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X-WR-CALNAME:Virginia Bleeding Disorders Foundation
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X-WR-CALDESC:Events for Virginia Bleeding Disorders Foundation
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200415T190000
DTEND;TZID=America/New_York:20200415T200000
DTSTAMP:20260405T175853
CREATED:20200406T171940Z
LAST-MODIFIED:20200406T173043Z
UID:4020-1586977200-1586980800@vahemophilia.org
SUMMARY:HACA/VHF Advocacy Committee Virtual Chat
DESCRIPTION:Join the HACA/VHF advocacy committee as we present our first in a series of virtual chats. These chats will focus on advocacy topics relevant to the bleeding disorders community. During the first virtual chat\, we will discuss the disposition of legislation we followed during the 2020 General Assembly session including bills we opposed and supported and we will also attempt to predict what might happen when the General Assembly returns on April 22nd. We will also spend some time talking about how COVID-19 is affecting you and yours as we maintain social distancing measures. All virtual chats will be recorded if you are unable to join us live online. When you register you will receive instructions on how to join in\, either by video conference or by phone call. Please join us! \n\n» Go Here to Register
URL:https://vahemophilia.org/event-program/vhf-haca-advocacy-committee-virtual-chat/
LOCATION:VA
ORGANIZER;CN="Kelly Waters%2C VHF Executive Director":MAILTO:info@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200512T190000
DTEND;TZID=America/New_York:20200512T200000
DTSTAMP:20260405T175853
CREATED:20200424T174936Z
LAST-MODIFIED:20200424T182132Z
UID:4099-1589310000-1589313600@vahemophilia.org
SUMMARY:HACA/VHF Advocacy Committee Virtual Chat
DESCRIPTION:Join the HACA/VHF advocacy committee for a virtual chat! \nAdvocacy Amid Upheaval: Making it Work \nJoin Miriam Goldstein\, HFA Director of Policy\, and Becky Bowers-Lanier\, advocacy consultant for HACA and VHF\, for a webinar devoted to advocacy in our newly configured COVID world. Join us as we share what we’ve learned since mid-March and how we can maintain our voice when we cannot physically be present. We’ll talk about strategies and answer your questions. \n All virtual chats will be recorded if you are unable to join us live online. When you register you will receive instructions on how to join in\, either by video conference or by phone call. Please join us! \n\n» Go Here to Register
URL:https://vahemophilia.org/event-program/haca-vhf-advocacy-committee-virtual-chat/
LOCATION:Online
CATEGORIES:advocacy,education,virtual chat
ORGANIZER;CN="Kelly Waters%2C VHF Executive Director":MAILTO:info@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200521T190000
DTEND;TZID=America/New_York:20200521T200000
DTSTAMP:20260405T175853
CREATED:20200508T043435Z
LAST-MODIFIED:20200520T145423Z
UID:4109-1590087600-1590091200@vahemophilia.org
SUMMARY:First Step Virtual Program For New Families
DESCRIPTION:Join VHF\, HTC staff and mentor families for a virtual program for new families! \nThis program is designed to support families of infants and young children with hemophilia and other inherited bleeding disorders with community connection and education. \nThis program is for families with children who have been diagnosed with an inherited bleeding disorder in the last 7 years. \nThank you to our sponsors Genentech\, Novo Nordisk and Takeda. \n\n» Go Here to Register
URL:https://vahemophilia.org/event-program/first-step-virtual-program-for-new-families/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200604T190000
DTEND;TZID=America/New_York:20200604T200000
DTSTAMP:20260405T175853
CREATED:20200521T013807Z
LAST-MODIFIED:20200521T023150Z
UID:4162-1591297200-1591300800@vahemophilia.org
SUMMARY:Virtual Annual Education Meeting - Session #1: Maintaining Joint Health Through Exercise – Get Up and Move
DESCRIPTION:Presentation: Maintaining Joint Health Through Exercise – Get Up and Move \nSpeaker: Jeffrey Kallberg\, PT \nGet Up and Move is a program focused on maintaining joint health through exercise. This program will be presented by Dr. Jeffrey Kallberg\, an experienced physical therapist and hem A patient. Through this program\, we hope to inform you on three areas: how joints work\, how your body moves\, and simple exercises that you can do to help strengthen your joints and maintain joint health. We look forward to seeing you there! \nThis session is free and open to VHF constituents\, any constituent under the age of 12 will need adult supervision to participate. \nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF)virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement. \n Sponsored by Bayer \n\n» Go Here to RSVP
URL:https://vahemophilia.org/event-program/annual-education-meeting-virtual-session-1/
LOCATION:Online
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200611T190000
DTEND;TZID=America/New_York:20200611T200000
DTSTAMP:20260405T175853
CREATED:20200521T015342Z
LAST-MODIFIED:20200521T023248Z
UID:4168-1591902000-1591905600@vahemophilia.org
SUMMARY:Virtual Annual Education Meeting - Session #2: Advocacy Not Anger: Being Your Own Voice
