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X-WR-CALNAME:Virginia Bleeding Disorders Foundation
X-ORIGINAL-URL:https://vahemophilia.org
X-WR-CALDESC:Events for Virginia Bleeding Disorders Foundation
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DTSTART;TZID=America/New_York:20240421T083000
DTEND;TZID=America/New_York:20240421T113000
DTSTAMP:20260405T195412
CREATED:20240207T191254Z
LAST-MODIFIED:20240412T165922Z
UID:6613-1713688200-1713699000@vahemophilia.org
SUMMARY:NATURAL BRIDGE – Bleeding Disorders Awareness Education Celebration
DESCRIPTION:To RSVP email heather@vahemophilia.org \nThe VHF Bleeding Disorders Awareness Education Celebration is an exciting new event that was designed to raise awareness\, increase education\, honor the hard work and dedication in the bleeding disorders community\, and best of all CELEBRATE and enjoy time with friends and family in a unique setting! \nWhat to expect: Check back here soon for more details! \nParticipation is open to those with an inherited bleeding disorder and their immediate family and/or household members who live within VHF territory as well as VHF donors\, volunteers\, friends and extended family. \n\nThank you to our generous sponsors:  \nGOLD SPONSOR\nTakeda \nCORPORATE SPONSORS\nBioMarin\, CSL Behring\, DrugCo Health\, Octapharma\, and Sanofi \nFRIEND SPONSORS\nBioMatrix\, and Cottrill’s Pharmacy \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/natural-bridge-bleeding-disorders-awareness-education-celebration/
LOCATION:Natural Bridge Historic Hotel\, 15 Appledore Ln\, Natural Bridge\, VA\, 24578\, United States
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240420T083000
DTEND;TZID=America/New_York:20240420T160000
DTSTAMP:20260405T195412
CREATED:20240206T224145Z
LAST-MODIFIED:20240206T225743Z
UID:6607-1713601800-1713628800@vahemophilia.org
SUMMARY:SPONSORS AND PRESENTERS REGISTRATION - Annual Meeting in Natural Bridge
DESCRIPTION:REGISTER HERE\nWe appreciate your interest and support of our 2024 Annual Meeting\, contact Kelly Waters at kelly@vahemophilia.org or 804-740-8643 for more information about sponsorship. Closer to the date of the event we will send a detailed email to all registered industry supporters and presenters. This email will include the agenda\, booth set up times\, what to bring\, how many people to expect\, etc. \nOvernight accommodations at The Natural Bridge Hotel & Conference Center are available on the nights of Friday\, April 19th and Saturday\, April 20th. \n\nSaturday\, April 20th (Tentative Timeline) \n7:00 am – 8:00 am Exhibit set-up (for those that plan to arrive on Friday\, April 19th there will be time to set-up your exhibit that evening) \n8:30 am – 10:00 am Breakfast and visit exhibits \n10:00 am – 4:00 pm Education presentations\, visit exhibits\, lunch and snack breaks\, and more! \n4:00 pm Meeting wrap-up \n\nPLEASE NOTE: We will not make hotel reservations for speakers\, Industry Agents OR Industry Agents who are Consumers. However\, we do have a room block at The Natural Bridge Hotel & Conference Center and they will extend the group rate of $129. There is a limited number of these rooms and they will be first come first served. If you run into any issues\, please do not hesitate to reach out to heather@vahemophilia.org. \nHow to reserve your room (Room block will close Monday\, March 18th): \nTo reserve over the phone\, please call the hotel at 540-291-2121 and reference the following information: \n\nGroup Name: VHF 2024 Annual Education Meeting\nGroup Code:  041924VHF\nEvent Dates: April 19\, 2024 – April 21\, 2024\n\nTo book online\, please visit the following link: https://naturalbridgeva.com/natural-bridge-va-lodging/ \n\nFor Industry Agents who are Consumers and a VHF Constituent – How to register your family: If your family members plan to attend the meeting go here to register them. As a reminder we still ask that you register yourself as an industry representative and make your own hotel reservation. \nVHF makes every effort to ensure that the members of the bleeding disorders community are always able to make a clear distinction between its own activities and those of Industry. Further\, it is essential that we create beneficial and pressure – free experiences for our community members\, and to protect participants in VHF events and programs. Accordingly\, VHF has developed a set of standards. Go here to read VHF’s Industry Standards. \nThank you for your continued support!
URL:https://vahemophilia.org/event-program/sponsors-and-presenters-registration-annual-meeting-in-natural-bridge/
LOCATION:Natural Bridge Historic Hotel\, 15 Appledore Ln\, Natural Bridge\, VA\, 24578\, United States
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240419
DTEND;VALUE=DATE:20240422
DTSTAMP:20260405T195412
CREATED:20240206T021553Z
LAST-MODIFIED:20240402T033747Z
UID:6602-1713484800-1713743999@vahemophilia.org
SUMMARY:COMMUNITY MEMBER REGISTRATION – Annual Meeting in Natural Bridge
DESCRIPTION:RSVP Deadline: Monday\, March 18\, 2024\nVHF’s Annual Meeting brings together the inherited bleeding disorder community to share information on a wide variety of topics and it is a great opportunity for networking and support for individuals and families. \nAnnual Meeting – What To Expect: The event will kick off Friday night with an educational dinner and a family fun movie night. Then we will begin Saturday morning with breakfast and time to visit with our generous industry sponsors to learn about the latest treatments and therapies\, followed by education sessions on topics such as research and innovation\, benefits of Tai Chi and meditation\, Lyman Fisher Scholarship winners recognition\, VHF chapter updates\, and on-site childcare with A Helping Hand and children and teen programming with Camp Holiday Trails. Stay tuned for more information on the Bleeding Disorders Awareness Education Celebration that will take place on Sunday\, April 21st! \nOvernight accommodations at The Natural Bridge Hotel & Conference Center are available on the nights of Friday\, April 19th and Saturday\, April 20th. \nEducational programs\, scheduled meals\, community events\, and Friday & Saturday night overnight accommodations are provided for constituents that live in the VHF coverage area. There is a $25 registration fee per household » Go here to pay your registration fee \n*If you are a constituent that lives outside of the VHF coverage area and you are interested in registering for this meeting\, please email heather@vahemophilia.org for more information. \nFriday\, April 19th – Tentative Schedule (Agenda Coming Soon!): \n7:00 pm Educational Dinner \n8:00 pm Family Friendly Movie \n\nSaturday\, April 20th  \n8:30 am – 10:00 am Breakfast and visit exhibits \n10:00 am – 4:00 pm Education presentations\, visit exhibits\, lunch and snack breaks\, and more! \n4:00 pm Meeting wrap-up \n6:00 pm World Hemophilia Day – Community Event and Dinner \n\nSunday\, April 21st \n8:30 am to 9:30 am Bleeding Disorders Awareness Month Celebration Breakfast at The Natural Bridge Hotel \nTime and Location TBD – Bleeding Disorders Awareness Education Celebration *Community celebration event is optional and is not a part of the annual meeting. \n\nThank you to our current Annual Meeting sponsors – \nPREMIER SPONSORS \n\nCSL Behring\nPfizer\nSanofi\n\nPLATINUM SPONSORS \n\nAccredo\nBayer\nBiomarin\nGenentech\nNovo Nordisk\nTakeda\n\nCORPORATE SPONSORS \n\nBioMatrix\nChildren’s Hospital of The King’s Daughter’s (CHKD) and the University of Virginia’s (UVA) 340B Factor Program\nCottrill’s Pharmacy\nCVS\nDrugCo Health\nOctapharma\nOptum\nSuperior Biologics\nVCU-HTC\n\nFRIEND \n\nHemophilia Alliance\n\n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/community-member-registration-annual-education-meeting-in-natural-bridge/
LOCATION:Natural Bridge Historic Hotel\, 15 Appledore Ln\, Natural Bridge\, VA\, 24578\, United States
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240410
DTEND;VALUE=DATE:20240411
DTSTAMP:20260405T195412
CREATED:20231018T211442Z
LAST-MODIFIED:20240410T164545Z
UID:6493-1712707200-1712793599@vahemophilia.org
SUMMARY:2024 Camp Youngblood Application Due!
