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X-WR-CALNAME:Virginia Bleeding Disorders Foundation
X-ORIGINAL-URL:https://vahemophilia.org
X-WR-CALDESC:Events for Virginia Bleeding Disorders Foundation
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DTSTART;TZID=America/New_York:20231104T100000
DTEND;TZID=America/New_York:20231105T110000
DTSTAMP:20260405T100305
CREATED:20230804T161436Z
LAST-MODIFIED:20231031T220826Z
UID:6416-1699092000-1699182000@vahemophilia.org
SUMMARY:STAUNTON - Adult Retreat Weekend
DESCRIPTION:A rejuvenating fall weekend retreat in the heart of the Shenandoah Valley filled with educational programming and community building. This retreat is open to adults age 21 and up with inherited bleeding disorders and/or to adults whose lives are impacted by a bleeding disorder (i.e. caregivers\, spouses\, carriers\, immediate family members – some restrictions do apply). \nEducational programs\, scheduled meals\, and Saturday night overnight accommodations are provided at no cost for constituents that live in the VHF coverage area.*If you are a constituent that lives outside of the VHF coverage area and you are interested in registering for this meeting\, please email heather@vahemophilia.org for more information. \nThank you to our sponsors: BioMatrix\, Colburn-Keenan Foundation\, Inc.\, CSL Behring\, Genentech\, Hoos At Home\, National Bleeding Disorders Foundation (NBDF)\, Octapharma\, and Takeda \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/staunton-adult-retreat-weekend/
LOCATION:Hotel 24 South\, 24 S Market St\, Staunton\, Virginia\, 24401
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231019T183000
DTEND;TZID=America/New_York:20231019T200000
DTSTAMP:20260405T100305
CREATED:20230804T140800Z
LAST-MODIFIED:20231017T194646Z
UID:6415-1697740200-1697745600@vahemophilia.org
SUMMARY:VIRGINIA BEACH - Education + Connection
DESCRIPTION:RSVP HERE!\nJoin us for an educational program for VHF constituents (and their immediate family and/or household members only.) Dinner will be provided and there is no fee to attend. \nThe topic will be: Bleeding Disorders Conversation \nConversation and Discussion about your bleeding disorder and help with your own personal understanding.  \nSpeaker: Dezarae Morales\, RN \n\nSpace is sometimes limited and if so\, priority will be given to those members that live within the Tidewater region. \nThank you to our sponsor Superior Biologics. \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/virginia-beach-education-connection/
LOCATION:Cobalt Grill\, 1624 Laskin Rd\, \, VA 23451\, Virginia Beach\, VA\, 23451\, United States
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230930T100000
DTEND;TZID=America/New_York:20230930T160000
DTSTAMP:20260405T100305
CREATED:20230519T021106Z
LAST-MODIFIED:20230519T022125Z
UID:6371-1696068000-1696089600@vahemophilia.org
SUMMARY:SPONSORS AND SPEAKERS REGISTRATION - Medical Symposium at Great Wolf Lodge
DESCRIPTION:RSVP HERE\nWe appreciate your interest and support of our 2023 Medical Symposium at Great Wolf Lodge\, contact Kelly Waters at kelly@vahemophilia.org or 804-740-8643 for more information about sponsorship.\nCloser to the date of the event we will send a detailed email to all registered industry supporters and speakers. This email will include the agenda\, booth set up times\, what to bring\, how many people to expect\, etc. \nSaturday\, September 30th – Medical Symposium (Sample Agenda)\n10:00 am – 10:45 am Registration opens\, visit exhibits (light refreshments)\n10:00 am – 4:00 pm Kids & Teens Program\n10:45 am – 11:00 am Welcome\n11:00 am – 11:45 am Keynote: TBD\n11:45 am – 12:30 pm Lunch\n12:30 pm – 1:15 pm Break-out Session 1: TBD\n1:15 pm – 1:25 pm Break | Visit Exhibitors\n1:25 pm – 2:10 pm Break-out Session 2: TBD\n2:10 pm – 2:20 pm Break | Visit Exhibitors\n2:20 pm – 2:35 pm Roundtable Session\n2:35 pm – 2:50 pm Break | Visit Exhibits (light refreshments)\n2:50 pm – 3:35 pm Break-out Session 3: TBD\n3:35 pm – 3:45 pm Wrap-up \nOVERNIGHT ACCOMODATIONS: We will not make hotel reservations for speakers\, Industry Agents OR Industry Agents who are Consumers. However\, we do have a vendors room block at Great Wolf Lodge. To ensure availability\, please book as soon as possible. \nRate Available: Friday\, September 29 and Saturday\, September 30\, 2023\nGroup Code: 2023VENDORS\nGroup Rate: $239.00 plus taxes and fees = $269.68 per night Total (daily resort fee of $39.99 has been waived.)\nSuites include: Water Park Passes up to the reserved occupancy of the room\nCut-off Date: Reservations must be made by 11:59pm on Wednesday\, August 30\, 2023.\nCancellation: All reservations must be guaranteed by the individual and guaranteed with a major credit card. Each individual has up to 72 hours prior to arrival date to cancel the individual room with a $40.00 cancellation fee per room. If the individual cancels the room within 72 hours of arrival date\, 100% of the first night’s room rate plus tax will be charged to the individual’s credit card or taken from the deposit.\nPhone: Call 1-800.551.9653 and ask for group code 2023VENDORS\nor\nOnline: Visit https://www.greatwolf.com/williamsburg/plan – use booking code 2023VENDORS \nPlease be advised there are a limited amount of rooms being held for this group and rooms are available on a first come basis. Rooms booked after the group’s allotment has been filled\, or after the cutoff date\, are subject to availability and the Group Rate may no longer apply. To ensure availability\, please book as soon as possible. \n» Go here to download instructions on how to make your room reservation.\n» Industry Agents who are Consumers and a VHF Constituent: If your family members plan to attend the meeting go here to register them. As a reminder we still ask that you register yourself as an industry representative and make your own hotel reservation.\nVHF makes every effort to ensure that the members of the bleeding disorders community are always able to make a clear distinction between its own activities and those of Industry. Further\, it is essential that we create beneficial and pressure – free experiences for our community members\, and to protect participants in VHF events and programs. Accordingly\, VHF has developed a set of standards. Go here to read VHF’s Industry Standards. \nThank you for your continued support!