DESCRIPTION:Presentation: Advocacy Not Anger: Being Your Own Voice \nSpeakers: Shelby Smoak\, Ph.D. Advocate & Education Specialist\, BioMatrix\, Ann Kendall and Krista Davidson\, HACA/VHF Advocacy Committee Co-Chairs \nAs members of the bleeding disorders’ community\, we’ve all likely had experiences where our bodies\, our providers\, and/or our health care system has failed us or a loved one. And this has made us angry. You yell! You scream! But what good has that done? Hear from a panel of local VHF members about their lives as tireless (and often angry) bleeding disorders’ advocates. Learn the importance of record keeping and controlled advocacy; gain strategies for working with your providers and insurance to get what you need; and acquire tools for establishing a reasoned voice within the community\, a voice that people listen to. Whether you are new to advocacy or have been a life-long advocate yourself\, let VHF & their community members inspire you to turn your anger into something powerful and useful – advocacy! \nThis session is free and open to VHF constituents\, any constituent under the age of 12 will need adult supervision to participate. \nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF)virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement. \nSponsored by BioMatrix \n\n» Go Here to RSVP
URL:https://vahemophilia.org/event-program/virtual-annual-education-meeting-session-2/
LOCATION:Online
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200618T190000
DTEND;TZID=America/New_York:20200618T200000
DTSTAMP:20260405T175853
CREATED:20200521T021037Z
LAST-MODIFIED:20200617T180842Z
UID:4173-1592506800-1592510400@vahemophilia.org
SUMMARY:Virtual Annual Education Meeting - Session #3: Beyond Trough Levels: Taking A Closer Look at How to Evaluate Hemophilia B
DESCRIPTION:Webinar: Beyond Trough Levels:Taking A Closer Look at How to Evaluate Hemophilia B \n Speaker: Michael F. Guerrera\, M.D.\, Director of the Comprehensive Hemostasis and Thrombosis Program in the Division of Hematology\, Children’s National \nEver wonder why Hem B patients sometimes bleed with relatively high trough levels and conversely don’t always bleed with lower trough levels? To answer this\, it is important to understand that Factor VIII and Factor IX work differently in the body. Hence the differences between Hemophilia A vs. Hemophilia B. Factor VIII stays inside the bloodstream\, while Factor IX also goes outside the bloodstream by traveling through the walls of blood vessels. Trough levels will only identify factor that is in the bloodstream. That’s why for Hemophilia B\, just measuring trough may not tell the full story of what your factor replacement is doing\, and you may need more information. \nThis session is free and open to VHF constituents\, any constituent under the age of 12 will need adult supervision to participate. \nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF)virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement. \nSponsored by Sanofi Genzyme \n\n» Go Here to RSVP
URL:https://vahemophilia.org/event-program/virtual-annual-education-meeting-session-3/
LOCATION:Online
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200620T130000
DTEND;TZID=America/New_York:20200620T140000
DTSTAMP:20260405T175853
CREATED:20200521T022148Z
LAST-MODIFIED:20200615T173504Z
UID:4176-1592658000-1592661600@vahemophilia.org
SUMMARY:Virtual Annual Education Meeting - Session #4: Wonderful Women of Bleeding
DESCRIPTION:Topic: Wonderful Women of Bleeding \nSpeaker: Robert F Sidonio\, Jr\, MD\, Associate Director of the Hemostasis and Thrombosis Program and Director of Clinical Operations and Clinical Research of the Hemostasis and Thrombosis Program\, Emory University and Children’s Healthcare of Atlanta \nDr. Sidonio’s clinical focus is on children with bleeding and thrombotic disorders. His clinical research focus is in the management of women with bleeding disorders. He is currently investigating the bleeding phenotype of Hemophilia A and B carriers. \nTime for Q&A will be built into this session. \nThis session is free and open to VHF constituents\, any constituent under the age of 12 will need adult supervision to participate. \nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF)virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement. \n Sponsored by Hemophilia Federation of America (HFA) \n\n» Go Here to RSVP
URL:https://vahemophilia.org/event-program/virtual-annual-education-meeting-session-4/
LOCATION:Online
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200620T143000
DTEND;TZID=America/New_York:20200620T153000
DTSTAMP:20260405T175853
CREATED:20200521T022915Z
LAST-MODIFIED:20200604T233020Z
UID:4178-1592663400-1592667000@vahemophilia.org
SUMMARY:Virtual Annual Education Meeting - Session #5: Mental Health 101
DESCRIPTION:Topic: Mental Health 101 \nSpeaker: Anna Bell\, CFSA \nThis module provides an overview of the basics of mental health including facts and myths surrounding mental health\, warning signs\, types of mental illness and what to do if you or someone you know is experiencing a mental health crisis. \nThis session is free and open to VHF constituents\, any constituent under the age of 12 will need adult supervision to participate. \nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF)virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement. \n Sponsored by Hemophilia Federation of America (HFA) \n\n» Go Here to RSVP
URL:https://vahemophilia.org/event-program/virtual-annual-education-meeting-session-5/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200620T160000
DTEND;TZID=America/New_York:20200620T170000
DTSTAMP:20260405T175853