DESCRIPTION:Pre-Screening Link\n*Wednesday\, April 10\, 2024: Registration will close\, and no other applicants will be accepted. All parts of the online camp application must be complete.*\nThe Virginia Hemophilia Foundation (VHF)\, the Hemophilia Association of the Capital Area (HACA)\, and Camp Holiday Trails (CHT) are teaming up again for Camp Youngblood (CYB) in 2024! \nCamp Youngblood is a week-long overnight camp at CHT for children ages 7-17 with inherited bleeding disorders\, their siblings\, and children of members of the inherited bleeding disorder community that reside within the VHF or HACA coverage area. Kids enjoy a week of fun and learning with others that are faced with similar challenges and life experiences. Go here to learn more about the admission guidelines. \nDates: Sunday\, July 14 – Friday\, July 19\, 2024 \nNEW THIS YEAR: Friday\, July 19\, will be “CYB Family Friday.” Camper families are invited to join in on all the fun starting at 9 a.m. Lunch will be provided by CHT\, and everyone will depart at 2 p.m. During this time\, there will be a mini “family day camp” that will allow campers and their families a glimpse of Camp Magic together! VHF/HACA are looking into providing an overnight stay at a hotel close to CHT on that Thursday\, July 18; in the pre-screening survey\, please let us know if this would be of interest to you and we will be in touch with more details. \nLocation: Camp Holiday Trails\, 400 Holiday Trails Ln\, Charlottesville\, VA 22903 \nThank you to our Camp Youngblood sponsors: Bayer\, CSL Behring\, Genentech\, Grifols\, Novo Nordisk\, Takeda\, and VCU-HTC \nThank you to our Camp Youngblood Family Education sponsors: CSL Behring\, Genentech\, Novo Nordisk\, and Takeda \n\nAPPLICATION PROCESS\nOpen Enrollment Application: The Camp Youngblood application process is open enrollment and not first come first served. This will allow VHF\, HACA\, and CHT the chance to review applications and manage the roster according to the application/admission guidelines. *Must adhere to all application deadlines to be considered* Go here to learn more about the admission guidelines. \n1. Pre-screening – This is required for ALL applicants\, even returning campers. \nThe enrolling parent/guardian will fill out the short pre-screening survey to determine eligibility » Go here to fill out the pre-screening survey \nWithin one week of filling out the pre-screening survey you will receive an email from either VHF or HACA\, if you do not\, please email Heather at heather@vahemophilia.org or 804-740-8643. \nIf you are NOT eligible you will receive an email from either VHF or HACA letting you know the reason you do not meet the eligibility requirements and a link to the other summer camp offerings from CHT. \nIf you ARE eligible\, you will receive an email from either VHF or HACA with a link to the full CYB application and other important details. \n2. Registration – \nUse the link provided in the email response to your pre-screening survey and fill out the full CYB application form.\nThe form and the application process are managed by CHT\, if you have questions or concerns regarding this part of the process contact CHT directly at program@campholidaytrails.org or 434-977-3781. \nWednesday\, April 10\, 2024: Registration is closed\, and no other applicants will be accepted. All parts of the online camp application must be complete. \n3. Submit All Paperwork and Medical Forms – \nTuesday\, May 28\, 2024: All camp paperwork must be finalized and medical assessment due – firm deadline. \n4. Confirmation and Registration Fee – \nThursday\, May 30\, 2024: VHF & HACA will email their respective campers and request written confirmation via email response of attendance or camper(s) will be removed from roster. Before removing from roster\, every effort is made to contact families (text\, phone call\, individual follow up email). Registration fee link will be included in this email\, to be collected individually by VHF/HACA. Registration fee is $25 per camper. Registration Fee Deadline is Monday\, June 3\, 2024. \n5. Acceptance Email! \nFriday\, June 7\, 2024: CHT sends welcome email to all campers with confirmed spots. \n\nCHT COVID Vaccination Policy Update: CHT consulted with their Medical Director\, Dr. Ina Stephens and CHT’s Medical Advisory Committee (MAC)\, and they have decided to update their COVID protocols for Summer 2024. CHT will no longer require campers\, staff\, or volunteers to be vaccinated against COVID. They will continue to monitor COVID and community health issues within their region and the impact on medically complex children. They strongly recommend families to speak with their healthcare providers about vaccinating their child against COVID and any other recommended pediatric immunizations. \nPlease rest assured that they will continue to implement rigorous health and safety measures – including enhanced cleaning protocols\, monitoring symptomatic individuals\, and requiring all campers\, staff\, and volunteers to complete a rapid COVID test during check-in on the first day of CYB. The Med Team and year-round staff are well trained to monitor and respond to any potential health concerns and they will remain vigilant in their efforts to create a healthy and secure environment. \nWe understand that this update may raise questions\, and CHT encourages you to reach out to their Director of Programs\, Caitlin Carroll\, MSW at program@campholidaytrails.org.
