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X-WR-CALNAME:Virginia Bleeding Disorders Foundation
X-ORIGINAL-URL:https://vahemophilia.org
X-WR-CALDESC:Events for Virginia Bleeding Disorders Foundation
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DTSTART;VALUE=DATE:20200628
DTEND;VALUE=DATE:20200715
DTSTAMP:20260524T003218
CREATED:20200624T185103Z
LAST-MODIFIED:20200715T152138Z
UID:4318-1593302400-1594771199@vahemophilia.org
SUMMARY:HACA/VHF Teen Retreat Virtual Education Series
DESCRIPTION:Join the teens of the Hemophilia Association of the Capital Area (HACA) and the Virginia Hemophilia Foundation (VHF) for our Teen Retreat Virtual Education Series. \nThese educational opportunities are for teens age 13–17 who live within HACA/VHF territory and meet one of the following criteria: Have a bleeding disorder\, are the sibling of someone with a bleeding disorder and/or have a parent/caregiver with a bleeding disorder. Each session must be signed up for individually\, you do not have to sign up for all in order to participate. \n\nTEEN EDUCATION SESSION: \nDate/Time: Sunday\, June 28th at 2:00 pm \nTopic: Looking to the Future: Careers and How They are Evolving! \nPresenter: Kirstin Drye \nHACA member and human resources expert Kirstin Drye will lead a discussion about future career aspirations\, the possible role of your bleeding disorder\, and how the pandemic may influence your choices. There will also be fun games and opportunities to connect with your peers. \nRSVP Here \n\nTEEN SESSIONS DURING CAMP YOUNGBLOOD:  \nDate(s): Monday\, July 6th – Friday\, July 10th \nJoin VHF\, HACA and Camp Holiday Trails (CHT) for exclusive virtual sessions for teens! Program Director McKenzie has planned fun live and recorded activities so you can bring the magic of Camp home. There will be a teens only hangout\, virtual campfire and more. \nIf your teen would like to have access to this week of content\, please go to the link below to fill out the CHT waiver and sign up for virtual programming! Filling out the waiver is mandatory for families who would like to participate. If you have any questions\, please feel free to contact McKenzie at program@campholidaytrails.org or 434-960-1377. \nGo Here to Fill Out CHT’s Waiver  \n\nTEEN ADVOCACY SESSION: \nDate/Time: Tuesday\, July 14th at 7:00 pm \nTopic: Virtual Reality: Advocacy Meetings in the Age of Zoom \nJoin the HACA/VHF advocacy committee for an interactive discussion on the how-to’s of setting up and leading a virtual advocacy call with your legislator! This virtual chat is designed for adults\, as well as VHF/HACA teens age 13–17. \nRSVP Here \n\nAs we gather virtually to discuss\, share and learn\, we ask that all VHF virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement. \nThank you to our Teen Retreat Sponsors: Accredo\, Genentech\, Novo Nordisk\, Pfizer and Takeda
URL:https://vahemophilia.org/event-program/haca-vhf-teen-retreat-virtual-education-series/
LOCATION:Online
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20200706
DTEND;VALUE=DATE:20200711
DTSTAMP:20260524T003218
CREATED:20200624T204742Z
LAST-MODIFIED:20200625T202547Z
UID:4327-1593993600-1594425599@vahemophilia.org
SUMMARY:HACA/VHF Family Retreat Virtual Education Series
DESCRIPTION:Join the families of the Hemophilia Association of the Capital Area (HACA) and the Virginia Hemophilia Foundation (VHF) for our Family Retreat Virtual Education Series. \nThese educational opportunities are for families who live within HACA/VHF territory. Each session must be signed up for individually\, you do not have to sign up for all in order to participate. These sessions are free and open to VHF constituents\, any constituent under the age of 12 will need adult supervision to participate. \n\nFAMILY EDUCATION WEBINAR: \nDate/Time: Tuesday\, July 7th at 7:00 pm \nTopic: Setting Educational Expectations \nPresenter: Xaviette Pointer-Kincy\, M.Ed\, Community Relations and Education Manager for Sanofi Genzyme for the WV\, VA\, DC area \nEver wonder how to build an academic plan for your child? We’ll explore the world of education for a child with a bleeding disorder\, including the impact of setting expectations at home and having a proactive relationship with your child’s school. Recognizing that we may experience guilt\, social obstacles\, and absenteeism\, we’ll discuss ways to help establish clear goals\, positive routines\, individualized health care plans\, and a cycle of responsibility and self-advocacy. \nRSVP Here \n\nFAMILY SESSIONS DURING CAMP YOUNGBLOOD:  \nDate(s): Monday\, July 6th – Friday\, July 10th \nJoin VHF\, HACA and Camp Holiday Trails (CHT) for exclusive virtual sessions in honor of Camp Youngblood and Family Camp! Program Director McKenzie has planned fun live and recorded activities so you can bring the magic of Camp home. You won’t want to miss the infusion clinic scheduled for Tuesday and be sure to gather with us on Thursday for the virtual campfire. \nIf your family would like to have access to this week of content\, please go to the link below to fill out the CHT waiver and sign up for virtual programming! Filling out the waiver is mandatory for families who would like to participate. If you have any questions\, please feel free to contact McKenzie at program@campholidaytrails.org or 434-960-1377. \nGo Here to Fill Out CHT’s Waiver  \n\nAs we gather virtually to discuss\, share and learn\, we ask that all VHF virtual program participants be thoughtful in their interactions and follow video meeting etiquette and rules of engagement. Disruptions to a session may lead to the removal and/or disabling of the participant’s video and microphone for part of or for the entire session. Thank you for helping VHF ensure a safe\, productive\, and welcoming environment for all meeting participants and staff. Go here to read video meeting etiquette and rules of engagement. \nThank you to our Family Camp Sponsors: Genentech\, Hemophilia Federation of America\, NovoNordisk\, Sanofi Genzyme\, Takeda
URL:https://vahemophilia.org/event-program/family-retreat-virtual-education-series/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20200706
DTEND;VALUE=DATE:20200711
DTSTAMP:20260524T003218
CREATED:20191101T144403Z
LAST-MODIFIED:20200624T205208Z
UID:3565-1593993600-1594425599@vahemophilia.org
SUMMARY:HACA/VHF Virtual Camp Youngblood
DESCRIPTION:We are excited to announce that the week of Monday\, July 6th – Friday\, July 10th\, Camp Holiday Trails (CHT) will offer exclusive virtual programming in honor of Camp Youngblood! You do not want to miss out on this exclusive content for VHF/HACA families and campers such as a virtual campfire\, an online infusion clinic\, and much more! \nIf your family is affiliated with VHF or HACA and would like to have access to this week of content in addition to CHT’s other virtual programming all summer long\, please go to this link to fill out the CHT waiver and sign up for virtual programming! Filling out the waiver is mandatory for families who would like to participate. \nIf you have any questions\, please feel free to contact McKenzie at program@campholidaytrails.org or 434-960-1377. \nThank you to our Camp Youngblood Sponsors: Accredo\, CSL Behring\, CVS Health\, Genentech\, Grifols\, Hoos at Home\, NovoNordisk\, Queen of Virginia Skill and Entertainment LLC\, Pfizer\, Takeda \n\n\n\nThe 2020 in-person session of Camp Youngblood has been suspended. Please go here to read the letter from our partner\, Camp Holiday Trails.
URL:https://vahemophilia.org/event-program/2020-haca-vhf-camp-youngblood/
LOCATION:Camp Holiday Trails\, 400 Holiday Trails Lane\, Charlottesville\, VA\, 22903
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