URL:https://vahemophilia.org/event-program/sponsors-and-speakers-registration-medical-symposium-at-great-wolf-lodge/
LOCATION:Great Wolf Lodge\, 549 E Rochambeau Dr.\, Williamsburg\, VA\, 23188
ORGANIZER;CN="Kelly Waters%2C VHF Executive Director":MAILTO:info@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230930T100000
DTEND;TZID=America/New_York:20230930T160000
DTSTAMP:20260405T100305
CREATED:20230519T015119Z
LAST-MODIFIED:20230921T144228Z
UID:6369-1696068000-1696089600@vahemophilia.org
SUMMARY:COMMUNITY MEMBER REGISTRATION - Medical Symposium at Great Wolf Lodge
DESCRIPTION:REGISTRATION IS NOW CLOSED – IF YOU WOULD LIKE TO BE ADDED TO THE WAITLIST PLEASE EMAIL heather@vahemophilia.org\nThe VHF Medical Symposium will provide consumers with the opportunity to learn more about new and current treatment options\, access to care issues and other medical/health related topics. This program will be held at the conference center at the Great Wolf Lodge (GWL) in Williamsburg. Overnight accommodations are available at Great Wolf Lodge and entrance to the water park is included in your stay (all registrants must attend the meeting for access to the water park and overnight accommodations.) \nWhat To Expect: The event will kick off Saturday morning at 10:00 am with light breakfast and time to visit with our generous industry sponsors to learn about the latest treatments and therapies\, followed by a keynote presentation\, breakout sessions\, lunch for all ages\, and on-site childcare with A Helping Hand and children and teen programming with Camp Holiday Trails. The meeting will wrap-up by 4:00 pm. \nImportant Information:\nRegistration for this event will close on August 23\, 2023.\nRegistrants place/number on the RSVP list will be determined by our Program Registration Guidelines.\nThis event is open to ALL AGES (not just for families with children under 18.)\nThere is a $25 registration fee to attend\, you will be emailed a link to pay when you receive your confirmation email the last week of August 2023. \nTo Be Eligible For a Spot You Must Meet ALL of the Following Eligibility Criteria:\nHave an inherited bleeding disorder\, have a spouse with an inherited bleeding disorder\, or be the parent/caregiver of a child with an inherited bleeding disorder. Live in the VHF coverage area (go here to learn more) and/or location of primary bleeding disorder treatment i.e. Hemophilia Treatment Center (HTC)\, hematologist\, etc. is in the VHF coverage area. \n\nThank you to our current Medical Symposium Sponsors: \nStar Level:\nBioMarin\, CSL Behring\, Novo Nordisk\, Sanofi\, Spark Therapeutics\, and Takeda \nPremier Level:\nHemabiologics \nCorporate Level:\nBayer\, BioMatrix\, CVS\, Drugco Health\, Genentech\, Medexus\, Octapharma\, Optum\, Pfizer\, Soleo Health\, and Superior Biologics \nThank you to our Program Sponsor Hemophilia Federation of America (HFA) \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/williamsburg-medical-symposium-at-great-wolf-lodge/
LOCATION:Great Wolf Lodge\, 549 E Rochambeau Dr.\, Williamsburg\, VA\, 23188
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230914T183000
DTEND;TZID=America/New_York:20230914T200000
DTSTAMP:20260405T100305
CREATED:20230804T140231Z
LAST-MODIFIED:20230821T214828Z
UID:6414-1694716200-1694721600@vahemophilia.org
SUMMARY:RICHMOND - Education + Connection "Gene Therapy Research: Understanding the Science"
DESCRIPTION:RSVP HERE\nJoin us for an educational program for VHF constituents (and their immediate family and/or household members only.) Dinner will be provided and there is no fee to attend. \nThe topic will be: Gene Therapy Research: Understanding the Science \nDescription: A patient-friendly program exploring the science behind gene therapy research and how it’s designed to work. \nSpeaker: Tommy Russomano\, Sr. Account Manager\, BioMarin\, Gene Therapy\n \n\nSpace is sometimes limited and if so\, priority will be given to those members that live within the central Virginia region. \nThank you to our sponsor BioMarin. \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/6414/
LOCATION:Cooper’s Hawk\, 11792 W Broad St\, Richmond\, Virginia\, 23233
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230729T100000
DTEND;TZID=America/New_York:20230729T120000
DTSTAMP:20260405T100305
CREATED:20230317T201044Z
LAST-MODIFIED:20230525T203946Z
UID:6320-1690624800-1690632000@vahemophilia.org
SUMMARY:CUMBERLAND - Community Event at Bear Creek Lake State Park
DESCRIPTION:RSVP HERE\nVHF community events are social and educational gatherings that occur throughout the year. These events bring together the Virginia inherited bleeding disorders community and are an excellent opportunity for networking\, support\, increasing knowledge\, and for fun for all ages. These programs are designed for VHF constituents (and their immediate family and/or household members only) lunch will be provided and there is no fee to attend. \nWhat to Expect: A picnic style lunch\, games\, education\, networking with new and old friends\, and plenty of time to enjoy the park\, swimming beach and lake (we have reserved a private shelter and it is 250 feet from the swimming beach\, fishing pier and boat rental house and will be available until 7 pm). \nBear Creek Lake State Park is nestled in the heart of the Cumberland State Forest in central Virginia\, Bear Creek Lake is less than an hour west of Richmond. It’s the perfect getaway for the outdoor enthusiast. Activities center on the 40-acre lake with a boat launch\, fishing pier\, boat rentals and a swimming beach. Other attractions include a meeting facility\, cabins\, camping\, picnicking\, an archery range and playgrounds. Guests also enjoy the park’s trails and access to the adjoining 16\,000-acre Cumberland State Forest\, including the 14-mile Cumberland Multi-use Trail\, which is available for hiking\, biking and horseback riding. \nThank you to our sponsors – Genentech\, VCU-HTC\, Novo Nordisk\, Sanofi\, and Takeda \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/cumberland-community-event-at-bear-creek-lake-state-park/
LOCATION:Bear Creek Lake State Park\, 22 Bear Creek Lake Rd\, Cumberland\, Virginia\, 23040
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230716
DTEND;VALUE=DATE:20230722
DTSTAMP:20260405T100305
CREATED:20221206T184454Z
LAST-MODIFIED:20230614T153347Z
UID:6210-1689465600-1689983999@vahemophilia.org
SUMMARY:CHARLOTTESVILLE - Camp Youngblood
DESCRIPTION:The Hemophilia Association of the Capital Area (HACA)\, the Virginia Hemophilia Foundation (VHF) and Camp Holiday Trails are teaming up again for Camp Youngblood in 2023 and registration is now open!  \nDates: Sunday\, July 16 – Friday\, July 21\, 2023 \nLocation: Camp Holiday Trails\, 400 Holiday Trails Ln\, Charlottesville\, VA 22903 https://campholidaytrails.org/ \nWho is Eligible: Camp Youngblood at Camp Holiday Trails (CHT) is for children ages 7-17 with inherited bleeding disorders\, their siblings\, and children of members of the inherited bleeding disorder community that reside within the Virginia Hemophilia Foundation (VHF) or Hemophilia Association of the Capital Area (HACA) coverage area. \nWhat is Camp Youngblood: A week-long overnight camp where kids age 7-17 enjoy a week of fun and learning with others that are faced with similar challenges and life experiences. Go here to see a video made by VHF/HACA teens on the importance of Camp Youngblood at Camp Holiday Trails  \nWhat Camp Holiday Trails has to offer: Canoeing\, Fishing\, Swimming\, Horseback Riding\, Nature Trails\, Climbing Wall\, Zip Line\, Arts\, Crafts\, Drama\, Music\, Dance\, Sports\, Cabins with AC\, Delicious Meals\, Campfires\, Fully Equipped Med Korner\, and more! \nCost: $25 registration fee (per family) \n\nCAMP YOUNGBLOOD APPLICATION PROCESS: \nPre-screening:  The enrolling parent or guardian will fill out a short prescreening survey to determine eligibility (this is required for all applicants\, even returning campers). Eligibility is based on the Camp Youngblood Program Guidelines. » Go here to read 2023 Camp Youngblood Program Guidelines \n» Fill out pre-screening survey here  \n\nYou should receive notice of eligibility within one week of filling out the pre-screening survey\, if you do not\, please email Heather at heather@vahemophilia.org\nIf you are not eligible you will receive an email with links to other Camp Holiday Trails camp offerings.\nIf you are eligible\, you will receive a direct link via email to the Camp Youngblood application from Camp Holiday Trails.\n\nRegistration & Application Deadlines: \nMarch 31 – All parts of online application must be complete. \nApril 28 – All camp paperwork must be finalized and medical assessment due (this includes proof of COVID-19 vaccination).  If you have questions or concerns\, contact CHT directly at program@campholidaytrails.org or 434-977-3781. \nMay 8 – Acceptance to Camp Youngblood and/or the waitlist will be sent out via email by CHT to applicants. \nMay 15 – Deadline for written response confirming intent to attend camp via email from applicant to CHT. \nMay 22 – Acceptance to Camp Youngblood and/or the waitlist will be sent out via email by CHT to applicants\, including link to pay $25 registration fee. \nJune 5th – Welcome email from CHT to all campers with confirmed spots. \n\nThank you to our Camp Youngblood Sponsors: \n\nBayer\nCSL Behring\nCVS Health\nGenentech\nGrifols\nHoos at Home\nNovo Nordisk\nSanofi\nTakeda\nVCU-HTC