URL:https://vahemophilia.org/event-program/2024-camp-youngblood-application-process-and-pre-screening-survey/
LOCATION:VA
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240329
DTEND;VALUE=DATE:20240330
DTSTAMP:20260405T195412
CREATED:20240206T013333Z
LAST-MODIFIED:20240206T013333Z
UID:6598-1711670400-1711756799@vahemophilia.org
SUMMARY:Lyman Fisher Scholarship Application Deadline
DESCRIPTION:APPLICATION PROCEDURE & DEADLINES\nApplication Deadline: 11:59 pm (EST)\, Friday\, March 29\, 2024\nHow to Apply: Applications can be completed using our online application form or you can download the paper application form and email the application to info@vahemophilia.org. \n» Go Here to fill out the application online \n» Go Here to download the paper application \nLetters of Recommendation: You will need at least two letters of recommendation from persons who are not family members. These are to be emailed separately to info@vahemophilia.org by the deadline. \n\nOne letter should be from an HTC provider\, nurse\, social worker\, or someone who knows you well from the bleeding disorders community.\nThe other letter could be from your scout leader\, minister\, teacher\, employer\, guidance counselor\, coach\, etc.\n\n  \nApplications and/or supporting documents received after the deadline will not be considered. \n\n\n\n\n\n\n\n\nELIGIBILITY & AWARD\nScholarship Eligibility: Individuals living with an inherited bleeding disorder\, their sibling or their parents who live in the territorial jurisdiction of VHF\, which includes the State of Virginia\, with the exception of the following: The cities of Alexandria\, Fairfax\, Falls Church\, Herndon\, Manassas\, and Vienna and the counties of Arlington\, Fairfax\, Fauquier\, Loudon\, Prince William and Stafford. \nScholarship applicants must have participated in VHF activities. \nScholarship Award: Scholarships are one-year awards in the amount of $2\,000 for a full academic year. While at least two scholarships are available each year\, VHF is not obligated to award scholarships in a given year. The scholarships may be used at any accredited nonprofit college\, university\, or vocational/technical school in the United States and are to be applied toward a student’s educational expenses. \nA student who receives an award one year may reapply in later years but winning a scholarship in one year does not necessarily mean that the student will win in a later year. Also\, a student who applies in one year and does not receive an award is eligible to apply the following year for the scholarship. \nPayment of Scholarship Funds: Scholarship payments are not distributed directly to an individual\, but are made via scholarship checks\, payable to the schools. VHF staff will work with the award recipient(s) to process the scholarship funds. \n\n\n\n\n\n\n\n\nRESPONSIBILITIES OF RECIPIENTS\nScholarship recipients must enroll as a college student in the fall of the year in which the scholarships are awarded and continue in school for the entire academic year without interruption\, barring illness\, emergency\, or military service. If a scholarship recipient leaves school during the scholarship period\, VHF may ask for reimbursement of scholarship funds. Scholarship recipients are responsible for making certain that their scholarship checks are delivered to their colleges. \n\n\n\n\n\n\n\n\nSCHOLARSHIP BACKGROUND\nThe Lyman Fisher Scholarship was established to honor Dr. Lyman Fisher\, a teacher\, researcher\, and clinician in hemostasis. For many years\, he directed the adult hemophilia program for Virginia. He will be remembered for his steadfast commitment to his patients and students\, his respect for those who served under him\, his community service and his affection for his family.
URL:https://vahemophilia.org/event-program/lyman-fisher-scholarship-application-deadline-2/
LOCATION:VA
ORGANIZER;CN="Kelly Waters%2C VHF Executive Director":MAILTO:info@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240319T183000
DTEND;TZID=America/New_York:20240319T200000
DTSTAMP:20260405T195412
CREATED:20240206T012618Z
LAST-MODIFIED:20240214T163253Z
UID:6597-1710873000-1710878400@vahemophilia.org
SUMMARY:WINCHESTER – Bleeding Disorders Awareness Month Educational Dinner
DESCRIPTION:RSVP Here!\nCome celebrate Bleeding Disorders Awareness Month with your VHF community. There will be food\, education\, and community building! Dinner will be provided and there is no fee to attend. This event is for VHF constituents (and their immediate family and/or household members only.)  \nThe topic will be: Expect the Unexpected – Prepare for Anything \nEmergency room staff\, including physicians\, may have little experience in the management of patients with bleeding disorders because they are rare conditions. This presentation will help you avoid and prepare for a possible trip to the ER\, anytime\, anywhere—even when traveling or during a natural disaster. \nSpeaker: Morgan Cook\, Community Education Specialist\, Rare Disease – Hematology\, Takeda\n \n\nThank you to our sponsor Takeda. \nSpace is limited and priority will be given to those members that live in the Shenandoah Region. \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/winchester-bleeding-disorders-awareness-month-educational-dinner/
LOCATION:Village Square Restaurant\, 103 N Loudoun St\, Winchester\, Virginia\, 22601\, United States
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240316T120000
DTEND;TZID=America/New_York:20240316T133000
DTSTAMP:20260405T195412
CREATED:20240206T011153Z
LAST-MODIFIED:20240312T161111Z
UID:6596-1710590400-1710595800@vahemophilia.org
SUMMARY:RICHMOND – Bleeding Disorders Awareness Month Educational Lunch with VCU!
DESCRIPTION:This event has been cancelled.\nCome celebrate Bleeding Disorders Awareness Month with your VHF community and staff from VCU-HTC. There will be food\, education\, and community building! This event is for VHF constituents (and their immediate family and/or household members only.) Lunch will be provided and there is no fee to attend. \nThe topic will be: Insurance Updates \nSpeaker: Lauren Dunn\, MSW\, Clinical Social Worker\, Central VA Center for Coagulation Disorders at VCU Health\, Virginia Bleeding Disorders Program (VBDP) Health Insurance Consultant \n\nSpace is limited and priority will be given to those members that live in the Central Virginia Region. \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/richmond-bleeding-disorders-awareness-month-educational-lunch-with-vcu/
LOCATION:VA
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240314T183000
DTEND;TZID=America/New_York:20240314T200000
DTSTAMP:20260405T195412
CREATED:20240206T010157Z
LAST-MODIFIED:20240226T192035Z
UID:6595-1710441000-1710446400@vahemophilia.org
SUMMARY:ROANOKE - Bleeding Disorders Awareness Month Educational Dinner
DESCRIPTION:RSVP Here!\nCome celebrate Bleeding Disorders Awareness Month with your VHF community. There will be food\, education\, and community building! Dinner will be provided and there is no fee to attend. This educational dinner for VHF constituents (and their immediate family and/or household members only.)  \nThe topic will be: Drug Discovery & Beyond: How Scientists and the FDA Research and Evaluate New Treatments for You \nLearn how new treatments are discovered and evaluated in this easy-to-understand presentation. \nSpeaker: Stephanie Torres\, Sr. Account Manager\, Mid-Atlantic\, Hemophilia Gene Therapy \n\nSpace is limited and priority will be given to those members that live in the South West Virginia Region. \nThank you to our sponsor BioMarin. \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/roanoke-bleeding-disorders-awareness-month-dinner/
LOCATION:Hotel Roanoke & Conference Center\, 110 Shenandoah Ave NW\, Roanoke\, VA\, 24016\, United States
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240313T181500
DTEND;TZID=America/New_York:20240313T200000
DTSTAMP:20260405T195412
CREATED:20240206T003836Z
LAST-MODIFIED:20240206T011635Z
UID:6593-1710353700-1710360000@vahemophilia.org
SUMMARY:VIRGINIA BEACH - Bleeding Disorders Awareness Month Dinner with CHKD!
