoin VHF & HACA for a virtual advocacy education program on Martin Luther King Jr. Day\, our traditional date for our annual advocacy day. This program will focus on the 2022 General Assembly. Join in and hear details from advocacy consultant\, Becky Bowers-Lanier\, about proposed legislation of interest to the bleeding disorders community\, its partners and other stakeholders. You will also learn more about the VHF/HACA legislative updates that will occur weekly via zoom during the 2022 General Assembly session and how you might be able to get more involved. \nThis session is free and open to anyone interested in learning more about advocacy and how it relates to the Virginia inherited bleeding disorders community. \n\nThank you to our sponsors: Genentech\, National Hemophilia Foundation (NHF)\, Pfizer\, and Takeda. \n» Please go here to view our Virtual Sponsor Program This program is one way our generous sponsors can virtually connect with the community by providing links to their electronic resources\, brochures\, websites\, social media sites and more! \n\nAs we gather virtually to discuss\, share and learn\, we ask that all VHF virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/vhf-haca-virtual-advocacy-education-meeting/
LOCATION:Zoom
CATEGORIES:advocacy,education,virtual chat
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220125
DTEND;VALUE=DATE:20220309
DTSTAMP:20260407T074451
CREATED:20211116T185334Z
LAST-MODIFIED:20220315T154510Z
UID:5856-1643068800-1646783999@vahemophilia.org
SUMMARY:HACA/VHF General Assembly Weekly Check-In
DESCRIPTION:» REGISTER HERE\n\nJoin HACA and VHF for a quick weekly General Assembly check-in. We will gather to get an overview of the past week’s events in the Virginia General Assembly and get insight from our advocacy consultant\, Becky Bowers-Lanier\, on what to look for\, trends and any actions that will need to be taken about proposed legislation of interest to the bleeding disorders community. \nWhen you register you will receive an email with a re-occurring zoom link that you can use for all of the weekly check-ins on Tuesdays at 4:30 pm (EST). \nJan 25\, 2022 4:30 PM\nFeb 1\, 2022 4:30 PM\nFeb 8\, 2022 4:30 PM\nFeb 15\, 2022 4:30 PM\nFeb 22\, 2022 4:30 PM\nMar 1\, 2022 4:30 PM\nMar 8\, 2022 4:30 PM \nThis session is free and open to VHF constituents\, any constituent under the age of 12 will need adult supervision to participate. \nThank you to our advocacy sponsor Takeda. \n\nAs we gather virtually to discuss\, share and learn\, we ask that all VHF virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/haca-vhf-general-assembly-weekly-check-in/
LOCATION:Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220127T190000
DTEND;TZID=America/New_York:20220127T200000
DTSTAMP:20260407T074451
CREATED:20211116T204521Z
LAST-MODIFIED:20211208T235725Z
UID:5861-1643310000-1643313600@vahemophilia.org
SUMMARY:Virtual Education Session - Keeping and Maintaining Health Insurance During Uncertain Times
DESCRIPTION:» RSVP HERE\n\nTopic: Keeping and Maintaining Health Insurance During Uncertain Times \nGet your insurance questions answered and learn more about:\nPrior authorizations – commercial plans and documentation required for initial authorization/reauthorizations.\nMedicare eligibility and Medigap enrollment.\nAdditional protections under the Build Back Better infrastructure bill. \nSpeaker: Lynne M. Szott\, RN\, RMC\, CCM\, Senior Manager\, Reimbursement & Access\, CSL Behring\n \nThank you to our sponsor CSL Behring \n\nThis session is free and open to VHF constituents. \nAs we gather virtually to discuss\, share and learn\, we ask that all VHF virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/virtual-education-session-keeping-and-maintaining-health-insurance-during-uncertain-times/
LOCATION:Zoom
CATEGORIES:advocacy,education,virtual chat
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220129T160000
DTEND;TZID=America/New_York:20220129T170000
DTSTAMP:20260407T074451
CREATED:20220111T184003Z
LAST-MODIFIED:20220111T184003Z
UID:5904-1643472000-1643475600@vahemophilia.org
SUMMARY:Virtual Teen Advocacy Event: Self-Advocacy for Teens