CREATED:20200521T024626Z
LAST-MODIFIED:20200617T163729Z
UID:4185-1592668800-1592672400@vahemophilia.org
SUMMARY:Virtual Annual Education Meeting - Teen Session: The Power of Empowerment
DESCRIPTION:Webinar: The Power of Empowerment \nSpeaker: Xaviette Pointer-Kincy\, M.Ed\, Community Relations and Education Manager for Sanofi Genzyme for the WV\, VA\, DC area \nLearn to acknowledge strengths\, embrace individuality\, create safe environments\, enhance confidence\, establish supporting partnerships and more. \n Sponsored by Sanofi Genzyme \n Post Webinar Teen Hangout with Camp Holiday Trails! \nJoin Camp Holiday Trails staff and counselors for this fun zoom hangout filled with your favorite camp friends\, activities\, songs and more! You must be registered and attend the webinar to receive the hangout link. \nThis session is free and open to VHF teen constituents age 13 to 17. \nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF)virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement. \n\n» Go Here to RSVP
URL:https://vahemophilia.org/event-program/virtual-annual-education-meeting-teen-session-the-power-of-empowerment/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200620T190000
DTEND;TZID=America/New_York:20200620T200000
DTSTAMP:20260405T175853
CREATED:20200521T031235Z
LAST-MODIFIED:20200617T163544Z
UID:4188-1592679600-1592683200@vahemophilia.org
SUMMARY:Virtual Campfire and Community Game Night
DESCRIPTION:Virtual Camp Fire and Community Game Night with Camp Holiday Trails \nJoin VHF and staff and counselors from Camp Holiday Trails for an educational and fun-filled evening of everyone’s favorite camp traditions\, including songs\, stories\, games and door-prizes! All participants are encouraged to bring their favorite camp songs\, wear their favorite camp attire\, or their favorite camp t-shirt to the virtual campfire! \nThis session is free and open to VHF constituents\, any constituent under the age of 12 will need adult supervision to participate. \nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF)virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement. \nSponsored by Novo Nordisk and Takeda \n\n» Go Here to RSVP
URL:https://vahemophilia.org/event-program/virtual-campfire-and-community-game-night/
LOCATION:Online
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200625T120000
DTEND;TZID=America/New_York:20200625T130000
DTSTAMP:20260405T175853
CREATED:20200604T231547Z
LAST-MODIFIED:20200624T173150Z
UID:4248-1593086400-1593090000@vahemophilia.org
SUMMARY:Improving Hemophilia Management: Shared Decision Making Session for Patients\, Caregivers\, & Healthcare Providers
DESCRIPTION:Join PRIME Education and VHF to engage with experts and colleagues in this virtual presentation to get your most pressing questions answered in real time. \nPresentation: Improving Hemophilia Management: Shared Decision Making Session for Patients\, Caregivers\, & Healthcare Providers \nSpeaker: Melinda Nolte\, RN\, MSN\, Bleeding Disorders Nurse Consultant\, Virginia Commonwealth University Central Virginia Center for Coagulation Disorders \nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF)virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement. \nFor participating\, you will receive: Downloadable educational tools and a digital AMAZON gift card. Please Note: You must complete the post-session survey and provide a valid email address to receive your digital Amazon gift card. Instructions for completing the survey will be provided by your presenter at the beginning and end of the program. \nThis activity is provided by PRIME Education. There is no fee to participate\, and open to VHF constituents\, any constituent under the age of 12 will need adult supervision to participate. This activity is supported by an educational grant from Genentech. \n\n» Go Here to RSVP
URL:https://vahemophilia.org/event-program/improving-hemophilia-control-learning-session-for-patients-caregivers-healthcare-providers/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20200628
DTEND;VALUE=DATE:20200715
DTSTAMP:20260405T175853
CREATED:20200624T185103Z
LAST-MODIFIED:20200715T152138Z
UID:4318-1593302400-1594771199@vahemophilia.org
SUMMARY:HACA/VHF Teen Retreat Virtual Education Series
DESCRIPTION:Join the teens of the Hemophilia Association of the Capital Area (HACA) and the Virginia Hemophilia Foundation (VHF) for our Teen Retreat Virtual Education Series. \nThese educational opportunities are for teens age 13–17 who live within HACA/VHF territory and meet one of the following criteria: Have a bleeding disorder\, are the sibling of someone with a bleeding disorder and/or have a parent/caregiver with a bleeding disorder. Each session must be signed up for individually\, you do not have to sign up for all in order to participate. \n\nTEEN EDUCATION SESSION: \nDate/Time: Sunday\, June 28th at 2:00 pm \nTopic: Looking to the Future: Careers and How They are Evolving! \nPresenter: Kirstin Drye \nHACA member and human resources expert Kirstin Drye will lead a discussion about future career aspirations\, the possible role of your bleeding disorder\, and how the pandemic may influence your choices. There will also be fun games and opportunities to connect with your peers. \nRSVP Here \n\nTEEN SESSIONS DURING CAMP YOUNGBLOOD:  \nDate(s): Monday\, July 6th – Friday\, July 10th \nJoin VHF\, HACA and Camp Holiday Trails (CHT) for exclusive virtual