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X-WR-CALDESC:Events for Virginia Bleeding Disorders Foundation
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DTSTART;TZID=America/New_York:20220117T190000
DTEND;TZID=America/New_York:20220117T200000
DTSTAMP:20260408T090056
CREATED:20211116T193321Z
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UID:5859-1642446000-1642449600@vahemophilia.org
SUMMARY:VHF & HACA Virtual Advocacy Education Meeting
DESCRIPTION:» RSVP HERE\n\nJoin VHF & HACA for a virtual advocacy education program on Martin Luther King Jr. Day\, our traditional date for our annual advocacy day. This program will focus on the 2022 General Assembly. Join in and hear details from advocacy consultant\, Becky Bowers-Lanier\, about proposed legislation of interest to the bleeding disorders community\, its partners and other stakeholders. You will also learn more about the VHF/HACA legislative updates that will occur weekly via zoom during the 2022 General Assembly session and how you might be able to get more involved. \nThis session is free and open to anyone interested in learning more about advocacy and how it relates to the Virginia inherited bleeding disorders community. \n\nThank you to our sponsors: Genentech\, National Hemophilia Foundation (NHF)\, Pfizer\, and Takeda. \n» Please go here to view our Virtual Sponsor Program This program is one way our generous sponsors can virtually connect with the community by providing links to their electronic resources\, brochures\, websites\, social media sites and more! \n\nAs we gather virtually to discuss\, share and learn\, we ask that all VHF virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/vhf-haca-virtual-advocacy-education-meeting/
LOCATION:Zoom
CATEGORIES:advocacy,education,virtual chat
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210928T190000
DTEND;TZID=America/New_York:20210928T200000
DTSTAMP:20260408T090056
CREATED:20210818T191146Z
LAST-MODIFIED:20210920T194433Z
UID:5619-1632855600-1632859200@vahemophilia.org
SUMMARY:VHF/HACA Advocacy Chat - Getting into Committee
DESCRIPTION:» RSVP HERE \nEver wonder how a bill winds its way from a proposed bill\, through both houses of the General Assembly to enacted legislation? Committees are the answer — and where much of the debate about any bill take place. Join us to learn more about the process as we hear from State Senator Ghazala F. Hashmi and Delegate Roxann Robinson – key committee members that work on issues that affect our community. \nThank you to our sponsors: National Hemophilia Foundation (NHF) and Takeda \nRead this article for more information on how to join a virtual meeting on the zoom platform using a desktop computer\, mobile device/tablet\, from a landline or a mobile phone. If you need assistance or have any barriers that are keeping you from participating in virtual programs please call 804-740-8643 or email info@vahemophilia.org.  \n\n\nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/vhf-haca-advocacy-chat-getting-into-committee/
LOCATION:Zoom
CATEGORIES:advocacy,education,virtual chat
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210819T190000
DTEND;TZID=America/New_York:20210819T200000
DTSTAMP:20260408T090056
CREATED:20210719T142246Z
LAST-MODIFIED:20210719T142246Z
UID:5576-1629399600-1629403200@vahemophilia.org
SUMMARY:Virtual Education Session - Lesson Plans: Navigating School with a Bleeding Disorder
DESCRIPTION:» RSVP Here \nTopic: Lesson Plans: Navigating School with a Bleeding Disorder \nLearn how students\, parents\, family members\, and school staff can work together to provide a positive learning environment for students with a bleeding disorder—from preschool through college. \nSpeaker: Jan Martin\, Nurse Educator\, Takeda \nThank you to our sponsor Takeda \n\nThis session is free and open to VHF constituents\, any constituent under the age of 12 will need adult supervision to participate. \nAs we gather virtually to discuss\, share and learn\, we ask that all VHF virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/virtual-education-session-lesson-plans-navigating-school-with-a-bleeding-disorder/
LOCATION:Zoom
CATEGORIES:education
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210527T190000
DTEND;TZID=America/New_York:20210527T200000
DTSTAMP:20260408T090056
CREATED:20210420T164415Z
LAST-MODIFIED:20210519T192805Z
UID:5186-1622142000-1622145600@vahemophilia.org
SUMMARY:Advocacy Chat with Delegate Kathleen Murphy
