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X-WR-CALNAME:Virginia Bleeding Disorders Foundation
X-ORIGINAL-URL:https://vahemophilia.org
X-WR-CALDESC:Events for Virginia Bleeding Disorders Foundation
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DTSTART;TZID=America/New_York:20220625T090000
DTEND;TZID=America/New_York:20220625T160000
DTSTAMP:20260415T084606
CREATED:20220404T193252Z
LAST-MODIFIED:20220617T160253Z
UID:5979-1656147600-1656172800@vahemophilia.org
SUMMARY:Annual Meeting - Community Member Registration
DESCRIPTION:RSVP HERE\n  \nVHF’s Annual Meeting brings together the inherited bleeding disorder community to share information on a wide variety of topics and it is a great opportunity for networking and support for individuals and families. \n» Go here to view the meeting agenda \nAnnual Meeting Highlights and Sessions Include: Understanding all sides – Keys to effective grassroots advocacy on the state and federal level\, Looking from the Outside in: Musculoskeletal Ultrasound\, Strategies for Managing Child\, Adolescent\, and Caregiver Mental Health\, Aging as a Person with a Bleeding Disorder and more; Lyman Fisher Scholarship recognition; VHF chapter updates; and on-site children and teen programming with Camp Holiday Trails. \nSaturday\, June 25th | 10:00 am: Annual Meeting will begin (light refreshments starting at 9:00 am and meeting will conclude by 4:00 pm) \n\nYou Do Not Want To Miss our Community Event – Richmond Flying Squirrels Baseball Game on Sunday\, June 26th! » Go here to learn more and register *Community event is optional and is not a part of the annual meeting. \nOvernight accommodations at Virginia Crossings Hotel & Conference Center are available on Saturday\, June 25th. Educational programs\, scheduled meals\, community events\, and overnight accommodations are provided at no cost for constituents that live in the VHF coverage area. There is a $25 registration fee per household (after you register you will receive a link to pay your fee.) \nIf you are a constituent that lives outside of the VHF coverage area and you are interested in registering for this meeting\, please email heather@vahemophilia.org for more information. \n\nThank you to our sponsors –  \nPremier Sponsors\nPfizer and Takeda \nPlatinum Sponsors\nAccredo\, Bayer\, CSL Behring\, Genentech\, HemaBiologics\, Octapharma\, Sanofi\, and Spark Therapeutics \nCorporate Sponsors\nBioMarin\, BioMatrix\, Children’s Hospital of The King’s Daughter’s (CHKD) and the University of Virginia’s (UVA) 340B Factor Program\, CVS Specialty Pharmacy\, DrugCo Health\, NovoNordisk\, and Optum \nFriends – National Hemophilia Foundation (NHF)
URL:https://vahemophilia.org/event-program/annual-meeting-community-member-registration-2/
LOCATION:Virginia Crossings Hotel\, Tapestry Collection by Hilton\, 1000 Virginia Center Pkwy\, Glen Allen\, VA\, 23059\, United States
CATEGORIES:advocacy,community,education
ORGANIZER;CN="Heather Conner%2C VHF Interim Director":MAILTO:heather@vahemophilia.org
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DTSTART;TZID=America/New_York:20220625T090000
DTEND;TZID=America/New_York:20220625T160000
DTSTAMP:20260415T084606
CREATED:20220404T195847Z
LAST-MODIFIED:20220606T190111Z
UID:5981-1656147600-1656172800@vahemophilia.org
SUMMARY:Annual Meeting – Sponsors and Speakers Registration
DESCRIPTION:RSVP HERE \nWe appreciate your interest and support of our 2022 Annual Meeting\, contact Kelly Waters at kelly@vahemophilia.org or 804-740-8643 for more information about sponsorship. Closer to the date of the event we will send a detailed email to all registered industry supporters and speakers. This email will include the agenda\, booth set up times\, what to bring\, how many people to expect\, etc. \nPLEASE NOTE: We will not make hotel reservations for speakers\, Industry Agents OR Industry Agents who are Consumers. However\, we do have a room block at the Virginia Crossings Hotel & Conference Center and they will extend the group rate of $119 a night for a King size room. \nTo make your reservation email your room request with the date of arrival and departure to mike.pramshafer@vacrossings.com\, and please include/cc this email address heather@vahemophilia.org please let us know if you have any issues or if you do not hear back from the hotel. \nFor Industry Agents who are Consumers and a VHF Constituent: If your family members plan to attend the meeting go here to register them. As a reminder we still ask that you register yourself as an industry representative and make your own hotel reservation. \nVHF makes every effort to ensure that the members of the bleeding disorders community are always able to make a clear distinction between its own activities and those of Industry. Further\, it is essential that we create beneficial and pressure – free experiences for our community members\, and to protect participants in VHF events and programs. Accordingly\, VHF has developed a set of standards. Go here to read VHF’s Industry Standards. \nThank you for your continued support!
URL:https://vahemophilia.org/event-program/annual-meeting-sponsors-and-speakers-registration-2/
LOCATION:Virginia Crossings Hotel\, Tapestry Collection by Hilton\, 1000 Virginia Center Pkwy\, Glen Allen\, VA\, 23059\, United States
ORGANIZER;CN="Kelly Waters%2C VHF Executive Director":MAILTO:info@vahemophilia.org
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