DESCRIPTION:» RSVP HERE\n\nTopic: Self-Advocacy for Teens \nThis highly interactive advocacy program explains the different types of advocacy and engages participants in conversations about self-advocacy. Participants will problem solve situations that can occur at the doctor’s\, at school\, at work\, and will work through other real world scenarios related to self-advocacy for persons with a bleeding disorder. This is a great opportunity to get your teen thinking about how they can talk about their bleeding disorder. \nSpeaker: Shelby Smoak\, Ph.D.\, Advocate and Education Specialist\, BioMatrix\n \nThank you to our teen advocacy event sponsors:  BioMatrix\, CSL Behring and Takeda \n\nThis program is free and for teens age 13–17 who live within HACA/VHF territory and meet one of the following criteria: Have a bleeding disorder\, are the sibling of someone with a bleeding disorder and/or have a parent/caregiver with a bleeding disorder. Each session must be signed up for individually\, you do not have to sign up for all in order to participate. \nAs we gather virtually to discuss\, share and learn\, we ask that all VHF virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/virtual-teen-advocacy-event-self-advocacy-for-teens/
LOCATION:Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220210T190000
DTEND;TZID=America/New_York:20220210T200000
DTSTAMP:20260407T074451
CREATED:20211213T221411Z
LAST-MODIFIED:20220210T190157Z
UID:5891-1644519600-1644523200@vahemophilia.org
SUMMARY:Virtual Education & Community Craft Night "No Sew Pillows"
DESCRIPTION:RSVP HERE \n  \nJoin VHF for a highly interactive and engaging evening of virtual community connection and education at our family-friendly craft night. Learn how crafting is a great way to help pass the time and cope with stress. So bring your creativity and a willingness to learn and you will make a “No Sew Pillow” there will be two patterns to choose from\, either a Valentines themed heart shaped pillow or recycle a favorite t-shirt into a square throw pillow! The possibilities are endless. \nWhat to Expect – There will be a virtual\, guided\, and simple no sew pillow making instruction led by Michelle Stielper\, Regional Care Coordinator\, BioMatrix. You should have most materials on-hand (think scissors\, old t-shirt) and VHF will be in touch closer to the event to make sure you have anything else that you need to participate. You will not want to miss everyone’s favorite DJ\, Shelby Smoak\, Ph.D.\, Advocate & Education Specialist – BioMatrix\, in a Valentine themed music trivia game! \nThis free virtual event will give you a chance to experience community connection and education from the comfort of your home. Great for individuals and families and designed for all ages to enjoy (open to VHF constituents\, any constituent under the age of 12 will need adult supervision to participate.) \nThank you to our sponsors: BioMatrix\, CSL Behring\, Genentech\, and Takeda \n\nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF)virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement. \n  \n 
URL:https://vahemophilia.org/event-program/5891/
LOCATION:Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220220T160000
DTEND;TZID=America/New_York:20220220T170000
DTSTAMP:20260407T074451
CREATED:20211214T202749Z
LAST-MODIFIED:20211214T210812Z
UID:5896-1645372800-1645376400@vahemophilia.org
SUMMARY:Virtual Education and Connection - Spark Your Curiosity Escape Room
DESCRIPTION:RSVP HERE \nSpark your curiosity and join us in playing an exciting virtual adventure! Unlock the science of gene therapy research… before time runs out! \nAn interactive educational program sponsored by Spark® Therapeutics in collaboration with VHF. If you like escape rooms\, puzzles\, and teamwork\, this is one event you don’t want to miss. Join a team to journey through a quest in this virtual adventure\, where solving each clue gets you one step closer to unlocking the science of gene therapy research. Time is ticking… so sign up today! \nThis free virtual event will give you a chance to experience community connection and education from the comfort of your home. Great for individuals and families and designed for all ages to enjoy (open to VHF constituents\, any constituent under the age of 12 will need adult supervision to participate.) \nThank you to our sponsors: Spark® Therapeutics \n\nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF)virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/virtual-education-and-connection-spark-your-curiosity-escape-room/
LOCATION:Zoom
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220301
DTEND;VALUE=DATE:20220303
DTSTAMP:20260407T074451
CREATED:20211213T204229Z
LAST-MODIFIED:20211213T211518Z
UID:5885-1646092800-1646265599@vahemophilia.org
