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X-WR-CALDESC:Events for Virginia Bleeding Disorders Foundation
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DTSTART;TZID=UTC:20221103T180000
DTEND;TZID=UTC:20221103T190000
DTSTAMP:20260405T094150
CREATED:20220901T183834Z
LAST-MODIFIED:20221004T161423Z
UID:6124-1667498400-1667502000@vahemophilia.org
SUMMARY:Virtual - Women’s Education + Connection "A Pathway for Best Care: The Reproductive Years"
DESCRIPTION:RSVP HERE\n \nParticipants will enjoy meaningful education and time to gather and share with other people who encounter similar challenges. This virtual session is free and open to women age 18 and up with inherited bleeding disorders and/or to women whose lives are impacted by a bleeding disorder (i.e. caregivers\, spouses\, immediate family members). \nTopic: A Pathway for Best Care: The Reproductive Years \nIn this session\, attendees will learn about how to identify the symptoms of a bleeding disorder and how to effectively manage the onset of menorrhagia\, family planning and childbirth. \nPresenter: Dr. Sarah O’Brien\, Pediatric Hematologist at Nationwide Children’s Hospital \nDr. Sarah O’Brien is a pediatric hematologist at Nationwide Children’s Hospital and an Associate Professor of Pediatrics at The Ohio State University College of Medicine. She serves as the Director of Experimental Therapeutics for the Division of Pediatric Hematology/Oncology/BMT and also leads a multi-disciplinary young women’s hematology clinic at Nationwide Children’s Hospital. Her clinical and research interests include the evaluation and diagnosis of mild bleeding disorders\, pediatric thrombosis and thromboprophylaxis\, and the intersections between hematology and women’s health. \n\n» RSVP HERE \nOnce you RSVP you will receive the zoom link separately via email from heather@vahemophilia.org. \n\nThis education program is presented in partnership with Hemophilia Federation of America (HFA). \n 
URL:https://vahemophilia.org/event-program/womens-virtual-education-connection-a-pathway-for-best-care-the-reproductive-years/
LOCATION:Zoom
CATEGORIES:community,education,virtual
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20221109T160000
DTEND;TZID=UTC:20221109T180000
DTSTAMP:20260405T094150
CREATED:20220901T143421Z
LAST-MODIFIED:20221104T201150Z
UID:6118-1668009600-1668016800@vahemophilia.org
SUMMARY:VIRTUAL - VHF/HACA Advocacy Stakeholder and Education Meeting
DESCRIPTION:RSVP HERE\nJoin constituents\, advocacy committee members\, and community stakeholders from throughout Virginia for an education meeting that will cover a wide range of advocacy topics relevant to the bleeding disorders community! \nMEETING AGENDA \nState Update AND What Can We Expect in 2023 General Assembly Becky Bowers-Lanier\, VHF/HACA Advocacy Consultant and Heidi Dix\, Senior Vice President of Policy\, Virginia Association of Health Plans \nVirginia Bleeding Disorder Program (VBDP) Update Lauren Dunn\, Health Insurance Consultant\, VA Bleeding Disorders Program \nFederal Update Miriam Goldstein\, J.D\, Director of Policy at Hemophilia Federation of America (HFA)\, Nathan Schaefer\, MSW\, VP of Public Policy at National Hemophilia Foundation (NHF)\, and Matt Delaney\, Government Relations Specialist at National Hemophilia Foundation (NHF) \n» RSVP HERE Once you RSVP you will receive the zoom link separately via email from heather@vahemophilia.org.  \n\nThank you to our sponsors: Genentech\, National Hemophilia Foundation (NHF)\, Pfizer\, PhrMA\, Takeda and We Work For Health \n\nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/vhf-haca-virtual-advocacy-stakeholder-and-education-meeting-3/
LOCATION:Zoom
CATEGORIES:advocacy,community,education,virtual
ORGANIZER;CN="Kelly Waters%2C VHF Executive Director":MAILTO:info@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20221210T110000
DTEND;TZID=UTC:20221210T130000
DTSTAMP:20260405T094150
CREATED:20220901T194643Z
LAST-MODIFIED:20221201T190839Z
UID:6127-1670670000-1670677200@vahemophilia.org
SUMMARY:RICHMOND - Winter Gathering at Dave & Buster's
DESCRIPTION:RSVP HERE FOR RICHMOND ONLY\nCome celebrate the winter season with your bleeding disorders community at Dave & Buster’s in RICHMOND. There will be food\, education and good times with your friends and family! \nThis event is limited to constituents that live within the VHF coverage area and their immediate family and/or household members. There is no fee to attend and space is limited. \nAs a reminder there will be no visits from Santa or gifts this year but we will supply $15 power play cards to use at Dave & Busters. \n» RSVP HERE BY NOVEMBER 28TH FOR RICHMOND WINTER GATHERING \n\nThank you to our sponsors: Bayer\, CSI Pharmacy\, CSL Behring\, DrugCo Health\, Hemophilia Federation of America (HFA)\, Superior Biologics and Takeda \nThank you to our Family Fun and Connections Sponsor Colburn-Keenan Foundation for providing the power play cards! \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/richmond-winter-gathering-at-dave-busters/
LOCATION:Dave & Busters Richmond\, 4001 Brownstone Blvd.\, Glen Allen\, VA\, 23060\, United States
CATEGORIES:community,education
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230117
DTEND;VALUE=DATE:20230222
DTSTAMP:20260405T094150
CREATED:20221104T203759Z
LAST-MODIFIED:20221108T145525Z
UID:6180-1673913600-1677023999@vahemophilia.org
SUMMARY:VIRTUAL - Virginia General Assembly Weekly Check In