sessions for teens! Program Director McKenzie has planned fun live and recorded activities so you can bring the magic of Camp home. There will be a teens only hangout\, virtual campfire and more. \nIf your teen would like to have access to this week of content\, please go to the link below to fill out the CHT waiver and sign up for virtual programming! Filling out the waiver is mandatory for families who would like to participate. If you have any questions\, please feel free to contact McKenzie at program@campholidaytrails.org or 434-960-1377. \nGo Here to Fill Out CHT’s Waiver  \n\nTEEN ADVOCACY SESSION: \nDate/Time: Tuesday\, July 14th at 7:00 pm \nTopic: Virtual Reality: Advocacy Meetings in the Age of Zoom \nJoin the HACA/VHF advocacy committee for an interactive discussion on the how-to’s of setting up and leading a virtual advocacy call with your legislator! This virtual chat is designed for adults\, as well as VHF/HACA teens age 13–17. \nRSVP Here \n\nAs we gather virtually to discuss\, share and learn\, we ask that all VHF virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement. \nThank you to our Teen Retreat Sponsors: Accredo\, Genentech\, Novo Nordisk\, Pfizer and Takeda
URL:https://vahemophilia.org/event-program/haca-vhf-teen-retreat-virtual-education-series/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20200706
DTEND;VALUE=DATE:20200711
DTSTAMP:20260405T175853
CREATED:20200624T204742Z
LAST-MODIFIED:20200625T202547Z
UID:4327-1593993600-1594425599@vahemophilia.org
SUMMARY:HACA/VHF Family Retreat Virtual Education Series
DESCRIPTION:Join the families of the Hemophilia Association of the Capital Area (HACA) and the Virginia Hemophilia Foundation (VHF) for our Family Retreat Virtual Education Series. \nThese educational opportunities are for families who live within HACA/VHF territory. Each session must be signed up for individually\, you do not have to sign up for all in order to participate. These sessions are free and open to VHF constituents\, any constituent under the age of 12 will need adult supervision to participate. \n\nFAMILY EDUCATION WEBINAR: \nDate/Time: Tuesday\, July 7th at 7:00 pm \nTopic: Setting Educational Expectations \nPresenter: Xaviette Pointer-Kincy\, M.Ed\, Community Relations and Education Manager for Sanofi Genzyme for the WV\, VA\, DC area \nEver wonder how to build an academic plan for your child? We’ll explore the world of education for a child with a bleeding disorder\, including the impact of setting expectations at home and having a proactive relationship with your child’s school. Recognizing that we may experience guilt\, social obstacles\, and absenteeism\, we’ll discuss ways to help establish clear goals\, positive routines\, individualized health care plans\, and a cycle of responsibility and self-advocacy. \nRSVP Here \n\nFAMILY SESSIONS DURING CAMP YOUNGBLOOD:  \nDate(s): Monday\, July 6th – Friday\, July 10th \nJoin VHF\, HACA and Camp Holiday Trails (CHT) for exclusive virtual sessions in honor of Camp Youngblood and Family Camp! Program Director McKenzie has planned fun live and recorded activities so you can bring the magic of Camp home. You won’t want to miss the infusion clinic scheduled for Tuesday and be sure to gather with us on Thursday for the virtual campfire. \nIf your family would like to have access to this week of content\, please go to the link below to fill out the CHT waiver and sign up for virtual programming! Filling out the waiver is mandatory for families who would like to participate. If you have any questions\, please feel free to contact McKenzie at program@campholidaytrails.org or 434-960-1377. \nGo Here to Fill Out CHT’s Waiver  \n\nAs we gather virtually to discuss\, share and learn\, we ask that all VHF virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement. \nThank you to our Family Camp Sponsors: Genentech\, Hemophilia Federation of America\, NovoNordisk\, Sanofi Genzyme\, Takeda
URL:https://vahemophilia.org/event-program/family-retreat-virtual-education-series/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20200706
DTEND;VALUE=DATE:20200711
DTSTAMP:20260405T175853
CREATED:20191101T144403Z
LAST-MODIFIED:20200624T205208Z
UID:3565-1593993600-1594425599@vahemophilia.org
SUMMARY:HACA/VHF Virtual Camp Youngblood
DESCRIPTION:We are excited to announce that the week of Monday\, July 6th – Friday\, July 10th\, Camp Holiday Trails (CHT) will offer exclusive virtual programming in honor of Camp Youngblood! You do not want to miss out on this exclusive content for VHF/HACA families and campers such as a virtual campfire\, an online infusion clinic\, and much more! \nIf your family is affiliated with VHF or HACA and would like to have access to this week of content in addition to CHT’s other virtual programming all summer long\, please go to this link to fill out the CHT waiver and sign up for virtual programming! Filling out the waiver is mandatory for families who would like to participate. \nIf you have any questions\, please feel free to contact McKenzie at program@campholidaytrails.org or 434-960-1377. \nThank you to our Camp Youngblood Sponsors: Accredo\, CSL Behring\, CVS Health\, Genentech\, Grifols\, Hoos at Home\, NovoNordisk\, Queen of Virginia Skill and Entertainment LLC\, Pfizer\, Takeda \n\n\n\nThe 2020 in-person session of Camp Youngblood has been suspended. Please go here to read the letter from our partner\, Camp Holiday Trails.