SUMMARY:National Hemophilia Foundation (NHF) Washington Days
DESCRIPTION:RSVP HERE\nNHF’s Washington Days is an opportunity for people affected by inherited blood disorders to advocate for issues that are important to them. In 2021\, Washington Days had more than 400 volunteer advocates from 44 states that met with legislators and staff to discuss federal funding for bleeding disorder programs and support policies that increase affordability of coverage and access to care. \nWashington Days 2022 will be an entirely virtual experience. NHF is closely monitoring various legislative and policy opportunities as they prepare for their event in March. The issues and priorities for Washington Days 2022 will be announced at the start of the new year. » Go here to learn more
URL:https://vahemophilia.org/event-program/national-hemophilia-foundation-nhf-washington-days/
LOCATION:Virtual
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220301T235900
DTEND;TZID=America/New_York:20220301T235900
DTSTAMP:20260407T074451
CREATED:20220221T165534Z
LAST-MODIFIED:20220221T165534Z
UID:5945-1646179140-1646179140@vahemophilia.org
SUMMARY:HFA Symposium Travel Grant - Application Due Date
DESCRIPTION:VHF is pleased to offer travel grants to attend national meetings. National meetings enable our community to come together and exchange information on a wide variety of topics\, from the basics of diagnosis to the most relevant developments in treatment and technology. If applying for travel assistance for a national meeting typical award amounts depend on the availability of travel scholarships offered by the national organization. See below to learn more and contact VHF at 804-740-8643 or info@vahemophilia.org if you have any questions.  \nMeeting: Hemophilia Federation of America (HFA) Symposium\nThis beloved family event has become known as a national “family reunion” for the bleeding disorders community\, allowing community members\, their families and caregivers to come together for camaraderie and education. HFA is excited to host their first in-person Symposium since 2019. They know everyone is not comfortable traveling just yet so some sessions\, such as the keynote presentations\, will have an online component. » Go here to learn more \nWhen: April 20-23\, 2022 \nWhere: San Antonio\, TX (with virtual options) \n» RSVP HERE \n\nHFA Symposium Scholarship: VHF Terry Lamb Enrichment Scholarship awards can be used to cover travel costs for the HFA Symposium. Typical award amounts are in the range of $250 – $500 per person (not to exceed $1\,000 per family). Application Deadline: 11:59 pm (EST)\, Tuesday\, March 1\, 2022 \nHFA offers a scholarship that will cover the cost of your hotel room stay (one (1) hotel room for up to four (4) nights). To apply\, you must first register for the HFA Symposium and then a link to the scholarship information will be found in your confirmation email. Scholarships are based on financial need and first-time attendees of Symposium will be given priority. Previous attendees of Symposium will be considered dependent upon space and availability. The HFA scholarship is on a first come\, first-serve basis so apply soon. For more information about the HFA Symposium scholarship go here.
URL:https://vahemophilia.org/event-program/hfa-symposium-travel-grant-application-due-date/
LOCATION:VA
CATEGORIES:education
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220313T160000
DTEND;TZID=America/New_York:20220313T170000
DTSTAMP:20260407T074451
CREATED:20220119T200206Z
LAST-MODIFIED:20220310T152627Z
UID:5907-1647187200-1647190800@vahemophilia.org
SUMMARY:Ages and Stages: Early Childhood
DESCRIPTION:RSVP HERE\n \nJoin VHF\, HTC staff and mentor families for a virtual program for new families! This program is designed to support families of infants and young children with hemophilia and other inherited bleeding disorders ages 0-10 with community connection and education. This program is free and open to VHF constituents. \nTopic: Ages and Stages: Early Childhood (Ages 0-10) \nThis virtual session will help parents better understand what they can expect behaviorally and emotionally throughout the early years of childhood. Child development\, temperament\, common mood and behavior problems and parenting strategies will be discussed. The session will include some bleeding disorder specific information\, for example\, when a child can start to self-infuse from a behavioral standpoint not a medical standpoint\, how (hemophilia) treatments progress with age\, and the prevalence of anxiety and other behavioral challenges among children with bleeding disorders.  \nPresenter: Juliana S. Bloom\, Ph.D.\, Pediatric Neuropsychologist at The Levin Center \n		\n			\n				\n			\n			\n		 \n		\n			Juliana S. Bloom\, Ph.D. is a licensed psychologist and pediatric neuropsychologist based in Orlando\, Florida. Dr. Bloom currently provides assessment\, therapy\, and consultation services. Dr. Bloom received her B.A. summa cum laude from Emory University and her Masters of Education and doctoral degrees from the University of Georgia. While at UGA\, she conducted clinical research on the neurobiological basis of dyslexia and ADHD. Dr. Bloom completed her internship and postdoctoral fellowship at the Children’s Hospital of Philadelphia\, where she worked with children and adolescents with complex medical and neurological illnesses\, including stroke\, epilepsy\, brain tumors\, cancer\, and traumatic brain injury\, among others. Dr. Bloom’s areas of clinical interest include dyslexia\, ADHD\, neuropsychological outcome and school re-entry following acquired brain injury and medical illness\, medical traumatic stress in patients and families\, and pediatric stroke. She is the author of seven peer reviewed journal articles\, five invited book chapters\, and more than 40 conference presentations. She is a member of the American Psychological Association and the International Neuropsychological Society. She loves spending her free time with her husband and two children.\n		\n			\n		 \nThis education program is presented in partnership with Hemophilia Federation of America (HFA). \nThank you to our New Family Education and Support Sponsors Genentech and Takeda. \n\nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/new-family-education-and-support-ages-and-stages-early-childhood/
LOCATION:Zoom
CATEGORIES:community,education,New Families,virtual
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220321T235900
DTEND;TZID=America/New_York:20220321T235900
DTSTAMP:20260407T074451
CREATED:20220221T170343Z
LAST-MODIFIED:20220315T171338Z
UID:5950-1647907140-1647907140@vahemophilia.org
SUMMARY:NHF Bleeding Disorders Conference Travel Grant - Application Due Date
DESCRIPTION:VHF is pleased to offer travel grants to attend national meetings. National meetings enable our community to come together and exchange information on a wide variety of topics\, from the basics of diagnosis to the most relevant developments in treatment and technology. If applying for travel assistance for a national meeting typical award amounts depend on the availability of travel scholarships offered by the national organization. See below to learn more and contact VHF at 804-740-8643 or info@vahemophilia.org if you have any questions.  \nNHF Bleeding Disorders Conference Scholarship: VHF Terry Lamb Enrichment Scholarship awards can be used to cover travel costs (airfare/mileage/train or bus ticket)\, hotel accommodations\, and meeting registration fees for the NHF Bleeding Disorders Conference. Not to exceed a total of $2\,000 per family. You will be responsible for all meals and other incidentals. Application Deadline Extended: 11:59 pm (EST)\, Monday\, March 21\, 2022 \n» APPLY HERE \n\nNHF’s BDC features educational sessions\, poster abstract presentations\, industry symposia\, networking and social events\, and exhibits. A lineup of dynamic speakers who provide essential information and insights on the evolving landscape in this exciting new era of treatment for hemophilia\, von Willebrand disease\, and rare bleeding disorders. To end the conference\, the NHF Awards Ceremony recognizes outstanding leaders of the bleeding disorders community whose achievements and contributions have helped transform treatment and care. » Go here to learn more \nWhen: August 25-27\, 2022 \nWhere: Houston\, TX (For those that cannot join NHF in Houston\, they will also be offering a virtual component.) \n» RSVP HERE
URL:https://vahemophilia.org/event-program/nhf-bleeding-disorders-conference-travel-grant-application-due-date/
LOCATION:VA
CATEGORIES:education
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220327T103000
DTEND;TZID=America/New_York:20220327T130000
DTSTAMP:20260407T074451
CREATED:20220204T195836Z
LAST-MODIFIED:20220323T161623Z
UID:5921-1648377000-1648386000@vahemophilia.org
SUMMARY:Community Event and Bleeding Disorders Awareness Month Celebration at Topgolf