DESCRIPTION:RSVP HERE\n  \nJoin VHF & Hemophilia Association of the Capital Area (HACA) for a quick weekly General Assembly check-in. We will gather to get an overview of the past week’s events in the Virginia General Assembly and get insight from our advocacy consultant\, Becky Bowers-Lanier\, on what to look for\, trends and any actions that will need to be taken about proposed legislation of interest to the bleeding disorders community. \nPlease note that these are informal weekly check-ins and if you register you are not required to attend all dates listed – feel free to join us for one session or for all! \nWEEKLY CHECK IN DATES: \nTues.\, Jan 17\, 2023  4:30 PM\nTues.\, Jan 31\, 2023  4:30 PM\nTues.\, Feb 7\, 2023    4:30 PM\nTues.\, Feb 14\, 2023  4:30 PM\nTues.\, Feb 21\, 2023  4:30 PM \n» RSVP HERE Once you RSVP you will receive a zoom link separately via email from heather@vahemophilia.org – you will use the same link each week. \n\nAs we gather virtually to discuss\, share and learn\, we ask that all VHF virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/virtual-virginia-general-assembly-weekly-check-in/
LOCATION:Zoom
CATEGORIES:advocacy,community,education,virtual
ORGANIZER;CN="Kelly Waters%2C VHF Executive Director":MAILTO:info@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20230119T183000
DTEND;TZID=UTC:20230119T203000
DTSTAMP:20260405T094150
CREATED:20220901T195049Z
LAST-MODIFIED:20230103T202421Z
UID:6129-1674153000-1674160200@vahemophilia.org
SUMMARY:VIRGINIA BEACH - Educational Dinner at Dave & Buster's
DESCRIPTION:RSVP HERE\nJoin your bleeding disorder community for an educational dinner program for VHF constituents (and their immediate family and/or household members only). \nWhat to Expect: During this education session Doctor Michael Zolotnisky\, PT\, DPT\,  will discuss topics important to the bleeding disorders community such as maintaining joint health\, KT taping\, physical fitness\, wellness and several other fitness related topics. After the education session there will be plenty of time for discussion\, catching up\, and enjoying games with your family and friends! Dinner and power cards to Dave & Buster’s will be provided and there is no fee to attend. \n\n		\n			\n				\n			\n			\n		 \n		\n			Michael Zolotnisky\, PT\, DPT\, is a physical therapist and the Clinical Director at NJ Spine and Wellness in Morganville\, New Jersey. He is currently leading the neurological department to treat various conditions including\, but not limited to concussions\, multiple sclerosis\, stroke\, and Parkinson’s disease. Dr. Zolotnisky was born in Italy\, grew up in Brooklyn\, New York\, and currently resides in Morganville\, New Jersey. He received his Doctorate of Physical Therapy from Chatham University in Pittsburgh\, Pennsylvania\, in December of 2014. Dr. Zolotnisky is attaining his vestibular certification to further improve complaints of dizziness\, headaches\, and all balance dysfunction. He prides himself on performing high-level balance activities to include walking with eyes closed and on uneven surfaces\, and he loves to incorporate boxing to further challenge his patients. In addition to neurological treatment\, Dr. Zolotnisky utilizes the Mulligan Concept to perform pain-free physical therapy that immediately improves function. He offers a personalized aquatic therapy program for indoor and outdoor pool settings. Dr. Zolotnisky has completed three half marathons in one year and offers running tips as well as gym strategies. In addition\, he is a national speaker for the Hemophilia community\, speaking to various groups in the bleeding disorder family.\n		\n			\n		   \nSpace is limited and priority will be given to those members that live in the Tidewater Region. \nThank you to our sponsor Octapharma. \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/virginia-beach-winter-gathering-at-dave-busters/
LOCATION:Dave & Busters at Lynnhaven Mall\, 701 Lynnhaven Parkway\, Suite G19\, Virginia Beach\, VA\, 23452\, United States
CATEGORIES:community,education
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230124T190000
DTEND;TZID=America/New_York:20230124T200000
DTSTAMP:20260405T094150
CREATED:20221104T200135Z
LAST-MODIFIED:20221107T183700Z
UID:6178-1674586800-1674590400@vahemophilia.org
SUMMARY:VIRTUAL - VHF & HACA Advocacy Education Meeting
DESCRIPTION:RSVP HERE\n  \nJoin VHF & Hemophilia Association of the Capital Area (HACA) for a virtual advocacy education program that will focus on the 2023 Virginia General Assembly. Join in and hear details from advocacy consultant\, Becky Bowers-Lanier\, about proposed legislation of interest to the bleeding disorders community\, its partners and other stakeholders. \nYou will also learn more about the VHF/HACA legislative updates that will occur weekly via zoom during the 2023 General Assembly session and how you might be able to get more involved »Go here to learn more. \nThis session is free and open to anyone interested in learning more about advocacy and how it relates to the Virginia inherited bleeding disorders community. \n\n»RSVP HERE once you RSVP you will receive the zoom link separately via email from heather@vahemophilia.org.  \n\nAs we gather virtually to discuss\, share and learn\, we ask that all Virginia Hemophilia Foundation (VHF) virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. »Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/vhf-haca-virtual-advocacy-education-meeting-2/
LOCATION:Zoom
CATEGORIES:advocacy,community,education,virtual
ORGANIZER;CN="Kelly Waters%2C VHF Executive Director":MAILTO:info@vahemophilia.org
END:VEVENT
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