URL:https://vahemophilia.org/event-program/2020-haca-vhf-camp-youngblood/
LOCATION:Camp Holiday Trails\, 400 Holiday Trails Lane\, Charlottesville\, VA\, 22903
ATTACH;FMTTYPE=image/jpeg:https://vahemophilia.org/wp-content/uploads/2017/05/33422817936_19221f6fcf_k.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200714T190000
DTEND;TZID=America/New_York:20200714T200000
DTSTAMP:20260405T175853
CREATED:20200616T195541Z
LAST-MODIFIED:20200625T151844Z
UID:4283-1594753200-1594756800@vahemophilia.org
SUMMARY:HACA/VHF Advocacy Committee Virtual Chat
DESCRIPTION:Join the HACA/VHF advocacy committee for a virtual chat. This virtual chat is also a part of our Teen Retreat Virtual Education Series and we invite VHF/HACA teens age 13–17 to participate! \nTopic: Virtual Reality: Advocacy Meetings in the Age of Zoom \nCome join us for an interactive discussion on the how-to’s of setting up and leading a virtual advocacy call with your legislator! \nWhen you register you will receive instructions on how to join in\, either by video conference or by phone call. Please join us! \n\n» RSVP Here
URL:https://vahemophilia.org/event-program/haca-vhf-advocacy-committee-virtual-chat-2/
LOCATION:Online
ORGANIZER;CN="Kelly Waters%2C VHF Executive Director":MAILTO:info@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200722T190000
DTEND;TZID=America/New_York:20200722T200000
DTSTAMP:20260405T175853
CREATED:20200616T194315Z
LAST-MODIFIED:20200721T183837Z
UID:4281-1595444400-1595448000@vahemophilia.org
SUMMARY:Virtual Education Session "Balancing Emotional Well-Being"
DESCRIPTION:Topic: Balancing Emotional Well-Being \nSpeaker: Annie Sukhnandan | Patient Affairs Liaison Pfizer \nAn overview of how mental health disorders impact the hemophilia community\, what signs/symptoms to look for\, and how to encourage dialogue with caregivers and health care providers. \nThis session is free and open to VHF constituents\, any constituent under the age of 12 will need adult supervision to participate. \nAs we gather virtually to discuss\, share and learn\, we ask that all VHF virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement. \nSponsored by Pfizer \n\n» Go Here to RSVP
URL:https://vahemophilia.org/event-program/virtual-education-session-balancing-emotional-well-being/
LOCATION:Online
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200724T120000
DTEND;TZID=America/New_York:20200727T120000
DTSTAMP:20260405T175853
CREATED:20200626T164940Z
LAST-MODIFIED:20200626T164940Z
UID:4357-1595592000-1595851200@vahemophilia.org
SUMMARY:Red Tie Online Auction
DESCRIPTION:Join us for an incredible online auction Friday\, July 24th at 12:00 pm through Monday\, July 27th at 12:00 pm!  \nBid on awesome travel\, food\, entertainment and more from the comfort of your own home. All proceeds will benefit VHF and our mission of serving and supporting the needs of those impacted by a bleeding disorder through education\, advocacy and community. \nOur spring fundraiser\, The Red Tie Soiree\, was cancelled due to COVID-19\, but we have many wonderful auction items that are available for you now! \n» Go Here to Register to Bid and to see the Auction Catalog
URL:https://vahemophilia.org/event-program/red-tie-online-auction/
LOCATION:online
ATTACH;FMTTYPE=image/png:https://vahemophilia.org/wp-content/uploads/2018/12/Red-Tie-2018-Logo-01.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200903T190000
DTEND;TZID=America/New_York:20200903T200000
DTSTAMP:20260405T175854
CREATED:20200727T185048Z
LAST-MODIFIED:20200825T152908Z
UID:4397-1599159600-1599163200@vahemophilia.org
SUMMARY:June for Joint Health Webinar
DESCRIPTION:Topic: June for Joint Health \nPresenter: Angela Forsyth\, PT\, DPT\, Director of the REBUILD Physical Therapy Program with Diplomat/ Optum Specialty Infusion \nJoin us for an active and educational June for Joint Health webinar. Learn how you can start to form healthy habits by incorporating  joint-focused stretches into your daily routine. As always\, talk to your healthcare team before starting any physical activity. \n\n» RSVP Here
URL:https://vahemophilia.org/event-program/june-for-joint-health-webinar/
LOCATION:Online
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200915T190000
DTEND;TZID=America/New_York:20200915T200000
DTSTAMP:20260405T175854
CREATED:20200626T163721Z
LAST-MODIFIED:20200626T174514Z
UID:4353-1600196400-1600200000@vahemophilia.org
SUMMARY:HACA/VHF Advocacy Committee Virtual Chat
DESCRIPTION:Join the HACA/VHF advocacy committee for our virtual chat series. These chats focus on advocacy topics relevant to the bleeding disorders community! \nDuring our chat we will learn more about the Board of Pharmacy and how their work can significantly impact the bleeding disorders community. \nFor September’s chat we will be joined by Cynthia L. W. Warriner\, BS\, RPh\, CDE\, who served on the Virginia Board of Pharmacy as Chairman\, she had been an active member of the board since she was first appointed in 2012. In recent years\, Warriner has led regional initiatives to decrease the rate of adverse drug events (ADEs) in Virginia and Maryland\, as well as finding innovative ways to improve the patient experience and engage pharmacists in community-based care transitions initiatives. \nWhen you register you will receive instructions on how to join in\, either by video conference or by phone call. Please join us! \n\n» RSVP Here
URL:https://vahemophilia.org/event-program/haca-vhf-advocacy-committee-virtual-chat-3/
LOCATION:online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200917T190000
DTEND;TZID=America/New_York:20200917T200000
DTSTAMP:20260405T175854
CREATED:20200807T155313Z
LAST-MODIFIED:20200910T151952Z
