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X-WR-CALNAME:Virginia Bleeding Disorders Foundation
X-ORIGINAL-URL:https://vahemophilia.org
X-WR-CALDESC:Events for Virginia Bleeding Disorders Foundation
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DTSTART;TZID=America/New_York:20220813T100000
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DTSTAMP:20260413T054257
CREATED:20220518T191313Z
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UID:6035-1660384800-1660392000@vahemophilia.org
SUMMARY:Community Picnic - Deep Run Park
DESCRIPTION:RSVP HERE\nCome Celebrate Summer with your bleeding disorders community! Join us for a fun filled educational picnic\, community building and try out recreational tree climbing – a one-of-a-kind adventure for you and your family! \nEducation Session: Adapting Physical Activities for Joint Health \nThis session discusses the importance of physical activity and introduces ways to adapt activities to participant’s individual physical condition. This session includes exercise demonstrations.  \nPresenter: Marc Gilgannon\, PT \nWhat to expect if you choose to try tree climbing: Experience trees from a whole new perspective! Participants will ascend into the tree canopy using arborist-style rope climbing systems. They will wear helmets\, and be harnessed in and on belay by an instructor while climbing. Climbing is always challenge-by-choice: participants can decide to come down at any point. Recommendations on what to wear/bring: gloves – well fitted gardening-style with a rubberized palm (helps grip the rope)\, closed-toe shoes (high top preferred)\, long pants or longer shorts\, (short-shorts will be uncomfortable with the harness). » Go here to learn more about Riverside Outfitters and Recreational Tree Climbing \nEvent is limited to VHF constituents (and their immediate family and/or household members only). There is no fee to attend. \nThank you to our sponsors: Accredo\, BioMatrix\, CSL Behring\, Takeda\, Genentech\, Hemophilia Federation of America (HFA)\, and Hoos at Home \n\n» RSVP HERE
URL:https://vahemophilia.org/event-program/community-event-richmond-save-the-date/
LOCATION:Deep Run Park\, 9900 Ridgefield Pkwy\, Richmond\, VA\, 23233
CATEGORIES:community
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
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DTSTART;TZID=UTC:20220818T183000
DTEND;TZID=UTC:20220818T193000
DTSTAMP:20260413T054257
CREATED:20220801T144457Z
LAST-MODIFIED:20220801T151114Z
UID:6092-1660847400-1660851000@vahemophilia.org
SUMMARY:Education + Connection "Laughing Through Stress"
DESCRIPTION:RSVP HERE\n \nJoin us for an educational program for VHF constituents (and their immediate family and/or household members only). Dinner will be provided and there is no fee to attend. \nThe presentation theme will be: Laughing Through Stress \nSpeaker: Lori K.\, CSL Behring Common Factors Advocate and Caregiver to 3 sons and 1 granddaughter with hemophilia \nLori K. Bio: When our first child\, Jeff\, was born\, the umbilical cord was wrapped around his neck and his delivery was traumatic for both of us. Then Jeff’s newborn heel prick wouldn’t stop bleeding and his head began to swell. He was whisked out of my arms to a neonatal ICU unit in another hospital. Three days later doctors diagnosed him with severe hemophilia A. My husband and I were shocked—we didn’t even know what hemophilia was! Thankfully\, we were immediately introduced to the expertise and support of a hemophilia treatment center and the bleeding disorder community. Refusing to let hemophilia consume us\, we stashed it in the back seat and fulfilled our dream of having three children\, all of whom just happen to need a little extra help with blood clotting. \nToday our three sons are happy\, successful adults with lives of their own. Now I enjoy spending time with my grandchildren\, including my granddaughter who was also diagnosed with hemophilia A. \nSpace is limited and priority will be given to those members that live in the South West Virginia Region. \n\nThank you to our sponsor CSL Behring.
URL:https://vahemophilia.org/event-program/education-connection-laughing-through-stress/
LOCATION:Montano’s Restaurant\, 3733 Franklin Rd SW\, Roanoke\, VA\, 24014\, United States
CATEGORIES:community,education
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
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