DESCRIPTION:RSVP HERE BY MARCH 11TH\n  \nGet active with your bleeding disorders community and celebrate Bleeding Disorders Awareness Month! Join VHF on Sunday\, March 27th for education\, celebration\, community building and opportunities to enhance health and fitness at Topgolf. We look forward to exploring how you can take charge of your bleeding disorder and life\, while having fun learning about the game of golf. \nEvent is free – lunch and two hours of golf will be provided. Participation is limited to those with an inherited bleeding disorder and their immediate family and/or household members who live within VHF territory. Gas cards will be available on the day of the event if needed. Don’t let the rising gas prices keep you away! \nWith special guest Perry Parker! \n		\n			\n				\n			\n			\n		 \n		\n			Since as far back as he can remember\, Perry has known two things: he has hemophilia\, and he would be a pro golfer. Perry’s parents always encouraged him to pursue his interests. For Perry\, this led to a professional golf career\, including more than 30 professional tournament wins\, playing numerous international tours\, and founding and continued involvement with the CSL Behring Gettin’ in the Game℠ Junior National Championship. Perry wants others to know that bleeding disorders do not have to be a game changer\, and he has lots of tips to share on how to make dreams come true.\n		\n			\n		 \n\nVHF asks that all in-person event attendees be fully vaccinated against COVID-19 in the effort to help stop the spread of COVID-19. Please consider that many of our members face unique health challenges. VHF will not require that any attendees submit proof of vaccination but will rely on the honor system. VHF will continue to follow federal\, state\, and local health official guidance for all in-person event safety guidelines. As changes to these guidelines are possible\, please contact VHF at 804-740-8643 or info@vahemophilia.org if you have questions or concerns or to confirm event details. \n» Go here to read full VHF COVID-19 Safety Guidelines for In-Person Events \n\nThank you to our generous sponsors: Bayer\, BioMatrix\, CSL Behring\, Genentech\, Medexus\, Novo Nordisk\, Octapharma\, Optum\, Pfizer\, Spark Therapeutics\, SuperBiologics\, and Takeda
URL:https://vahemophilia.org/event-program/community-event-and-bleeding-disorders-awareness-month-celebration-at-topgolf/
LOCATION:Topgolf Richmond\, 2308 Westwood Ave\, Richmond\, Virginia\, 23230
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220420
DTEND;VALUE=DATE:20220424
DTSTAMP:20260407T074451
CREATED:20220221T170007Z
LAST-MODIFIED:20220221T170007Z
UID:5947-1650412800-1650758399@vahemophilia.org
SUMMARY:Hemophilia Federation of America (HFA) Symposium
DESCRIPTION:This beloved family event has become known as a national “family reunion” for the bleeding disorders community\, allowing community members\, their families and caregivers to come together for camaraderie and education. HFA is excited to host their first in-person Symposium since 2019. They know everyone is not comfortable traveling just yet so some sessions\, such as the keynote presentations\, will have an online component. » Go here to learn more \nWhen: April 20-23\, 2022 \nWhere: San Antonio\, TX (with virtual options) \n» RSVP HERE
URL:https://vahemophilia.org/event-program/hemophilia-federation-of-america-hfa-symposium/
LOCATION:San Antonio Marriott Rivercenter\, 101 Bowie Street\, San Antonio\, Texas\, 78205
CATEGORIES:education
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220428T183000
DTEND;TZID=America/New_York:20220428T193000
DTSTAMP:20260407T074451
CREATED:20220330T175627Z
LAST-MODIFIED:20220413T173936Z
UID:5965-1651170600-1651174200@vahemophilia.org
SUMMARY:Education + Connection "Gratitude Nation"
DESCRIPTION:THIS PROGRAM IS FULL *If you would like to be added to the waitlist please email heather@vahemophilia.org\n  \nJoin us for an educational program for VHF constituents (and their immediate family and/or household members only). Dinner will be provided and there is no fee to attend. \nThe topic will be: Gratitude Nation \nFind out why practicing gratitude may be good for people living with a chronic condition\, and learn how to leverage gratitude in your own life. \nSpeaker: Xaviette Pointer-Kincy\, M.Ed.\, Community Relations & Education Manager | Sanofi Genzyme \nSpace is limited and priority will be given to those members that live in the Tidewater Region. \n\nThank you to our sponsor Sanofi Genzyme.