URL:https://vahemophilia.org/event-program/camp-youngblood/
LOCATION:Camp Holiday Trails\, 400 Holiday Trails Lane\, Charlottesville\, VA\, 22903
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230625T100000
DTEND;TZID=America/New_York:20230625T120000
DTSTAMP:20260405T100305
CREATED:20230317T195654Z
LAST-MODIFIED:20230525T204012Z
UID:6318-1687687200-1687694400@vahemophilia.org
SUMMARY:HAMPTON - Community Event at Buckroe Beach Park
DESCRIPTION:RSVP HERE\nVHF community events are social and educational gatherings that occur throughout the year. These events bring together the Virginia inherited bleeding disorders community and are an excellent opportunity for networking\, support\, increasing knowledge\, and for fun for all ages. These programs are designed for VHF constituents (and their immediate family and/or household members only) lunch will be provided and there is no fee to attend. \nWhat to Expect: A picnic style lunch\, a playground for the kids\, games\, education\, networking with new and old friends\, and plenty of time to enjoy the beach (we have reserved the private Starfish Shelter close to the beach that will be available until 7 pm). \nBuckroe Beach Park borders the magnificent Chesapeake Bay with three-quarters of a mile of clean beach with lifeguards on duty (in season) from 10:00 am to 6:00 pm\, an observation pier with a shelter\, a spacious nautical-themed playground to entertain the children\, large restroom facilities with outdoor showers next to the playground and ample open space year round. Note: No electricity or water is available at the shelters. \nThank you to our sponsors – Genentech\, VCU-HTC\, Novo Nordisk\, Sanofi\, and Takeda \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/hampton-community-event-at-buckroe-beach-park/
LOCATION:Buckroe Beach Park\, 100 S. First Street\, Hampton\, Virginia\, 23664
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230604T113000
DTEND;TZID=America/New_York:20230604T133000
DTSTAMP:20260405T100305
CREATED:20230317T184148Z
LAST-MODIFIED:20230525T204058Z
UID:6311-1685878200-1685885400@vahemophilia.org
SUMMARY:STAUNTON - Community Event at Frontier Culture Museum
DESCRIPTION:RSVP HERE\nVHF community events are social and educational gatherings that occur throughout the year. These events bring together the Virginia inherited bleeding disorders community and are an excellent opportunity for networking\, support\, increasing knowledge\, and for fun for all ages. These programs are designed for VHF constituents (and their immediate family and/or household members only) lunch and admission to the museum will be provided and there is no fee to attend. \nWhat to Expect: Education\, lunch\, networking with other community members\, free admission and a private hands-on tour at the Frontier Culture Museum. \nMuseum: The Frontier Culture Museum\, located in Staunton\, Virginia is a living history museum that tells the story of the people who migrated from the Old World to America and the life they created in the Shenandoah Valley. The Museum is made up of original or reproduced examples of traditional buildings from the Old World and America. \nThank you to our sponsors – Genentech\, VCU-HTC\, Hoos at Home\, Novo Nordisk\, Sanofi\, and Takeda \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/staunton-community-event-at-frontier-culture-museum/
LOCATION:Frontier Culture Museum\, 1290 Richmond Ave\, Staunton\, Virginia\, 24401
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230520T100000
DTEND;TZID=America/New_York:20230520T120000
DTSTAMP:20260405T100305
CREATED:20230317T182103Z
LAST-MODIFIED:20230418T142627Z
UID:6308-1684576800-1684584000@vahemophilia.org
SUMMARY:RICHMOND - New Family Support And Education Program
DESCRIPTION:RSVP HERE\nJoin VHF\, HTC staff and mentor families for a program for new families! This program is designed to support families of infants and young children who have been diagnosed within the last 7 years with hemophilia and other inherited bleeding disorders with community connection and education. This program is designed for VHF constituents (and their immediate family and/or household members only) lunch and admission to the museum will be provided and there is no fee to attend. \nWhat to Expect: Education on physical activity and sports in kids with bleeding disorders\, time for Q&A\, lunch\, networking with other parents and children\, and free admission to the Children’s Museum of Richmond. \nThank you to our sponsors – Accredo\, Genentech\, VCU-HTC\, and Takeda \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/richmond-new-family-support-and-education-program/
LOCATION:Children’s Museum of Richmond\, 2626 W Broad St\, Richmond\, Virginia\, 23220
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230510T235900
DTEND;TZID=America/New_York:20230510T235900
DTSTAMP:20260405T100305
CREATED:20230317T182519Z
LAST-MODIFIED:20230317T221202Z
UID:6310-1683763140-1683763140@vahemophilia.org
SUMMARY:DEADLINE - VHF Travel Grant Scholarship for NHF BDC at Gaylord National Resort (DC Area)
DESCRIPTION:Meeting: National Hemophilia Foundation (NHF) Bleeding Disorders Conference (BDC)\nVHF is thrilled that the 75th Annual NHF BDC will take place in National Harbor\, Maryland (DC Area)\, at the beautiful Gaylord National Resort & Convention Center. With the meeting being so close we hope to send as many VHF community members as possible using our VHF travel award via the Terry Lamb Scholarship! \nNHF’s BDC features educational sessions\, poster abstract presentations\, industry symposia\, networking and social events\, and exhibits. A lineup of dynamic speakers who provide essential information and insights on the evolving landscape in this exciting new era of treatment for hemophilia\, von Willebrand disease\, and rare bleeding disorders. To end the conference\, the NHF Awards Ceremony recognizes outstanding leaders of the bleeding disorders community whose achievements and contributions have helped transform treatment and care. » Go here to learn more \nWhen: August 17-19\, 2023 \nWhere: Gaylord National Resort and Convention Center in National Harbor\, Maryland (Washington DC area) \nVHF travel award for NHF’s BDC: VHF’s Terry Lamb Enrichment Scholarship awards can be used to cover costs for the NHF BDC. Typical award amounts are in the range of $250 – $500 per person (not to exceed $2\,000 per family). You will be responsible for meals and other incidentals. \nHow to apply for the VHF travel award for NHF’s BDC: Fill out the application online or Download the paper application and email the application to info@vahemophilia.org.   \n» Go Here to fill out the application online \n» Go Here to download the paper application \nVHF travel award deadline for NHF’s BDC: 11:59 pm\, Wednesday\, May 10\, 2023 \n\nVHF travel award eligibility: These scholarships were designed for individuals living with an inherited bleeding disorder and their immediate family and/or household members. Applicants must have participated in VHF activities and live in the territorial jurisdiction of VHF; which include the Commonwealth of Virginia\, with exception of the following: The cities of Alexandria\, Fairfax\, Falls Church\, Herndon\, Manassas\, Manassas Park\, and Vienna and the counties of Arlington\, Fairfax\, Fauquier\, Loudon\, Prince William and Stafford \nVHF travel award guidelines: Scholarship recipients will be determined through a review process conducted by volunteers on the VHF Scholarship Committee. Scholarships are limited to funding availability and priority/special consideration is given to: First time applicants and those individuals not previously funded by VHF\, Individuals diagnosed with an inherited bleeding disorder\, Individuals who have volunteered and/or are an active participant of VHF\, Those individuals who are clearly able to communicate a need and would benefit from participating in such a program\, Applicant’s intention to make effective use of the program (write an article for the newsletter or speak about the experience at an upcoming VHF event).