DESCRIPTION:» RSVP HERE \nJoin us as we chat with Delegate Kathleen Murphy (34th District\, Virginia House of Delegates) to learn more about the passage of HB 1995 that created the Rare Disease Advisory Council and its proposed scope of work. Hear more about Del. Murphy’s interest and advocacy for creating the Council AND for her general impressions on the virtual nature of the General Assembly meetings. \nThank you to our advocacy chat sponsors National Hemophilia Foundation (NHF) and Takeda \nRead this article for more information on how to join a virtual meeting on the zoom platform using a desktop computer\, mobile device/tablet\, from a landline or a mobile phone. If you need assistance or have any barriers that are keeping you from participating in virtual programs please call 804-740-8643 or email info@vahemophilia.org.  \n  \n\n\nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/advocacy-chat-with-delegate-kathleen-murphy/
LOCATION:Zoom
CATEGORIES:advocacy,education,virtual chat
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201215T190000
DTEND;TZID=America/New_York:20201215T200000
DTSTAMP:20260408T090056
CREATED:20201001T141346Z
LAST-MODIFIED:20201001T141951Z
UID:4674-1608058800-1608062400@vahemophilia.org
SUMMARY:Virtual Education Session - Mindfulness as a Path to Resilience
DESCRIPTION:» RSVP HERE \nJoin us for a virtual education session for individuals with an inherited bleeding disorder. \nThe topic will be: Mindfulness as a Path to Resilience \nWhat is mindfulness and what are its benefits? How are stress and resilience related\, and why is resilience important? This presentation will offer patients a set of skills that they may use at home\, on their own. \nSpeaker: Jan Martin\, Nurse Educator\, Takeda \nThank you to our sponsor Takeda \n\nThis session is free and open to VHF constituents\, any constituent under the age of 12 will need adult supervision to participate. \nAs we gather virtually to discuss\, share and learn\, we ask that all VHF virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement. \n 
URL:https://vahemophilia.org/event-program/4674/
LOCATION:Zoom
CATEGORIES:education
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201114T160000
DTEND;TZID=America/New_York:20201114T180000
DTSTAMP:20260408T090056
CREATED:20200930T195502Z
LAST-MODIFIED:20201111T180321Z
UID:4661-1605369600-1605376800@vahemophilia.org
SUMMARY:VHF/HACA Virtual Advocacy Stakeholder and Education Meeting
DESCRIPTION:» RSVP HERE \n\nJoin HACA/VHF constituents\, advocacy committee members\, and community stakeholders from throughout Virginia for an education meeting that will cover a wide range of advocacy topics relevant to the bleeding disorders community! \nSaturday\, November 14\, 2020 | 4 PM to 6 PM \nAgenda – \n\nWelcome/Introductions\nHealth Policy in the Intersection of Policy and Politics – Del. Dawn Adams (D\, 68th)\nVirginia Bleeding Disorder Program (VBDP) Update – Jan Kuhn RN\, MPH\, Coordinator of VBDP\nState Update AND What Can We Expect in 2021 General Assembly – Becky Bowers-Lanier\, VHF/HACA Advocacy Consultant\nFederal Update – Miriam Goldstein\, J.D\, Director of Policy at Hemophilia Federation of America (HFA)/Nathan Schaefer\, Vice President of Public Policy at National Hemophilia Foundation (NHF)\nWrap-Up\n\nThank you to our advocacy sponsors: Bayer\, CSL Behring\, CVS Caremark\, Genentech\, National Hemophilia Foundation (NHF)\, PhRMA\, Pfizer\, Sanofi Genzyme\, and Takeda \nWe could not provide these important events without the help of our generous sponsors – please go here to view our Virtual Sponsor Program. This program is one way our generous sponsors can virtually connect with the community by providing links to their electronic resources\, brochures\, websites\, social media sites and more!
URL:https://vahemophilia.org/event-program/vhf-haca-virtual-advocacy-stakeholder-and-education-meeting/
LOCATION:Zoom
CATEGORIES:advocacy,education
ATTACH;FMTTYPE=image/jpeg:https://vahemophilia.org/wp-content/uploads/2020/09/49070330053_1e501533f5_o.jpg
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200512T190000
DTEND;TZID=America/New_York:20200512T200000
DTSTAMP:20260408T090056
CREATED:20200424T174936Z
LAST-MODIFIED:20200424T182132Z
UID:4099-1589310000-1589313600@vahemophilia.org
SUMMARY:HACA/VHF Advocacy Committee Virtual Chat
DESCRIPTION:Join the HACA/VHF advocacy committee for a virtual chat! \nAdvocacy Amid Upheaval: Making it Work \nJoin Miriam Goldstein\, HFA Director of Policy\, and Becky Bowers-Lanier\, advocacy consultant for HACA and VHF\, for a webinar devoted to advocacy in our newly configured COVID world. Join us as we share what we’ve learned since mid-March and how we can maintain our voice when we cannot physically be present. We’ll talk about strategies and answer your questions. \n All virtual chats will be recorded if you are unable to join us live online. When you register you will receive instructions on how to join in\, either by video conference or by phone call. Please join us! \n\n» Go Here to Register
URL:https://vahemophilia.org/event-program/haca-vhf-advocacy-committee-virtual-chat/
LOCATION:Online
CATEGORIES:advocacy,education,virtual chat
ORGANIZER;CN="Kelly Waters%2C VHF Executive Director":MAILTO:info@vahemophilia.org
END:VEVENT
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