DESCRIPTION:RSVP Here!\nCome celebrate Bleeding Disorders Awareness Month with your VHF community and staff from CHKD-HTC. There will be food\, education\, community building and bowling – a great way for people with bleeding disorders and the whole family to have fun and get moving! \nThis event is for VHF constituents (and their immediate family and/or household members only.) Dinner\, arcade cards\, and bowling will be provided and there is no fee to attend. \n\nSpace is limited and priority will be given to those members that live in the Hampton Roads Region. \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/virginia-beach-bleeding-disorders-awareness-month-dinner-with-chkd/
LOCATION:Apex Entertainment Virginia Beach\, 4621 Columbus St #100\, Virginia Beach\, Virginia\, 23462
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240303T110000
DTEND;TZID=America/New_York:20240303T140000
DTSTAMP:20260405T195412
CREATED:20240206T001409Z
LAST-MODIFIED:20240304T004745Z
UID:6591-1709463600-1709474400@vahemophilia.org
SUMMARY:RICHMOND – Bleeding Disorders Awareness Month Community Event at Topgolf
DESCRIPTION:RSVP Here!\nGet active with your bleeding disorders community and help us to tee off Bleeding Disorders Awareness Month! Join VHF on Sunday\, March 3rd in RICHMOND for education\, celebration\, community building and opportunities to enhance health and fitness at Richmond Topgolf. We look forward to exploring how you can take charge of your bleeding disorder and life\, while having fun learning about the game of golf. \nEvent is free – lunch and two hours of golf will be provided. Participation is limited to those with an inherited bleeding disorder and their immediate family and/or household members who live within VHF territory. \nWith special guest Perry Parker! \nJoin Pro Golfer Perry Parker as he discusses finding your passion and working hard to meet your goals. Perry is a patient advocate for CSL Behring\, who has taken part in three U.S. Opens and won five times on the Canadian Tour in a more than 30 years as a professional golfer. Perry continues to be active on the Australian Legends Tour and European senior tours. He also hosts an annual clinic for kids taking part in CSL Behring’s Gettin’ in the Game℠ Junior National Championship\, a sports competition for kids and teens with bleeding disorders. Perry also will provide some golf tips at the driving range. \n\nThank you to our generous sponsors: BioMarin\, CSL Behring\, Genentech\, Novo Nordisk\, and Sanofi \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/richmond-bleeding-disorders-awareness-month-community-event-at-topgolf/
LOCATION:Topgolf Richmond\, 2308 Westwood Ave\, Richmond\, Virginia\, 23230
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240302T110000
DTEND;TZID=America/New_York:20240302T140000
DTSTAMP:20260405T195412
CREATED:20240206T000304Z
LAST-MODIFIED:20240304T001720Z
UID:6590-1709377200-1709388000@vahemophilia.org
SUMMARY:VIRGINIA BEACH – Bleeding Disorders Awareness Month Community Event at Topgolf
DESCRIPTION:RSVP Here!\nGet active with your bleeding disorders community and help us to tee off Bleeding Disorders Awareness Month! Join VHF on Saturday\, March 2nd in VIRGINIA BEACH for education\, celebration\, community building and opportunities to enhance health and fitness at Virginia Beach Topgolf. We look forward to exploring how you can take charge of your bleeding disorder and life\, while having fun learning about the game of golf. \nEvent is free – lunch and two hours of golf will be provided. Participation is limited to those with an inherited bleeding disorder and their immediate family and/or household members who live within VHF territory. \nWith special guest Perry Parker! \nJoin Pro Golfer Perry Parker as he discusses finding your passion and working hard to meet your goals. Perry is a patient advocate for CSL Behring\, who has taken part in three U.S. Opens and won five times on the Canadian Tour in a more than 30 years as a professional golfer. Perry continues to be active on the Australian Legends Tour and European senior tours. He also hosts an annual clinic for kids taking part in CSL Behring’s Gettin’ in the Game℠ Junior National Championship\, a sports competition for kids and teens with bleeding disorders. Perry also will provide some golf tips at the driving range. \n\nThank you to our generous sponsors: BioMarin\, CSL Behring\, Sanofi\, Superior Biologics\, and Takeda \nThank you to our Top Golf 2 hour – unlimited gameplay sponsors Colburn-Keenan Foundation\, Inc. \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/virginia-beach-bleeding-disorders-awareness-month-celebration-at-topgolf-2/
LOCATION:Topgolf Virginia Beach\, 5444 Greenwich Road\, Virginia Beach\, VA\, 23462\, United States
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240210
DTEND;VALUE=DATE:20240212
DTSTAMP:20260405T195412
CREATED:20231221T170628Z
LAST-MODIFIED:20240206T004807Z
UID:6571-1707523200-1707695999@vahemophilia.org
SUMMARY:WILLIAMSBURG - Women's Retreat
DESCRIPTION:This event is full. Please email heather@vahemophilia.org to be added to the waitlist.\nThis rejuvenating weekend retreat invites women affected and connected to inherited bleeding disorders to join together for education and to develop community connections. This retreat is open to women aged 21 and up with inherited bleeding disorders/carriers and/or to women whose lives are impacted by a bleeding disorder (i.e. caregivers\, spouses\, immediate family members). This retreat is open to constituents that live in the VHF coverage area. \nThere is a $25 registration fee for this retreat. This fee will go toward the cost of the retreat and includes access to educational programs\, scheduled meals and overnight accommodations provided throughout the weekend. After you RSVP you will receive a separate confirmation email from heather@vahemophilia.org with a link to pay the registration fee. The deadline for registration and payment is January 19\, 2024. \nTentative Agenda: \nSaturday\, February 10\, 2024\n10:00 am Arrival\, welcome\, refreshments\n10:30 am Icebreaker\n11:00 am Session #1\n12:00 pm Yoga\n12:30 pm Lunch\n1:30 pm Session #2\n3:00 pm Service project\n4:00 pm Break\, check in to hotel\n5:00 pm Dinner (TBD) \nThank you to our Women’s Retreat sponsors: CSL Behring\, Genentech\, and Takeda \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/womens-retreat/
LOCATION:The Williamsburg Lodge\, 310 South England Street\, Williamsburg\, VA\, 23185\, United States
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240129T090000
DTEND;TZID=America/New_York:20240129T103000
DTSTAMP:20260405T195412
CREATED:20231208T192943Z
LAST-MODIFIED:20240119T163009Z
UID:6547-1706518800-1706524200@vahemophilia.org
SUMMARY:Richmond Days
DESCRIPTION:RSVP HERE\n  \nRichmond Days is back! Join VHF\, the Hemophilia Association of the Capital Area (HACA)\, and Healthcare for All Virginians (HAV) Coalition for an opportunity for those interested in access to quality healthcare to meet with their state legislators to advocate for issues that are important to our community.Open to all community members. \nWhat to Expect: We have reserved the 7th Floor House South Meeting Room in the General Assembly building for breakfast from 9:00 am – 10:30 am. During that time frame we will try to schedule two in-person legislative visits for you – one with your State Senate office and one with your State Delegate office. There will be other advocates there that may attend the meeting with you and there may opportunities to join other scheduled legislative visits as well. For more details on how to prepare for your visits and on our 2024 legislative priorities\, plan to attend the VIRTUAL Advocacy Education Training on Tuesday\, January 23rd at 7:00 pm (go here to register.) Limited hotel rooms are available for VHF/HACA community members on the night of Sunday\, January 28\, 2024. \n» Go here to download the 2024 VHF Advocacy Calendar \nThank you to our sponsors: CSL Behring\, Pfizer\, and Takeda \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/richmond-days/