URL:https://vahemophilia.org/event-program/deadline-travel-grant-scholarship-for-nhf-bdc-at-gaylord-national-resort-convention-center/
LOCATION:VA
ORGANIZER;CN="Kelly Waters%2C VHF Executive Director":MAILTO:info@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230507T100000
DTEND;TZID=America/New_York:20230507T120000
DTSTAMP:20260405T100305
CREATED:20230203T050940Z
LAST-MODIFIED:20230406T181258Z
UID:6267-1683453600-1683460800@vahemophilia.org
SUMMARY:NORFOLK - Bleeding Disorders Awareness Education Celebration At The Virginia Zoo
DESCRIPTION:RSVP HERE\nRSVP Deadline: Friday\, April 21\, 2023 \nThe VHF Bleeding Disorders Awareness Education Celebration is an exciting new event that was designed to raise awareness\, increase education\, honor the hard work and dedication in the bleeding disorders community\, and best of all CELEBRATE and enjoy time with friends and family in a unique setting! \nWhat to expect: Private event pavilion at the Virginia Zoo with a DJ\, mission moments designed to raise awareness about bleeding disorders\, special recognition for fundraisers\, donors\, and volunteers\, yard games\, live animal encounter\, face painter\, refreshments\, door prizes\, tickets for the Zoo Train and all day admission to the Zoo and more! \nRefreshments\, admission to the zoo\, and tickets for the Zoo Train will be provided at no cost. Participation is open to those with an inherited bleeding disorder and their immediate family and/or household members who live within VHF territory as well as VHF donors\, volunteers\, friends and extended family. \n\nThank you to our generous sponsors: BioMarin\, CSI Pharmacy\, CSL Behring\, DrugCo Health\, Genentech\, Hemophilia Federation of America (HFA)\, Sanofi\, and Takeda \nThank you to our Family Fun & Connections Sponsor: Colburn-Keenan Foundation\, Inc. \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/bleeding-disorders-community-celebration-at-the-virginia-zoo/
LOCATION:Virginia Zoo\, 3500 Granby St\, Norfolk\, VA\, 23504
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230506T090000
DTEND;TZID=America/New_York:20230506T160000
DTSTAMP:20260405T100305
CREATED:20230203T045009Z
LAST-MODIFIED:20230412T220533Z
UID:6266-1683363600-1683388800@vahemophilia.org
SUMMARY:SPONSORS AND PRESENTERS REGISTRATION - Annual Education Meeting
DESCRIPTION:RSVP HERE \nWe appreciate your interest and support of our 2023 Annual Meeting\, contact Kelly Waters at kelly@vahemophilia.org or 804-740-8643 for more information about sponsorship. Closer to the date of the event we will send a detailed email to all registered industry supporters and presenters. This email will include the agenda\, booth set up times\, what to bring\, how many people to expect\, etc. \nSaturday\, May 6th – Tentative Schedule (Agenda Coming Soon!): \n9:00 am Light refreshments and visit exhibits \n10:00 am – 4:00 pm Education presentations\, visit exhibits\, lunch and snack breaks\, and more! \n4:00 pm Meeting wrap-up \nOvernight accommodations at Hilton Norfolk The Main are available on the night of Friday\, May 5th and Saturday\, May 6th. \nPLEASE NOTE: We will not make hotel reservations for speakers\, Industry Agents OR Industry Agents who are Consumers. However\, we do have a room block at Hilton Norfolk The Main and they will extend the group rate of $219. There is a limited number of these rooms and they will be first come first served. If you run into any issues\, please do not hesitate to reach out to heather@vahemophilia.org. \nHow to reserve your room (Room block will close 11:59 pm\, Thursday\, April 13th): \nTo reserve over the phone\, please call the hotel at 1-757-763-6200 and dial 1 for Reservations and reference the following information: \n\nGroup Name: VHF 2023 Annual Education Meeting\nGroup Code:  VHF (Self-Pay) / VAA (Rooming List)\nEvent Dates: May 5\, 2023 – May 7\, 2023\n\nTo book online\, please visit the following link: https://www.hilton.com/en/attend-my-event/vhf2023annualeducationmeeting/ or visit www.norfolkthemain.hilton.com and enter the Group Code by selecting the ‘Special Rates’ button after selecting the dates of stay. \n\nFor Industry Agents who are Consumers and a VHF Constituent – How to register your family: If your family members plan to attend the meeting go here to register them. As a reminder we still ask that you register yourself as an industry representative and make your own hotel reservation. \nVHF makes every effort to ensure that the members of the bleeding disorders community are always able to make a clear distinction between its own activities and those of Industry. Further\, it is essential that we create beneficial and pressure – free experiences for our community members\, and to protect participants in VHF events and programs. Accordingly\, VHF has developed a set of standards. Go here to read VHF’s Industry Standards. \nThank you for your continued support!
