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X-WR-CALNAME:Virginia Bleeding Disorders Foundation
X-ORIGINAL-URL:https://vahemophilia.org
X-WR-CALDESC:Events for Virginia Bleeding Disorders Foundation
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DTSTART;VALUE=DATE:20240116
DTEND;VALUE=DATE:20240306
DTSTAMP:20260428T000123
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LAST-MODIFIED:20231219T210932Z
UID:6545-1705363200-1709683199@vahemophilia.org
SUMMARY:VIRTUAL – Virginia General Assembly Weekly Check In
DESCRIPTION:RSVP HERE\n  \nJoin VHF & the Hemophilia Association of the Capital Area (HACA) for an informal\, virtual General Assembly check-in. We will gather to get an overview of the past week’s events in the Virginia General Assembly and get insight from our advocacy consultant\, Becky Bowers-Lanier\, on what to look for\, trends and any actions that will need to be taken about proposed legislation of interest to the bleeding disorders community. These check-ins are open to all community members. \nPlease note that these are informal weekly check-ins and if you register you are not required to attend all dates listed – feel free to join us for one session or for all! \nWEEKLY CHECK IN DATES: \nTues.\, Jan 16\, 2024  4:30 PM\nTues.\, Feb 6\, 2024   4:30 PM\nTues.\, Feb 13\, 2024  4:30 PM\nTues.\, Feb 20\, 2024  4:30 PM\nTues.\, Feb 27\, 2024  4:30 PM\nTues.\, March 5\, 2024  4:30 PM \n» RSVP HERE Once you RSVP you will receive a zoom link separately via email from heather@vahemophilia.org – you will use the same link each week. \n» Go here to download the 2024 VHF Advocacy Calendar \n\nAs we gather virtually to discuss\, share and learn\, we ask that all VHF virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement.
URL:https://vahemophilia.org/event-program/virtual-virginia-general-assembly-weekly-check-in-2/
LOCATION:Zoom
ORGANIZER;CN="Kelly Waters%2C VHF Executive Director":MAILTO:info@vahemophilia.org
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DTSTART;TZID=America/New_York:20240303T110000
DTEND;TZID=America/New_York:20240303T140000
DTSTAMP:20260428T000123
CREATED:20240206T001409Z
LAST-MODIFIED:20240304T004745Z
UID:6591-1709463600-1709474400@vahemophilia.org
SUMMARY:RICHMOND – Bleeding Disorders Awareness Month Community Event at Topgolf
DESCRIPTION:RSVP Here!\nGet active with your bleeding disorders community and help us to tee off Bleeding Disorders Awareness Month! Join VHF on Sunday\, March 3rd in RICHMOND for education\, celebration\, community building and opportunities to enhance health and fitness at Richmond Topgolf. We look forward to exploring how you can take charge of your bleeding disorder and life\, while having fun learning about the game of golf. \nEvent is free – lunch and two hours of golf will be provided. Participation is limited to those with an inherited bleeding disorder and their immediate family and/or household members who live within VHF territory. \nWith special guest Perry Parker! \nJoin Pro Golfer Perry Parker as he discusses finding your passion and working hard to meet your goals. Perry is a patient advocate for CSL Behring\, who has taken part in three U.S. Opens and won five times on the Canadian Tour in a more than 30 years as a professional golfer. Perry continues to be active on the Australian Legends Tour and European senior tours. He also hosts an annual clinic for kids taking part in CSL Behring’s Gettin’ in the Game℠ Junior National Championship\, a sports competition for kids and teens with bleeding disorders. Perry also will provide some golf tips at the driving range. \n\nThank you to our generous sponsors: BioMarin\, CSL Behring\, Genentech\, Novo Nordisk\, and Sanofi \n\nIn-Person Events: Covid-19 Safety Guidance: For all in-person events VHF will follow CDC guidance for COVID-19 safety and prevention. This policy can be found here and will continue to be updated as CDC guidance changes. Please read and contact VHF with any questions or concerns at 804-740-8643 or info@vahemophilia.org.
URL:https://vahemophilia.org/event-program/richmond-bleeding-disorders-awareness-month-community-event-at-topgolf/
LOCATION:Topgolf Richmond\, 2308 Westwood Ave\, Richmond\, Virginia\, 23230
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
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