LOCATION:General Assembly Building\, 201 North 9th St.\, Richmond\, 23219\, United States
ORGANIZER;CN="Kelly Waters%2C VHF Executive Director":MAILTO:info@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240123T190000
DTEND;TZID=America/New_York:20240123T200000
DTSTAMP:20260405T195412
CREATED:20231208T183424Z
LAST-MODIFIED:20231219T215355Z
UID:6546-1706036400-1706040000@vahemophilia.org
SUMMARY:VIRTUAL - 2024 Advocacy Education Training
DESCRIPTION:RSVP HERE\n  \nJoin VHF\, the Hemophilia Association of the Capital Area (HACA)\, and the Healthcare for All Virginians (HAV) Coalition for a virtual advocacy education training program that will focus on the 2024 Virginia General Assembly. Join in and hear details about proposed legislation and state policy issues that focus on access to quality healthcare.This training will be in preparation for Richmond Days but you do not have to be registered for Richmond Days to participate. Open to all community members. \nThis session is free and open to anyone interested in learning more about advocacy and how it relates to the Virginia inherited bleeding disorders community. \n» RSVP HERE once you RSVP you will receive the zoom link separately via email from heather@vahemophilia.org.  \n» Go here to download the 2024 VHF Advocacy Calendar \n\nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. »Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/virtual-2024-advocacy-education-training/
LOCATION:Zoom
ORGANIZER;CN="Kelly Waters%2C VHF Executive Director":MAILTO:info@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240118T190000
DTEND;TZID=America/New_York:20240118T200000
DTSTAMP:20260405T195412
CREATED:20231024T154132Z
LAST-MODIFIED:20231024T154709Z
UID:6500-1705604400-1705608000@vahemophilia.org
SUMMARY:VIRTUAL - VHF/HACA Camp Youngblood Information Session
DESCRIPTION:REGISTER HERE\n  \nAre you thinking about sending your child to Camp Youngblood at Camp Holiday Trails (CHT) for the first time in 2024\, have questions\, or would you just like a refresher on the camp experience? Join the Hemophilia Association of the Capital Area (HACA)\, CHT\, and VHF for a virtual information session via Zoom on Thursday\, January 18\, at 7 pm to learn more about Camp Youngblood – even if you aren’t quite ready to send your kids this year. \nWhat to expect: Staff from CHT will talk more about camp activities and facilities; longtime Camp Youngblood parents will share their experiences with sending their kids to camp\, and staff from VHF and HACA will be available to answer any additional questions. This virtual session will be a great opportunity to learn more and get all your questions answered in real time! \nCamp Youngblood is a week-long overnight camp at Camp Holiday Trails (CHT) for children ages 7-17 with inherited bleeding disorders\, their siblings\, and children of members of the inherited bleeding disorder community that reside within the VHF or HACA coverage area. \n» Go here to learn more about the Camp Youngblood registration process \n» REGISTER HERE Once you RSVP you will receive the zoom link separately via email from heather@vahemophilia.org. \n\nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/virtual-vhf-haca-camp-youngblood-information-session/
LOCATION:Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240116
DTEND;VALUE=DATE:20240306
DTSTAMP:20260405T195412
CREATED:20231208T173939Z
LAST-MODIFIED:20231219T210932Z
UID:6545-1705363200-1709683199@vahemophilia.org
SUMMARY:VIRTUAL – Virginia General Assembly Weekly Check In
DESCRIPTION:RSVP HERE\n  \nJoin VHF & the Hemophilia Association of the Capital Area (HACA) for an informal\, virtual General Assembly check-in. We will gather to get an overview of the past week’s events in the Virginia General Assembly and get insight from our advocacy consultant\, Becky Bowers-Lanier\, on what to look for\, trends and any actions that will need to be taken about proposed legislation of interest to the bleeding disorders community. These check-ins are open to all community members. \nPlease note that these are informal weekly check-ins and if you register you are not required to attend all dates listed – feel free to join us for one session or for all! \nWEEKLY CHECK IN DATES: \nTues.\, Jan 16\, 2024  4:30 PM\nTues.\, Feb 6\, 2024   4:30 PM\nTues.\, Feb 13\, 2024  4:30 PM\nTues.\, Feb 20\, 2024  4:30 PM\nTues.\, Feb 27\, 2024  4:30 PM\nTues.\, March 5\, 2024  4:30 PM \n» RSVP HERE Once you RSVP you will receive a zoom link separately via email from heather@vahemophilia.org – you will use the same link each week. \n» Go here to download the 2024 VHF Advocacy Calendar \n\nAs we gather virtually to discuss\, share and learn\, we ask that all VHF virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/virtual-virginia-general-assembly-weekly-check-in-2/
LOCATION:Zoom
ORGANIZER;CN="Kelly Waters%2C VHF Executive Director":MAILTO:info@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231209T100000
DTEND;TZID=America/New_York:20231209T120000
DTSTAMP:20260405T195412
CREATED:20231005T015543Z
LAST-MODIFIED:20231120T233455Z
UID:6463-1702116000-1702123200@vahemophilia.org
SUMMARY:RICHMOND Winter Gathering
DESCRIPTION:RSVP HERE!\nCome celebrate the winter season with your bleeding disorders community at Peak Experiences in MIDLOTHIAN. There will be food\, education\, community building and try out recreational indoor rock climbing – a great way for people with bleeding disorders and the whole family to have fun\, build confidence and stay in shape! \nFor more information about rock climbing and bleeding disorders check out this Hemaware article Climbing the Walls: Indoor rock climbing offers fun and fitness. \nThis event is limited to constituents that live within the VHF coverage area and their immediate family and/or household members. There is no fee to attend and space is limited. \nRSVP BY NOVEMBER 27TH FOR MIDLOTHIAN (RICHMOND AREA) WINTER GATHERING \n\nThank you to our sponsors: CSL Behring\, Sanofi\, and Takeda \nThank you to our Family Fun and Connections Sponsor Colburn-Keenan Foundation for providing the rock climbing passes! \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/richmond-winter-gathering/
LOCATION:Peak Experiences – Midlothian\, 11421 Polo Circle\, Midlothian\, VA\, 23113\, United States
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231208T183000
DTEND;TZID=America/New_York:20231208T203000
DTSTAMP:20260405T195412
CREATED:20231005T020733Z
LAST-MODIFIED:20231120T233518Z
UID:6467-1702060200-1702067400@vahemophilia.org
SUMMARY:VIRGINIA BEACH Winter Gathering
DESCRIPTION:RSVP HERE!\nCome celebrate the winter season with your bleeding disorders community at Latitude VIRGINIA BEACH. There will be food\, education\, community building and try out recreational indoor rock climbing – a great way for people with bleeding disorders and the whole family to have fun\, build confidence and stay in shape! \nFor more information about rock climbing and bleeding disorders check out this Hemaware article Climbing the Walls: Indoor rock climbing offers fun and fitness. \nThis event is limited to constituents that live within the VHF coverage area and their immediate family and/or household members. There is no fee to attend and space is limited. \nRSVP BY NOVEMBER 20TH FOR VIRGINIA BEACH WINTER GATHERING \n\nThank you to our sponsors: CSL Behring\, Sanofi\, and Takeda \nThank you to our Family Fun and Connections Sponsor Colburn-Keenan Foundation for providing the rock climbing passes! \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/virginia-beach-winter-gathering/
LOCATION:Latitude Virginia Beach\, 4554 Virginia Beach Blvd Ste 970\, Virginia Beach\, VA\, 23462\, United States
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231201T183000
DTEND;TZID=America/New_York:20231201T203000
DTSTAMP:20260405T195412
CREATED:20231005T020153Z
LAST-MODIFIED:20231117T195841Z
UID:6465-1701455400-1701462600@vahemophilia.org
SUMMARY:*CANCELLED* LYNCHBURG Winter Gathering