URL:https://vahemophilia.org/event-program/annual-meeting-sponsors-and-speakers-registration/
LOCATION:Hilton Norfolk the Main\, 100 E Main St\, Norfolk\, VA\, 23510
ORGANIZER;CN="Kelly Waters%2C VHF Executive Director":MAILTO:info@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230506T090000
DTEND;TZID=America/New_York:20230506T160000
DTSTAMP:20260405T100305
CREATED:20230203T000805Z
LAST-MODIFIED:20230424T181108Z
UID:6265-1683363600-1683388800@vahemophilia.org
SUMMARY:COMMUNITY MEMBER REGISTRATION - Annual Education Meeting
DESCRIPTION:RSVP HERE\nRSVP Deadline: Wednesday\, April 12\, 2023\nVHF’s Annual Education Meeting brings together the inherited bleeding disorder community to share information on a wide variety of topics and it is a great opportunity for networking and support for individuals and families. \nAnnual Meeting – What To Expect: The event will kick off Saturday morning with light breakfast and time to visit with our generous industry sponsors to learn about the latest treatments and therapies\, followed by education sessions on topics such as advocacy and research\, a wellness break with all abilities chair yoga\, Lyman Fisher Scholarship winners recognition\, VHF chapter updates\, and on-site childcare with A Helping Hand and children and teen programming with Camp Holiday Trails. \nEducational programs\, scheduled meals\, community events\, and Saturday night overnight accommodations are provided at no cost for constituents that live in the VHF coverage area. There is a $25 registration fee per household (after you register you will receive a link to pay your fee.) *If you are a constituent that lives outside of the VHF coverage area and you are interested in registering for this meeting\, please email heather@vahemophilia.org for more information. \nSaturday\, May 6th – Tentative Schedule (Agenda Coming Soon!): \n9:00 am Light refreshments and visit exhibits \n10:00 am – 4:00 pm Education presentations\, visit exhibits\, lunch and snack breaks\, and more! \n4:00 pm Meeting wrap-up \n6:00 pm Community outing – Norfolk Tides Baseball Game *This community event is optional and a separate registration link will be sent via email after you RSVP for the annual meeting. \nOvernight accommodations at Hilton Norfolk The Main are available on the night of Saturday\, May 6th.  \n\nSunday\, May 7th \n10:00 am Bleeding Disorders Awareness Education Celebration at the Virginia Zoo *Community celebration event is optional and is not a part of the annual meeting. \n» Go here to learn more about the Bleeding Disorders Community Celebration Event \n\nThank you to our current Annual Meeting sponsors – \nPREMIER SPONSORS \nMedexus \nPfizer \nSanofi \nTakeda \nPLATINUM SPONSORS \nAccredo \nBioMarin \nGenentech \nCORPORATE SPONSORS \nBioMatrix \nChildren’s Hospital of The King’s Daughter’s (CHKD) and the University of Virginia’s (UVA) 340B Factor Program \nCSI Pharmacy \nCSL Behring \nCVS \nDrugCo Health \nNovo Nordisk \nOctapharma \nSoleo Health \nSuperior Biologics \nVCU-HTC \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/annual-meeting-community-member-registration/
LOCATION:Hilton Norfolk the Main\, 100 E Main St\, Norfolk\, VA\, 23510
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230417T180000
DTEND;TZID=America/New_York:20230417T193000
DTSTAMP:20260405T100305
CREATED:20230126T204533Z
LAST-MODIFIED:20230126T234713Z
UID:6250-1681754400-1681759800@vahemophilia.org
SUMMARY:RICHMOND - World Hemophilia Day 2023: One Family
DESCRIPTION:RSVP HERE\nJoin your bleeding disorder community for an educational dinner program for VHF constituents (and their immediate family and/or household members only) \nWhat to Expect: An interactive and educational event\, where you will receive helpful information that will foster a sense of connection within the global hemophilia community in recognition of World Hemophilia Day 2023! After the education session there will be plenty of time for discussion\, catching up\, and enjoying time with your family and friends! Dinner will be provided and there is no fee to attend. \nSpace is limited and priority will be given to those members that live in the Central Virginia Region. \nThank you to our sponsor Sanofi. \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/richmond-world-hemophilia-day-2023-one-family/
LOCATION:Maggiano’s Short Pump Town Center\, 11800 W Broad St.\, Richmond\, 23233\, United States
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230330T183000
DTEND;TZID=America/New_York:20230330T200000
DTSTAMP:20260405T100305
CREATED:20230126T234305Z
LAST-MODIFIED:20230213T180758Z
UID:6254-1680201000-1680206400@vahemophilia.org
SUMMARY:RICHMOND - Education + Connection "Make it Work: Bleeding Disorders In The Workplace"
DESCRIPTION:RSVP HERE\nJoin us for an educational program for VHF constituents (and their immediate family and/or household members only). Dinner will be provided and there is no fee to attend. \nThe topic will be: Make it Work: Bleeding Disorders in the Workplace \nYour disorder may be personal\, but it can bleed into work life too. What should you tell your employer? How do you approach the subject with your coworkers? Learn when to speak up and how to keep it professional. \nSpeaker: Jan Martin MSN\,RN-BC\,CPN\, Community Education Specialist\, Takeda\n \n\nSpace is limited and priority will be given to those members that live in the Central Virginia Region. \nThank you to our sponsor Takeda. \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/richmond-education-connection/
LOCATION:The Grapevine\, Greek and Italian Restaurant\, 11055 Three Chopt Road\, Richmond\, VA\, 23233
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230323T183000
DTEND;TZID=America/New_York:20230323T200000
DTSTAMP:20260405T100305
CREATED:20230126T234147Z
LAST-MODIFIED:20230202T230605Z
UID:6253-1679596200-1679601600@vahemophilia.org
SUMMARY:NEWPORT NEWS - Education + Connection "Unlock the Science of Investigational Gene Therapy Research For Hemophilia"
DESCRIPTION:RSVP HERE\nJoin us for an educational program for VHF constituents (and their immediate family and/or household members only). Dinner will be provided and there is no fee to attend. \nThe topic will be: Unlock the Science of Investigational Gene Therapy Research for hemophilia \nIf you like to play games\, have fun\, and learn at the same time\, this is one event you don’t want to miss. Join us and play an adventure game where solving each clue gets you one step closer to unlocking the science behind an investigational gene therapy for hemophilia. The game helps players understand the genetics of hemophilia\, learn about investigational gene therapy\, and discover the science of gene therapy research for hemophilia. \nSpeaker: Lesley Milliner- Spark Therapeutics Patient Education Liaison \n\nSpace is limited and priority will be given to those members that live in the Hampton Roads Region. \nThank you to our sponsor Spark Therapeutics. \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/hampton-education-connection/
LOCATION:Al Fresco Italian Restaurant – Oyster Point Square\, 11710 Jefferson Ave\, Newport News\, VA\, 23606
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230314T183000
DTEND;TZID=America/New_York:20230314T200000
DTSTAMP:20260405T100305
CREATED:20230126T233947Z
LAST-MODIFIED:20230224T224526Z
UID:6252-1678818600-1678824000@vahemophilia.org
SUMMARY:ROANOKE - Education + Connection "Gene Therapy In Hemophilia"
DESCRIPTION:RSVP HERE\nJoin us for an educational program for VHF constituents (and their immediate family and/or household members only.) Dinner will be provided and there is no fee to attend. \nThe topic will be: Gene Therapy for Hemophilia \nPresentation on the advances in gene therapy research for hemophilia.Join us for a session which dives into gene therapy for hemophilia\, how it works\, and the goals of gene therapy. \nSpeaker: Tyra Holland RN BSN MBA\, Patient Resource Navigator\, CSL Behring \n\nSpace is limited and priority will be given to those members that live in the South West Virginia Region. \nThank you to our sponsor CSL Behring. \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/roanoke-education-connection/
