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Growing up in the 1980s, childhood would be complicated for Heather Brinkley. Both of her brothers, William and Aaron, have Hemophilia Factor IX severe. “When the boys would have a bleed it meant a trip to the emergency room for treatment. They were treated on-demand...2020 General Assembly
Becky Bowers-Lanier | VHF & HACA Advocacy Consultant At the time of this writing, the 2020 General Assembly is about to adjourn its “long” (60 day) session until the Assembly returns for the “reconvened” one-day session April 22nd. It’s been a session of firsts:...NATIONAL HEMOPHILIA FOUNDATION (NHF) WASHINGTON DAYS
Over 450 advocates from around the country gathered in Washington D.C. for NHF’s Annual Washington Days. This year our travel grant recipients and their families advocated for Congress to continue to support the funding for the federal hemophilia programs through the...March is Bleeding Disorders Awareness Month and YOU can help the VHF community stay strong!
Don Smith’s parents were caught completely off guard when he was diagnosed with hemophilia A, severe factor VIII deficiency. Growing up without a family history of bleeding disorders, Don and his family “found themselves in the deep end of a pool of mystery!” His...Newsletter Sign Up
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