DESCRIPTION:*THIS EVENT HAS BEEN CANCELLED* Please email info@vahemophilia.org if you have any questions. \n 
URL:https://vahemophilia.org/event-program/lynchburg-winter-gathering/
LOCATION:VA
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231109T160000
DTEND;TZID=America/New_York:20231109T180000
DTSTAMP:20260405T195412
CREATED:20230824T020946Z
LAST-MODIFIED:20231106T160619Z
UID:6426-1699545600-1699552800@vahemophilia.org
SUMMARY:VIRTUAL – VHF/HACA Advocacy Stakeholder and Education Meeting
DESCRIPTION:RSVP HERE\nJoin constituents\, advocacy committee members\, and community stakeholders from throughout Virginia for a virtual education meeting that will cover a wide range of advocacy topics relevant to the bleeding disorders community! \nMEETING AGENDA \nVirginia Bleeding Disorders Program Update (VBDP) Erika J. Martin\, MT (ASCP)\, Research Associate Professor\, Program Manager and Special Projects & Committee Lead- Virginia Bleeding Disorders Program\, Regulatory Coordinator- Central Virginia Center for Coagulation Disorders\, Director- VCU Coagulation Advancement Laboratory \nState Update AND What Can We Expect in 2024 General Assembly Becky Bowers-Lanier\, VHF/HACA Advocacy Consultant and Freddy Mejia\, Deputy Director of Policy at The Commonwealth Institute \nFederal Update Miriam Goldstein\, J.D\, Acting VP Public Affairs at Hemophilia Federation of America (HFA) and Matt Delaney\, Government Relations Specialist at National Bleeding Disorder Foundation (NBDF) \n» RSVP HERE Once you RSVP you will receive the zoom link separately via email from heather@vahemophilia.org.  \n\nThank you to our sponsors:  \nGenentech\nPfizer\nPhRMA\nTakeda\nNational Bleeding Disorders Foundation (NBDF)\n \n\nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/virtual-vhf-haca-advocacy-stakeholder-and-education-meeting/
LOCATION:Zoom
ORGANIZER;CN="Kelly Waters%2C VHF Executive Director":MAILTO:info@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231104T100000
DTEND;TZID=America/New_York:20231105T110000
DTSTAMP:20260405T195412
CREATED:20230804T161436Z
LAST-MODIFIED:20231031T220826Z
UID:6416-1699092000-1699182000@vahemophilia.org
SUMMARY:STAUNTON - Adult Retreat Weekend
DESCRIPTION:A rejuvenating fall weekend retreat in the heart of the Shenandoah Valley filled with educational programming and community building. This retreat is open to adults age 21 and up with inherited bleeding disorders and/or to adults whose lives are impacted by a bleeding disorder (i.e. caregivers\, spouses\, carriers\, immediate family members – some restrictions do apply). \nEducational programs\, scheduled meals\, and Saturday night overnight accommodations are provided at no cost for constituents that live in the VHF coverage area.*If you are a constituent that lives outside of the VHF coverage area and you are interested in registering for this meeting\, please email heather@vahemophilia.org for more information. \nThank you to our sponsors: BioMatrix\, Colburn-Keenan Foundation\, Inc.\, CSL Behring\, Genentech\, Hoos At Home\, National Bleeding Disorders Foundation (NBDF)\, Octapharma\, and Takeda \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/staunton-adult-retreat-weekend/
LOCATION:Hotel 24 South\, 24 S Market St\, Staunton\, Virginia\, 24401
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231019T183000
DTEND;TZID=America/New_York:20231019T200000
DTSTAMP:20260405T195412
CREATED:20230804T140800Z
LAST-MODIFIED:20231017T194646Z
UID:6415-1697740200-1697745600@vahemophilia.org
SUMMARY:VIRGINIA BEACH - Education + Connection
DESCRIPTION:RSVP HERE!\nJoin us for an educational program for VHF constituents (and their immediate family and/or household members only.) Dinner will be provided and there is no fee to attend. \nThe topic will be: Bleeding Disorders Conversation \nConversation and Discussion about your bleeding disorder and help with your own personal understanding.  \nSpeaker: Dezarae Morales\, RN \n\nSpace is sometimes limited and if so\, priority will be given to those members that live within the Tidewater region. \nThank you to our sponsor Superior Biologics. \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/virginia-beach-education-connection/
LOCATION:Cobalt Grill\, 1624 Laskin Rd\, \, VA 23451\, Virginia Beach\, VA\, 23451\, United States
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230930T100000
DTEND;TZID=America/New_York:20230930T160000
DTSTAMP:20260405T195412
CREATED:20230519T021106Z
LAST-MODIFIED:20230519T022125Z
UID:6371-1696068000-1696089600@vahemophilia.org
SUMMARY:SPONSORS AND SPEAKERS REGISTRATION - Medical Symposium at Great Wolf Lodge
DESCRIPTION:RSVP HERE\nWe appreciate your interest and support of our 2023 Medical Symposium at Great Wolf Lodge\, contact Kelly Waters at kelly@vahemophilia.org or 804-740-8643 for more information about sponsorship.\nCloser to the date of the event we will send a detailed email to all registered industry supporters and speakers. This email will include the agenda\, booth set up times\, what to bring\, how many people to expect\, etc. \nSaturday\, September 30th – Medical Symposium (Sample Agenda)\n10:00 am – 10:45 am Registration opens\, visit exhibits (light refreshments)\n10:00 am – 4:00 pm Kids & Teens Program\n10:45 am – 11:00 am Welcome\n11:00 am – 11:45 am Keynote: TBD\n11:45 am – 12:30 pm Lunch\n12:30 pm – 1:15 pm Break-out Session 1: TBD\n1:15 pm – 1:25 pm Break | Visit Exhibitors\n1:25 pm – 2:10 pm Break-out Session 2: TBD\n2:10 pm – 2:20 pm Break | Visit Exhibitors\n2:20 pm – 2:35 pm Roundtable Session\n2:35 pm – 2:50 pm Break | Visit Exhibits (light refreshments)\n2:50 pm – 3:35 pm Break-out Session 3: TBD\n3:35 pm – 3:45 pm Wrap-up \nOVERNIGHT ACCOMODATIONS: We will not make hotel reservations for speakers\, Industry Agents OR Industry Agents who are Consumers. However\, we do have a vendors room block at Great Wolf Lodge. To ensure availability\, please book as soon as possible. \nRate Available: Friday\, September 29 and Saturday\, September 30\, 2023\nGroup Code: 2023VENDORS\nGroup Rate: $239.00 plus taxes and fees = $269.68 per night Total (daily resort fee of $39.99 has been waived.)\nSuites include: Water Park Passes up to the reserved occupancy of the room\nCut-off Date: Reservations must be made by 11:59pm on Wednesday\, August 30\, 2023.\nCancellation: All reservations must be guaranteed by the individual and guaranteed with a major credit card. Each individual has up to 72 hours prior to arrival date to cancel the individual room with a $40.00 cancellation fee per room. If the individual cancels the room within 72 hours of arrival date\, 100% of the first night’s room rate plus tax will be charged to the individual’s credit card or taken from the deposit.\nPhone: Call 1-800.551.9653 and ask for group code 2023VENDORS\nor\nOnline: Visit https://www.greatwolf.com/williamsburg/plan – use booking code 2023VENDORS \nPlease be advised there are a limited amount of rooms being held for this group and rooms are available on a first come basis. Rooms booked after the group’s allotment has been filled\, or after the cutoff date\, are subject to availability and the Group Rate may no longer apply. To ensure availability\, please book as soon as possible. \n» Go here to download instructions on how to make your room reservation.\n» Industry Agents who are Consumers and a VHF Constituent: If your family members plan to attend the meeting go here to register them. As a reminder we still ask that you register yourself as an industry representative and make your own hotel reservation.\nVHF makes every effort to ensure that the members of the bleeding disorders community are always able to make a clear distinction between its own activities and those of Industry. Further\, it is essential that we create beneficial and pressure – free experiences for our community members\, and to protect participants in VHF events and programs. Accordingly\, VHF has developed a set of standards. Go here to read VHF’s Industry Standards. \nThank you for your continued support!