LOCATION:Billy’s\, 102 Market St SE\, Roanoke\, 24011\, United States
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230310
DTEND;VALUE=DATE:20230311
DTSTAMP:20260405T100305
CREATED:20230126T204756Z
LAST-MODIFIED:20230126T205732Z
UID:6251-1678406400-1678492799@vahemophilia.org
SUMMARY:Lyman Fisher Scholarship Application Deadline
DESCRIPTION:APPLICATION PROCEDURE & DEADLINES\nApplication Deadline: 11:59 pm (EST)\, Friday\, March 10\, 2023\nHow to Apply: Applications can be completed using our online application form or you can download the paper application form and email the application to info@vahemophilia.org. \n» Go Here to fill out the application online \n» Go Here to download the paper application \nLetters of Recommendation: You will need at least two letters of recommendation from persons who are not family members. These are to be emailed separately to info@vahemophilia.org by the deadline. \n\nOne letter should be from an HTC provider\, nurse\, social worker\, or someone who knows you well from the bleeding disorders community.\nThe other letter could be from your scout leader\, minister\, teacher\, employer\, guidance counselor\, coach\, etc.\n\n  \nApplications and/or supporting documents received after the deadline will not be considered. \n\n\n\n\nELIGIBILITY & AWARD\nScholarship Eligibility: Individuals living with an inherited bleeding disorder\, their sibling or their parents who live in the territorial jurisdiction of VHF\, which includes the State of Virginia\, with the exception of the following: The cities of Alexandria\, Fairfax\, Falls Church\, Herndon\, Manassas\, and Vienna and the counties of Arlington\, Fairfax\, Fauquier\, Loudon\, Prince William and Stafford. \nScholarship applicants must have participated in VHF activities. \nScholarship Award: Scholarships are one-year awards in the amount of $2\,000 for a full academic year. While at least two scholarships are available each year\, VHF is not obligated to award scholarships in a given year. The scholarships may be used at any accredited nonprofit college\, university\, or vocational/technical school in the United States and are to be applied toward a student’s educational expenses. \nA student who receives an award one year may reapply in later years but winning a scholarship in one year does not necessarily mean that the student will win in a later year. Also\, a student who applies in one year and does not receive an award is eligible to apply the following year for the scholarship. \nPayment of Scholarship Funds: Scholarship payments are not distributed directly to an individual\, but are made via scholarship checks\, payable to the schools. VHF staff will work with the award recipient(s) to process the scholarship funds. \n\n\n\n\nRESPONSIBILITIES OF RECIPIENTS\nScholarship recipients must enroll as a college student in the fall of the year in which the scholarships are awarded and continue in school for the entire academic year without interruption\, barring illness\, emergency\, or military service. If a scholarship recipient leaves school during the scholarship period\, VHF may ask for reimbursement of scholarship funds. Scholarship recipients are responsible for making certain that their scholarship checks are delivered to their colleges. \n\n\n\n\nSCHOLARSHIP BACKGROUND\nThe Lyman Fisher Scholarship was established to honor Dr. Lyman Fisher\, a teacher\, researcher\, and clinician in hemostasis. For many years\, he directed the adult hemophilia program for Virginia. He will be remembered for his steadfast commitment to his patients and students\, his respect for those who served under him\, his community service and his affection for his family.
URL:https://vahemophilia.org/event-program/lyman-fisher-scholarship-application-deadline/
LOCATION:VA
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230305T110000
DTEND;TZID=America/New_York:20230305T140000
DTSTAMP:20260405T100305
CREATED:20230111T212742Z
LAST-MODIFIED:20230223T172235Z
UID:6235-1678014000-1678024800@vahemophilia.org
SUMMARY:RICHMOND - Bleeding Disorders Awareness Month Celebration at Topgolf
DESCRIPTION:RSVP HERE\nGet active with your bleeding disorders community and celebrate Bleeding Disorders Awareness Month! Join VHF on Sunday\, March 5th for education\, celebration\, community building and opportunities to enhance health and fitness at Richmond Topgolf. We look forward to exploring how you can take charge of your bleeding disorder and life\, while having fun learning about the game of golf. \nEvent is free – lunch and two hours of golf will be provided. Participation is limited to those with an inherited bleeding disorder and their immediate family and/or household members who live within VHF territory. \nWith special guest Perry Parker! \n\n		\n			\n				\n			\n			\n		 \n		\n			Since as far back as he can remember\, Perry has known two things: he has hemophilia\, and he would be a pro golfer. Perry’s parents always encouraged him to pursue his interests. For Perry\, this led to a professional golf career\, including more than 30 professional tournament wins\, playing numerous international tours\, and founding and continued involvement with the CSL Behring Gettin’ in the Game℠ Junior National Championship. Perry wants others to know that bleeding disorders do not have to be a game changer\, and he has lots of tips to share on how to make dreams come true.\n		\n			\n		\n\nThank you to our generous sponsors: Accredo\, BioMarin\, CSL Behring\, CSI Pharmacy\, DrugCo Health\, Hemophilia Federation of America (HFA)\, Novo Nordisk\, Pfizer\, Sanofi\, and Takeda \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/richmond-bleeding-disorders-awareness-month-celebration-at-topgolf/
LOCATION:Topgolf Richmond\, 2308 Westwood Ave\, Richmond\, Virginia\, 23230
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230304T110000
DTEND;TZID=America/New_York:20230304T140000
DTSTAMP:20260405T100305
CREATED:20230111T213547Z
LAST-MODIFIED:20230223T172149Z
UID:6236-1677927600-1677938400@vahemophilia.org
SUMMARY:VIRGINIA BEACH – Bleeding Disorders Awareness Month Celebration at Topgolf
DESCRIPTION:RSVP HERE\nGet active with your bleeding disorders community and celebrate Bleeding Disorders Awareness Month! Join VHF on Saturday\, March 4th in Virginia Beach for education\, celebration\, community building and opportunities to enhance health and fitness at Virginia Beach Topgolf. We look forward to exploring how you can take charge of your bleeding disorder and life\, while having fun learning about the game of golf. \nEvent is free – lunch and two hours of golf will be provided. Participation is limited to those with an inherited bleeding disorder and their immediate family and/or household members who live within VHF territory. \nWith special guest Perry Parker! \n\n		\n			\n				\n			\n			\n		 \n		\n			Since as far back as he can remember\, Perry has known two things: he has hemophilia\, and he would be a pro golfer. Perry’s parents always encouraged him to pursue his interests. For Perry\, this led to a professional golf career\, including more than 30 professional tournament wins\, playing numerous international tours\, and founding and continued involvement with the CSL Behring Gettin’ in the Game℠ Junior National Championship. Perry wants others to know that bleeding disorders do not have to be a game changer\, and he has lots of tips to share on how to make dreams come true.\n		\n			\n		\n\nThank you to our generous sponsors: Accredo\, BioMarin\, CSL Behring\, CSI Pharmacy\, DrugCo Health\, Hemophilia Federation of America (HFA)\, Novo Nordisk\, Pfizer\, Sanofi\, and Takeda \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/virginia-beach-bleeding-disorders-awareness-month-celebration-at-topgolf/
