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X-WR-CALDESC:Events for Virginia Bleeding Disorders Foundation
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DTSTART;TZID=America/New_York:20220625T090000
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DTSTAMP:20260503T093948
CREATED:20220404T193252Z
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UID:5979-1656147600-1656172800@vahemophilia.org
SUMMARY:Annual Meeting - Community Member Registration
DESCRIPTION:RSVP HERE\n  \nVHF’s Annual Meeting brings together the inherited bleeding disorder community to share information on a wide variety of topics and it is a great opportunity for networking and support for individuals and families. \n» Go here to view the meeting agenda \nAnnual Meeting Highlights and Sessions Include: Understanding all sides – Keys to effective grassroots advocacy on the state and federal level\, Looking from the Outside in: Musculoskeletal Ultrasound\, Strategies for Managing Child\, Adolescent\, and Caregiver Mental Health\, Aging as a Person with a Bleeding Disorder and more; Lyman Fisher Scholarship recognition; VHF chapter updates; and on-site children and teen programming with Camp Holiday Trails. \nSaturday\, June 25th | 10:00 am: Annual Meeting will begin (light refreshments starting at 9:00 am and meeting will conclude by 4:00 pm) \n\nYou Do Not Want To Miss our Community Event – Richmond Flying Squirrels Baseball Game on Sunday\, June 26th! » Go here to learn more and register *Community event is optional and is not a part of the annual meeting. \nOvernight accommodations at Virginia Crossings Hotel & Conference Center are available on Saturday\, June 25th. Educational programs\, scheduled meals\, community events\, and overnight accommodations are provided at no cost for constituents that live in the VHF coverage area. There is a $25 registration fee per household (after you register you will receive a link to pay your fee.) \nIf you are a constituent that lives outside of the VHF coverage area and you are interested in registering for this meeting\, please email heather@vahemophilia.org for more information. \n\nThank you to our sponsors –  \nPremier Sponsors\nPfizer and Takeda \nPlatinum Sponsors\nAccredo\, Bayer\, CSL Behring\, Genentech\, HemaBiologics\, Octapharma\, Sanofi\, and Spark Therapeutics \nCorporate Sponsors\nBioMarin\, BioMatrix\, Children’s Hospital of The King’s Daughter’s (CHKD) and the University of Virginia’s (UVA) 340B Factor Program\, CVS Specialty Pharmacy\, DrugCo Health\, NovoNordisk\, and Optum \nFriends – National Hemophilia Foundation (NHF)
URL:https://vahemophilia.org/event-program/annual-meeting-community-member-registration-2/
LOCATION:Virginia Crossings Hotel\, Tapestry Collection by Hilton\, 1000 Virginia Center Pkwy\, Glen Allen\, VA\, 23059\, United States
CATEGORIES:advocacy,community,education
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
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