URL:https://vahemophilia.org/event-program/sponsors-and-speakers-registration-medical-symposium-at-great-wolf-lodge/
LOCATION:Great Wolf Lodge\, 549 E Rochambeau Dr.\, Williamsburg\, VA\, 23188
ORGANIZER;CN="Kelly Waters%2C VHF Executive Director":MAILTO:info@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230930T100000
DTEND;TZID=America/New_York:20230930T160000
DTSTAMP:20260405T195412
CREATED:20230519T015119Z
LAST-MODIFIED:20230921T144228Z
UID:6369-1696068000-1696089600@vahemophilia.org
SUMMARY:COMMUNITY MEMBER REGISTRATION - Medical Symposium at Great Wolf Lodge
DESCRIPTION:REGISTRATION IS NOW CLOSED – IF YOU WOULD LIKE TO BE ADDED TO THE WAITLIST PLEASE EMAIL heather@vahemophilia.org\nThe VHF Medical Symposium will provide consumers with the opportunity to learn more about new and current treatment options\, access to care issues and other medical/health related topics. This program will be held at the conference center at the Great Wolf Lodge (GWL) in Williamsburg. Overnight accommodations are available at Great Wolf Lodge and entrance to the water park is included in your stay (all registrants must attend the meeting for access to the water park and overnight accommodations.) \nWhat To Expect: The event will kick off Saturday morning at 10:00 am with light breakfast and time to visit with our generous industry sponsors to learn about the latest treatments and therapies\, followed by a keynote presentation\, breakout sessions\, lunch for all ages\, and on-site childcare with A Helping Hand and children and teen programming with Camp Holiday Trails. The meeting will wrap-up by 4:00 pm. \nImportant Information:\nRegistration for this event will close on August 23\, 2023.\nRegistrants place/number on the RSVP list will be determined by our Program Registration Guidelines.\nThis event is open to ALL AGES (not just for families with children under 18.)\nThere is a $25 registration fee to attend\, you will be emailed a link to pay when you receive your confirmation email the last week of August 2023. \nTo Be Eligible For a Spot You Must Meet ALL of the Following Eligibility Criteria:\nHave an inherited bleeding disorder\, have a spouse with an inherited bleeding disorder\, or be the parent/caregiver of a child with an inherited bleeding disorder. Live in the VHF coverage area (go here to learn more) and/or location of primary bleeding disorder treatment i.e. Hemophilia Treatment Center (HTC)\, hematologist\, etc. is in the VHF coverage area. \n\nThank you to our current Medical Symposium Sponsors: \nStar Level:\nBioMarin\, CSL Behring\, Novo Nordisk\, Sanofi\, Spark Therapeutics\, and Takeda \nPremier Level:\nHemabiologics \nCorporate Level:\nBayer\, BioMatrix\, CVS\, Drugco Health\, Genentech\, Medexus\, Octapharma\, Optum\, Pfizer\, Soleo Health\, and Superior Biologics \nThank you to our Program Sponsor Hemophilia Federation of America (HFA) \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/williamsburg-medical-symposium-at-great-wolf-lodge/
LOCATION:Great Wolf Lodge\, 549 E Rochambeau Dr.\, Williamsburg\, VA\, 23188
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230914T183000
DTEND;TZID=America/New_York:20230914T200000
DTSTAMP:20260405T195412
CREATED:20230804T140231Z
LAST-MODIFIED:20230821T214828Z
UID:6414-1694716200-1694721600@vahemophilia.org
SUMMARY:RICHMOND - Education + Connection "Gene Therapy Research: Understanding the Science"
DESCRIPTION:RSVP HERE\nJoin us for an educational program for VHF constituents (and their immediate family and/or household members only.) Dinner will be provided and there is no fee to attend. \nThe topic will be: Gene Therapy Research: Understanding the Science \nDescription: A patient-friendly program exploring the science behind gene therapy research and how it’s designed to work. \nSpeaker: Tommy Russomano\, Sr. Account Manager\, BioMarin\, Gene Therapy\n \n\nSpace is sometimes limited and if so\, priority will be given to those members that live within the central Virginia region. \nThank you to our sponsor BioMarin. \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/6414/
LOCATION:Cooper’s Hawk\, 11792 W Broad St\, Richmond\, Virginia\, 23233
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230729T100000
DTEND;TZID=America/New_York:20230729T120000
DTSTAMP:20260405T195412
CREATED:20230317T201044Z
LAST-MODIFIED:20230525T203946Z
UID:6320-1690624800-1690632000@vahemophilia.org
SUMMARY:CUMBERLAND - Community Event at Bear Creek Lake State Park
DESCRIPTION:RSVP HERE\nVHF community events are social and educational gatherings that occur throughout the year. These events bring together the Virginia inherited bleeding disorders community and are an excellent opportunity for networking\, support\, increasing knowledge\, and for fun for all ages. These programs are designed for VHF constituents (and their immediate family and/or household members only) lunch will be provided and there is no fee to attend. \nWhat to Expect: A picnic style lunch\, games\, education\, networking with new and old friends\, and plenty of time to enjoy the park\, swimming beach and lake (we have reserved a private shelter and it is 250 feet from the swimming beach\, fishing pier and boat rental house and will be available until 7 pm). \nBear Creek Lake State Park is nestled in the heart of the Cumberland State Forest in central Virginia\, Bear Creek Lake is less than an hour west of Richmond. It’s the perfect getaway for the outdoor enthusiast. Activities center on the 40-acre lake with a boat launch\, fishing pier\, boat rentals and a swimming beach. Other attractions include a meeting facility\, cabins\, camping\, picnicking\, an archery range and playgrounds. Guests also enjoy the park’s trails and access to the adjoining 16\,000-acre Cumberland State Forest\, including the 14-mile Cumberland Multi-use Trail\, which is available for hiking\, biking and horseback riding. \nThank you to our sponsors – Genentech\, VCU-HTC\, Novo Nordisk\, Sanofi\, and Takeda \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/cumberland-community-event-at-bear-creek-lake-state-park/
LOCATION:Bear Creek Lake State Park\, 22 Bear Creek Lake Rd\, Cumberland\, Virginia\, 23040
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230716
DTEND;VALUE=DATE:20230722
DTSTAMP:20260405T195412
CREATED:20221206T184454Z
LAST-MODIFIED:20230614T153347Z
UID:6210-1689465600-1689983999@vahemophilia.org
SUMMARY:CHARLOTTESVILLE - Camp Youngblood