LOCATION:Topgolf Virginia Beach\, 5444 Greenwich Road\, Virginia Beach\, VA\, 23462\, United States
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230211T110000
DTEND;TZID=America/New_York:20230211T140000
DTSTAMP:20260405T100305
CREATED:20230111T210604Z
LAST-MODIFIED:20230208T190828Z
UID:6232-1676113200-1676124000@vahemophilia.org
SUMMARY:WILLIAMSBURG - Education + Connection "Women's Day Out"
DESCRIPTION:RSVP HERE \nA rejuvenating day filled with educational programming and community building. This day out is open to VHF constituents who are women age 21 and up with inherited bleeding disorders/carriers and/or to women whose lives are impacted by a bleeding disorder (i.e. caregivers\, spouses\, immediate family members). \nWhat To Expect: Join us at The Williamsburg Lodge in the heart of Colonial Williamsburg where we have planned a Valentine’s Day themed outing that includes lunch and conversation about self-care while creating a sweet and lovely (but also fun and easy) Valentine’s garland to hang in your home\, then there will be time for each woman to receive a relaxing hand massage from The Spa of Colonial Williamsburg\, and the best part is time spent with your bleeding disorders community! Lunch will be provided and there is no fee to attend. \n\nThank you to our women’s day out sponsors: BioMatrix\, CSI Pharmacy\, CSL Behring\, Genentech\, Hemophilia Federation of America (HFA)\, Optum\, and Takeda \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/williamsburg-education-connection-womens-day-out/
LOCATION:The Williamsburg Lodge\, 310 South England Street\, Williamsburg\, VA\, 23185\, United States
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230124T190000
DTEND;TZID=America/New_York:20230124T200000
DTSTAMP:20260405T100305
CREATED:20221104T200135Z
LAST-MODIFIED:20221107T183700Z
UID:6178-1674586800-1674590400@vahemophilia.org
SUMMARY:VIRTUAL - VHF & HACA Advocacy Education Meeting
DESCRIPTION:RSVP HERE\n  \nJoin VHF & Hemophilia Association of the Capital Area (HACA) for a virtual advocacy education program that will focus on the 2023 Virginia General Assembly. Join in and hear details from advocacy consultant\, Becky Bowers-Lanier\, about proposed legislation of interest to the bleeding disorders community\, its partners and other stakeholders. \nYou will also learn more about the VHF/HACA legislative updates that will occur weekly via zoom during the 2023 General Assembly session and how you might be able to get more involved »Go here to learn more. \nThis session is free and open to anyone interested in learning more about advocacy and how it relates to the Virginia inherited bleeding disorders community. \n\n»RSVP HERE once you RSVP you will receive the zoom link separately via email from heather@vahemophilia.org.  \n\nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. »Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/vhf-haca-virtual-advocacy-education-meeting-2/
LOCATION:Zoom
CATEGORIES:advocacy,community,education,virtual
ORGANIZER;CN="Kelly Waters%2C VHF Executive Director":MAILTO:info@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20230119T183000
DTEND;TZID=UTC:20230119T203000
DTSTAMP:20260405T100305
CREATED:20220901T195049Z
LAST-MODIFIED:20230103T202421Z
UID:6129-1674153000-1674160200@vahemophilia.org
SUMMARY:VIRGINIA BEACH - Educational Dinner at Dave & Buster's
DESCRIPTION:RSVP HERE\nJoin your bleeding disorder community for an educational dinner program for VHF constituents (and their immediate family and/or household members only). \nWhat to Expect: During this education session Doctor Michael Zolotnisky\, PT\, DPT\,  will discuss topics important to the bleeding disorders community such as maintaining joint health\, KT taping\, physical fitness\, wellness and several other fitness related topics. After the education session there will be plenty of time for discussion\, catching up\, and enjoying games with your family and friends! Dinner and power cards to Dave & Buster’s will be provided and there is no fee to attend. \n\n		\n			\n				\n			\n			\n		 \n		\n			Michael Zolotnisky\, PT\, DPT\, is a physical therapist and the Clinical Director at NJ Spine and Wellness in Morganville\, New Jersey. He is currently leading the neurological department to treat various conditions including\, but not limited to concussions\, multiple sclerosis\, stroke\, and Parkinson’s disease. Dr. Zolotnisky was born in Italy\, grew up in Brooklyn\, New York\, and currently resides in Morganville\, New Jersey. He received his Doctorate of Physical Therapy from Chatham University in Pittsburgh\, Pennsylvania\, in December of 2014. Dr. Zolotnisky is attaining his vestibular certification to further improve complaints of dizziness\, headaches\, and all balance dysfunction. He prides himself on performing high-level balance activities to include walking with eyes closed and on uneven surfaces\, and he loves to incorporate boxing to further challenge his patients. In addition to neurological treatment\, Dr. Zolotnisky utilizes the Mulligan Concept to perform pain-free physical therapy that immediately improves function. He offers a personalized aquatic therapy program for indoor and outdoor pool settings. Dr. Zolotnisky has completed three half marathons in one year and offers running tips as well as gym strategies. In addition\, he is a national speaker for the Hemophilia community\, speaking to various groups in the bleeding disorder family.\n		\n			\n		   \nSpace is limited and priority will be given to those members that live in the Tidewater Region. \nThank you to our sponsor Octapharma. \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/virginia-beach-winter-gathering-at-dave-busters/
LOCATION:Dave & Busters at Lynnhaven Mall\, 701 Lynnhaven Parkway\, Suite G19\, Virginia Beach\, VA\, 23452\, United States
CATEGORIES:community,education
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230117
DTEND;VALUE=DATE:20230222
DTSTAMP:20260405T100305
CREATED:20221104T203759Z
LAST-MODIFIED:20221108T145525Z
UID:6180-1673913600-1677023999@vahemophilia.org
SUMMARY:VIRTUAL - Virginia General Assembly Weekly Check In
DESCRIPTION:RSVP HERE\n  \nJoin VHF & Hemophilia Association of the Capital Area (HACA) for a quick weekly General Assembly check-in. We will gather to get an overview of the past week’s events in the Virginia General Assembly and get insight from our advocacy consultant\, Becky Bowers-Lanier\, on what to look for\, trends and any actions that will need to be taken about proposed legislation of interest to the bleeding disorders community. \nPlease note that these are informal weekly check-ins and if you register you are not required to attend all dates listed – feel free to join us for one session or for all! \nWEEKLY CHECK IN DATES: \nTues.\, Jan 17\, 2023  4:30 PM\nTues.\, Jan 31\, 2023  4:30 PM\nTues.\, Feb 7\, 2023    4:30 PM\nTues.\, Feb 14\, 2023  4:30 PM\nTues.\, Feb 21\, 2023  4:30 PM \n» RSVP HERE Once you RSVP you will receive a zoom link separately via email from heather@vahemophilia.org – you will use the same link each week. \n\nAs we gather virtually to discuss\, share and learn\, we ask that all VHF virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/virtual-virginia-general-assembly-weekly-check-in/
LOCATION:Zoom
CATEGORIES:advocacy,community,education,virtual
ORGANIZER;CN="Kelly Waters%2C VHF Executive Director":MAILTO:info@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230112T200000
DTEND;TZID=America/New_York:20230112T210000
DTSTAMP:20260405T100305
CREATED:20230103T151725Z
LAST-MODIFIED:20230103T152453Z