UID:4442-1600369200-1600372800@vahemophilia.org
SUMMARY:Friendly Feud - Virtual Community Game Night
DESCRIPTION:Join VHF for a highly interactive and engaging game of Friendly Feud! An educational take on everyone’s favorite Family Feud using bleeding disorder trivia! This virtual game night will give you a chance to experience community connection from the comfort of your home. Great for individuals and families and designed for all ages to enjoy.  » RSVP HERE \nHosted by: Shelby Smoak\, Ph.D. Advocate & Education Specialist\, BioMatrix \nThis session is free and open to VHF constituents\, any constituent under the age of 12 will need adult supervision to participate. \nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF)virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement. \nSponsored by BioMatrix \n\n» Go Here to RSVP
URL:https://vahemophilia.org/event-program/friendly-feud/
LOCATION:Online
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200927T140000
DTEND;TZID=America/New_York:20200927T160000
DTSTAMP:20260405T175854
CREATED:20200807T162514Z
LAST-MODIFIED:20200921T184636Z
UID:4444-1601215200-1601222400@vahemophilia.org
SUMMARY:Virtual Community Retreat
DESCRIPTION:Join VHF and your bleeding disorders community for a program designed for increasing knowledge and connection! Sunday\, September 27th from 2:00 to 4:00 pm » RSVP HERE \nWe could not provide these important events without the help of our generous sponsors – please go here to view our Virtual Community Retreat Program. This program is one way our generous sponsors can virtually connect with the community by providing links to their electronic resources\, brochures\, websites\, social media sites and more! We would also like to thank our speaker sponsor Hemophilia Federation of America. \nIndustry Symposium \nAt the start of this session you will hear from our industry sponsors who will provide a brief overview of their company\, products\, and/or available services for you to learn more about how they are supporting and serving the inherited bleeding disorders community. \nEducation Presentation: New and Upcoming Bleeding Disorder Treatments with Steven W. Pipe\, MD \nDr. Pipe will present about the new and upcoming treatments within the bleeding disorders space. Topics of discussion span multiple bleeding disorders\, and touch on various novel\, and some not-so-novel treatments. \n\n					Bio: Steven Pipe\, MD\n					Dr Steven Pipe is a Professor and the Laurence A. Boxer Research Professor of Pediatrics and Communicable Diseases\, as well as Professor of Pathology at the University of Michigan\, Ann Arbor\, Michigan\, USA. He is the medical director of the Pediatric Hemophilia and Coagulation Disorders Program and medical director of the Special Coagulation Laboratory at the University of Michigan. His clinical interests include bleeding and thrombotic disorders and congenital vascular anomalies. Dr Pipe also directs a basic research lab investigating coagulation factor VIII and the molecular mechanisms of hemophilia A.Dr Pipe completed his undergraduate medical training at the University of Toronto\, Ontario\, Canada\, and his pediatric training at McMaster University in Hamilton\, Ontario. His pediatric hematology and oncology training was completed at the University of Michigan. He was a fellow of the Pediatric Scientist Development Program Dr Pipe is certified by the American Board of Pediatrics in pediatric hematology/oncology. He was awarded a Young Investigator Award from both the American Society of Pediatric Hematology and Oncology and the International Society on Thrombosis and Haemostasis\, and a Faculty Scholar Award from the American Society of Hematology. He was the 2015 recipient of the Leadership in Research Award from the National Hemophilia Foundation. He has served on the Board of Directors for the Hemostasis and Thrombosis Research Society\, as Chair of the Board of Directors for the American Thrombosis and Hemostasis Network and currently the Chair of the Medical and Scientific Advisory Committee to the National Hemophilia Foundation.\n				\n\n» GO HERE TO RSVP \n\n					This session is free and open to VHF constituents\, any constituent under the age of 12 will need adult supervision to participate. As we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF)virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read virtual meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/virtual-community-retreat/
LOCATION:Online
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201010T110000
DTEND;TZID=America/New_York:20201010T140000
DTSTAMP:20260405T175854
CREATED:20200814T180401Z
LAST-MODIFIED:20200930T154003Z
UID:4547-1602327600-1602338400@vahemophilia.org
SUMMARY:Virtual Unite Walk For Bleeding Disorders
DESCRIPTION:What’s a virtual walk? A virtual walk means you can join VHF on Zoom at 11:00 am on October 10th to enjoy a fun\, pre-walk program and to say “hi” to other participants – and then we hope you will gather safely for a park or a neighborhood walk that day to celebrate your fundraising accomplishments and in solidarity with our inherited bleeding disorders community from all over Virginia! However you choose to walk\, you are an important part of VHF and our mission. \nDate: Saturday\, October 10\, 2020 \nTime: 11:00 am \nLocation: Virtual! Register for the walk and you will receive the zoom link to join us for a fun\, family friendly virtual walk program! \nRegistration: www.uniteforbleedingdisorders.org/event/rva \nCost: There is no cost to participate but fundraising is highly encouraged! \n» Go here to see our generous 2020 sponsors \nFor more information contact Megan Schowengerdt at 804-740-8643 or megan@vahemophilia.org.