DESCRIPTION:The Hemophilia Association of the Capital Area (HACA)\, the Virginia Hemophilia Foundation (VHF) and Camp Holiday Trails are teaming up again for Camp Youngblood in 2023 and registration is now open!  \nDates: Sunday\, July 16 – Friday\, July 21\, 2023 \nLocation: Camp Holiday Trails\, 400 Holiday Trails Ln\, Charlottesville\, VA 22903 https://campholidaytrails.org/ \nWho is Eligible: Camp Youngblood at Camp Holiday Trails (CHT) is for children ages 7-17 with inherited bleeding disorders\, their siblings\, and children of members of the inherited bleeding disorder community that reside within the Virginia Hemophilia Foundation (VHF) or Hemophilia Association of the Capital Area (HACA) coverage area. \nWhat is Camp Youngblood: A week-long overnight camp where kids age 7-17 enjoy a week of fun and learning with others that are faced with similar challenges and life experiences. Go here to see a video made by VHF/HACA teens on the importance of Camp Youngblood at Camp Holiday Trails  \nWhat Camp Holiday Trails has to offer: Canoeing\, Fishing\, Swimming\, Horseback Riding\, Nature Trails\, Climbing Wall\, Zip Line\, Arts\, Crafts\, Drama\, Music\, Dance\, Sports\, Cabins with AC\, Delicious Meals\, Campfires\, Fully Equipped Med Korner\, and more! \nCost: $25 registration fee (per family) \n\nCAMP YOUNGBLOOD APPLICATION PROCESS: \nPre-screening:  The enrolling parent or guardian will fill out a short prescreening survey to determine eligibility (this is required for all applicants\, even returning campers). Eligibility is based on the Camp Youngblood Program Guidelines. » Go here to read 2023 Camp Youngblood Program Guidelines \n» Fill out pre-screening survey here  \n\nYou should receive notice of eligibility within one week of filling out the pre-screening survey\, if you do not\, please email Heather at heather@vahemophilia.org\nIf you are not eligible you will receive an email with links to other Camp Holiday Trails camp offerings.\nIf you are eligible\, you will receive a direct link via email to the Camp Youngblood application from Camp Holiday Trails.\n\nRegistration & Application Deadlines: \nMarch 31 – All parts of online application must be complete. \nApril 28 – All camp paperwork must be finalized and medical assessment due (this includes proof of COVID-19 vaccination).  If you have questions or concerns\, contact CHT directly at program@campholidaytrails.org or 434-977-3781. \nMay 8 – Acceptance to Camp Youngblood and/or the waitlist will be sent out via email by CHT to applicants. \nMay 15 – Deadline for written response confirming intent to attend camp via email from applicant to CHT. \nMay 22 – Acceptance to Camp Youngblood and/or the waitlist will be sent out via email by CHT to applicants\, including link to pay $25 registration fee. \nJune 5th – Welcome email from CHT to all campers with confirmed spots. \n\nThank you to our Camp Youngblood Sponsors: \n\nBayer\nCSL Behring\nCVS Health\nGenentech\nGrifols\nHoos at Home\nNovo Nordisk\nSanofi\nTakeda\nVCU-HTC
URL:https://vahemophilia.org/event-program/camp-youngblood/
LOCATION:Camp Holiday Trails\, 400 Holiday Trails Lane\, Charlottesville\, VA\, 22903
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230625T100000
DTEND;TZID=America/New_York:20230625T120000
DTSTAMP:20260405T195412
CREATED:20230317T195654Z
LAST-MODIFIED:20230525T204012Z
UID:6318-1687687200-1687694400@vahemophilia.org
SUMMARY:HAMPTON - Community Event at Buckroe Beach Park
DESCRIPTION:RSVP HERE\nVHF community events are social and educational gatherings that occur throughout the year. These events bring together the Virginia inherited bleeding disorders community and are an excellent opportunity for networking\, support\, increasing knowledge\, and for fun for all ages. These programs are designed for VHF constituents (and their immediate family and/or household members only) lunch will be provided and there is no fee to attend. \nWhat to Expect: A picnic style lunch\, a playground for the kids\, games\, education\, networking with new and old friends\, and plenty of time to enjoy the beach (we have reserved the private Starfish Shelter close to the beach that will be available until 7 pm). \nBuckroe Beach Park borders the magnificent Chesapeake Bay with three-quarters of a mile of clean beach with lifeguards on duty (in season) from 10:00 am to 6:00 pm\, an observation pier with a shelter\, a spacious nautical-themed playground to entertain the children\, large restroom facilities with outdoor showers next to the playground and ample open space year round. Note: No electricity or water is available at the shelters. \nThank you to our sponsors – Genentech\, VCU-HTC\, Novo Nordisk\, Sanofi\, and Takeda \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/hampton-community-event-at-buckroe-beach-park/
LOCATION:Buckroe Beach Park\, 100 S. First Street\, Hampton\, Virginia\, 23664
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230604T113000
DTEND;TZID=America/New_York:20230604T133000
DTSTAMP:20260405T195412
CREATED:20230317T184148Z
LAST-MODIFIED:20230525T204058Z
UID:6311-1685878200-1685885400@vahemophilia.org
SUMMARY:STAUNTON - Community Event at Frontier Culture Museum
DESCRIPTION:RSVP HERE\nVHF community events are social and educational gatherings that occur throughout the year. These events bring together the Virginia inherited bleeding disorders community and are an excellent opportunity for networking\, support\, increasing knowledge\, and for fun for all ages. These programs are designed for VHF constituents (and their immediate family and/or household members only) lunch and admission to the museum will be provided and there is no fee to attend. \nWhat to Expect: Education\, lunch\, networking with other community members\, free admission and a private hands-on tour at the Frontier Culture Museum. \nMuseum: The Frontier Culture Museum\, located in Staunton\, Virginia is a living history museum that tells the story of the people who migrated from the Old World to America and the life they created in the Shenandoah Valley. The Museum is made up of original or reproduced examples of traditional buildings from the Old World and America. \nThank you to our sponsors – Genentech\, VCU-HTC\, Hoos at Home\, Novo Nordisk\, Sanofi\, and Takeda \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/staunton-community-event-at-frontier-culture-museum/
LOCATION:Frontier Culture Museum\, 1290 Richmond Ave\, Staunton\, Virginia\, 24401
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230520T100000
DTEND;TZID=America/New_York:20230520T120000
DTSTAMP:20260405T195412
CREATED:20230317T182103Z
LAST-MODIFIED:20230418T142627Z
UID:6308-1684576800-1684584000@vahemophilia.org
SUMMARY:RICHMOND - New Family Support And Education Program
DESCRIPTION:RSVP HERE\nJoin VHF\, HTC staff and mentor families for a program for new families! This program is designed to support families of infants and young children who have been diagnosed within the last 7 years with hemophilia and other inherited bleeding disorders with community connection and education. This program is designed for VHF constituents (and their immediate family and/or household members only) lunch and admission to the museum will be provided and there is no fee to attend. \nWhat to Expect: Education on physical activity and sports in kids with bleeding disorders\, time for Q&A\, lunch\, networking with other parents and children\, and free admission to the Children’s Museum of Richmond. \nThank you to our sponsors – Accredo\, Genentech\, VCU-HTC\, and Takeda \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/richmond-new-family-support-and-education-program/
LOCATION:Children’s Museum of Richmond\, 2626 W Broad St\, Richmond\, Virginia\, 23220
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
END:VCALENDAR