UID:6224-1673553600-1673557200@vahemophilia.org
SUMMARY:VIRTUAL - Camp Youngblood Information Session
DESCRIPTION:RSVP HERE\nAre you thinking about sending your child to Camp Youngblood at Camp Holiday Trails (CHT) for the first time in 2023\, or would you just like a refresher on the camp experience? Join the Hemophilia Association of the Capital Area (HACA) and VHF for a virtual information session via Zoom on Thursday\, January 12\, at 8 p.m. to learn more about camp – even if you aren’t quite ready to send your kids this year. \nWhat to expect: CHT Director of Programs Caitlin Carroll will talk more about camp activities and facilities; longtime Camp Youngblood parent and nurse Amy Walker (VHF) will address the medical accommodations and her experiences as a camp parent; and parents Bethany and Todd Swain (HACA) will share their personal experiences with sending their son to camp. This virtual session will be a great opportunity to learn and ask questions. \nCamp Youngblood is a week-long overnight camp at Camp Holiday Trails (CHT) for children ages 7-17 with inherited bleeding disorders\, their siblings\, and children of members of the inherited bleeding disorder community that reside within the VHF or HACA coverage area.  \n» Go here to learn more about Camp Youngblood
URL:https://vahemophilia.org/event-program/virtual-camp-younblood-information-session/
LOCATION:Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20221210T110000
DTEND;TZID=UTC:20221210T130000
DTSTAMP:20260405T100305
CREATED:20220901T194643Z
LAST-MODIFIED:20221201T190839Z
UID:6127-1670670000-1670677200@vahemophilia.org
SUMMARY:RICHMOND - Winter Gathering at Dave & Buster's
DESCRIPTION:RSVP HERE FOR RICHMOND ONLY\nCome celebrate the winter season with your bleeding disorders community at Dave & Buster’s in RICHMOND. There will be food\, education and good times with your friends and family! \nThis event is limited to constituents that live within the VHF coverage area and their immediate family and/or household members. There is no fee to attend and space is limited. \nAs a reminder there will be no visits from Santa or gifts this year but we will supply $15 power play cards to use at Dave & Busters. \n» RSVP HERE BY NOVEMBER 28TH FOR RICHMOND WINTER GATHERING \n\nThank you to our sponsors: Bayer\, CSI Pharmacy\, CSL Behring\, DrugCo Health\, Hemophilia Federation of America (HFA)\, Superior Biologics and Takeda \nThank you to our Family Fun and Connections Sponsor Colburn-Keenan Foundation for providing the power play cards! \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/richmond-winter-gathering-at-dave-busters/
LOCATION:Dave & Busters Richmond\, 4001 Brownstone Blvd.\, Glen Allen\, VA\, 23060\, United States
CATEGORIES:community,education
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20221109T160000
DTEND;TZID=UTC:20221109T180000
DTSTAMP:20260405T100305
CREATED:20220901T143421Z
LAST-MODIFIED:20221104T201150Z
UID:6118-1668009600-1668016800@vahemophilia.org
SUMMARY:VIRTUAL - VHF/HACA Advocacy Stakeholder and Education Meeting
DESCRIPTION:RSVP HERE\nJoin constituents\, advocacy committee members\, and community stakeholders from throughout Virginia for an education meeting that will cover a wide range of advocacy topics relevant to the bleeding disorders community! \nMEETING AGENDA \nState Update AND What Can We Expect in 2023 General Assembly Becky Bowers-Lanier\, VHF/HACA Advocacy Consultant and Heidi Dix\, Senior Vice President of Policy\, Virginia Association of Health Plans \nVirginia Bleeding Disorder Program (VBDP) Update Lauren Dunn\, Health Insurance Consultant\, VA Bleeding Disorders Program \nFederal Update Miriam Goldstein\, J.D\, Director of Policy at Hemophilia Federation of America (HFA)\, Nathan Schaefer\, MSW\, VP of Public Policy at National Hemophilia Foundation (NHF)\, and Matt Delaney\, Government Relations Specialist at National Hemophilia Foundation (NHF) \n» RSVP HERE Once you RSVP you will receive the zoom link separately via email from heather@vahemophilia.org.  \n\nThank you to our sponsors: Genentech\, National Hemophilia Foundation (NHF)\, Pfizer\, PhrMA\, Takeda and We Work For Health \n\nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/vhf-haca-virtual-advocacy-stakeholder-and-education-meeting-3/
LOCATION:Zoom
CATEGORIES:advocacy,community,education,virtual
ORGANIZER;CN="Kelly Waters%2C VHF Executive Director":MAILTO:info@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20221103T180000
DTEND;TZID=UTC:20221103T190000
DTSTAMP:20260405T100305
CREATED:20220901T183834Z
LAST-MODIFIED:20221004T161423Z
UID:6124-1667498400-1667502000@vahemophilia.org
SUMMARY:Virtual - Women’s Education + Connection "A Pathway for Best Care: The Reproductive Years"
DESCRIPTION:RSVP HERE\n \nParticipants will enjoy meaningful education and time to gather and share with other people who encounter similar challenges. This virtual session is free and open to women age 18 and up with inherited bleeding disorders and/or to women whose lives are impacted by a bleeding disorder (i.e. caregivers\, spouses\, immediate family members). \nTopic: A Pathway for Best Care: The Reproductive Years \nIn this session\, attendees will learn about how to identify the symptoms of a bleeding disorder and how to effectively manage the onset of menorrhagia\, family planning and childbirth. \nPresenter: Dr. Sarah O’Brien\, Pediatric Hematologist at Nationwide Children’s Hospital \nDr. Sarah O’Brien is a pediatric hematologist at Nationwide Children’s Hospital and an Associate Professor of Pediatrics at The Ohio State University College of Medicine. She serves as the Director of Experimental Therapeutics for the Division of Pediatric Hematology/Oncology/BMT and also leads a multi-disciplinary young women’s hematology clinic at Nationwide Children’s Hospital. Her clinical and research interests include the evaluation and diagnosis of mild bleeding disorders\, pediatric thrombosis and thromboprophylaxis\, and the intersections between hematology and women’s health. \n\n» RSVP HERE \nOnce you RSVP you will receive the zoom link separately via email from heather@vahemophilia.org. \n\nThis education program is presented in partnership with Hemophilia Federation of America (HFA). \n 
URL:https://vahemophilia.org/event-program/womens-virtual-education-connection-a-pathway-for-best-care-the-reproductive-years/
LOCATION:Zoom
CATEGORIES:community,education,virtual
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20221020T120000
DTEND;TZID=UTC:20221020T130000
DTSTAMP:20260405T100305
CREATED:20220901T150459Z
LAST-MODIFIED:20221013T180017Z
UID:6120-1666267200-1666270800@vahemophilia.org
SUMMARY:Virtual - Advocacy Education “Testifying and Serving on Boards and Commissions”
DESCRIPTION:RSVP HERE\nJoin constituents\, advocacy committee members\, and community stakeholders from throughout Virginia for a virtual advocacy education meeting that covers topics relevant to the bleeding disorders community! \nTopic –  \n“Testifying and Serving on Boards and Commissions” \nJoin us to learn about developing and providing testimony in legislative and regulatory meetings\, as well as applying and serving on local and state-based boards and commissions. \nSpeakers –  \nBrenda Bordelon\, Executive Director\, Hemophilia Association of the Capital Area (HACA) \nBecky Bowers-Lanier\, VHF/HACA Advocacy Consultant \n\n» RSVP HERE \nYou will receive the zoom link separately via email from heather@vahemophilia.org. \n\nThank you to our sponsors: National Hemophilia Foundation (NHF)\, PhRMA and Takeda
URL:https://vahemophilia.org/event-program/virtual-advocacy-education-testifying-and-serving-on-boards-and-commissions/
LOCATION:Zoom
CATEGORIES:advocacy,community,education,virtual
ORGANIZER;CN="Kelly Waters%2C VHF Executive Director":MAILTO:info@vahemophilia.org
END:VEVENT
END:VCALENDAR