URL:https://vahemophilia.org/event-program/virtual-unite-walk-for-bleeding-disorders/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201015T190000
DTEND;TZID=America/New_York:20201015T200000
DTSTAMP:20260405T175854
CREATED:20200721T183705Z
LAST-MODIFIED:20201015T155743Z
UID:4381-1602788400-1602792000@vahemophilia.org
SUMMARY:Understanding Gene Therapy Research and Its Potential Application to Hemophilia
DESCRIPTION:Understanding Gene Therapy Research and Its Potential Application to Hemophilia\nA Program sponsored by Spark Therapeutics \nPresented by: Laureen Temple\, Sr Patient Education Liaison \nThis presentation is intended to walk you through the journey that started over 50 years ago with the beginnings of gene therapy research. We will walk through the basics of genetics and how that plays a role in hemophilia. With that knowledge\, we will look at how gene therapy is meant to work and discuss both the potential for and the challenges of investigational gene therapy research in hemophilia today. \n\n» Go Here to RSVP
URL:https://vahemophilia.org/event-program/understanding-gene-therapy-research-and-its-potential-application-to-hemophilia/
LOCATION:Online
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201020T190000
DTEND;TZID=America/New_York:20201020T200000
DTSTAMP:20260405T175854
CREATED:20200921T164552Z
LAST-MODIFIED:20200921T165545Z
UID:4629-1603220400-1603224000@vahemophilia.org
SUMMARY:HACA/VHF Advocacy Committee Virtual Chat
DESCRIPTION:Join the HACA/VHF advocacy committee for our virtual chat series. These chats focus on advocacy topics relevant to the bleeding disorders community! \nCome join us to meet elected local and state representatives\, Vaughn Ripley\, Brunswick\, Maryland City Council Member and State Representative Randi Clites (D-Ravenna)\, Ohio House District 75\, who are from our own bleeding disorders community. Learn more about how they got involved and what they are doing to make a difference. \nWhen you register you will receive instructions on how to join in\, either by video conference or by phone call. Please join us! \n\n» RSVP HERE
URL:https://vahemophilia.org/event-program/haca-vhf-advocacy-committee-virtual-chat-4/
LOCATION:online
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201029T190000
DTEND;TZID=America/New_York:20201029T200000
DTSTAMP:20260405T175854
CREATED:20200930T185917Z
LAST-MODIFIED:20201001T142302Z
UID:4636-1603998000-1604001600@vahemophilia.org
SUMMARY:Virtual Community Event - Happy Haunts Cookie Decorating Class
DESCRIPTION:» RSVP Here \n\nFall is here and that means that it’s time for some family-friendly Halloween fun! Put on your Halloween costume and join us for a cookie decorating experience as Hemo mom and cookie decorating extraordinaire\, Destinee Diprima\, leads us through some simple decorating tips and “tricks” this Halloween season with a live virtual class “Happy Haunts Virtual Cookie Decorating Class”! \nThis class is perfect for all skill levels and a list of tools and ingredients will be sent out beforehand. Financial support is available to those that need help purchasing ingredients or supplies. \nThis spooktacular event will include fun door prizes for best costume\, most creative cookie and more! \nThank you to our community event sponsors Diplomat/Optum\, Hoos at Home\, Novo Nordisk and Takeda \n\nThis session is free and open to VHF constituents\, any constituent under the age of 12 will need adult supervision to participate. \nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/community-event-happy-haunts-virtual-cookie-decorating-class/
LOCATION:Zoom
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201106T120000
DTEND;TZID=America/New_York:20201106T130000
DTSTAMP:20260405T175854
CREATED:20201015T171555Z
LAST-MODIFIED:20201106T184257Z
UID:4712-1604664000-1604667600@vahemophilia.org
SUMMARY:Virtual Education Session: 10 Tips for Supporting Your Child’s Academic Success During COVID-19
DESCRIPTION:» RSVP HERE \n\nTopic: 10 Tips for Supporting Your Child’s Academic Success During COVID-19 \nThis presentation discusses the timeline between the statewide closure of all public schools in March to present day instructional schedules. The main purpose is to provide parents with a variety of strategies to support virtual learning at home. \nSpeaker: Robyn Evans\, Educational Consultant\, M.Ed.\nHospital Education Program\, University of Virginia Children’s Hospital\n \nThank you to our sponsors Bayer\, Genentech\, Hemophilia Federation of America (HFA)\, Novo Nordisk and Takeda \nWe could not provide these important events without the help of our generous sponsors – please go here to view our Virtual Sponsor Program. This program is one way our generous sponsors can virtually connect with the community by providing links to their electronic resources\, brochures\, websites\, social media sites and more! \n\nRESOURCES FOR PARENTS: \nIf you missed this program you can watch the recording here. \nhttps://www.doe.virginia.gov/support/health_medical/office/reopen-status.shtml \nhttps://www.cdc.gov/coronavirus/2019-ncov/community/schools-childcare/parent-checklist.html \nhttps://www.doe.virginia.gov/instruction/virtual_learning/support-virtual-learning/index.shtml \nhttps://www.childrenandscreens.com/media/press-releases/covid-19-and-at-home-learning/ \nhttps://www.healthychildren.org/English/health-issues/conditions/COVID-19/Pages/Working-and-Learning-from-Home-COVID-19.aspx \nhttps://www.edutopia.org/ \nhttps://pbskids.org/grownups/ \nhttps://www.understood.org/ \nhttps://www.commonsense.org/ \nhttps://www.commonsensemedia.org/
URL:https://vahemophilia.org/event-program/virtual-education-session-10-tips-for-supporting-your-childs-academic-success-during-covid-19/
LOCATION:Zoom
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201108T140000
DTEND;TZID=America/New_York:20201108T160000
DTSTAMP:20260405T175854
CREATED:20200930T192717Z
LAST-MODIFIED:20201117T170145Z
UID:4657-1604844000-1604851200@vahemophilia.org
SUMMARY:VHF/HACA Virtual Men's Retreat