URL:https://vahemophilia.org/event-program/education-connection-gratitude-nation/
LOCATION:Steinhilber’s\, 653 Thalia Rd\, \, VA\, Virginia Beach\, VA\, 23452\, United States
CATEGORIES:community,education
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220429T235900
DTEND;TZID=America/New_York:20220429T235900
DTSTAMP:20260407T074451
CREATED:20220221T164426Z
LAST-MODIFIED:20220221T164426Z
UID:5943-1651276740-1651276740@vahemophilia.org
SUMMARY:Lyman Fisher Scholarship Application Due Date
DESCRIPTION:APPLICATION PROCEDURE & DEADLINES\nHow to Apply: Applications can be completed using our online application form or you can download the paper application form and email the application to info@vahemophilia.org. \n» Go Here to fill out the application online \n» Go Here to download the paper application \nLetters of Recommendation: You will need at least two letters of recommendation from persons who are not family members. These are to be emailed separately to info@vahemophilia.org by the deadline. \n\nOne letter should be from an HTC provider\, nurse\, social worker\, or someone who knows you well from the bleeding disorders community.\nThe other letter could be from your scout leader\, minister\, teacher\, employer\, guidance counselor\, coach\, etc.\n\nApplication Deadline: 11:59 pm (EST)\, Friday\, April 29\, 2022 \nApplications and/or supporting documents received after the deadline will not be considered. \n\nELIGIBILITY & AWARD\nScholarship Eligibility: Individuals living with an inherited bleeding disorder\, their sibling or their parents who live in the territorial jurisdiction of VHF\, which includes the State of Virginia\, with the exception of the following: The cities of Alexandria\, Fairfax\, Falls Church\, Herndon\, Manassas\, and Vienna and the counties of Arlington\, Fairfax\, Fauquier\, Loudon\, Prince William and Stafford. \nScholarship applicants must have participated in VHF activities. \nScholarship Award: Scholarships are one-year awards in the amount of $2\,000 for a full academic year. While at least two scholarships are available each year\, VHF is not obligated to award scholarships in a given year. The scholarships may be used at any accredited nonprofit college\, university\, or vocational/technical school in the United States and are to be applied toward a student’s educational expenses. \nA student who receives an award one year may reapply in later years but winning a scholarship in one year does not necessarily mean that the student will win in a later year. Also\, a student who applies in one year and does not receive an award is eligible to apply the following year for the scholarship. \nPayment of Scholarship Funds: Scholarship payments are not distributed directly to an individual\, but are made via scholarship checks\, payable to the schools. VHF staff will work with the award recipient(s) to process the scholarship funds. \n\n 
URL:https://vahemophilia.org/event-program/lyman-fisher-scholarship-application-due-date/
LOCATION:VA
CATEGORIES:education
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220504T190000
DTEND;TZID=America/New_York:20220504T200000
DTSTAMP:20260407T074451
CREATED:20220330T181619Z
LAST-MODIFIED:20220504T185820Z
UID:5967-1651690800-1651694400@vahemophilia.org
SUMMARY:Virtual Education & Support "Mind-Body-Heart Connection"
DESCRIPTION:RSVP HERE\n  \nThe mind\, body and heart connection plays an integral role in our overall health and well-being and we wanted to honor this connection during “Mental Health Awareness” month\, which is celebrated each May. So join VHF for a virtual education presentation in partnership with Hemophilia Federation of America (HFA) with Gary McClain\, PhD. This program is free and open to VHF constituents. \nTopic: Mind-Body-Heart Connection \nThis session concentrates on supporting attendees to create a more balanced life and empowers attendees to take control of their health\, body\, and mind for a healthy lifestyle. \nPresenter: Gary McClain\, PhD \nDr. McClain is a recognized expert in understanding the emotional reactions to medical diagnosis. He has written for numerous publications and writes a regular column on mental health issues for HIV Plus Magazine. He maintains the website\, www.JustGotDiagnosed.com\, that is filled with resources for individuals recently diagnosed with chronic and catastrophic medical conditions\, their caregivers\, and loved ones. \nThis education program is presented in partnership with Hemophilia Federation of America (HFA). \n\nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/virtual-education-support-mind-body-heart-connection/
LOCATION:Online
CATEGORIES:community,education,virtual
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
END:VCALENDAR