DESCRIPTION:» RSVP HERE \n\nIn partnership with the Hemophilia Association of the Capital Area (HACA)\, we are offering a virtual Men’s Retreat! Participants will enjoy education and time to gather and share with other people who encounter similar challenges. This retreat is free and open to men age 21 and up with inherited bleeding disorders and/or to men whose lives are impacted by a bleeding disorder (i.e. caregivers\, spouses\, immediate family members). \nSunday\, November 8th  \n2:00 pm – HFA Rap Session and Virtual Beer Tasting Class \n3:00 pm – Singing to Heal \nJoin Shelby Smoak\, Ph.D.\, Advocate & Education Specialist\, Biomatrix\, for an interactive discussion of music\, the brain\, and healing. This program empowers participants to tap into the healing power of music and into sharing the emotional experience with others. Finish off with a fun-filled music trivia game! This version of music trivia will contain a special 1980s round. This event promises to be a song-filled experience. \n\nThank you to our generous sponsors: Accredo\, Biomatrix\, CSL Behring\, Genentech\, Hemophilia Federation of America (HFA)\, Colburn-Keenan Foundation\, Inc.\, Novo Nordisk\, Pfizer and Takeda \nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/virtual-mens-retreat/
LOCATION:Zoom
ATTACH;FMTTYPE=image/jpeg:https://vahemophilia.org/wp-content/uploads/2020/09/49071881157_a9be747366_o.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201114T160000
DTEND;TZID=America/New_York:20201114T180000
DTSTAMP:20260405T175854
CREATED:20200930T195502Z
LAST-MODIFIED:20201111T180321Z
UID:4661-1605369600-1605376800@vahemophilia.org
SUMMARY:VHF/HACA Virtual Advocacy Stakeholder and Education Meeting
DESCRIPTION:» RSVP HERE \n\nJoin HACA/VHF constituents\, advocacy committee members\, and community stakeholders from throughout Virginia for an education meeting that will cover a wide range of advocacy topics relevant to the bleeding disorders community! \nSaturday\, November 14\, 2020 | 4 PM to 6 PM \nAgenda – \n\nWelcome/Introductions\nHealth Policy in the Intersection of Policy and Politics – Del. Dawn Adams (D\, 68th)\nVirginia Bleeding Disorder Program (VBDP) Update – Jan Kuhn RN\, MPH\, Coordinator of VBDP\nState Update AND What Can We Expect in 2021 General Assembly – Becky Bowers-Lanier\, VHF/HACA Advocacy Consultant\nFederal Update – Miriam Goldstein\, J.D\, Director of Policy at Hemophilia Federation of America (HFA)/Nathan Schaefer\, Vice President of Public Policy at National Hemophilia Foundation (NHF)\nWrap-Up\n\nThank you to our advocacy sponsors: Bayer\, CSL Behring\, CVS Caremark\, Genentech\, National Hemophilia Foundation (NHF)\, PhRMA\, Pfizer\, Sanofi Genzyme\, and Takeda \nWe could not provide these important events without the help of our generous sponsors – please go here to view our Virtual Sponsor Program. This program is one way our generous sponsors can virtually connect with the community by providing links to their electronic resources\, brochures\, websites\, social media sites and more!
URL:https://vahemophilia.org/event-program/vhf-haca-virtual-advocacy-stakeholder-and-education-meeting/
LOCATION:Zoom
CATEGORIES:advocacy,education
ATTACH;FMTTYPE=image/jpeg:https://vahemophilia.org/wp-content/uploads/2020/09/49070330053_1e501533f5_o.jpg
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201119T190000
DTEND;TZID=America/New_York:20201119T200000
DTSTAMP:20260405T175854
CREATED:20200930T210243Z
LAST-MODIFIED:20201001T185639Z
UID:4667-1605812400-1605816000@vahemophilia.org
SUMMARY:Virtual Education Session - Balancing Emotional Well-Being featuring Bullying
DESCRIPTION:» RSVP HERE \n\nTopic: Balancing Emotional Well-Being featuring Bullying \nAn overview of how mental health disorders impact the hemophilia community with a focus on cyber\, social and physical bullying. Also\, how caregivers can help their kids/teenagers with bullies as well as talking about the 504 plan for school. \nSpeaker: Annie Sukhnandan | Patient Affairs Liaison Pfizer \nThank you to our sponsor Pfizer \n\nThis session is free and open to VHF constituents\, any constituent under the age of 12 will need adult supervision to participate. \nAs we gather virtually to discuss\, share and learn\, we ask that all VHF virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement. \n 
URL:https://vahemophilia.org/event-program/balancing-emotional-well-being-featuring-bullying/
LOCATION:Zoom
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201205T140000
DTEND;TZID=America/New_York:20201205T150000
DTSTAMP:20260405T175854
CREATED:20201001T134848Z
LAST-MODIFIED:20201125T172917Z
UID:4669-1607176800-1607180400@vahemophilia.org
SUMMARY:Virtual Winter Gathering
DESCRIPTION:» RSVP HERE \n\nJoin VHF and your bleeding disorders community for some virtual holiday cheer! \nThere will be ginger bread house decorating led by Michelle Stielper\, Regional Care Coordinator – Biomatrix\, (gingerbread house kits will be shipped directly to attendees) and you will not want to miss everyone’s favorite game show host\, Shelby Smoak\, Ph.D.\, Advocate & Education Specialist – BioMatrix\, in a holiday themed trivia game that includes rounds of “Name that Holiday Song.” Test your holiday knowledge in this spirited\, interactive event. There will be education\, door prizes\, banter\, jests\, and endless fun. Laughs are a must! Please join and share in the holiday spirit. \nThis virtual event will give you a chance to experience community connection from the comfort of your home. Great for individuals and families and designed for all ages to enjoy. » RSVP HERE \n\nThis session is free and open to VHF constituents\, any constituent under the age of 12 will need adult supervision to participate. \nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF)virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement. \nThank you to our generous sponsors Bayer\, BioMatrix\, CSL Behring\, Genentech\, Hoos at Home\, Colburn-Keenan Foundation\, Inc.\, Pfizer and Takeda. \nWe could not provide these important events without the help of our generous sponsors – please go here to view our Virtual Sponsor Program. This program is one way our generous sponsors can virtually connect with the community by providing links to their electronic resources\, brochures\, websites\, social media sites and more!
URL:https://vahemophilia.org/event-program/virtual-winter-gathering/
LOCATION:Zoom
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
END:VCALENDAR